Update

September 1, 2004

OMG, what a surprise COngratulations. I found out about my twins at 10

weeks too, they were a surprise. God must have really wanted you to ahve these

babies, they are miracles.

God Bless, Robin

Wife to Pup for 15 years

Mommy to-

and

(twin boys, 8 years) and

Daughter Madison- age 5 1/2

and new Mommy to-

Emerson Roger born

July 28, 2004 at 4:11 am

8lbs 7 oz, 20 1/2 inches long.

September 1, 2004

That is just way too cool!!!

Bobbie

St. Louis

TTC #2

> Well I went for my first OB appt last Tuesday 8/24/04 and the

confirmed the

> pregnancy but couldnt find the heartbeat. So I went today for an

U/S. I have

> to go to Maternal Fetal because of the kidney disease. They only

allow one

> person to go in the back with you so my mother in law and husband

were gonna

> take turns...My mother in law was gonna go first...We get back

there and soon as

> she puts the thing to my stomach she tells my mother in law to go

get my

> husband...Said nothing is wrong but whe wants us all back there. He

comes back

> and she said " NOthing is wrong I just wanted ya'll both to see your

BABIES at

> the same time "

> Not only did I get pregnant on the pill we are having TWINS!!!! I

am STILL

> in shock.

> THey estimate me to be around 10 weeks which is why they couldnt

find the

> heartbeat last week in the dr's office. I feel much better know

after seeing

> them. Both babies look PERFECT so far and I go back in 4 weeks.

> MY EDD is 3/29/05

> WE will try to find out th sex of the babies asap...

> Crystal

> Lap RNY 11/18/04

> 365/224/165-175 Goal

> 10 weeks pregnant with TWINS!!!

>

September 1, 2004

wow crystal, congrats!!!! suprise!

aka mom2ben99 (jennilee75@...)

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Update

Well I went for my first OB appt last Tuesday 8/24/04 and the confirmed the

pregnancy but couldnt find the heartbeat. So I went today for an U/S. I have

to go to Maternal Fetal because of the kidney disease. They only allow one

person to go in the back with you so my mother in law and husband were gonna

take turns...My mother in law was gonna go first...We get back there and soon

as

she puts the thing to my stomach she tells my mother in law to go get my

husband...Said nothing is wrong but whe wants us all back there. He comes back

and she said " NOthing is wrong I just wanted ya'll both to see your BABIES at

the same time "

Not only did I get pregnant on the pill we are having TWINS!!!! I am STILL

in shock.

THey estimate me to be around 10 weeks which is why they couldnt find the

heartbeat last week in the dr's office. I feel much better know after seeing

them. Both babies look PERFECT so far and I go back in 4 weeks.

MY EDD is 3/29/05

WE will try to find out th sex of the babies asap...

Crystal

Lap RNY 11/18/04

365/224/165-175 Goal

10 weeks pregnant with TWINS!!!

September 1, 2004

AWWWWWWWW! Congrats to you! TWINS!! How fantastic! I am thrilled for

you! THat is just so exciting. I hope everything goes along SO well

and that your babies are healthy and happy and absolutely perfect in

every way!

Trish

-- In OSSG-pregnant , mommy2hannahbeth@a... wrote:

> Well I went for my first OB appt last Tuesday 8/24/04 and the

confirmed the

> pregnancy but couldnt find the heartbeat. So I went today for an

U/S. I have

> to go to Maternal Fetal because of the kidney disease. They only

allow one

> person to go in the back with you so my mother in law and husband

were gonna

> take turns...My mother in law was gonna go first...We get back

there and soon as

> she puts the thing to my stomach she tells my mother in law to go

get my

> husband...Said nothing is wrong but whe wants us all back there.

He comes back

> and she said " NOthing is wrong I just wanted ya'll both to see

your BABIES at

> the same time "

> Not only did I get pregnant on the pill we are having TWINS!!!! I

am STILL

> in shock.

> THey estimate me to be around 10 weeks which is why they couldnt

find the

> heartbeat last week in the dr's office. I feel much better know

after seeing

> them. Both babies look PERFECT so far and I go back in 4 weeks.

> MY EDD is 3/29/05

> WE will try to find out th sex of the babies asap...

> Crystal

> Lap RNY 11/18/04

> 365/224/165-175 Goal

> 10 weeks pregnant with TWINS!!!

>

September 3, 2004

Oh my goodness. Congrats. It seems like we both have the same EDD of

03/29/05. This will be my first (and my husbands) and this was very

unexpected. I am a year out from having duodenal switch surgery and

have lost 100 pounds. Twins. Do twins run in your family?

