Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Well Glenda, it sure was a long post... You are beginning to sound like me. LOL Things here are getting better. The only things happening today that was new is: Makeila had another seizure this morning and now has a bladder infection and they still haven't scheduled her for the laproscopy.. UGGGHHH ! I haven't heard from Gloria or Doris and they have both been on my mind lately... Hey you two.... how are you? How is Lupe? , I second Glenda....where are you.. I miss you. T I hope that you are feeling better. know I'm thinking of you. .... haven't heard from you... are you off on another traveling adventure???? Sandy, glad to hear the cytoxin is working... Hope you are feeling better. ARe you?? I miss all of you so much... I too miss Okieland Glenda... LOL Hey Heidi... did you hear that??? and YES... I promis to get the pictures in the mail this week... Do you believe me?? LOL There are so many new Kathy's, Cathy's, Kathi, Kathleens and 's ......Oh how will I ever keep you all straight.?? Welcome to the group. so glad that you all found us. Everyone know that I'm thinking of you and special prayers are going out to those who are having a rough time now... Hope to start getting back to posting as before. Will be going to take to look at a Culinary School this weekend...well Thursday and Friday.. Know I'm thinking of you all. and have a great weekend if I don't talk to you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Well Glenda, it sure was a long post... You are beginning to sound like me. LOL Things here are getting better. The only things happening today that was new is: Makeila had another seizure this morning and now has a bladder infection and they still haven't scheduled her for the laproscopy.. UGGGHHH ! I haven't heard from Gloria or Doris and they have both been on my mind lately... Hey you two.... how are you? How is Lupe? , I second Glenda....where are you.. I miss you. T I hope that you are feeling better. know I'm thinking of you. .... haven't heard from you... are you off on another traveling adventure???? Sandy, glad to hear the cytoxin is working... Hope you are feeling better. ARe you?? I miss all of you so much... I too miss Okieland Glenda... LOL Hey Heidi... did you hear that??? and YES... I promis to get the pictures in the mail this week... Do you believe me?? LOL There are so many new Kathy's, Cathy's, Kathi, Kathleens and 's ......Oh how will I ever keep you all straight.?? Welcome to the group. so glad that you all found us. Everyone know that I'm thinking of you and special prayers are going out to those who are having a rough time now... Hope to start getting back to posting as before. Will be going to take to look at a Culinary School this weekend...well Thursday and Friday.. Know I'm thinking of you all. and have a great weekend if I don't talk to you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/01 12:36:15 PM Pacific Standard Time, biglou5685@... writes: << I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL >> Sandy Good for you. Seems like we have to fight for everything huh? I'm so glad to hear that you are feeling a little better. Hope it really kicks in and kicks the ol RP right out the door. Are the side effects getting any better? Know that I miss you and your wonderful family and think of you all the time. So glad to have you back. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 In a message dated 11/1/01 12:36:15 PM Pacific Standard Time, biglou5685@... writes: << I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL >> Sandy Good for you. Seems like we have to fight for everything huh? I'm so glad to hear that you are feeling a little better. Hope it really kicks in and kicks the ol RP right out the door. Are the side effects getting any better? Know that I miss you and your wonderful family and think of you all the time. So glad to have you back. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hi Glenda, Hope you had some luck getting your flu shot. What the heck is wrong with your PCP? I would certainly say having RP and being immunosuppressed is high risk. I'm doing better. My Rheumy wants me to start tapering down the pred. Hope everything goes better for Shae. It's not easy dealing with the school system. has always had problems because of her disabilities. I remember when she was in 6th grade and attending a school for the hearing impaired and I was having to fight tooth and nail to get her services. I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL Hugs, Sandy Everyone here is doing okay. Just fighting the typical stuff. Have you all gotten your flu shots? I haven't!! I called my PCP the other day to see if they were in and was told they are only for high risk patients. What am I chopped liver? Anyway they decided that I am not high risk because I am not over 65. Sometimes I just want to scream. I don't think it would do me any good because they wouldn't listen anyway! Last night my Rheumy called and wanted to cancel my appt. Reschedule it for this week so I am going to go in and give him an earful so he will give my Dr. and earful!LOL That is how I got the flu shot last year lets see if it works this year. This is just a routine exam. I am not sick at the moment and hope and plan to stay this way! --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.292 / Virus Database: 157 - Release Date: 10/26/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hi Glenda, Hope you had some luck getting your flu shot. What the heck is wrong with your PCP? I would certainly say having RP and being immunosuppressed is high risk. I'm doing better. My Rheumy wants me to start tapering down the pred. Hope everything goes better for Shae. It's not easy dealing with the school system. has always had problems because of her disabilities. I remember when she was in 6th grade and attending a school for the hearing impaired and I was having to fight tooth and nail to get her services. I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL Hugs, Sandy Everyone here is doing okay. Just fighting the typical stuff. Have you all gotten your flu shots? I haven't!! I called my PCP the other day to see if they were in and was told they are only for high risk patients. What am I chopped liver? Anyway they decided that I am not high risk because I am not over 65. Sometimes I just want to scream. I don't think it would do me any good because they wouldn't listen anyway! Last night my Rheumy called and wanted to cancel my appt. Reschedule it for this week so I am going to go in and give him an earful so he will give my Dr. and earful!LOL That is how I got the flu shot last year lets see if it works this year. This is just a routine exam. I am not sick at the moment and hope and plan to stay this way! --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.292 / Virus Database: 157 - Release Date: 10/26/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 , I'm getting used to the side effects, it's worth it to me if the Cytoxan works. Enjoy your trip to the Culinary school but take it easy. When do you see the new Rheumy? Hope its soon. Hugs, Sandy ----- Original Message ----- << I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL >> Sandy Good for you. Seems like we have to fight for everything huh? I'm so glad to hear that you are feeling a little better. Hope it really kicks in and kicks the ol RP right out the door. Are the side effects getting any better? Know that I miss you and your wonderful family and think of you all the time. So glad to have you back. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 , I'm getting used to the side effects, it's worth it to me if the Cytoxan works. Enjoy your trip to the Culinary school but take it easy. When do you see the new Rheumy? Hope its soon. Hugs, Sandy ----- Original Message ----- << I walked into the school one day and heard someone say, " Oh my God, she's here again. " LOL >> Sandy Good for you. Seems like we have to fight for everything huh? I'm so glad to hear that you are feeling a little better. Hope it really kicks in and kicks the ol RP right out the door. Are the side effects getting any better? Know that I miss you and your wonderful family and think of you all the time. So glad to have you back. hugs Quote Link to comment Share on other sites More sharing options...
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