RE: Evening- I have Questions

[Guest guest]

Glenda, Gosh don't you think it's time to stop all this!!! LOl I'm so sorry

that you are having so many problems right now.... I don't know anything

about eye flares... I know that mine get real red but never hurt and go away

on their own.. With the Sorjgrens, they are always dry and I have to use

drops.

No wonder your BP is so high.... too many trips to the dr. LOL You know I'm

just kidding girl... I love you to pieces and want you better... Keep us

posted..

know you're in my thoughts and prayers all the time.

hugs

[Guest guest]

Glenda, Gosh don't you think it's time to stop all this!!! LOl I'm so sorry

that you are having so many problems right now.... I don't know anything

about eye flares... I know that mine get real red but never hurt and go away

on their own.. With the Sorjgrens, they are always dry and I have to use

drops.

No wonder your BP is so high.... too many trips to the dr. LOL You know I'm

just kidding girl... I love you to pieces and want you better... Keep us

posted..

know you're in my thoughts and prayers all the time.

hugs

[Guest guest]

Glenda,

The only eye involvement I have had is conjunctivitis. My eyes get red and they hurt. With the crusting it sounds like an eye infection.

Is "pink eye" going around at Shae's school? My kids got it when they were in grade school.

Hugs,

Sandy

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Glenda,

The only eye involvement I have had is conjunctivitis. My eyes get red and they hurt. With the crusting it sounds like an eye infection.

Is "pink eye" going around at Shae's school? My kids got it when they were in grade school.

Hugs,

Sandy

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi ,

Welcome! Looking forward to seeing more of your posts.

How long have you had RP.? What meds are you taking for it?

Am I being nosey here? LOLOL

Sandy

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi ,

Welcome! Looking forward to seeing more of your posts.

How long have you had RP.? What meds are you taking for it?

Am I being nosey here? LOLOL

Sandy

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Sandy,

Sorry for the delay in getting back to you. I was out of town and then we had computer problems (etc etc., excuses, excuses). Anyway, to answer your question, I was diagnosed with RP one year ago. I was very fortunate to be referred to a wonderful rheumatologist who is familiar with RP and diagnosed me immediately. I have eye flares (nodular episcleritis), ear flares and occasional joint point. I am on 10 mg of Methotrexate (weekly), folic acid (daily) and take colchicine twice a day at the first sign of a flare up. The Metho and Colchicine seem to have shortened the duration and frequency of the flares. Before I started taking the drugs the flares would last 7 to 10 days and now it's usually 2 to 4 days.

I also have renal involvement. My kidneys are functioning normally except for microscopic blood in the urine. I see a kidney specialist every few months to monitor the condition. He has me on blood pressure medicine (20 mg Lotensin) to help protect my kidneys. I saw him last Thursday and told him I'd found a RP group on the internet. He said he'd be interested to know how many of you have kidney involvement -- so if you do, let me know.

I am 39 years old, married with two children and live in San Diego, California. I have read most of the posts since I joined the group and I'm glad to have found such a friendly place to share and learn more about RP.

-----Original Message-----From: Sandy Catalusci Sent: Thursday, November 08, 2001 11:53 AMTo: Rpolychondritis Subject: Re: Evening- I have Questions

Hi ,

Welcome! Looking forward to seeing more of your posts.

How long have you had RP.? What meds are you taking for it?

Am I being nosey here? LOLOL

Sandy

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Sandy,

Sorry for the delay in getting back to you. I was out of town and then we had computer problems (etc etc., excuses, excuses). Anyway, to answer your question, I was diagnosed with RP one year ago. I was very fortunate to be referred to a wonderful rheumatologist who is familiar with RP and diagnosed me immediately. I have eye flares (nodular episcleritis), ear flares and occasional joint point. I am on 10 mg of Methotrexate (weekly), folic acid (daily) and take colchicine twice a day at the first sign of a flare up. The Metho and Colchicine seem to have shortened the duration and frequency of the flares. Before I started taking the drugs the flares would last 7 to 10 days and now it's usually 2 to 4 days.

