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-Hi Kathi,

I wrote that my rheumy has a gentleman patient and his ears and

nose are " literally being chewed up " -that was the drs. words....I

don't know what it looks like, but will ask him and maybe he can

describe it for us. I have little tiny notches in my ear also and have

wondered if it is destruction from the RP. This is a good question and

I will try to find an answer from the dr.

Take care,

Midge

-- In Rpolychondritis@y..., " Kathi Goodwin " <angelhearts61@h...>

wrote:

> Hi Everyone,

> I have a few more questions-- I hope that everyone can bare with me

while I

> am figuring this all out! I appreciate all of the help I am getting

from

> all of you wonderful people. My first question is about ear

problems. Ear

> pain/problems are not a major manifestation for me, but I am

wondering if I

> am beginning to have more of a problem with it. I am not having

red, hot,

> swollen ears, but I am having a frequent problem of feeling what

feels like

> a burning sensation to the outer, top portion of my ears. In the

last 2-3

> weeks, this has gotten worse. Does anyone else have this problem??

I read

> with interest this morning the post where a Dr. had made a comment

about a

> patient he treats with RP who's " ears and nose where eat up with

RP. " Does

> anyone have any idea what he could have been referring to? My ears,

> specifically my right ear, looks as if someone has cut notches out

of the

> top portion of it-- it just made me wonder if that might have been

part of

> what he was talking about. Does anyone else have that?? (So much

for my

> ears not being a major manifestation for me!!) My next question is

about

> eye problems. I have read a couple of times where someone refers to

eye

> pain. Could someone please describe what they mean by this. Right

now, I

> am having terrible eye pain and for me, it usually starts with one

eye

> (ususally my right eye) and it feels like a terrible preasure behind

that

> eye-- sometimes it is pulsating, other times it does not and then

> invariably, I get a terrible headache on the same side as the eye

pain. It

> is getting worse and worse. Does this sound like what other people

feel???

> Thanks again for all of your help!! I hope that everyone had a

great day!

> Kathi

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

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-Hi Kathi,

I wrote that my rheumy has a gentleman patient and his ears and

nose are " literally being chewed up " -that was the drs. words....I

don't know what it looks like, but will ask him and maybe he can

describe it for us. I have little tiny notches in my ear also and have

wondered if it is destruction from the RP. This is a good question and

I will try to find an answer from the dr.

Take care,

Midge

-- In Rpolychondritis@y..., " Kathi Goodwin " <angelhearts61@h...>

wrote:

> Hi Everyone,

> I have a few more questions-- I hope that everyone can bare with me

while I

> am figuring this all out! I appreciate all of the help I am getting

from

> all of you wonderful people. My first question is about ear

problems. Ear

> pain/problems are not a major manifestation for me, but I am

wondering if I

> am beginning to have more of a problem with it. I am not having

red, hot,

> swollen ears, but I am having a frequent problem of feeling what

feels like

> a burning sensation to the outer, top portion of my ears. In the

last 2-3

> weeks, this has gotten worse. Does anyone else have this problem??

I read

> with interest this morning the post where a Dr. had made a comment

about a

> patient he treats with RP who's " ears and nose where eat up with

RP. " Does

> anyone have any idea what he could have been referring to? My ears,

> specifically my right ear, looks as if someone has cut notches out

of the

> top portion of it-- it just made me wonder if that might have been

part of

> what he was talking about. Does anyone else have that?? (So much

for my

> ears not being a major manifestation for me!!) My next question is

about

> eye problems. I have read a couple of times where someone refers to

eye

> pain. Could someone please describe what they mean by this. Right

now, I

> am having terrible eye pain and for me, it usually starts with one

eye

> (ususally my right eye) and it feels like a terrible preasure behind

that

> eye-- sometimes it is pulsating, other times it does not and then

> invariably, I get a terrible headache on the same side as the eye

pain. It

> is getting worse and worse. Does this sound like what other people

feel???

> Thanks again for all of your help!! I hope that everyone had a

great day!

> Kathi

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

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Share on other sites

Hi Midge,

Thanks for clearing up the wording of what that Dr. said about the man's

ears. I had accidently deleted it so I couldn't go back and read it again.

Thanks again,

Kathi

>From: midgeirish@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Kathi-ears

>Date: Fri, 07 Sep 2001 03:16:30 -0000

>

>-Hi Kathi,

> I wrote that my rheumy has a gentleman patient and his ears and

>nose are " literally being chewed up " -that was the drs. words....I

>don't know what it looks like, but will ask him and maybe he can

>describe it for us. I have little tiny notches in my ear also and have

>wondered if it is destruction from the RP. This is a good question and

>I will try to find an answer from the dr.

