Fwd: My Story-Responding to Sharon King

December 19, 2001

Hi Sharon,

I'm on Remicade right now. I go to a medical center to get an IV infusion of Remicade once every 8 weeks. When I first started the remicade treatment, I received the infusion in different frequencies - 0,2,4,8 and now, every 8 weeks continually. However, I was informed it will only work in conjunction with Methotrexate which I take 7.5 mg orally. The inconvenience for me of getting the infusion is setting aside 3 hours which is how long it takes. Like yourself, Plaquenil had no effect on me and the high doses of MTX still did not allow me to taper off steroids. With the introduction of Remicade, I immediately began to taper off the dreaded steroids after being on it for a year. Now, finally I'm off of it completely.

I'm actually in the process of enrolling for Enbrel because I do not want to be on both the MTX and the Remicade.

Well, if you have any further questions, just ask away.

Sunny

>I saw my rheumy today-a 45 minute appointment. I am >to go back up to 5 mg of pred and continue on enbrel >while they start the paperwork to get me switched over >to Remicade. He said that is my best chance (right >now) to ever get below 5 mg of pred. My head is >swimming right now with all we discussed, so I am >going to start checking out Remicade on line. Has >anyone in the group ever been on that before?

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December 19, 2001

Hi Sharon,

I'm on Remicade right now. I go to a medical center to get an IV infusion of Remicade once every 8 weeks. When I first started the remicade treatment, I received the infusion in different frequencies - 0,2,4,8 and now, every 8 weeks continually. However, I was informed it will only work in conjunction with Methotrexate which I take 7.5 mg orally. The inconvenience for me of getting the infusion is setting aside 3 hours which is how long it takes. Like yourself, Plaquenil had no effect on me and the high doses of MTX still did not allow me to taper off steroids. With the introduction of Remicade, I immediately began to taper off the dreaded steroids after being on it for a year. Now, finally I'm off of it completely.

I'm actually in the process of enrolling for Enbrel because I do not want to be on both the MTX and the Remicade.

Well, if you have any further questions, just ask away.

Sunny

>I saw my rheumy today-a 45 minute appointment. I am >to go back up to 5 mg of pred and continue on enbrel >while they start the paperwork to get me switched over >to Remicade. He said that is my best chance (right >now) to ever get below 5 mg of pred. My head is >swimming right now with all we discussed, so I am >going to start checking out Remicade on line. Has >anyone in the group ever been on that before?

Chat with friends online, try MSN Messenger: Click Here

December 20, 2001

--- sunny lee wrote:

<HR>

<html>

<P>Hi Sharon, </P>

<P>I'm on Remicade right now. & nbsp; I go to a medical

center to get an IV infusion of Remicade once every 8

weeks. & nbsp; When & nbsp;I first started the remicade

treatment, & nbsp;I received the infusion

in & nbsp;different frequencies

- & nbsp;0,2,4,8 & nbsp;and & nbsp;now,

every & nbsp;8 & nbsp;weeks continually. & nbsp; However, I

was informed it will only work in conjunction with

Methotrexate which I take 7.5 mg

orally. & nbsp; & nbsp;The inconvenience for me of getting

the infusion is setting aside & nbsp;3 hours which is

how long it takes. & nbsp; Like yourself, Plaquenil had

no effect on me and the high doses of MTX still did

not allow me to taper off steroids. & nbsp;With the

introduction of Remicade, I immediately began to taper

off the dreaded steroids after being on it for a

year. & nbsp; Now, finally I'm off & nbsp;of

it & nbsp;completely.</P>

<P>I'm actually in the process of enrolling for Enbrel

because I do not want to be on both the MTX and the

Remicade.</P>

<P>Well, if you have any further questions, & nbsp;just

ask away. & nbsp; <BR></P>

Thanks for the information, Sunny. I do appreciate

it. I am not on MTX currently due to the toxic side

effects that I experienced. However my doctor is

always willing to try new and different things. After

two years on Prednisone, and now dealing with the high

blood pressure it has caused, he wants me off steroids

really badly. He feels that the advantage of Remicade

over Enbrel is that the dosage is much more adjustable

and that is what I need. Enbrel has allowed me to

lower my prednisone to about half of what I was

taking, but I cannot get lower on it. So, I am

willing to try this and see how it goes. My doc has

another RP patient who is doing great on Remicade.

Thanks again for your information, and I wish you the

best success on Enbrel. Thanks, Sharon

=====

__________________________________________________

December 20, 2001

--- sunny lee wrote:

<HR>

<html>

<P>Hi Sharon, </P>

<P>I'm on Remicade right now. & nbsp; I go to a medical

center to get an IV infusion of Remicade once every 8

weeks. & nbsp; When & nbsp;I first started the remicade

treatment, & nbsp;I received the infusion

in & nbsp;different frequencies

- & nbsp;0,2,4,8 & nbsp;and & nbsp;now,

every & nbsp;8 & nbsp;weeks continually. & nbsp; However, I

was informed it will only work in conjunction with

Methotrexate which I take 7.5 mg

orally. & nbsp; & nbsp;The inconvenience for me of getting

the infusion is setting aside & nbsp;3 hours which is

how long it takes. & nbsp; Like yourself, Plaquenil had

no effect on me and the high doses of MTX still did

not allow me to taper off steroids. & nbsp;With the

introduction of Remicade, I immediately began to taper

off the dreaded steroids after being on it for a

year. & nbsp; Now, finally I'm off & nbsp;of

it & nbsp;completely.</P>

<P>I'm actually in the process of enrolling for Enbrel

because I do not want to be on both the MTX and the

Remicade.</P>

<P>Well, if you have any further questions, & nbsp;just

ask away. & nbsp; <BR></P>

Thanks for the information, Sunny. I do appreciate

it. I am not on MTX currently due to the toxic side

effects that I experienced. However my doctor is

always willing to try new and different things. After

two years on Prednisone, and now dealing with the high

blood pressure it has caused, he wants me off steroids

really badly. He feels that the advantage of Remicade

over Enbrel is that the dosage is much more adjustable

and that is what I need. Enbrel has allowed me to

lower my prednisone to about half of what I was

taking, but I cannot get lower on it. So, I am

willing to try this and see how it goes. My doc has

another RP patient who is doing great on Remicade.

Thanks again for your information, and I wish you the

best success on Enbrel. Thanks, Sharon

=====

__________________________________________________

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