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A message from my daughter Alice. The documents are in Word with tables in

Excel. Hopefully you can all read them ; if not perhaps someone in the

group will be able to make them accessible to all. alice is also planning

to send a copy to the relevant doctors.

" yes I've finally got the dissertation in a format to send to you all.

Page numbers may be a wee bit out in the appendix, but the contents should

be okay. The dissertation is in 2 documents. The first is the main part

and the second is purely the appendix containing references and

acknowledgements. I apologise if it seems a bit lengthy and full of

Pharmacology terminology, but it had to be for my degree. If you have any

problems with it, don't hesitate to contact my father or myself (my email

is alice@...). Sorry for the delay, I hope it was

worth the wait! " - Alice Dawson

(See attached file: appendixsending.doc)(See attached file: sendingdis.doc)

On a personal note life is a bit tough. I had surgery for prostate cancer

nearly 2 years ago. since then I have felt fine and have been monitored

every 6 months on my PSA ( prostate specific antigen ) score. They have all

been at a trivial level except the last one had gone up from 0.2 to 0.6 and

my surgeon and oncologist say the only explanation is minor but active

cancer. this throws all the options open. My best hope is that the cancer

cells are grouped around where the prostate used to be , then they can be

zapped by radiotherapy. However if they are now dispersed , on current

medical knowledge there is no cure , merely delaying processes usually

involving hormone therapy. I feel perfectly well and fit but no one is able

to reassure me all will be well in the future . I also feel something of a

'fraud' saying this to a group all of whom have the real daily pain and

uncertainty of rp. Medical science for prostate cancer is moving pretty

quickly and in the 'worst case scenario ' I just have to hope new

treatments have become a reality. i know this is a rp group but any input

or thoughts on prostate cancer would be greatly appreciated.

back to rp - ann has also had a tough time in the last week or two. After

several months of calm she had a nasty flare ( severe pain in the chest

and nausea for a day ) eventually after more pred and painkillers it

abated. Ann had got down to less than 10 mg but has had to go back up to

15. This is on top of the methotrexate. We just hope it was because she

dropped the pred too speedily and that a more gradual reduction will still

work . Finally our other daughter Clare age 25 has taken time out from

full time work and is spending a year in new Zealand and Australia. She

rang tonight and tomorrow she tackles the Abel Tasman Coastal trail in the

south Island of NZ. It's a small world

Dawson , Chester England

IMPORTANT NOTICE:

This email is confidential, may be legally privileged, and is for the

intended recipient only. Access, disclosure, copying, distribution, or

reliance on any of it by anyone else is prohibited and may be a criminal

offence. Please delete if obtained in error and email confirmation to the

sender.

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A message from my daughter Alice. The documents are in Word with tables in

Excel. Hopefully you can all read them ; if not perhaps someone in the

group will be able to make them accessible to all. alice is also planning

to send a copy to the relevant doctors.

" yes I've finally got the dissertation in a format to send to you all.

Page numbers may be a wee bit out in the appendix, but the contents should

be okay. The dissertation is in 2 documents. The first is the main part

and the second is purely the appendix containing references and

acknowledgements. I apologise if it seems a bit lengthy and full of

Pharmacology terminology, but it had to be for my degree. If you have any

problems with it, don't hesitate to contact my father or myself (my email

is alice@...). Sorry for the delay, I hope it was

worth the wait! " - Alice Dawson

(See attached file: appendixsending.doc)(See attached file: sendingdis.doc)

On a personal note life is a bit tough. I had surgery for prostate cancer

nearly 2 years ago. since then I have felt fine and have been monitored

every 6 months on my PSA ( prostate specific antigen ) score. They have all

been at a trivial level except the last one had gone up from 0.2 to 0.6 and

my surgeon and oncologist say the only explanation is minor but active

cancer. this throws all the options open. My best hope is that the cancer

cells are grouped around where the prostate used to be , then they can be

zapped by radiotherapy. However if they are now dispersed , on current

medical knowledge there is no cure , merely delaying processes usually

involving hormone therapy. I feel perfectly well and fit but no one is able

to reassure me all will be well in the future . I also feel something of a

'fraud' saying this to a group all of whom have the real daily pain and

uncertainty of rp. Medical science for prostate cancer is moving pretty

quickly and in the 'worst case scenario ' I just have to hope new

treatments have become a reality. i know this is a rp group but any input

or thoughts on prostate cancer would be greatly appreciated.

back to rp - ann has also had a tough time in the last week or two. After

several months of calm she had a nasty flare ( severe pain in the chest

and nausea for a day ) eventually after more pred and painkillers it

abated. Ann had got down to less than 10 mg but has had to go back up to

15. This is on top of the methotrexate. We just hope it was because she

dropped the pred too speedily and that a more gradual reduction will still

work . Finally our other daughter Clare age 25 has taken time out from

full time work and is spending a year in new Zealand and Australia. She

rang tonight and tomorrow she tackles the Abel Tasman Coastal trail in the

south Island of NZ. It's a small world

Dawson , Chester England

IMPORTANT NOTICE:

This email is confidential, may be legally privileged, and is for the

intended recipient only. Access, disclosure, copying, distribution, or

reliance on any of it by anyone else is prohibited and may be a criminal

offence. Please delete if obtained in error and email confirmation to the

sender.