I also have renal involvement. My kidneys are functioning normally except for microscopic blood in the urine. I see a kidney specialist every few months to monitor the condition. He has me on blood pressure medicine (20 mg Lotensin) to help protect my kidneys. I saw him last Thursday and told him I'd found a RP group on the internet. He said he'd be interested to know how many of you have kidney involvement -- so if you do, let me know.

I am 39 years old, married with two children and live in San Diego, California. I have read most of the posts since I joined the group and I'm glad to have found such a friendly place to share and learn more about RP.

-----Original Message-----From: Sandy Catalusci Sent: Thursday, November 08, 2001 11:53 AMTo: Rpolychondritis Subject: Re: Evening- I have Questions

Hi ,

Welcome! Looking forward to seeing more of your posts.

How long have you had RP.? What meds are you taking for it?

Am I being nosey here? LOLOL

Sandy

Hi Glenda,

I am new to the group but I have experienced quite a few eye flares over the past year. Lillian described them in her email exactly the same way I experience them. My opthamalogist diagnosed it as nodular episcleritis and it was one of the first symptoms of RP (along with ear flares and joint pains) that I had. It does sound like yours could be an infection. I had pink eye many years ago and symptoms were the same as what you described. If it continues, there are eye drops that can help. Ask your pharmacist.

Hope you are feeling better today.

-----Original Message-----From: Glenda Sent: Wednesday, November 07, 2001 7:17 PMTo: rpolychondritis Subject: Evening- I have Questions

Evening All,

It is me again. I thought I would give you an up date on what is going on with me today!LOL I surrender stick around and something else will come around when it comes to me.

I had to go into the Dr. again today. This morning I woke up with my right eye all crusted shut. Last night it was kind of scratchy like it had something in it. Then all day today it was the same. I called the PCP and went in. He says he couldn't see anything in it and thinks it is probably and infection. I hope he is right.

Okay here I go again on a tangent but..... When you have an eye flare what is it like. My symptoms are as listed above but it also is very dry and hurts. Not really like a flare would hurt but of course I have never had problems with my eyes before so I don't know. What do you all think? I have not had a eye flare before so don't know what it is like. Does this sound like an eye flare? Gosh I love this RP! NOT!!!

Other than that I am doing okay! I guess!LOL The BP was back up again but it was when I went to the Dr. It was 130/90. Dr. said it may take up to 4 weeks for the meds to kick in.

Well Take care all! Know I think of you lots!

Lots of Love

Glenda

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Sandy,

Just curious about your renal involvement-- I have had blood in my urine--

at all times-- for several years. I also have a history of frequent Kidney

infections, Kidney Stones 2 times and glomerulonephritis (sp?). No one has

ever discussed Kidney involvement with me. Have you had any other symptoms

or if anyone else has any input, I would appreciate it!!

Thanks, Kathi

>

>Reply-To: Rpolychondritis

>To: <Rpolychondritis >

>Subject: RE: Evening- I have Questions

>Date: Mon, 19 Nov 2001 20:26:27 -0800

>

>Hi Sandy,

>

>Sorry for the delay in getting back to you. I was out of town and then we

>had computer problems (etc etc., excuses, excuses). Anyway, to answer your

>question, I was diagnosed with RP one year ago. I was very fortunate to be

>referred to a wonderful rheumatologist who is familiar with RP and

>diagnosed

>me immediately. I have eye flares (nodular episcleritis), ear flares and

>occasional joint point. I am on 10 mg of Methotrexate (weekly), folic acid

>(daily) and take colchicine twice a day at the first sign of a flare up.

>The

>Metho and Colchicine seem to have shortened the duration and frequency of

>the flares. Before I started taking the drugs the flares would last 7 to

>10 days and now it's usually 2 to 4 days.

>

>I also have renal involvement. My kidneys are functioning normally except

>for microscopic blood in the urine. I see a kidney specialist every few

>months to monitor the condition. He has me on blood pressure medicine (20

>mg Lotensin) to help protect my kidneys. I saw him last Thursday and told

>him I'd found a RP group on the internet. He said he'd be interested to

>know how many of you have kidney involvement -- so if you do, let me know.

>

>I am 39 years old, married with two children and live in San Diego,

>California. I have read most of the posts since I joined the group and I'm

>glad to have found such a friendly place to share and learn more about RP.

