Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 WOW!!! Thank you so much Kathleen for sharing such an inspirational story with us all. May we have your permission to use your story in our newsletter at some future date? BTW-I am back online with the group, but in digest form. I'm trying to read mail, but not quite making all the digests. BUT, I'm trying. LOL I do want to extend my deepest sympathy to Cathy. I'm so very sorry about your Dad. My dad passed on last year, so even though I don't know your pain, I feel your heartache my friend. Also, welcome to all new members and to tell the oldies that I've missed you all so very much. Happy Holidays to everyone and again Kathleen, thank your for such an inspiring story. W >>>>>>>>>>>>>>>>>>>>>>>>>>>> Guess what ..... In October of 2000, I took my last methotrexate tablet. In 3 more months, in March of 2002, I will be flare free for two years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 WOW!!! Thank you so much Kathleen for sharing such an inspirational story with us all. May we have your permission to use your story in our newsletter at some future date? BTW-I am back online with the group, but in digest form. I'm trying to read mail, but not quite making all the digests. BUT, I'm trying. LOL I do want to extend my deepest sympathy to Cathy. I'm so very sorry about your Dad. My dad passed on last year, so even though I don't know your pain, I feel your heartache my friend. Also, welcome to all new members and to tell the oldies that I've missed you all so very much. Happy Holidays to everyone and again Kathleen, thank your for such an inspiring story. W >>>>>>>>>>>>>>>>>>>>>>>>>>>> Guess what ..... In October of 2000, I took my last methotrexate tablet. In 3 more months, in March of 2002, I will be flare free for two years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 , You can use any part of what I have said! I am feeling so much better lately and it is good to know -- finally -- what has really been wrong for the past few years. I am very lucky in that the RP hasn't done any permanent damage yet. I sincerely hope it stays that way. I WILL take my meds when and how I am supposed to take them . (Okay, phone bandit?) Hopefully that will be enough... I do sincerely hope for a remission as wonderful as yours has been! That's all for me now -- TTFN Kathleen Kathleen and everyone > WOW!!! Thank you so much Kathleen for sharing such an inspirational story > with us all. > May we have your permission to use your story in our newsletter at some > future date? > > BTW-I am back online with the group, but in digest form. I'm trying to read > mail, but not quite making all the digests. BUT, I'm trying. LOL > I do want to extend my deepest sympathy to Cathy. I'm so very sorry about > your Dad. My dad passed on last year, so even though I don't know your pain, > I feel your heartache my friend. > Also, welcome to all new members and to tell the oldies that I've missed you > all so very much. > Happy Holidays to everyone and again Kathleen, thank your for such an > inspiring story. > W > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > Guess what ..... In October of 2000, I took my last methotrexate tablet. In > 3 more months, in March of 2002, I will be flare free for two years! > > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 , You can use any part of what I have said! I am feeling so much better lately and it is good to know -- finally -- what has really been wrong for the past few years. I am very lucky in that the RP hasn't done any permanent damage yet. I sincerely hope it stays that way. I WILL take my meds when and how I am supposed to take them . (Okay, phone bandit?) Hopefully that will be enough... I do sincerely hope for a remission as wonderful as yours has been! That's all for me now -- TTFN Kathleen Kathleen and everyone > WOW!!! Thank you so much Kathleen for sharing such an inspirational story > with us all. > May we have your permission to use your story in our newsletter at some > future date? > > BTW-I am back online with the group, but in digest form. I'm trying to read > mail, but not quite making all the digests. BUT, I'm trying. LOL > I do want to extend my deepest sympathy to Cathy. I'm so very sorry about > your Dad. My dad passed on last year, so even though I don't know your pain, > I feel your heartache my friend. > Also, welcome to all new members and to tell the oldies that I've missed you > all so very much. > Happy Holidays to everyone and again Kathleen, thank your for