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Grrrrrrr! $#@%$#%#$%!!!! Went to the ENT today in hopes of getting some

meds that would help. He told me that it is not his area of specialization

and he can't prescribed high doses of pred!!! When I told him that the

websites he referred me to seemed to confirm his diagnosis, he told me to be

careful of " 2nd year med student syndrome " in which you believe that you

have everything you read.....!!!!! He sent me there for God's sake. Then

he gives me a referral to 2 rheumies, one of which I discover only treats

foot and ankle problems! What the hell is he doing???? I then asked him

about the inflammation he saw on the wall between my esophagus and trachea

when I was having a serious throat flare and he said that RP is visible

externally only after serious inflammation. Well, DUH!!!! I would like to

know what else he thinks it could be????? My friend who is a nurse said

that he just doesn't want to take me on as a patient and is afraid to treat

me. That really sucks. Now I have to wait to get in to a rheumy and suffer

and hopefully my throat won't swell shut or collapse in the mean time....

Not to mention my nose collapsing or going blind or deaf...

Any advice?

Kathleen

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Grrrrrrr! $#@%$#%#$%!!!! Went to the ENT today in hopes of getting some

meds that would help. He told me that it is not his area of specialization

and he can't prescribed high doses of pred!!! When I told him that the

websites he referred me to seemed to confirm his diagnosis, he told me to be

careful of " 2nd year med student syndrome " in which you believe that you

have everything you read.....!!!!! He sent me there for God's sake. Then

he gives me a referral to 2 rheumies, one of which I discover only treats

foot and ankle problems! What the hell is he doing???? I then asked him

about the inflammation he saw on the wall between my esophagus and trachea

when I was having a serious throat flare and he said that RP is visible

externally only after serious inflammation. Well, DUH!!!! I would like to

know what else he thinks it could be????? My friend who is a nurse said

that he just doesn't want to take me on as a patient and is afraid to treat

me. That really sucks. Now I have to wait to get in to a rheumy and suffer

and hopefully my throat won't swell shut or collapse in the mean time....

Not to mention my nose collapsing or going blind or deaf...

Any advice?

Kathleen

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