Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << I have a lovely thing going on, when I get up in the middle of the night to go potty, I have to hold on to the wall, the dresser, anything that holds me up...I get dizzy and kind of a rolling numbness from head to toe. It passes after a minute or two. >> Judy, I have the exact same thing. Unfortunately, mine doesn't pass after a minute or two. The same thing happens when I get up from a sitting position. No, it isn't my blood pressure. They say the medication is handling it fine. There seems to be so much going on with me medically right now. I'm just sick of it all. But, then again, aren't we all. Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << I have a lovely thing going on, when I get up in the middle of the night to go potty, I have to hold on to the wall, the dresser, anything that holds me up...I get dizzy and kind of a rolling numbness from head to toe. It passes after a minute or two. >> Judy, I have the exact same thing. Unfortunately, mine doesn't pass after a minute or two. The same thing happens when I get up from a sitting position. No, it isn't my blood pressure. They say the medication is handling it fine. There seems to be so much going on with me medically right now. I'm just sick of it all. But, then again, aren't we all. Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << I guess I'm not doing my part in the grandchildren deparment, only have two in Colorado, >> Judy, Where in Colorado? T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << I guess I'm not doing my part in the grandchildren deparment, only have two in Colorado, >> Judy, Where in Colorado? T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << Does your rheumy have you on pred, at least that could help with the pain and aches. >> Yes, I'm constantly on Pred. Have been since 1997. She switched me to Imuran from Dapsone, so hoping that will help. Having a rough time with diabetes right now. Thanks for your concern. Are you doing okay? Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time, Rpolychondritis writes: << Does your rheumy have you on pred, at least that could help with the pain and aches. >> Yes, I'm constantly on Pred. Have been since 1997. She switched me to Imuran from Dapsone, so hoping that will help. Having a rough time with diabetes right now. Thanks for your concern. Are you doing okay? Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 --- OneSuperMema@... wrote: > In a message dated 09/17/2001 10:04:17 PM Central > Daylight Time, > Rpolychondritis writes: > Yes, I'm constantly on Pred. Have been since 1997. > She switched me to > Imuran from Dapsone, so hoping that will help. > Having a rough time with > diabetes right now. Thanks for your concern. Are > you doing okay? > Love, > T. > , you need to get better, and soon! Love you and are praying for you. Love, Sharon ===== __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 --- OneSuperMema@... wrote: > In a message dated 09/17/2001 10:04:17 PM Central > Daylight Time, > Rpolychondritis writes: > Yes, I'm constantly on Pred. Have been since 1997. > She switched me to > Imuran from Dapsone, so hoping that will help. > Having a rough time with > diabetes right now. Thanks for your concern. Are > you doing okay? > Love, > T. > , you need to get better, and soon! Love you and are praying for you. Love, Sharon ===== __________________________________________________ Terrorist Attacks on U.S. - How can you help? Donate cash, emergency relief information http://dailynews.yahoo.com/fc/US/Emergency_Information/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:38:12 AM Central Daylight Time, OneSuperMema@... writes: << Unfortunately, mine doesn't pass after a minute or two. The same thing happens when I get up from a sitting position. >> , have they checked for a TIA? I was having those for a while before I finally had a real stroke. Don't want to scare you, but I hope you get this checked out. OK? Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:38:12 AM Central Daylight Time, OneSuperMema@... writes: << Unfortunately, mine doesn't pass after a minute or two. The same thing happens when I get up from a sitting position. >> , have they checked for a TIA? I was having those for a while before I finally had a real stroke. Don't want to scare you, but I hope you get this checked out. OK? Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:41:42 AM Central Daylight Time, OneSuperMema@... writes: << Where in Colorado? T. >> , a suburb of Denver. Why? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:41:42 AM Central Daylight Time, OneSuperMema@... writes: << Where in Colorado? T. >> , a suburb of Denver. Why? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:44:35 AM Central Daylight Time, OneSuperMema@... writes: << Having a rough time with diabetes right now. Thanks for your concern. Are you doing okay? >> God, , how I wish they could do SOMETHING for us! All they do is try to slow down the disease, I don't want to slow it down, I WANT IT CURED!! AND I WANT IT KNOW!! It's so frustrating and depressing. There has to be something that works for us, isn't there? I'm so sorry you're having so many troubles now, if I had a magic wand, I'd wave it over your head! Please take care and try to keep your spirits up (difficult I know) I'm doing OK. Trying to keep busy outside the house (distraction from the disease), I'm teaching Religious Education on Wednesday's, so it keeps me busy. It's funny, I say this like it's so much, and when I think of all the stuff I used to do! POOP! Love you, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2001 Report Share Posted September 18, 2001 In a message dated 09/18/2001 2:44:35 AM Central Daylight Time, OneSuperMema@... writes: << Having a rough time with diabetes right now. Thanks for your concern. Are you doing okay? >> God, , how I wish they could do SOMETHING for us! All they do is try to slow down the disease, I don't want to slow it down, I WANT IT CURED!! AND I WANT IT KNOW!! It's so frustrating and depressing. There has to be something that works for us, isn't there? I'm so sorry you're having so many troubles now, if I had a magic wand, I'd wave it over your head! Please take care and try to keep your spirits up (difficult I know) I'm doing OK. Trying to keep busy outside the house (distraction from the disease), I'm teaching Religious Education on Wednesday's, so it keeps me busy. It's funny, I say this like it's so much, and when I think of all the stuff I used to do! POOP! Love you, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 I have the same kind of dizziness!! I was thinking it was something in the inner ear. Alesia Re: Digest Number 2011 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time,Rpolychondritis writes:<< I have a lovely thing going on, when Iget up in the middle of the night to go potty, I have to hold on to thewall,the dresser, anything that holds me up...I get dizzy and kind of a rollingnumbness from head to toe. It passes after a minute or two. >>Judy,I have the exact same thing. Unfortunately, mine doesn't pass after a minuteor two. The same thing happens when I get up from a sitting position. No,it isn't my blood pressure. They say the medication is handling it fine.There seems to be so much going on with me medically right now. I'm justsick of it all. But, then again, aren't we all.Love, T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 I have the same kind of dizziness!! I was thinking it was something in the inner ear. Alesia Re: Digest Number 2011 In a message dated 09/17/2001 10:04:17 PM Central Daylight Time,Rpolychondritis writes:<< I have a lovely thing going on, when Iget up in the middle of the night to go potty, I have to hold on to thewall,the dresser, anything that holds me up...I get dizzy and kind of a rollingnumbness from head to toe. It passes after a minute or two. >>Judy,I have the exact same thing. Unfortunately, mine doesn't pass after a minuteor two. The same thing happens when I get up from a sitting position. No,it isn't my blood pressure. They say the medication is handling it fine.There seems to be so much going on with me medically right now. I'm justsick of it all. But, then again, aren't we all.Love, T. Quote Link to comment Share on other sites More sharing options...
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