Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 I " m sending a post I received from a new member.. I " M signing her up for the group... I'm sure she would love to hear from all of you. Hi I am just getting into this relapsing polychondritis thing and I am so scared that I can hardly say the words. I went to the doctor for an ear infection and WHAM, " we think you may have this rare thing........ " I have the red ear, fatique, joint pain, cough, throat pain and unsteady balance. My SED rate is " off " ? In Feb I go for an MRI to see how much damage has been done so far. When I asked for information they just said " well lets wait and see what your MRI shows, WOuld appreciate hearing from anyone Thanks Larri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 I " m sending a post I received from a new member.. I " M signing her up for the group... I'm sure she would love to hear from all of you. Hi I am just getting into this relapsing polychondritis thing and I am so scared that I can hardly say the words. I went to the doctor for an ear infection and WHAM, " we think you may have this rare thing........ " I have the red ear, fatique, joint pain, cough, throat pain and unsteady balance. My SED rate is " off " ? In Feb I go for an MRI to see how much damage has been done so far. When I asked for information they just said " well lets wait and see what your MRI shows, WOuld appreciate hearing from anyone Thanks Larri Quote Link to comment Share on other sites More sharing options...
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