such an > inspiring story. > W > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > Guess what ..... In October of 2000, I took my last methotrexate tablet. In > 3 more months, in March of 2002, I will be flare free for two years! > > > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Hi , Lucy here, is that you who has been flare free for nearly two years? That is certainly wonderful news. I am so happy for you. My only problem with the flares is that with my crazy nose and all of the holes in it, I can not tell for sure if I am actually having a flare or is it just "my nose"! While I am talking about RP, does anyone else have a problem with getting bad cramps in their muscles upon certain movements. I can move certain ways and get an awful and painful cramp or muscle spasm in rib area, thighs, even down in my lower stomach. It is terrible and they do not go away very fast. Is this kin to Fibromyalgia? Or could it be the hateful, ugly word that we don't even like to say "RP"? If anybody knows anything, please let me know what experience you have had. Well, , congratulations again on the "no flare" status. Love and Prayers, Lucy -- Kathleen and everyone WOW!!! Thank you so much Kathleen for sharing such an inspirational storywith us all.May we have your permission to use your story in our newsletter at somefuture date?BTW-I am back online with the group, but in digest form. I'm trying to readmail, but not quite making all the digests. BUT, I'm trying. LOLI do want to extend my deepest sympathy to Cathy. I'm so very sorry aboutyour Dad. My dad passed on last year, so even though I don't know your pain,I feel your heartache my friend.Also, welcome to all new members and to tell the oldies that I've missed youall so very much.Happy Holidays to everyone and again Kathleen, thank your for such aninspiring story. W>>>>>>>>>>>>>>>>>>>>>>>>>>>>Guess what ..... In October of 2000, I took my last methotrexate tablet. In3 more months, in March of 2002, I will be flare free for two years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Hi , Lucy here, is that you who has been flare free for nearly two years? That is certainly wonderful news. I am so happy for you. My only problem with the flares is that with my crazy nose and all of the holes in it, I can not tell for sure if I am actually having a flare or is it just "my nose"! While I am talking about RP, does anyone else have a problem with getting bad cramps in their muscles upon certain movements. I can move certain ways and get an awful and painful cramp or muscle spasm in rib area, thighs, even down in my lower stomach. It is terrible and they do not go away very fast. Is this kin to Fibromyalgia? Or could it be the hateful, ugly word that we don't even like to say "RP"? If anybody knows anything, please let me know what experience you have had. Well, , congratulations again on the "no flare" status. Love and Prayers, Lucy -- Kathleen and everyone WOW!!! Thank you so much Kathleen for sharing such an inspirational storywith us all.May we have your permission to use your story in our newsletter at somefuture date?BTW-I am back online with the group, but in digest form. I'm trying to readmail, but not quite making all the digests. BUT, I'm trying. LOLI do want to extend my deepest sympathy to Cathy. I'm so very sorry aboutyour Dad. My dad passed on last year, so even though I don't know your pain,I feel your heartache my friend.Also, welcome to all new members and to tell the oldies that I've missed youall so very much.Happy Holidays to everyone and again Kathleen, thank your for such aninspiring story. W>>>>>>>>>>>>>>>>>>>>>>>>>>>>Guess what ..... In October of 2000, I took my last methotrexate tablet. In3 more months, in March of 2002, I will be flare free for two years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2001 Report Share Posted December 21, 2001 Coralie have often the same spasm... With or without medications. Ireally thing it's RP symptoms too. Amitiés M.P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2001 Report Share Posted December 21, 2001 Coralie have often the same spasm... With or without medications. Ireally thing it's RP symptoms too. Amitiés M.P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 Lucy, I wonder how can you tell if your nose is clampings. (SP) I had a flare once in my nose but was over a year ago. My nose has a dull pain sometimes and just want to know if this flare happens again in my nose what I should look for. Thanks Carol --- LUCY DAVIS wrote: > Hi , > > Lucy