I'm Home and ready to Leave again..

[Guest guest]

Hi all, just wanted to update you on what I found out at Stanford on Friday.

I had a High Resolution CT Scan of my chest. Then I saw the Heart dr. My

valves look fine right now (lets hope they stay that way forever) lOL They

checked the results of the CT scan and it showed something in the small

airways... not the larger ones, so they sent me down to have it redone on my

stomach instead of my back... LOl They referred me to a pulmonologist so

will wait for that appt. Am seeing a rheumy there tomorrow morning so I am

leaving tonight again. I go back on the 3rd to see the ENT. and have one

more test scheduled (an ultra sound to check for aortic aneurism) They don't

suspect one just checking to cover all bases. I will see the Heart dr again

in May for another echo to keep track of my valves.

He is a wonderful man... He is from land and is SOOO interested in RP.

He told me when I left the his goal is to be as well educated on Rp as I

am..I told him I would help him in any way. LOL Will continue to send him

any news we find. Wish he could have been the rheumy. LOL

Well, that's about all here... Have to go pack again...Will leave around 2pm

and be home tomorrow... Never know when.. I spent 8 hours there on Friday...

LOl Hopefully I will be home early tomorrow... Will let you know what I find

out.

Love and hugs to you all

[Guest guest]

Hi all, just wanted to update you on what I found out at Stanford on Friday.

I had a High Resolution CT Scan of my chest. Then I saw the Heart dr. My

valves look fine right now (lets hope they stay that way forever) lOL They

checked the results of the CT scan and it showed something in the small

airways... not the larger ones, so they sent me down to have it redone on my

stomach instead of my back... LOl They referred me to a pulmonologist so

will wait for that appt. Am seeing a rheumy there tomorrow morning so I am

leaving tonight again. I go back on the 3rd to see the ENT. and have one

more test scheduled (an ultra sound to check for aortic aneurism) They don't

suspect one just checking to cover all bases. I will see the Heart dr again

in May for another echo to keep track of my valves.

He is a wonderful man... He is from land and is SOOO interested in RP.

He told me when I left the his goal is to be as well educated on Rp as I

am..I told him I would help him in any way. LOL Will continue to send him

any news we find. Wish he could have been the rheumy. LOL

Well, that's about all here... Have to go pack again...Will leave around 2pm

and be home tomorrow... Never know when.. I spent 8 hours there on Friday...

LOl Hopefully I will be home early tomorrow... Will let you know what I find

out.

Love and hugs to you all

[Guest guest]

,

You are such a sweet person!!! Thanks for keeping up with me. My Mom is doing better, and she is leaving to go to the hospital in Houston TX tomorrow. It is 1 1/2 hrs from here, and my Dad took a week vacation. So with my Dad there she is going to be in good hands. Plus her doctor is there, and it will be better instead orders over the phone. I will be praying for you, I hope that there is nothing in your airways. I hate watching Mom struggle to breath. Do you have trouble breathing??? I hope you feel ok, and will be thinking & praying for you. I will be waiting to hear your results. Also I am getting my Mom a medical bracelet too. I read your response on it.....I didn't even think about one for her. Now she will have me nagging to her about getting one.

Take Care!!!!!! love,

Kim

[Guest guest]

,

You are such a sweet person!!! Thanks for keeping up with me. My Mom is doing better, and she is leaving to go to the hospital in Houston TX tomorrow. It is 1 1/2 hrs from here, and my Dad took a week vacation. So with my Dad there she is going to be in good hands. Plus her doctor is there, and it will be better instead orders over the phone. I will be praying for you, I hope that there is nothing in your airways. I hate watching Mom struggle to breath. Do you have trouble breathing??? I hope you feel ok, and will be thinking & praying for you. I will be waiting to hear your results. Also I am getting my Mom a medical bracelet too. I read your response on it.....I didn't even think about one for her. Now she will have me nagging to her about getting one.

Take Care!!!!!! love,

Kim