Re: I need some tough love right now. - Just Venting. Nothing to do with SCD.

[Guest guest]

,If I could I would give you a hug right now! Sounds like life is biting hard at the moment. How fast are you tapering? I would stop the asacol as well. It isn't really for flare, just maintenance. Are you taking a probiotic? I think that is what you need the most at the moment, especially if you aren't taking yogurt. Just open the capsule and mix it with some room temperature liquid if you are having trouble digesting food at the moment. Go take an epsom salt bath and then take a nap if you are tired.AmeliaTo: btvc-scd Sent: Tue, March 23, 2010 11:48:21 PMSubject: I need some tough love right now. - Just Venting. Nothing to do with SCD.

I'm on Prednisone.. . which i'm going to start weening off of because the side effects are not worth whatever it's helping with. I'm having alot of depression, mood swings, and mental breakdowns. Never had these side effects with Prednisone before, but maybe antibiotics change that too. I took Antibiotics for 3 days, and now i'm going to be in the worst flare ever for 3 months if this continues for 30 more days. I've gone back to into/stage 1 foods, and I can't tell what's effecting me and what's not. I was eating only meat for 3 days at one point, but I can't keep doing that. I already lost 20 pounds in less than 2 months, which isn't healthy. MY body needs energy to heal, but I don't know what it wants to have that it won't react with. Right now I huess it's reacting with everything!I've been really thinking of living for today and not for tomorrow.... . like going off SCD and eating whatever, getting drunk, passing out, and doing

it all again the next day. I'll go on the Imuran my doc wanted me on and things will be all better.... I won't have to cook everyday when I get home because I drive 2 hours to work and back so I don't have any time to do anything else. I wouldn't have lost the person I thought was my other half because of how stressfull this disease and this diet can be, and I would have been able to eat all the peanut butter easter eggs I wanted to last year, and do it again this year.Then I remember i'm on Prednisone, and it's freaking me out in the head! Maybe it's the Asacol.... considering the side effects of it are exactly what it's supposed to be treating? Now does that make any sense?-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. The

New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

-

I am sure you'll get better. Remember, even this will pass.

Is the pred working? I wouldn't worry about the side-effects as much --

important thing is to bring the bleeding under control so that you can gain some

health and start fighting the disease back.

We all know it can be frustrating, but hang in tightly there.

Depending upon your insurance, I would see if you can change the medications and

get things under control.

I really hope that azathioprine kicks in for you.

If its any consolation, I'm single in a complicated, uncertain relationship,

with my family living thousands of miles away.

We are here for each other. You're welcome to call me and vent, if you'd like --

write to me off-line.

Keep us posted.

Hugs,

-Andy.

[Guest guest]

-

I am sure you'll get better. Remember, even this will pass.

Is the pred working? I wouldn't worry about the side-effects as much --

important thing is to bring the bleeding under control so that you can gain some

health and start fighting the disease back.

We all know it can be frustrating, but hang in tightly there.

Depending upon your insurance, I would see if you can change the medications and

get things under control.

I really hope that azathioprine kicks in for you.

If its any consolation, I'm single in a complicated, uncertain relationship,

with my family living thousands of miles away.

We are here for each other. You're welcome to call me and vent, if you'd like --

write to me off-line.

Keep us posted.

Hugs,

-Andy.

[Guest guest]

I know you are grieving your relationship. I wanted to add that the changes of

an illness and diet will affect any relationship. Although I've been married 25

years, it was an adjustment.

My parents have been married over 55 years and my dad has been seriously ill for

the last few. They are both struggling with the changes in their relationship.

My dad enjoyed taking care of my mom. They don't like it the other way around.

Every relationship has its challenges and they take work. Hopefully you will be

with someone who will be able to work through the ups and downs, as you will

have to do too.

, when you are feeling better, you will be so much stronger.

PJ

>

> -

>

> I am sure you'll get better. Remember, even this will pass.