here, is that you who has been flare free for > nearly two years? That > is certainly wonderful news. I am so happy for you. > > > My only problem with the flares is that with my > crazy nose and all of the > holes in it, I can not tell for sure if I am > actually having a flare or is > it just " my nose " ! > > While I am talking about RP, does anyone > else have a problem with getting bad cramps > in their muscles upon certain movements. I > can move certain ways and get an awful > and painful cramp or muscle spasm in rib > area, thighs, even down in my lower stomach. > It is terrible and they do not go away very > fast. Is this kin to Fibromyalgia? Or could > it be the hateful, ugly word that we don't > even like to say " RP " ? > > If anybody knows anything, please let me > know what experience you have had. > > Well, , congratulations again on the " no > flare " status. > > Love and Prayers, Lucy > > -- Kathleen and everyone > > WOW!!! Thank you so much Kathleen for sharing such > an inspirational story > with us all. > May we have your permission to use your story in our > newsletter at some > future date? > > BTW-I am back online with the group, but in digest > form. I'm trying to read > mail, but not quite making all the digests. BUT, I'm > trying. LOL > I do want to extend my deepest sympathy to Cathy. > I'm so very sorry about > your Dad. My dad passed on last year, so even though > I don't know your pain, > I feel your heartache my friend. > Also, welcome to all new members and to tell the > oldies that I've missed you > all so very much. > Happy Holidays to everyone and again Kathleen, thank > your for such an > inspiring story. > W > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > Guess what ..... In October of 2000, I took my last > methotrexate tablet. In > 3 more months, in March of 2002, I will be flare > free for two years! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 Lucy, I wonder how can you tell if your nose is clampings. (SP) I had a flare once in my nose but was over a year ago. My nose has a dull pain sometimes and just want to know if this flare happens again in my nose what I should look for. Thanks Carol --- LUCY DAVIS wrote: > Hi , > > Lucy here, is that you who has been flare free for > nearly two years? That > is certainly wonderful news. I am so happy for you. > > > My only problem with the flares is that with my > crazy nose and all of the > holes in it, I can not tell for sure if I am > actually having a flare or is > it just " my nose " ! > > While I am talking about RP, does anyone > else have a problem with getting bad cramps > in their muscles upon certain movements. I > can move certain ways and get an awful > and painful cramp or muscle spasm in rib > area, thighs, even down in my lower stomach. > It is terrible and they do not go away very > fast. Is this kin to Fibromyalgia? Or could > it be the hateful, ugly word that we don't > even like to say " RP " ? > > If anybody knows anything, please let me > know what experience you have had. > > Well, , congratulations again on the " no > flare " status. > > Love and Prayers, Lucy > > -- Kathleen and everyone > > WOW!!! Thank you so much Kathleen for sharing such > an inspirational story > with us all. > May we have your permission to use your story in our > newsletter at some > future date? > > BTW-I am back online with the group, but in digest > form. I'm trying to read > mail, but not quite making all the digests. BUT, I'm > trying. LOL > I do want to extend my deepest sympathy to Cathy. > I'm so very sorry about > your Dad. My dad passed on last year, so even though > I don't know your pain, > I feel your heartache my friend. > Also, welcome to all new members and to tell the > oldies that I've missed you > all so very much. > Happy Holidays to everyone and again Kathleen, thank > your for such an > inspiring story. > W > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > Guess what ..... In October of 2000, I took my last > methotrexate tablet. In > 3 more months, in March of 2002, I will be flare > free for two years! