Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Carol, So glad that you found us. Sorry that you have RP. My name is Glenda and I have had RP for over 8 years. I am 44 yrs old and live in Oregon. I work a 40 hour week and lead a fairly normal life. It sounds like your Dr. has finally sent you in the right direction. I will send good thoughts and prayers that they will get you straightened out with meds and fast. In my opinion and that is all it is my opinion, they have taken you off the pred. too soon. Some of here have had to be on high doses of pred for over a year of better. It is a great drug for the RP but a bad drug when it comes to the side effects. I now am able to take pred. when I flare. Lately I have been able to use the Vioxx. It has it's own side effects also. I take Imuran. It is an anti rejection drug that has kept my RP in check except on rare occasions. I take multi-vitamins and calcium to make up for what it takes away or doesn't allow my system to make. Please don't be scared! The paperwork that they give you to read is so old and scary it ought to be banned. There have been a lot of changes since that was published. Feel Free to ask all the questions you would like. We are here for you. We talk about everything and anything. Take care Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Carol, So glad that you found us. Sorry that you have RP. My name is Glenda and I have had RP for over 8 years. I am 44 yrs old and live in Oregon. I work a 40 hour week and lead a fairly normal life. It sounds like your Dr. has finally sent you in the right direction. I will send good thoughts and prayers that they will get you straightened out with meds and fast. In my opinion and that is all it is my opinion, they have taken you off the pred. too soon. Some of here have had to be on high doses of pred for over a year of better. It is a great drug for the RP but a bad drug when it comes to the side effects. I now am able to take pred. when I flare. Lately I have been able to use the Vioxx. It has it's own side effects also. I take Imuran. It is an anti rejection drug that has kept my RP in check except on rare occasions. I take multi-vitamins and calcium to make up for what it takes away or doesn't allow my system to make. Please don't be scared! The paperwork that they give you to read is so old and scary it ought to be banned. There have been a lot of changes since that was published. Feel Free to ask all the questions you would like. We are here for you. We talk about everything and anything. Take care Lots of Love Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
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