> Take care,

> Midge

>

>-- In Rpolychondritis@y..., " Kathi Goodwin " <angelhearts61@h...>

>wrote:

> > Hi Everyone,

> > I have a few more questions-- I hope that everyone can bare with me

>while I

> > am figuring this all out! I appreciate all of the help I am getting

>from

> > all of you wonderful people. My first question is about ear

>problems. Ear

> > pain/problems are not a major manifestation for me, but I am

>wondering if I

> > am beginning to have more of a problem with it. I am not having

>red, hot,

> > swollen ears, but I am having a frequent problem of feeling what

>feels like

> > a burning sensation to the outer, top portion of my ears. In the

>last 2-3

> > weeks, this has gotten worse. Does anyone else have this problem??

> I read

> > with interest this morning the post where a Dr. had made a comment

>about a

> > patient he treats with RP who's " ears and nose where eat up with

>RP. " Does

> > anyone have any idea what he could have been referring to? My ears,

> > specifically my right ear, looks as if someone has cut notches out

>of the

> > top portion of it-- it just made me wonder if that might have been

>part of

> > what he was talking about. Does anyone else have that?? (So much

>for my

> > ears not being a major manifestation for me!!) My next question is

>about

> > eye problems. I have read a couple of times where someone refers to

>eye

> > pain. Could someone please describe what they mean by this. Right

>now, I

> > am having terrible eye pain and for me, it usually starts with one

>eye

> > (ususally my right eye) and it feels like a terrible preasure behind

>that

> > eye-- sometimes it is pulsating, other times it does not and then

> > invariably, I get a terrible headache on the same side as the eye

>pain. It

> > is getting worse and worse. Does this sound like what other people

>feel???

> > Thanks again for all of your help!! I hope that everyone had a

>great day!

> > Kathi

> >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Share on other sites

Hi Midge,

Thanks for clearing up the wording of what that Dr. said about the man's

ears. I had accidently deleted it so I couldn't go back and read it again.

Thanks again,

Kathi

>From: midgeirish@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Kathi-ears

>Date: Fri, 07 Sep 2001 03:16:30 -0000

>

>-Hi Kathi,

> I wrote that my rheumy has a gentleman patient and his ears and

>nose are " literally being chewed up " -that was the drs. words....I

>don't know what it looks like, but will ask him and maybe he can

>describe it for us. I have little tiny notches in my ear also and have

>wondered if it is destruction from the RP. This is a good question and

>I will try to find an answer from the dr.

> Take care,

> Midge

>

>-- In Rpolychondritis@y..., " Kathi Goodwin " <angelhearts61@h...>

>wrote:

> > Hi Everyone,

> > I have a few more questions-- I hope that everyone can bare with me

>while I

> > am figuring this all out! I appreciate all of the help I am getting

>from

> > all of you wonderful people. My first question is about ear

>problems. Ear

> > pain/problems are not a major manifestation for me, but I am

>wondering if I

> > am beginning to have more of a problem with it. I am not having

>red, hot,

> > swollen ears, but I am having a frequent problem of feeling what

>feels like

> > a burning sensation to the outer, top portion of my ears. In the

>last 2-3

> > weeks, this has gotten worse. Does anyone else have this problem??

> I read

> > with interest this morning the post where a Dr. had made a comment

>about a

> > patient he treats with RP who's " ears and nose where eat up with

>RP. " Does

> > anyone have any idea what he could have been referring to? My ears,

> > specifically my right ear, looks as if someone has cut notches out

>of the

> > top portion of it-- it just made me wonder if that might have been

>part of

> > what he was talking about. Does anyone else have that?? (So much

>for my

> > ears not being a major manifestation for me!!) My next question is

>about

> > eye problems. I have read a couple of times where someone refers to

>eye

> > pain. Could someone please describe what they mean by this. Right

>now, I

> > am having terrible eye pain and for me, it usually starts with one

>eye

> > (ususally my right eye) and it feels like a terrible preasure behind

>that

> > eye-- sometimes it is pulsating, other times it does not and then

> > invariably, I get a terrible headache on the same side as the eye

>pain. It

> > is getting worse and worse. Does this sound like what other people

>feel???

> > Thanks again for all of your help!! I hope that everyone had a

>great day!

> > Kathi

> >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at

>http://explorer.msn.com/intl.asp

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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