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Can anyone answer me on this for your nose? Thanks Carol --- carol applin wrote: > Lucy, > > I wonder how can you tell if your nose is clampings. > (SP) > I had a flare once in my nose but was over a year > ago. > My nose has a dull pain sometimes and just want to > know if this flare happens again in my nose what I > should look for. > Thanks Carol > --- LUCY DAVIS wrote: > > Hi , > > > > Lucy here, is that you who has been flare free > for > > nearly two years? That > > is certainly wonderful news. I am so happy for > you. > > > > > > My only problem with the flares is that with my > > crazy nose and all of the > > holes in it, I can not tell for sure if I am > > actually having a flare or is > > it just " my nose " ! > > > > While I am talking about RP, does anyone > > else have a problem with getting bad cramps > > in their muscles upon certain movements. I > > can move certain ways and get an awful > > and painful cramp or muscle spasm in rib > > area, thighs, even down in my lower stomach. > > It is terrible and they do not go away very > > fast. Is this kin to Fibromyalgia? Or could > > it be the hateful, ugly word that we don't > > even like to say " RP " ? > > > > If anybody knows anything, please let me > > know what experience you have had. > > > > Well, , congratulations again on the " no > > flare " status. > > > > Love and Prayers, Lucy > > > > -- Kathleen and everyone > > > > WOW!!! Thank you so much Kathleen for sharing such > > an inspirational story > > with us all. > > May we have your permission to use your story in > our > > newsletter at some > > future date? > > > > BTW-I am back online with the group, but in digest > > form. I'm trying to read > > mail, but not quite making all the digests. BUT, > I'm > > trying. LOL > > I do want to extend my deepest sympathy to Cathy. > > I'm so very sorry about > > your Dad. My dad passed on last year, so even > though > > I don't know your pain, > > I feel your heartache my friend. > > Also, welcome to all new members and to tell the > > oldies that I've missed you > > all so very much. > > Happy Holidays to everyone and again Kathleen, > thank > > your for such an > > inspiring story. > > W > > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > > Guess what ..... In October of 2000, I took my > last > > methotrexate tablet. In > > 3 more months, in March of 2002, I will be flare > > free for two years! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 Can anyone answer me on this for your nose? Thanks Carol --- carol applin wrote: > Lucy, > > I wonder how can you tell if your nose is clampings. > (SP) > I had a flare once in my nose but was over a year > ago. > My nose has a dull pain sometimes and just want to > know if this flare happens again in my nose what I > should look for. > Thanks Carol > --- LUCY DAVIS wrote: > > Hi , > > > > Lucy here, is that you who has been flare free > for > > nearly two years? That > > is certainly wonderful news. I am so happy for > you. > > > > > > My only problem with the flares is that with my > > crazy nose and all of the > > holes in it, I can not tell for sure if I am > > actually having a flare or is > > it just " my nose " ! > > > > While I am talking about RP, does anyone > > else have a problem with getting bad cramps > > in their muscles upon certain movements. I > > can move certain ways and get an awful > > and painful cramp or muscle spasm in rib > > area, thighs, even down in my lower stomach. > > It is terrible and they do not go away very > > fast. Is this kin to Fibromyalgia? Or could > > it be the hateful, ugly word that we don't > > even like to say " RP " ? > > > > If anybody knows anything, please let me > > know what experience you have had. > > > > Well, , congratulations again on the " no > > flare " status. > > > > Love and Prayers, Lucy > > > > -- Kathleen and everyone > > > > WOW!!! Thank you so much Kathleen for sharing such > > an inspirational story > > with us all. > > May we have your permission to use your story in > our > > newsletter at some > > future date? > > > > BTW-I am back online with the group, but in digest > > form. I'm trying to read > > mail, but not quite making all the digests. BUT, > I'm > > trying. LOL > > I do want to extend my deepest sympathy to Cathy. > > I'm so very sorry about > > your Dad. My dad passed on last year, so even > though > > I don't know your pain, > > I feel your heartache my friend. > > Also, welcome to all new members and to tell the > > oldies that I've missed you > > all so very much. > > Happy Holidays to everyone and again Kathleen, > thank > > your for such an > > inspiring story. > > W > > >>>>>>>>>>>>>>>>>>>>>>>>>>>> > > Guess what ..... In October of 2000, I took my > last > > methotrexate tablet. In > > 3 more months, in March of 2002, I will be flare > > free for two years! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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