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Hi ,

Please give my best to your family and please thank Alice for all of

her hard work on behalf of everyone with RP. If you have time, would

you please be so kind as to send me Alice's dissertation? I, too do

not receive the attachments and I would very much like to read her

paper.

As far as the prostate is concerned.....here are some sites that

might be of help. Like many things....they would like it if you

ordered their product....I am sending these things only for you to

look at and decide if any of it might be helpful. There is a site on

PC Spes (and I am sure there are others on it, as well). I have

heard positive results from those who use PC Spes. Here's a link:

http://www.herbs4healing.com/Cancer/PCspes/pcspes.html

Also, the following article might be helpful....but again, they are

trying to sell you a product...

http://www.agora-inc.com/reports/V02/1059EA/

Lastly, you might find some help at the http://bioimmune.com/ site.

I think they have a reliable combination of traditional meds and non

traditional ones too.

Lastly, I would recommend The Natural Pharmacist. They have lots of

information on various supplements and even have a list of drug

interactions. See http://www.tnp.com

Take care and the best to you,

Connie H

>

> A message from my daughter Alice. The documents are in Word with

tables in

> Excel.

Link to comment
Share on other sites

Hi ,

Please give my best to your family and please thank Alice for all of

her hard work on behalf of everyone with RP. If you have time, would

you please be so kind as to send me Alice's dissertation? I, too do

not receive the attachments and I would very much like to read her

paper.

As far as the prostate is concerned.....here are some sites that

might be of help. Like many things....they would like it if you

ordered their product....I am sending these things only for you to

look at and decide if any of it might be helpful. There is a site on

PC Spes (and I am sure there are others on it, as well). I have

heard positive results from those who use PC Spes. Here's a link:

http://www.herbs4healing.com/Cancer/PCspes/pcspes.html

Also, the following article might be helpful....but again, they are

trying to sell you a product...

http://www.agora-inc.com/reports/V02/1059EA/

Lastly, you might find some help at the http://bioimmune.com/ site.

I think they have a reliable combination of traditional meds and non

traditional ones too.

Lastly, I would recommend The Natural Pharmacist. They have lots of

information on various supplements and even have a list of drug

interactions. See http://www.tnp.com

Take care and the best to you,

Connie H

>

> A message from my daughter Alice. The documents are in Word with

tables in

> Excel.

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Share on other sites

, thank you for sending Alice's dissertation. I haven't been able to

read it yet, but plan on gettting caught up soon. LOL

Sounds like Clare is having a wonderful time. You must be so proud of your

girls. Do you have any more children or just the two daughters?

About the prostrate cancer, my sister's father was dx with it over 10 years

ago and then he was in the same situation as you are. The used homone

treatment with him and he is doing wonderful. It has been 8 years and still

going strong. He did have some side effects from the hormones, the worst

being the sweating ( hot flashes). Other than that, he leads a REALLY active

life.

so sorry that Ann had another flare... I know how she feels. I'm in the

middle of one too. Haven't had a bad one for a long time. Raised my pred

back up and seem to be doing okay again. Tell her Hi for me.

Please know that you and the rest of the family are in my thoughts and

prayers. Post more often, it's always so good to hear from you.

hugs

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, thank you for sending Alice's dissertation. I haven't been able to

read it yet, but plan on gettting caught up soon. LOL

Sounds like Clare is having a wonderful time. You must be so proud of your

girls. Do you have any more children or just the two daughters?

About the prostrate cancer, my sister's father was dx with it over 10 years

ago and then he was in the same situation as you are. The used homone

treatment with him and he is doing wonderful. It has been 8 years and still

going strong. He did have some side effects from the hormones, the worst

being the sweating ( hot flashes). Other than that, he leads a REALLY active

life.

so sorry that Ann had another flare... I know how she feels. I'm in the

middle of one too. Haven't had a bad one for a long time. Raised my pred

back up and seem to be doing okay again. Tell her Hi for me.

Please know that you and the rest of the family are in my thoughts and

prayers. Post more often, it's always so good to hear from you.

hugs

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Alice, thank you so much for sending us all a copy of your dissertation. It

was wonderful. I have printed it out for future reference. Thank you for

all of your hard work. You are one special lady.

Lots of hugs

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Alice, thank you so much for sending us all a copy of your dissertation. It

was wonderful. I have printed it out for future reference. Thank you for

all of your hard work. You are one special lady.

Lots of hugs

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