Information for new members and to refresh old members memories LOL

Posted December 4, 2001 · December 4, 2001

First of all, I'd like to welcome all the new members we have.. Boy we are

growing everyday. I guess there are a few things that you might want to know

about the support group and the RP Foundation (which is totally separate from

the support group)

First the support group. We are here for any part of your life, not just RP.

Your family and friends are always welcome too. Sometimes it is harder on

family than on us.

We have chats on Wed at 9:30 am (Pacific Time ) and on Fridays 6:30pm

(Pacific Time) We have lots of fun and laughs and if you have a microphone

we can speak to each other and put a voice with the name. Lots of fun. It

is at:

Http://clubs.yahoo.com/clubs/relapsingpolychondritis

You will probably have to sign up with Yahoo, but it is pretty easy. If you

have any questions, just give a yell.

We also have a flower fund. We send flowers to members in the hospital,

when there is a death in the family or any other time we feel the need. We

do take contributions for this fund if anyone is interested. Woods is

in charge of that. If you are interested, please post and we will send you

the info on where to send the money.

NOW.... the RP Foundation. We are all really excited about it. We have our

tax exempt # and are all ready to get started. Alot of work has gone on

behind the scenes, but I think you will see a lot happening after the first

of the year. Our goal is to educate the public and the medical professions

about RP. We will be having brochures made soon that will be available for

all to hand out, put in drs. offices etc.

We will have fundraisers too. Once RP is made more aware then maybe the

diagnosis can be made eariler and save alot of people what we have gone

through.

Dr. Jane Buckner in Seattle WA. is working with us. She is doing trials and

research on RP. If you are interested in giving a little of your blood to

send to her, let us know and we will give you the information. We are

donating to her for her reseach. A CURE is an ultimate goal. We also have

a news letter that goes out to members.

All we ask is for a $15 donation (which is tax deductable) each year. (you

may always send more ). All of the work is voluntary, no one gets paid. If

you are interested in any type of volunteer work....we will never refuse you.

LOL JUST let us know what your talents are or where you would be interested

in volunteering.

We also have an angel fund. This is for anyone that would like to become a

member but due to hardship, can't. If you would like to contribute to this

fund, it will be used to sponser someone who needs it. It is all

confidential... Neither one of the angels knows who they are sponsering or

who is sponsering them. If you would like to contribute, but can't you may e

mail me privately we wil find a sponser for you. Like I said... it is all

confidential.

If you are interested in donating to the Foundation, Please make your checks

or money orders out to " RP Foundation " and mail to

RP Foundation

c/o Colloran

775 Bounty Place

Manteca, CA 95337

A note to all.....remember this is tax deductable, so get those donations in

before the year is up. LOL

Sorry this was so long. If you have any more questions please feel free to

contact me by group or privately.

Thanks to all who have made our dream come true.. We have the Foundation, now

all we need is a CURE!

hugs

Posted December 4, 2001 · December 4, 2001