>

>

>

>

> Evening- I have Questions

>

>

> Evening All,

> It is me again. I thought I would give you an up date on what is

>going on with me today!LOL I surrender stick around and something else

>will

>come around when it comes to me.

>

> I had to go into the Dr. again today. This morning I woke up with

>my

>right eye all crusted shut. Last night it was kind of scratchy like it had

>something in it. Then all day today it was the same. I called the PCP and

>went in. He says he couldn't see anything in it and thinks it is probably

>and infection. I hope he is right.

>

> Okay here I go again on a tangent but..... When you have an eye

>flare what is it like. My symptoms are as listed above but it also is very

>dry and hurts. Not really like a flare would hurt but of course I have

>never had problems with my eyes before so I don't know. What do you all

>think? I have not had a eye flare before so don't know what it is like.

>Does this sound like an eye flare? Gosh I love this RP! NOT!!!

>

> Other than that I am doing okay! I guess!LOL The BP was back up

>again but it was when I went to the Dr. It was 130/90. Dr. said it may

>take up to 4 weeks for the meds to kick in.

>

> Well Take care all! Know I think of you lots!

> Lots of Love

> Glenda

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

>RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

>BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

>PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

>TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Hi Sandy,

Just curious about your renal involvement-- I have had blood in my urine--

at all times-- for several years. I also have a history of frequent Kidney

infections, Kidney Stones 2 times and glomerulonephritis (sp?). No one has

ever discussed Kidney involvement with me. Have you had any other symptoms

or if anyone else has any input, I would appreciate it!!

Thanks, Kathi

>

>Reply-To: Rpolychondritis

>To: <Rpolychondritis >

>Subject: RE: Evening- I have Questions

>Date: Mon, 19 Nov 2001 20:26:27 -0800

>

>Hi Sandy,

>

>Sorry for the delay in getting back to you. I was out of town and then we

>had computer problems (etc etc., excuses, excuses). Anyway, to answer your

>question, I was diagnosed with RP one year ago. I was very fortunate to be

>referred to a wonderful rheumatologist who is familiar with RP and

>diagnosed

>me immediately. I have eye flares (nodular episcleritis), ear flares and

>occasional joint point. I am on 10 mg of Methotrexate (weekly), folic acid

>(daily) and take colchicine twice a day at the first sign of a flare up.

>The

>Metho and Colchicine seem to have shortened the duration and frequency of

>the flares. Before I started taking the drugs the flares would last 7 to

>10 days and now it's usually 2 to 4 days.

>

>I also have renal involvement. My kidneys are functioning normally except

>for microscopic blood in the urine. I see a kidney specialist every few

>months to monitor the condition. He has me on blood pressure medicine (20

>mg Lotensin) to help protect my kidneys. I saw him last Thursday and told

>him I'd found a RP group on the internet. He said he'd be interested to

>know how many of you have kidney involvement -- so if you do, let me know.

>

>I am 39 years old, married with two children and live in San Diego,

>California. I have read most of the posts since I joined the group and I'm

>glad to have found such a friendly place to share and learn more about RP.

>

>

>

>

> Evening- I have Questions

>

>

> Evening All,

> It is me again. I thought I would give you an up date on what is

>going on with me today!LOL I surrender stick around and something else

>will

>come around when it comes to me.

>

> I had to go into the Dr. again today. This morning I woke up with

>my

>right eye all crusted shut. Last night it was kind of scratchy like it had

>something in it. Then all day today it was the same. I called the PCP and

>went in. He says he couldn't see anything in it and thinks it is probably

>and infection. I hope he is right.

>

> Okay here I go again on a tangent but..... When you have an eye

>flare what is it like. My symptoms are as listed above but it also is very

>dry and hurts. Not really like a flare would hurt but of course I have

>never had problems with my eyes before so I don't know. What do you all

>think? I have not had a eye flare before so don't know what it is like.

>Does this sound like an eye flare? Gosh I love this RP! NOT!!!

>

> Other than that I am doing okay! I guess!LOL The BP was back up

>again but it was when I went to the Dr. It was 130/90. Dr. said it may

>take up to 4 weeks for the meds to kick in.

>

> Well Take care all! Know I think of you lots!

> Lots of Love

> Glenda

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

>RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

>BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

>PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

>TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>