Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 > Dear Amber and Carol, I don't currently live in MT, however I was raised in town, MT. Depending on how far you are from Spokane, WA. (I know MT is a big state), I see a very good rheumatologist in Spokane. He has had other patients with RP. He has lost his partner who was in practice with him but is looking for another rheumatologist to help him in his practice. He is at the Rockwood clinic there. Have you checked out the doctors in Billings? That is about the largest city in MT and they might have someone. I hope your mom's disability goes through easily so she doesn't have to get a lawyer. That would be a big help for her. Love, Marilyn K. > > My mom wanted me to ask this question and I think that we have asked > and it has been answered, but here it is. > > My mom was on 80 mgs of prednison and 150 mgs. of cytoxan. She was > put on 160 mgs. of pred. for a day or two and dropped back to 80 > mgs. She has now been dropped from 80 mgs. to 60 mgs. of > prednisone. This is good of course but she is experiencing this > breathlessness again. She is congested and is on some antibiotic. > All of her doctors are aware of her breathlessness. So is she to > live with this, is this normal or what else could be done? > > She is now waiting her 30 days to find out what social security > disability decided. Thank you for your advice. I believe that if > she is denied this go around, we will check out an attorney. > > I personally am curious to see if there are any others with R.P. in > Montana, North Dakota or Wyoming? I think it would be helpful to > know who their doctors are. > > Also, Dr. Bunker from Seattle sent a questionaire to my mom. she was > pleased, but does anyone know what they are looking for exactly. I > mean, what do they suspect causes R.P. What does everyone here have > in common? They say it is not heriditary. How do they know? I > would like to read the transcript for this research. What do you all > think? > > Thank you all. > > Amber & Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2001 Report Share Posted November 12, 2001 > Dear Amber and Carol, I don't currently live in MT, however I was raised in town, MT. Depending on how far you are from Spokane, WA. (I know MT is a big state), I see a very good rheumatologist in Spokane. He has had other patients with RP. He has lost his partner who was in practice with him but is looking for another rheumatologist to help him in his practice. He is at the Rockwood clinic there. Have you checked out the doctors in Billings? That is about the largest city in MT and they might have someone. I hope your mom's disability goes through easily so she doesn't have to get a lawyer. That would be a big help for her. Love, Marilyn K. > > My mom wanted me to ask this question and I think that we have asked > and it has been answered, but here it is. > > My mom was on 80 mgs of prednison and 150 mgs. of cytoxan. She was > put on 160 mgs. of pred. for a day or two and dropped back to 80 > mgs. She has now been dropped from 80 mgs. to 60 mgs. of > prednisone. This is good of course but she is experiencing this > breathlessness again. She is congested and is on some antibiotic. > All of her doctors are aware of her breathlessness. So is she to > live with this, is this normal or what else could be done? > > She is now waiting her 30 days to find out what social security > disability decided. Thank you for your advice. I believe that if > she is denied this go around, we will check out an attorney. > > I personally am curious to see if there are any others with R.P. in > Montana, North Dakota or Wyoming? I think it would be helpful to > know who their doctors are. > > Also, Dr. Bunker from Seattle sent a questionaire to my mom. she was > pleased, but does anyone know what they are looking for exactly. I > mean, what do they suspect causes R.P. What does everyone here have > in common? They say it is not heriditary. How do they know? I > would like to read the transcript for this research. What do you all > think? > > Thank you all. > > Amber & Carol Quote Link to comment Share on other sites More sharing options...
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