Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hello to all of you, My name is Barbara I am 56, married to a wonderful guy named Tony we have one daughter and one granddaughter, we are about 40 miles north of Atlanta Georgia, Tony, signed me up on this group some time ago after I was told I might have RP my MD. had never seen RP and knew nothing about it. As for me I had never heard of it, now thanks to you guys and the net I know more than I sometimes won't to I have been reading your post. I wont to thank each of you for not kicking me off, I guess I just had a hard time facing up to the truth. but now it's time, and there is so much I don't understand. Not only about RP but also this box in front of me, yes I'm new on the computer, so you will have to look over my mistakes ( I'm also a blond ). In 1989, I started having bad sinus problems, in 1992, I was in hosp. for kidney stones they never passed nor was never found on x-ray, 1993, still having trouble with sinus by now I had a sore to come on the inside of my nose, the dummy I had for a E.N.T. Dr. did what he called a biopsy in the office, and all kind of blood work. His answer was it might be Wagener's, just a short time after his biopsy in 1995, my nose fell in. 1997, more kidney problems and still having sinus, I went to a E.N.T at Emory hosp.and had a biopsy on my nose and ear, this time I was told I had RP. I ask about having my nose fixed he said it would be ok and gave me a name of a Dr. to see at Georgia Baptist hosp. He did not offer any type of treatment at this time nor did he tell me very much about it. The next week I started having awful rib pain, my regular MD. was out of town, I went to see a new MD. her answer, I had cracked a rib coughing. After two months she could not understand why I was still in so much pain, again in 2000 I had another round of rib pain, this one stayed with me for about three months, pain pills and antibiotics that is all I ever got from the DR. In Sept, of this year more rib pain, I went back to my old MD. This time after more bloodwork and test I was told I had 20 rib fractures and degenerative changes in the neck and back. I was then sent to a rheumatologist, who did more test, four weeks ago he diagnosis me with RP and started treating me for it with celebrex, Imuran, Colchicine, and pain med when I need it. At this time I have 50% kidney function along with the nose, ribs, osteoporosis and God only knows what else he is still looking and it's not looking very good to me, I will fill you in later on the rest of it. Now will some one tell me how to become a full member of the group and what your rules are ? I have lot of ?? OH, could I get a members list to? Thank God for each of you and what you are doing here. Barbara Cash 2626 Buford Hwy Cumming, Georgia 30041 (770)--887-0647 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hello to all of you, My name is Barbara I am 56, married to a wonderful guy named Tony we have one daughter and one granddaughter, we are about 40 miles north of Atlanta Georgia, Tony, signed me up on this group some time ago after I was told I might have RP my MD. had never seen RP and knew nothing about it. As for me I had never heard of it, now thanks to you guys and the net I know more than I sometimes won't to I have been reading your post. I wont to thank each of you for not kicking me off, I guess I just had a hard time facing up to the truth. but now it's time, and there is so much I don't understand. Not only about RP but also this box in front of me, yes I'm new on the computer, so you will have to look over my mistakes ( I'm also a blond ). In 1989, I started having bad sinus problems, in 1992, I was in hosp. for kidney stones they never passed nor was never found on x-ray, 1993, still having trouble with sinus by now I had a sore to come on the inside of my nose, the dummy I had for a E.N.T. Dr. did what he called a biopsy in the office, and all kind of blood work. His answer was it might be Wagener's, just a short time after his biopsy in 1995, my nose fell in. 1997, more kidney problems and still having sinus, I went to a E.N.T at Emory hosp.and had a biopsy on my nose and ear, this time I was told I had RP. I ask about having my nose fixed he said it would be ok and gave me a name of a Dr. to see at Georgia Baptist hosp. He did not offer any type of treatment at this time nor did he tell me very much about it. The next week I started having awful rib pain, my regular MD. was out of town, I went to see a new MD. her answer, I had cracked a rib coughing. After two months she could not understand why I was still in so much pain, again in 2000 I had another round of rib pain, this one stayed with me for about three months, pain pills and antibiotics that is all I ever got from the DR. In Sept, of this year more rib pain, I went back to my old MD. This time after more bloodwork and test I was told I had 20 rib fractures and degenerative changes in the neck and back. I was then sent to a rheumatologist, who did more test, four weeks ago he diagnosis me with RP and started treating me for it with celebrex, Imuran, Colchicine, and pain med when I need it. At this time I have 50% kidney function along with the nose, ribs, osteoporosis and God only knows what else he is still looking and it's not looking very good to me, I will fill you in later on the rest of it. Now will some one tell me how to become a full member of the group and what your rules are ? I have lot of ?? OH, could I get a members list to? Thank God for each of you and what you are doing here. Barbara Cash 2626 Buford Hwy Cumming, Georgia 30041 (770)--887-0647 Quote Link to comment Share on other sites More sharing options...
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