Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Don had RP for 2 years before he was DX. It stated in his ears. At first the where only red but with time it change to purple and the swelling also started. Kept going to the reg. Dr. but he kept saying there is nothing wrong with him. In Jan. 1995 Don changed DR. and went to a ENT. He thought at first it was a blocked Sivlagland. Gave him antibiotics and told him come back in 3 days.3 days later still no improvement. Dr. said you do have a big problem here but I can not help you but will send you to my buddy he is a ENT also. Well lord and behold the very next day Don see this new ENT and before he even says Hello he told him mmm I see you got RP. This ENT send Don right away to a Rhuemy the next day. He also said yup, you got RP. This Rhuemy put him on 20 mg.a day of Prednison and 600mg Ibuprofen 3 x a day. He also put him on 2 different Stomach meds. Because of the RP med. He did not wont Don to have a stomach problem from RP Med.In Feb. of 95 went to Mayo Clinic in Rochester MN. They confirmed DX. Don is still on the same Medicine . Only now he is taking only 2 mg. of prednison once a day. And 800mg of Ibuprofen.3 x a day. He will go down to 1 mg of pred. in Jan. and two months after being on 1mg he will try to get off all together. Yes the Mayo Clinic said to go VERY slow down on the pred. Don has had no flares since last Feb. The one thing I think that is really helping Don is that he is taking his Medicine everyday at the same time. Don has some Damage from the RP in his nose. He has some holes in there, plus he has lost a lot of his hearing. The Dr, thinks the hearing lose is also from the RP plus a little from age. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Don had RP for 2 years before he was DX. It stated in his ears. At first the where only red but with time it change to purple and the swelling also started. Kept going to the reg. Dr. but he kept saying there is nothing wrong with him. In Jan. 1995 Don changed DR. and went to a ENT. He thought at first it was a blocked Sivlagland. Gave him antibiotics and told him come back in 3 days.3 days later still no improvement. Dr. said you do have a big problem here but I can not help you but will send you to my buddy he is a ENT also. Well lord and behold the very next day Don see this new ENT and before he even says Hello he told him mmm I see you got RP. This ENT send Don right away to a Rhuemy the next day. He also said yup, you got RP. This Rhuemy put him on 20 mg.a day of Prednison and 600mg Ibuprofen 3 x a day. He also put him on 2 different Stomach meds. Because of the RP med. He did not wont Don to have a stomach problem from RP Med.In Feb. of 95 went to Mayo Clinic in Rochester MN. They confirmed DX. Don is still on the same Medicine . Only now he is taking only 2 mg. of prednison once a day. And 800mg of Ibuprofen.3 x a day. He will go down to 1 mg of pred. in Jan. and two months after being on 1mg he will try to get off all together. Yes the Mayo Clinic said to go VERY slow down on the pred. Don has had no flares since last Feb. The one thing I think that is really helping Don is that he is taking his Medicine everyday at the same time. Don has some Damage from the RP in his nose. He has some holes in there, plus he has lost a lot of his hearing. The Dr, thinks the hearing lose is also from the RP plus a little from age. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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