Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Kim, I just want you to know that your mom will be in my prayers...You are so young and so strong. We have a strong group here and there will be lots of prayers for you and your mom. Please know that we are all here for you if you need anything. Russ and are ALWAYS there to help everyone. Thanks you two for helping Kim. Sending lots of hugs and prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Kim, I just want you to know that your mom will be in my prayers...You are so young and so strong. We have a strong group here and there will be lots of prayers for you and your mom. Please know that we are all here for you if you need anything. Russ and are ALWAYS there to help everyone. Thanks you two for helping Kim. Sending lots of hugs and prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 kim, i am sorry you are hurting so much, prayers are going your way for your mom .isa Please Pray For My Mom I wanted to post a prayer tonight before I go to bed for my Mom. I am so upset, but wanted to also Thank Russ & for the information to help my Mom. I am so lost on this, and sit here and read all the postings and cry & pray for you all. Right now my Mom is on highest dose of pred, and the Dr. can't increase it. She is not responding to it, and is getting weaker everyday. She can't breath good, and is in lots of pain. Inside of her nose is raw & bloody. And her throat, chest are hurting worst now. She has been in bed since Wednesday. She talked today to the doctor, and he wants to do a transfusion, or something. He doesn't want to put her in the hospital because her immune system couldn't fight off any sickness she could get in the hospital. So we are waiting to see if her insurance will cover the procedure at home. I am so scared, and afraid she is not going to get better. Please say a prayer for her and I will continue to pray for all of you. Thank you so much for all of the help. I just pray that God will help us to get through this. I have been posting on a prayer chain on the internet for my Mom and a lady wrote today to me & said this... hold onto your faith and just keep praying and remember what ever happens you will meet again in heaven with all of your loved ones it is not the end but a beginning to after life. I know that is true, but it really upsets me. I mean I want God to just heal my Mom, she is only 47 and I am 24 & still need my Mom to be here for me. I mean I think I deserve to be selfish. I am going to go now and really pray hard for you and my Mom. Thanks again!!! Sorry So Long......love,Kim PS I almost forgot to mention my Mom's name is :)DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 kim, i am sorry you are hurting so much, prayers are going your way for your mom .isa Please Pray For My Mom I wanted to post a prayer tonight before I go to bed for my Mom. I am so upset, but wanted to also Thank Russ & for the information to help my Mom. I am so lost on this, and sit here and read all the postings and cry & pray for you all. Right now my Mom is on highest dose of pred, and the Dr. can't increase it. She is not responding to it, and is getting weaker everyday. She can't breath good, and is in lots of pain. Inside of her nose is raw & bloody. And her throat, chest are hurting worst now. She has been in bed since Wednesday. She talked today to the doctor, and he wants to do a transfusion, or something. He doesn't want to put her in the hospital because her immune system couldn't fight off any sickness she could get in the hospital. So we are waiting to see if her insurance will cover the procedure at home. I am so scared, and afraid she is not going to get better. Please say a prayer for her and I will continue to pray for all of you. Thank you so much for all of the help. I just pray that God will help us to get through this. I have been posting on a prayer chain on the internet for my Mom and a lady wrote today to me & said this... hold onto your faith and just keep praying and remember what ever happens you will meet again in heaven with all of your loved ones it is not the end but a beginning to after life. I know that is true, but it really upsets me. I mean I want God to just heal my Mom, she is only 47 and I am 24 & still need my Mom to be here for me. I mean I think I deserve to be selfish. I am going to go now and really pray hard for you and my Mom. Thanks again!!! Sorry So Long......love,Kim PS I almost forgot to mention my Mom's name is :)DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Dear Kim, I'm so sorry about your Mom. You both are in my thoughts. I'm happy your insurance has okayed the transfusion. Your Mom is very lucky to have you. My three grown children are in denial about the RP so hang in there for her, it makes you a very special person too. Take care of both of you....Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Dear Kim, I'm so sorry about your Mom. You both are in my thoughts. I'm happy your insurance has okayed the transfusion. Your Mom is very lucky to have you. My three grown children are in denial about the RP so hang in there for her, it makes you a very special person too. Take care of both of you....Sue M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, Prayers going out for . Hugs, Sandy Subject: Please Pray For My Mom I wanted to post a prayer tonight before I go to bed for my Mom. I am so upset Please say a prayer for her DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, Prayers going out for . Hugs, Sandy Subject: Please Pray For My Mom I wanted to post a prayer tonight before I go to bed for my Mom. I am so upset Please say a prayer for her DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, I just read your post from early this morning and wanted you to know that you, your Mom and family are in my thoughts and prayers. By now, she should have had her transfusion and I hope she is feeling somewhat better. PLEASE, remember to take care of yourself everyday. You need to be strong in health to be able to care for your Mom. You are obviously already