Hello...I just Joined your group...

[Guest guest]

Hello All,

My Name is Bill and I live in Philly. I am 48 years old and was

diagnosed With RP 2 years ago. I have been fine. I have had only 2

flair ups in the 2 years.. It effects my right ear.It gets big and

red..and gives me the worst pain I have ever had in my life. But I Am

fine now..The doctor says I may get more flair ups or never

again..Who Knows..I am glad I found this group. It is nice to talk

with people who relate...Thanks

[Guest guest]

Hello All,

My Name is Bill and I live in Philly. I am 48 years old and was

diagnosed With RP 2 years ago. I have been fine. I have had only 2

flair ups in the 2 years.. It effects my right ear.It gets big and

red..and gives me the worst pain I have ever had in my life. But I Am

fine now..The doctor says I may get more flair ups or never

again..Who Knows..I am glad I found this group. It is nice to talk

with people who relate...Thanks

[Guest guest]

Bonjour Bill,

Hope you find a lot of support and informations in this group.

Bienvenue

Marie-pia de france

[Guest guest]

Bonjour Bill,

Hope you find a lot of support and informations in this group.

Bienvenue

Marie-pia de france

[Guest guest]

Hi Bill

My name is chuck, i was diagnosed last april with RP and like you,

it's generally located in my ears. I don't get to this site as much

as i did when i first was diagnosed because of my work and a business

i am trying to launch but feel free to write if you want to chat or

say hello. this group is great for information and input, this

disease can get you down.....see you later...chuck..cistn@...

[Guest guest]

Hi Bill

My name is chuck, i was diagnosed last april with RP and like you,

it's generally located in my ears. I don't get to this site as much

as i did when i first was diagnosed because of my work and a business

i am trying to launch but feel free to write if you want to chat or

say hello. this group is great for information and input, this

disease can get you down.....see you later...chuck..cistn@...

[Guest guest]

Hi Bill,

Do you take any medication for this illness? Welcome to the group, I'm always behind, sorry. I hate you have RP but your in the best place now. Lots of informative folks out here. Take care,

Lu

My Name is Bill and I live in Philly. I am 48 years old and was diagnosed With RP 2 years ago. I have been fine. I have had only 2 flair ups in the 2 years.. It effects my right ear.It gets big and red..and gives me the worst pain I have ever had in my life. But I Am fine now..The doctor says I may get more flair ups or never again..Who Knows..I am glad I found this group. It is nice to talk with people who relate...Thanks

[Guest guest]

Hi Bill,

Do you take any medication for this illness? Welcome to the group, I'm always behind, sorry. I hate you have RP but your in the best place now. Lots of informative folks out here. Take care,

Lu

My Name is Bill and I live in Philly. I am 48 years old and was diagnosed With RP 2 years ago. I have been fine. I have had only 2 flair ups in the 2 years.. It effects my right ear.It gets big and red..and gives me the worst pain I have ever had in my life. But I Am fine now..The doctor says I may get more flair ups or never again..Who Knows..I am glad I found this group. It is nice to talk with people who relate...Thanks