>

> Is the pred working? I wouldn't worry about the side-effects as much --

important thing is to bring the bleeding under control so that you can gain some

health and start fighting the disease back.

>

> We all know it can be frustrating, but hang in tightly there.

>

> Depending upon your insurance, I would see if you can change the medications

and get things under control.

>

> I really hope that azathioprine kicks in for you.

>

> If its any consolation, I'm single in a complicated, uncertain relationship,

with my family living thousands of miles away.

>

> We are here for each other. You're welcome to call me and vent, if you'd like

-- write to me off-line.

>

> Keep us posted.

>

> Hugs,

> -Andy.

>

[Guest guest]

I know you are grieving your relationship. I wanted to add that the changes of

an illness and diet will affect any relationship. Although I've been married 25

years, it was an adjustment.

My parents have been married over 55 years and my dad has been seriously ill for

the last few. They are both struggling with the changes in their relationship.

My dad enjoyed taking care of my mom. They don't like it the other way around.

Every relationship has its challenges and they take work. Hopefully you will be

with someone who will be able to work through the ups and downs, as you will

have to do too.

, when you are feeling better, you will be so much stronger.

PJ

>

> -

>

> I am sure you'll get better. Remember, even this will pass.

>

> Is the pred working? I wouldn't worry about the side-effects as much --

important thing is to bring the bleeding under control so that you can gain some

health and start fighting the disease back.

>

> We all know it can be frustrating, but hang in tightly there.

>

> Depending upon your insurance, I would see if you can change the medications

and get things under control.

>

> I really hope that azathioprine kicks in for you.

>

> If its any consolation, I'm single in a complicated, uncertain relationship,

with my family living thousands of miles away.

>

> We are here for each other. You're welcome to call me and vent, if you'd like

-- write to me off-line.

>

> Keep us posted.

>

> Hugs,

> -Andy.

>

[Guest guest]

Kat & ,

I have saved your emails into a folder called "Cheer up, things could be worse" which I can go back to and read whenever I am discouraged...something I battle almost daily. My heart goes out to you and I salute your courage to continue. I sincerely hope you find your way out of this morass of illness and black emotion. We are all cheering you on! DarleneIntestinal Dysbiosis/CFSSCD 1 month

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

Kat & ,

I have saved your emails into a folder called "Cheer up, things could be worse" which I can go back to and read whenever I am discouraged...something I battle almost daily. My heart goes out to you and I salute your courage to continue. I sincerely hope you find your way out of this morass of illness and black emotion. We are all cheering you on! DarleneIntestinal Dysbiosis/CFSSCD 1 month

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

,

Flares are no fun. It's especially tough when you have to make an

either/or choice like you did with the antibiotics.

I had the same kind of choice after my cancer surgery -- here I am with a

24 " slice in my gut and all of the pain meds have illegals in them,

because I didn't think about asking for compounded pain meds before hand.

The 800 mg Motrin was especially entertaining. Motrin gives me the runs,

any way -- and it's formulated with LACTOSE! I can state, unequivocally,

that having an " explosion " and having to bolt for the necessary

with a 24 " slice in your gut is NOT entertaining.

I think you are right to get plenty of good probiotics down there to help

repopulate your gut, but don't go overboard with them!

Was the stuff you left out for 10 hours frozen, or not? What about the

room temperature?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

,

Flares are no fun. It's especially tough when you have to make an

either/or choice like you did with the antibiotics.

I had the same kind of choice after my cancer surgery -- here I am with a

24 " slice in my gut and all of the pain meds have illegals in them,

because I didn't think about asking for compounded pain meds before hand.

The 800 mg Motrin was especially entertaining. Motrin gives me the runs,

any way -- and it's formulated with LACTOSE! I can state, unequivocally,

that having an " explosion " and having to bolt for the necessary

with a 24 " slice in your gut is NOT entertaining.

I think you are right to get plenty of good probiotics down there to help

repopulate your gut, but don't go overboard with them!

