Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Here is a post from one of our members, Val... If anyone has any information that they can send her, please do. Thanks Hello. I don't mind being on your digest list. I still wish to remain in contact with the Support Group. I really don't know how to do a " chat " or anything other than email so that is why I don't contact you. I am particularly interested in finding out if there are any research institutes or hospitals which specialize in RP. Thanks for contacting me. Sincerely Val Gifford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Here is a post from one of our members, Val... If anyone has any information that they can send her, please do. Thanks Hello. I don't mind being on your digest list. I still wish to remain in contact with the Support Group. I really don't know how to do a " chat " or anything other than email so that is why I don't contact you. I am particularly interested in finding out if there are any research institutes or hospitals which specialize in RP. Thanks for contacting me. Sincerely Val Gifford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 In a message dated 9/19/01 5:13:51 PM Pacific Daylight Time, biglou5685@... writes: << , Do you know where Val lives? >> No Sandy I don't... I posted her and asked.. Maybe we will hear from her soon.. I hope so.. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 In a message dated 9/19/01 5:13:51 PM Pacific Daylight Time, biglou5685@... writes: << , Do you know where Val lives? >> No Sandy I don't... I posted her and asked.. Maybe we will hear from her soon.. I hope so.. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 RCColloran@... wrote: > Here is a post from one of our members, Val... If anyone has any information > that they can send her, please do. > Thanks > > > Hello. I don't mind being on your digest list. I still wish to remain in > contact with the Support Group. I really don't know how to do a " chat " or > anything other than email so that is why I don't contact you. I am > particularly interested in finding out if there are any research institutes > or hospitals which specialize in RP. Thanks for contacting me. Sincerely > Val Gifford > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 RCColloran@... wrote: > Here is a post from one of our members, Val... If anyone has any information > that they can send her, please do. > Thanks > > > Hello. I don't mind being on your digest list. I still wish to remain in > contact with the Support Group. I really don't know how to do a " chat " or > anything other than email so that is why I don't contact you. I am > particularly interested in finding out if there are any research institutes > or hospitals which specialize in RP. Thanks for contacting me. Sincerely > Val Gifford > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 , Do you know where Val lives? Sandy ----- Original Message ----- Here is a post from one of our members, Val... If anyone has any information that they can send her, please do. ThanksHello. I don't mind being on your digest list. I still wish to remain in contact with the Support Group. I really don't know how to do a "chat" or anything other than email so that is why I don't contact you. I am particularly interested in finding out if there are any research institutes or hospitals which specialize in RP. Thanks for contacting me. Sincerely Val GiffordDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 , Do you know where Val lives? Sandy ----- Original Message ----- Here is a post from one of our members, Val... If anyone has any information that they can send her, please do. ThanksHello. I don't mind being on your digest list. I still wish to remain in contact with the Support Group. I really don't know how to do a "chat" or anything other than email so that is why I don't contact you. I am particularly interested in finding out if there are any research institutes or hospitals which specialize in RP. Thanks for contacting me. Sincerely Val GiffordDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Hi Val and welcome to the group. I have been with this group since Jan 99 and go on and off the mail list. I found that it was really good for me when I got dx. It was good to find out that other people had some of the "crazy" symptoms I had experienced. As far as research and hospitals I understand that there are a few and the other group members know more than me. I went to Boston and saw Dr. Trentham a while after I got dx and he has been great with regard to being available to my primary care doctor. Donna CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Hi Val and welcome to the group. I have been with this group since Jan 99 and go on and off the mail list. I found that it was really good for me when I got dx. It was good to find out that other people had some of the "crazy" symptoms I had experienced. As far as research and hospitals I understand that there are a few and the other group members know more than me. I went to Boston and saw Dr. Trentham a while after I got dx and he has been great with regard to being available to my primary care doctor. Donna CA Quote Link to comment Share on other sites More sharing options...
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