Re: Where are you all ??? To everyone in the group

[Guest guest]

Yes Miss Heidi, & Everyone,

I will get right on this as soon as I can remember all the details. lol No, I am only kidding but I do have to think for a minute or two. lol I will try to do this before the week is out. Okay?

Welcome to all of our many new folks in the group sorry that you have RP but you couldn't be in a better place. Please take the time to join our foundation. It's only a 15.00 yearly contribution.

We are giving money to research and trying to get literature published to educate patients and doctors on this baffling illness. Also, we are here for you in good times and bad. We do a newsletter also.

To join the foundation please send your 15.00 yearly membership fee which is tax deductible, if you hurry before Dec.31. You have a tax deduction. We gladly accept any amount and many people have been so gracious. To all of you We Thank you from the bottom of our hearts.

Send you money to

RP Foundation

C/O Colloran

Membership Dept.

775 Bounty Place

Manteca, CA 95337

Also check out our web site Our Polychondritis web site http://polychondritis.tripod.com/

It will tell you a little more info. on the foundation. We are working on our site, so it will get better and better as time goes on.

We are a nonprofit organization, none of us are paid for our services. We do it because we have the same illness and felt the need for support and awareness, to patients and doctors. Most all of us also have the illness. Which makes it hard, we really need more volunteers to help when your able.

We need your help! We need your dedication by joining our foundation giving a little money maybe if you feel up to it volunteering to help do some of the many things we do, and are working on.

I have said many times we made it only 15.00 so everyone could afford it and help us get off the ground. I think we have had a great year and wouldn't be where we are without the help of all of you who did join. We thank you, for putting your faith in us, then helping us. We are working to help each and every one of you, but we need your help also. Please take the time to do this.

It will help us make more progress, we haven't had a fund raiser yet. Our membership program has done good. But we need all of you. Okay I will quit preaching. Just trying to make a point. If you have any questions, please feel free to e-mail me privately at lu1953@... please put in subject line RP.

Okay go make that check out and mail it to ! It will be your first fight in this illness! Your helping yourself to get awareness out there. Thank you all!

Love,

Lu

.. Please tell us how long you had RP and all the problems you had at the beginning . What Medicine you tried and did not work and what you all taking now. You do not have to write a book just a short general post will do. Then

[Guest guest]

Yes Miss Heidi, & Everyone,

I will get right on this as soon as I can remember all the details. lol No, I am only kidding but I do have to think for a minute or two. lol I will try to do this before the week is out. Okay?

Welcome to all of our many new folks in the group sorry that you have RP but you couldn't be in a better place. Please take the time to join our foundation. It's only a 15.00 yearly contribution.

We are giving money to research and trying to get literature published to educate patients and doctors on this baffling illness. Also, we are here for you in good times and bad. We do a newsletter also.

To join the foundation please send your 15.00 yearly membership fee which is tax deductible, if you hurry before Dec.31. You have a tax deduction. We gladly accept any amount and many people have been so gracious. To all of you We Thank you from the bottom of our hearts.

Send you money to

RP Foundation

C/O Colloran

Membership Dept.

775 Bounty Place

Manteca, CA 95337

Also check out our web site Our Polychondritis web site http://polychondritis.tripod.com/

It will tell you a little more info. on the foundation. We are working on our site, so it will get better and better as time goes on.

We are a nonprofit organization, none of us are paid for our services. We do it because we have the same illness and felt the need for support and awareness, to patients and doctors. Most all of us also have the illness. Which makes it hard, we really need more volunteers to help when your able.

We need your help! We need your dedication by joining our foundation giving a little money maybe if you feel up to it volunteering to help do some of the many things we do, and are working on.

I have said many times we made it only 15.00 so everyone could afford it and help us get off the ground. I think we have had a great year and wouldn't be where we are without the help of all of you who did join. We thank you, for putting your faith in us, then helping us. We are working to help each and every one of you, but we need your help also. Please take the time to do this.

It will help us make more progress, we haven't had a fund raiser yet. Our membership program has done good. But we need all of you. Okay I will quit preaching. Just trying to make a point. If you have any questions, please feel free to e-mail me privately at lu1953@... please put in subject line RP.

Okay go make that check out and mail it to ! It will be your first fight in this illness! Your helping yourself to get awareness out there. Thank you all!

Love,

Lu

.. Please tell us how long you had RP and all the problems you had at the beginning . What Medicine you tried and did not work and what you all taking now. You do not have to write a book just a short general post will do. Then