Was the stuff you left out for 10 hours frozen, or not? What about the

room temperature?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Hey ,

I'm so sorry you're going through such a down time right now. Prednisone can

definitely screw with your emotions among other things. I'm on Prednisone right

now too (tapering), but when I was on 40 mg I was going crazy, couldn't sleep,

major mood swings etc. I feel for you!

> I've been really thinking of living for today and not for tomorrow..... like

going off SCD and eating whatever, getting drunk, passing out, and doing it all

again the next day. I'll go on the Imuran my doc wanted me on and things will be

all better.... I won't have to cook everyday when I get home because I drive 2

hours to work and back so I don't have any time to do anything else. I wouldn't

have lost the person I thought was my other half because of how stressfull this

disease and this diet can be, and I would have been able to eat all the peanut

butter easter eggs I wanted to last year, and do it again this year.

I go through this thinking too. I unfortunately acted on it over Christmas, and

then I paid for it with a huge flare and a trip to the hospital. Of course, it

may have been due to the fact that maybe my meds aren't working anymore, who

knows, but that's the thing. I'm on was on 2 different meds at the time-the big

guns- Remicade & Methotrexate, and I still ended up in the hospital. So maybe

you could get away with getting on Imuran and going off the diet for a while,

but being on Imuran isn't a guarantee that you'd stay in remission. I know

you're going to give the diet a shot, so good for you, but for me I learned my

lesson and am scared enough now to stick with the diet even if I start to feel

better and peanut butter easter eggs (which are one of my absolute favorite

candies in the world) call my name at the grocery store. So maybe you can take a

lesson from my dumb mistake!

I think it was mentioned earlier that maybe you should try switching meds. Of

course I'm not a doctor, but if your meds aren't helping you at all, maybe it's

a good idea. It could help you out of your flare and give you more variety in

your diet, and hopefully get you off the dreaded prednisone!

You're definitely a fighter. I can't imagine going through your illness and a

break up, plus driving 2 hours to work every day and cooking all your food. It's

really hard having a chronic disease. I'm still trying to grasp it. That in

itself is enough to make someone depressed, and then add to that feeling

horrible with no energy and meds with crazy side effects and it's just a recipe

to feeling out of whack. But you'll eventually get out of your flare. It may

take different meds or something else, but it will get better. I know how it is

though when you're in the midst of it all. When I was in the hospital, I needed

someone to keep reminding me that it was going to get better. Half the time I

never believed them, but it finally did. And once you're feeling better, things

will be so much easier for you. The cloud will lift and you'll be able to think

more clearly. It's really hard to stay positive when you feel like trash.

So please continue to vent! We're here for you. We can be your positive voice

and remind you that things will get better. I know it's not the same as in

person, but it's something. I hope you find something that gets you feeling

better ASAP!! Hang in there!

Hugs,

Amber

>

> Then I remember i'm on Prednisone, and it's freaking me out in the head!

>

> Maybe it's the Asacol.... considering the side effects of it are exactly what

it's supposed to be treating? Now does that make any sense?

>

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:032010_3

>

[Guest guest]

Hey ,

I'm so sorry you're going through such a down time right now. Prednisone can

definitely screw with your emotions among other things. I'm on Prednisone right

now too (tapering), but when I was on 40 mg I was going crazy, couldn't sleep,

major mood swings etc. I feel for you!

> I've been really thinking of living for today and not for tomorrow..... like

going off SCD and eating whatever, getting drunk, passing out, and doing it all

again the next day. I'll go on the Imuran my doc wanted me on and things will be

all better.... I won't have to cook everyday when I get home because I drive 2

hours to work and back so I don't have any time to do anything else. I wouldn't

have lost the person I thought was my other half because of how stressfull this

disease and this diet can be, and I would have been able to eat all the peanut

butter easter eggs I wanted to last year, and do it again this year.