strong in spirit. This will help sustain you. Please let us know how your Mom is doing. Kathi >From: KimmiPooh2@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Please Pray For My Mom >Date: Tue, 13 Nov 2001 03:18:06 -0000 > >I wanted to post a prayer tonight before I go to bed for my Mom. I am >so upset, but wanted to also Thank Russ & for the >information to help my Mom. I am so lost on this, and sit here and >read all the postings and cry & pray for you all. Right now my Mom is >on highest dose of pred, and the Dr. can't increase it. She is not >responding to it, and is getting weaker everyday. She can't breath >good, and is in lots of pain. Inside of her nose is raw & bloody. And >her throat, chest are hurting worst now. She has been in bed since >Wednesday. She talked today to the doctor, and he wants to do a >transfusion, or something. He doesn't want to put her in the hospital >because her immune system couldn't fight off any sickness she could >get in the hospital. So we are waiting to see if her insurance will >cover the procedure at home. I am so scared, and afraid she is not >going to get better. Please say a prayer for her and I will continue >to pray for all of you. Thank you so much for all of the help. I just >pray that God will help us to get through this. I have been posting >on a prayer chain on the internet for my Mom and a lady wrote today >to me & said this... hold onto your faith and just keep praying and >remember what ever happens you will meet again in heaven with all of >your loved ones it is not the end but a beginning to after life. I >know that is true, but it really upsets me. I mean I want God to just >heal my Mom, she is only 47 and I am 24 & still need my Mom to be >here for me. I mean I think I deserve to be selfish. I am going to go >now and really pray hard for you and my Mom. Thanks again!!! Sorry So >Long...... >love, >Kim >PS I almost forgot to mention my Mom's name is > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, I just read your post from early this morning and wanted you to know that you, your Mom and family are in my thoughts and prayers. By now, she should have had her transfusion and I hope she is feeling somewhat better. PLEASE, remember to take care of yourself everyday. You need to be strong in health to be able to care for your Mom. You are obviously already strong in spirit. This will help sustain you. Please let us know how your Mom is doing. Kathi >From: KimmiPooh2@... >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Please Pray For My Mom >Date: Tue, 13 Nov 2001 03:18:06 -0000 > >I wanted to post a prayer tonight before I go to bed for my Mom. I am >so upset, but wanted to also Thank Russ & for the >information to help my Mom. I am so lost on this, and sit here and >read all the postings and cry & pray for you all. Right now my Mom is >on highest dose of pred, and the Dr. can't increase it. She is not >responding to it, and is getting weaker everyday. She can't breath >good, and is in lots of pain. Inside of her nose is raw & bloody. And >her throat, chest are hurting worst now. She has been in bed since >Wednesday. She talked today to the doctor, and he wants to do a >transfusion, or something. He doesn't want to put her in the hospital >because her immune system couldn't fight off any sickness she could >get in the hospital. So we are waiting to see if her insurance will >cover the procedure at home. I am so scared, and afraid she is not >going to get better. Please say a prayer for her and I will continue >to pray for all of you. Thank you so much for all of the help. I just >pray that God will help us to get through this. I have been posting >on a prayer chain on the internet for my Mom and a lady wrote today >to me & said this... hold onto your faith and just keep praying and >remember what ever happens you will meet again in heaven with all of >your loved ones it is not the end but a beginning to after life. I >know that is true, but it really upsets me. I mean I want God to just >heal my Mom, she is only 47 and I am 24 & still need my Mom to be >here for me. I mean I think I deserve to be selfish. I am going to go >now and really pray hard for you and my Mom. Thanks again!!! Sorry So >Long...... >love, >Kim >PS I almost forgot to mention my Mom's name is > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, I am sending good thoughts and prayers your way. It sounds like you need them as much as your Mom! I hope and pray that all will start going your Mom's way. I will pray that the Doctor's find something to get your Mom's RP at task. Have they got her on anything other than the pred.? I have probably asked this before... Sorry but she should be on other meds to get it under control. Not all meds work the same for each of us so you will find we are all on different doses and different kinds. When I was first diagnosed I was pretty sick too. I now am able to lead a fairly normal life. Sure I have had to change the way I do things because of the immune system but I am not going to let the RP take over completely! Take care and keep thinking good thoughts! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2001 Report Share Posted November 13, 2001 Kim, I am sending good thoughts and prayers your way. It sounds like you need them as much as your Mom! I hope and pray that all will start going your Mom's way. I will pray that the Doctor's find something to get your Mom's RP at task. Have they got her on anything other than the pred.? I have probably asked this before... Sorry but she should be on other meds to get it under control. Not all meds work the same for each of us so you will find we are all on different doses and different kinds. When I was first diagnosed I was pretty sick too. I now am able to lead a fairly normal life. Sure I have had to change the way I do things because of the immune system but I am not going to let the RP take over completely! Take care and keep thinking good thoughts! Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
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