Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Susiecue I have had the sores in my mouth too. I don't know if they are caused from the pred. or the meds that I have taken, or the RP. Good question. Wow to have a Dr. who has treated that many with RP is surprising. Did she say anymore about them? Please keep up the good work. Resting and not worrying is the best medicine when it comes to this darn RP. Take care! Lots of Love Glenda Has anyone had problems with sores in their mouth? They rheumy asked meabout this on Thurs. when I was there, of course I had none then but I didhave a couple over the weekend. They are at the back of the roof of mymouth & last a couple of days. Sort of like a little pimple. Is this fromthe pred or the RP?Also are there any numbers out there as to how many of us there are.Someone had told me 210 in the world. I ran this by the rheumy & she said alot more because she has treated 10-15. Just curious.Hope you are all feeling better. I firmly believe in the resting becausesince I have settled down a little I am feeling pretty good. Went down to40 of the pred yesterday so I am keeping my fingers crossed.Love,Susiecue ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 Susiecue I have had the sores in my mouth too. I don't know if they are caused from the pred. or the meds that I have taken, or the RP. Good question. Wow to have a Dr. who has treated that many with RP is surprising. Did she say anymore about them? Please keep up the good work. Resting and not worrying is the best medicine when it comes to this darn RP. Take care! Lots of Love Glenda Has anyone had problems with sores in their mouth? They rheumy asked meabout this on Thurs. when I was there, of course I had none then but I didhave a couple over the weekend. They are at the back of the roof of mymouth & last a couple of days. Sort of like a little pimple. Is this fromthe pred or the RP?Also are there any numbers out there as to how many of us there are.Someone had told me 210 in the world. I ran this by the rheumy & she said alot more because she has treated 10-15. Just curious.Hope you are all feeling better. I firmly believe in the resting becausesince I have settled down a little I am feeling pretty good. Went down to40 of the pred yesterday so I am keeping my fingers crossed.Love,Susiecue ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001 Quote Link to comment Share on other sites More sharing options...
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