I go through this thinking too. I unfortunately acted on it over Christmas, and

then I paid for it with a huge flare and a trip to the hospital. Of course, it

may have been due to the fact that maybe my meds aren't working anymore, who

knows, but that's the thing. I'm on was on 2 different meds at the time-the big

guns- Remicade & Methotrexate, and I still ended up in the hospital. So maybe

you could get away with getting on Imuran and going off the diet for a while,

but being on Imuran isn't a guarantee that you'd stay in remission. I know

you're going to give the diet a shot, so good for you, but for me I learned my

lesson and am scared enough now to stick with the diet even if I start to feel

better and peanut butter easter eggs (which are one of my absolute favorite

candies in the world) call my name at the grocery store. So maybe you can take a

lesson from my dumb mistake!

I think it was mentioned earlier that maybe you should try switching meds. Of

course I'm not a doctor, but if your meds aren't helping you at all, maybe it's

a good idea. It could help you out of your flare and give you more variety in

your diet, and hopefully get you off the dreaded prednisone!

You're definitely a fighter. I can't imagine going through your illness and a

break up, plus driving 2 hours to work every day and cooking all your food. It's

really hard having a chronic disease. I'm still trying to grasp it. That in

itself is enough to make someone depressed, and then add to that feeling

horrible with no energy and meds with crazy side effects and it's just a recipe

to feeling out of whack. But you'll eventually get out of your flare. It may

take different meds or something else, but it will get better. I know how it is

though when you're in the midst of it all. When I was in the hospital, I needed

someone to keep reminding me that it was going to get better. Half the time I

never believed them, but it finally did. And once you're feeling better, things

will be so much easier for you. The cloud will lift and you'll be able to think

more clearly. It's really hard to stay positive when you feel like trash.

So please continue to vent! We're here for you. We can be your positive voice

and remind you that things will get better. I know it's not the same as in

person, but it's something. I hope you find something that gets you feeling

better ASAP!! Hang in there!

Hugs,

Amber

>

> Then I remember i'm on Prednisone, and it's freaking me out in the head!

>

> Maybe it's the Asacol.... considering the side effects of it are exactly what

it's supposed to be treating? Now does that make any sense?

>

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:032010_3

>

[Guest guest]

it was stew beef with a little swiss cheese on top that I had had in the refrigerator, but I left it out on a plate inside the microwave (never even microwaved it) for 10 hours during the day. I ended up throwing it away. Room temp in my apartment now is about 70 F-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: LouisianaSCDLagniappe@...Date: Wed, 24 Mar 2010 11:06:15 -0500Subject: RE: Re: I need some tough love right now. - Just Venting. Nothing to do with SCD.

,

Flares are no fun. It's especially tough when you have to make an

either/or choice like you did with the antibiotics.

I had the same kind of choice after my cancer surgery -- here I am with a

24" slice in my gut and all of the pain meds have illegals in them,

because I didn't think about asking for compounded pain meds before hand.

The 800 mg Motrin was especially entertaining. Motrin gives me the runs,

any way -- and it's formulated with LACTOSE! I can state, unequivocally,

that having an "explosion" and having to bolt for the necessary

with a 24" slice in your gut is NOT entertaining.

I think you are right to get plenty of good probiotics down there to help

repopulate your gut, but don't go overboard with them!

Was the stuff you left out for 10 hours frozen, or not? What about the

room temperature?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. Sign up now.

[Guest guest]

it was stew beef with a little swiss cheese on top that I had had in the refrigerator, but I left it out on a plate inside the microwave (never even microwaved it) for 10 hours during the day. I ended up throwing it away. Room temp in my apartment now is about 70 F-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: LouisianaSCDLagniappe@...Date: Wed, 24 Mar 2010 11:06:15 -0500Subject: RE: Re: I need some tough love right now. - Just Venting. Nothing to do with SCD.

,

Flares are no fun. It's especially tough when you have to make an

either/or choice like you did with the antibiotics.

I had the same kind of choice after my cancer surgery -- here I am with a

24" slice in my gut and all of the pain meds have illegals in them,

because I didn't think about asking for compounded pain meds before hand.

