Lu

[Guest guest]

Lu - great to hear from you - have been thinking of

you struggling around!!! Hope you are beginning to

feel better. How is your back - mine has been playing

up - it must be sympathy pains!! Thank you for the

news about Dan, I will say extra prayers for him. You

take care of yourself, lovely Lu, love Liz

__________________________________________________

[Guest guest]

Lu - great to hear from you - have been thinking of

you struggling around!!! Hope you are beginning to

feel better. How is your back - mine has been playing

up - it must be sympathy pains!! Thank you for the

news about Dan, I will say extra prayers for him. You

take care of yourself, lovely Lu, love Liz

__________________________________________________

[Guest guest]

HI Sweetheart Liz,

It's so good to hear from you. My back is doing some better but my broken arm is driving me crazy and my left leg, I broke my toes and sprain some ligaments in that leg, so I have a brace boot to wear, it weighs a ton. So hopefully walking around I'll build up muscle or lose weight one. lol

I hope you had a great Thanksgiving! Are you feeling good? I'm so glad that I got to meet you in Oklahoma. You are such a sweetheart! I could sit and listen to you talk all day.

I pray all is well with you! Miss you & love you much!

LU

Lu - great to hear from you - have been thinking of

you struggling around!!! Hope you are beginning to

feel better. How is your back - mine has been playing

up - it must be sympathy pains!!

[Guest guest]

HI Sweetheart Liz,

It's so good to hear from you. My back is doing some better but my broken arm is driving me crazy and my left leg, I broke my toes and sprain some ligaments in that leg, so I have a brace boot to wear, it weighs a ton. So hopefully walking around I'll build up muscle or lose weight one. lol

I hope you had a great Thanksgiving! Are you feeling good? I'm so glad that I got to meet you in Oklahoma. You are such a sweetheart! I could sit and listen to you talk all day.

I pray all is well with you! Miss you & love you much!

LU

Lu - great to hear from you - have been thinking of

you struggling around!!! Hope you are beginning to

feel better. How is your back - mine has been playing

up - it must be sympathy pains!!

[Guest guest]

Lu,

I am on Methotrexate, Prednisone, Multi-vitamin and Tums everyday. I also

take Zofran as needed for nausea and then yesterday I got a prescripion for

Comapzine for nausea. The methotrexate is not causing my nausea OR making

it any worse. Severe nausea was my VERY FIRST symptom and then shortly

after that began, I started losing my voice. The level of nausea has not

changed at all since I started the methotrexate. I have been doing this

long enough now that I know that the nausea is the first symptom of a flare

for me. The nausea has never lasted more than 6 or 7 days at a time until

this time. Usually, I just put myself on a liquid diet and tuff it out

until I get through it. This time, it just didn't work that way. The

compazine helped a great deal though. I know that every one (even the

Dr.s)think it is the methotrexate, because it is such a common side effect

but I have been battling this level of nausea for almost 5 years now and the

medicines haven't changed it a bit. I do wonder if I should change to

something besides the methotrexate, not because of the nausea, but becasue I

just don't seem to be improving. I just don't know what to try next. Any

input would be greatful!!

Kathi

>From: Lu1953@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Re: Christmas Shopping!!

>Date: Tue, 27 Nov 2001 17:18:53 EST

>

>Hi Kathi,

>What meds are you on? I think you need to change them. I was on metho once

>for 6 weeks and was so nauseated everyday, they switched my medicine and

>its

>a whole new life for me. Please call whatever doctor you have and tell him

>you can't handle the way the medicine is making you sick. Maybe they can

>change it to something else. Let me know if you do what they say, I'll be

>praying you will be able to make it thru buying at least one present

>tomorrow. Hey you could always just give everyone money this year, and say

>sorry....that is sounding better to me each and everyday.

>Take care,

>Love

>Lu

>

>

>

> > Today,

> > is the first day in 12 days that I haven't vomitted everything I have

>put

> > in

> > my mouth, so I think I am finally getting through this bout. I am just

> > very

> > frustrated and depressed about the whole thing and that is certainly not

> > helping things!! Right now, I would give just about anything to feel a

> > little bit better. That would certainly help the whole Christmas

> > shopping/decorating thing a little bit!! Anyway, I didn't mean to vent,

> >

>

>

_________________________________________________________________

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[Guest guest]

Lu,

I am on Methotrexate, Prednisone, Multi-vitamin and Tums everyday. I also

take Zofran as needed for nausea and then yesterday I got a prescripion for

Comapzine for nausea. The methotrexate is not causing my nausea OR making

it any worse. Severe nausea was my VERY FIRST symptom and then shortly

after that began, I started losing my voice. The level of nausea has not

changed at all since I started the methotrexate. I have been doing this

long enough now that I know that the nausea is the first symptom of a flare

for me. The nausea has never lasted more than 6 or 7 days at a time until

this time. Usually, I just put myself on a liquid diet and tuff it out

until I get through it. This time, it just didn't work that way. The

compazine helped a great deal though. I know that every one (even the

Dr.s)think it is the methotrexate, because it is such a common side effect

but I have been battling this level of nausea for almost 5 years now and the

medicines haven't changed it a bit. I do wonder if I should change to

something besides the methotrexate, not because of the nausea, but becasue I

just don't seem to be improving. I just don't know what to try next. Any

input would be greatful!!

Kathi

>From: Lu1953@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Re: Christmas Shopping!!

>Date: Tue, 27 Nov 2001 17:18:53 EST

>

>Hi Kathi,

>What meds are you on? I think you need to change them. I was on metho once

>for 6 weeks and was so nauseated everyday, they switched my medicine and

>its

>a whole new life for me. Please call whatever doctor you have and tell him

>you can't handle the way the medicine is making you sick. Maybe they can

>change it to something else. Let me know if you do what they say, I'll be

>praying you will be able to make it thru buying at least one present

>tomorrow. Hey you could always just give everyone money this year, and say

>sorry....that is sounding better to me each and everyday.

>Take care,

>Love

>Lu

>

>

>

> > Today,

> > is the first day in 12 days that I haven't vomitted everything I have

>put

> > in

> > my mouth, so I think I am finally getting through this bout. I am just

> > very

> > frustrated and depressed about the whole thing and that is certainly not

> > helping things!! Right now, I would give just about anything to feel a

> > little bit better. That would certainly help the whole Christmas

> > shopping/decorating thing a little bit!! Anyway, I didn't mean to vent,

> >

>

>

_________________________________________________________________

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