The 800 mg Motrin was especially entertaining. Motrin gives me the runs,

any way -- and it's formulated with LACTOSE! I can state, unequivocally,

that having an "explosion" and having to bolt for the necessary

with a 24" slice in your gut is NOT entertaining.

I think you are right to get plenty of good probiotics down there to help

repopulate your gut, but don't go overboard with them!

Was the stuff you left out for 10 hours frozen, or not? What about the

room temperature?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. Sign up now.

[Guest guest]

Hi ,

I already posted back to you on this, but I just wanted to add something about

the whole relationship break up thing. It's been a few months for me - my guy

left me on new years eve - and I was on Prednisone at 40mg the whole month of

December and part of January, so the breakup happened as I was going crazy

crying half the day, wanting to punch someone the other, and not sleeping at

night while starting a new quarter at school. It was nuts, and I felt like I was

really falling apart through a lot of it. It was before I was on SCD too so I

was giving into sugar and starch cravings from the prednisone, and probably

making things a lot worse. Epsom salt baths helped, but most of the time I

couldnt' stop thinking about the guy even if I really really tried, and I'd get

adrenaline rushes at the mere thought. I felt out of control.

But, as a sort of light at the end of the tunnel, now I am on 10mg, and things

are much MUCH better. I think at the lower doses our bodies are better able to

handle the side effects. Anyway, having learned to deal with this illness on my

own, and with some help from friends and family, I'm really at a place of

emotional intelligence in my life where I feel I am much more grown up than when

I was diagnosed back in June. I have come a long way in learning how to

prioritize my life, how to enjoy what I can, how to be grateful that I am even

alive, and how to take things in stride that others (including my ex) would go

nuts over and over-dramatize. I realize at this point that his companionship

would really not be what I need anymore in my life. I am ready to meet someone

who is able to meet me at my new maturity level, and not have

fight-or-flight-syndrome when it comes to a relationship, especially one with

someone with a chronic illness. Freaking out over someone being sick and running

away from it may be a legitimate defense mechanism, but I don't need that kind

of behavior in my life. I feel MUCH happier having come to terms with being

alone, but looking forward to a new me that has more of my feet on the ground

than I have in all my " adult " life. It is a good thing that I am not worrying

about someone else too, someone whose delicate ego I would have to placate while

trying to heal myself physically, emotionally and spiritually.

So! There is the relationship rant. I know how hard it is to think logically

(and remember what was just thought logically 2 seconds ago!) while on P. I

really do feel like now I can look back at that time and be grateful that during

it I found the diet, and learned how to put myself first in my life, albeit the

hard way.

Hugs from cyberspace!

Kat

27

UC since June 09

SCD since Feb 10

Prednisone 10mg, acyclovir, multivitamin, probiotics

>

>

> I'm on Prednisone... which i'm going to start weening off of because the side

effects are not worth whatever it's helping with. I'm having alot of depression,

mood swings, and mental breakdowns. Never had these side effects with Prednisone

before, but maybe antibiotics change that too. I took Antibiotics for 3 days,

and now i'm going to be in the worst flare ever for 3 months if this continues

for 30 more days.

>

> I've gone back to into/stage 1 foods, and I can't tell what's effecting me and

what's not. I was eating only meat for 3 days at one point, but I can't keep

doing that. I already lost 20 pounds in less than 2 months, which isn't healthy.

MY body needs energy to heal, but I don't know what it wants to have that it

won't react with. Right now I huess it's reacting with everything!

>

> I've been really thinking of living for today and not for tomorrow..... like

going off SCD and eating whatever, getting drunk, passing out, and doing it all

again the next day. I'll go on the Imuran my doc wanted me on and things will be

all better.... I won't have to cook everyday when I get home because I drive 2

hours to work and back so I don't have any time to do anything else. I wouldn't

have lost the person I thought was my other half because of how stressfull this

disease and this diet can be, and I would have been able to eat all the peanut

butter easter eggs I wanted to last year, and do it again this year.

>

> Then I remember i'm on Prednisone, and it's freaking me out in the head!

>

> Maybe it's the Asacol.... considering the side effects of it are exactly what

it's supposed to be treating? Now does that make any sense?

>

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:032010_3

>

[Guest guest]

Hi ,

I already posted back to you on this, but I just wanted to add something about

the whole relationship break up thing. It's been a few months for me - my guy

left me on new years eve - and I was on Prednisone at 40mg the whole month of

December and part of January, so the breakup happened as I was going crazy

crying half the day, wanting to punch someone the other, and not sleeping at

night while starting a new quarter at school. It was nuts, and I felt like I was

really falling apart through a lot of it. It was before I was on SCD too so I

was giving into sugar and starch cravings from the prednisone, and probably

making things a lot worse. Epsom salt baths helped, but most of the time I

couldnt' stop thinking about the guy even if I really really tried, and I'd get

adrenaline rushes at the mere thought. I felt out of control.

But, as a sort of light at the end of the tunnel, now I am on 10mg, and things

are much MUCH better. I think at the lower doses our bodies are better able to

handle the side effects. Anyway, having learned to deal with this illness on my

own, and with some help from friends and family, I'm really at a place of

emotional intelligence in my life where I feel I am much more grown up than when

I was diagnosed back in June. I have come a long way in learning how to

prioritize my life, how to enjoy what I can, how to be grateful that I am even

alive, and how to take things in stride that others (including my ex) would go

nuts over and over-dramatize. I realize at this point that his companionship

would really not be what I need anymore in my life. I am ready to meet someone

who is able to meet me at my new maturity level, and not have

fight-or-flight-syndrome when it comes to a relationship, especially one with

someone with a chronic illness. Freaking out over someone being sick and running

away from it may be a legitimate defense mechanism, but I don't need that kind

of behavior in my life. I feel MUCH happier having come to terms with being

alone, but looking forward to a new me that has more of my feet on the ground

than I have in all my " adult " life. It is a good thing that I am not worrying

about someone else too, someone whose delicate ego I would have to placate while

trying to heal myself physically, emotionally and spiritually.

So! There is the relationship rant. I know how hard it is to think logically

(and remember what was just thought logically 2 seconds ago!) while on P. I

really do feel like now I can look back at that time and be grateful that during

it I found the diet, and learned how to put myself first in my life, albeit the

hard way.

Hugs from cyberspace!

Kat

27

UC since June 09

SCD since Feb 10

Prednisone 10mg, acyclovir, multivitamin, probiotics

>

>

> I'm on Prednisone... which i'm going to start weening off of because the side

effects are not worth whatever it's helping with. I'm having alot of depression,

mood swings, and mental breakdowns. Never had these side effects with Prednisone

before, but maybe antibiotics change that too. I took Antibiotics for 3 days,

and now i'm going to be in the worst flare ever for 3 months if this continues

for 30 more days.

>

> I've gone back to into/stage 1 foods, and I can't tell what's effecting me and

what's not. I was eating only meat for 3 days at one point, but I can't keep

doing that. I already lost 20 pounds in less than 2 months, which isn't healthy.

MY body needs energy to heal, but I don't know what it wants to have that it

won't react with. Right now I huess it's reacting with everything!

>

> I've been really thinking of living for today and not for tomorrow..... like

going off SCD and eating whatever, getting drunk, passing out, and doing it all

again the next day. I'll go on the Imuran my doc wanted me on and things will be

all better.... I won't have to cook everyday when I get home because I drive 2

hours to work and back so I don't have any time to do anything else. I wouldn't

have lost the person I thought was my other half because of how stressfull this

disease and this diet can be, and I would have been able to eat all the peanut

butter easter eggs I wanted to last year, and do it again this year.

>

> Then I remember i'm on Prednisone, and it's freaking me out in the head!

>

> Maybe it's the Asacol.... considering the side effects of it are exactly what

it's supposed to be treating? Now does that make any sense?

>

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

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