-a (from Houston, TX)

mommy2hannahbeth@a... wrote:

> Well I went for my first OB appt last Tuesday 8/24/04 and the

confirmed the

> pregnancy but couldnt find the heartbeat. So I went today for an

U/S. I have

> to go to Maternal Fetal because of the kidney disease. They only

allow one

> person to go in the back with you so my mother in law and husband

were gonna

> take turns...My mother in law was gonna go first...We get back

there and soon as

> she puts the thing to my stomach she tells my mother in law to go

get my

> husband...Said nothing is wrong but whe wants us all back there. He

comes back

> and she said " NOthing is wrong I just wanted ya'll both to see your

BABIES at

> the same time "

> Not only did I get pregnant on the pill we are having TWINS!!!! I

am STILL

> in shock.

> THey estimate me to be around 10 weeks which is why they couldnt

find the

> heartbeat last week in the dr's office. I feel much better know

after seeing

> them. Both babies look PERFECT so far and I go back in 4 weeks.

> MY EDD is 3/29/05

> WE will try to find out th sex of the babies asap...

> Crystal

> Lap RNY 11/18/04

> 365/224/165-175 Goal

> 10 weeks pregnant with TWINS!!!

>

September 5, 2004

my grandfather on my mothers side had a brother and sister which were fraternal

twins and my husband has a set of Fraternal twin cousins and a couple other

sets.

As far as they can tell mine are fraternal.

September 29, 2004

Hi Deb,

If I was in the area and knew it was meet the teacher night, I'd stop

by.

Glad to hear the good news about Adam and the doctor's visit. Hope it

continues.

Ken M

> Hi all

>

> I am at work right now (meet the teacher night, but no one wants to

meet me!

> LOL) and I had Adam at his endo appt. this afternoon and I thought

I would

> update.

>

> First the endo wanted to celebrate. Adam is solidly in the 3rd

percentile

> for the first time!

>

> Second he told me that Adam's bone age (done 4 weeks ago) is that

of a 5

> year old. NO change from this time last year.

>

> So he is now 7 years delayed.

>

> For anyone who might know, when we saw Dr. H. in Chicago she told

me that

> there was no way Adam could be that delayed and she wanted me to

check on it

> " and get back to her " .

>

> So my question is..........how do I " get back to her? "

>

> But I double and triple checked the readings, and it must be right

since

> it's the same as last year's. The endo was not pleased with me

questioning

> the results repeatedly, apparently the guy who read the xray and

wrote the

> report is his brother!

>

> Next, the huge explanation went right over my head but I told him I

wanted

> GH levels according to how they dose in the US (as per Dr. H.'s

> instructions)........he said we dose at the level of 0.3 and the US

doses at

> the level of 0.5.......(again, who knows what that means) but he

said he is

> now dosing Adam at 0.4

>

> So I guess that's a start.

>

> Finally he said he was so so pleased with Adam's progress. He said

the

> growth plus the fact that his bone age is so far delayed that we

have an

> excellent chance of getting to 5'3 or 5'4 overall. He said that

Adam's

> predicted height before the GH was below 5 feet (he figured around

4'7) but

> now he says he can guarantee he will be 5 feet or more.

>

> No sign of puberty at all.

>

> This time there was no " fellow " . Apparently, they are changing the

format,

> so this " nurse practionare " was telling me. She said " no longer

will it be

> someone new every 4 months that you come, it will always be me " .

>

> Then she examined Adam. She found his hands had a slight tremor (no

reason

> given, just noted it) and she checked his spine growth. I was

amazed. I

> complimented when she was done and said " no one in all my years of

coming

> here has examined those 2 things on Adam, it's very comforting to

know you

> are so thorough " .

>

> Anyway, I better go and look like some parent wants to meet me (I

may go in

> the hall and say " come on in! " LOL)

>

> Debby

>

September 29, 2004

Debby,

I agree with Dr. H that Adam's bone age couldn't possibly be that delayed!

has

had 1-2 bone ages per year for the past 10 years. I can tell you that some

where read way

wrong. After we get the radiologist report, our endocrinologist reads them to

make sure

he is in agreement with the radiologist. If he isn't or if the reaing seems

absurd, he sends

us back to the hospital to have it reread. Dr. Harbison has also read the bone

ages for us.

On the positive side, Adam is better off being delayed than advanced, as is the

case with

my son. It just means he has more time to grow!

Kim C.

September 29, 2004

I don't know who to believe. Adam's bone age has been " read " at that age for

2 years in a row now. There can't be two people who are wrong, and the endo.

checked (and considering it is his brother too). But the endo. did say that

the ranges are not that specific. He says they get a broad range.....like

4-6 is one size. So he said Adam's " 5 " could be closer to 6........it's just

not that specific.

What I want to know is why can't it be that delayed? Why is that impossible?

That's what I can't figure out. Dr. H. says " impossible " but if it were

" impossible " then these doctors that I deal with would know that too.

Just doesn't make sense to me.

Debby

Re: update

> Debby,

>

> I agree with Dr. H that Adam's bone age couldn't possibly be that delayed!

has

> had 1-2 bone ages per year for the past 10 years. I can tell you that

some where read way

> wrong. After we get the radiologist report, our endocrinologist reads

them to make sure

> he is in agreement with the radiologist. If he isn't or if the reaing

seems absurd, he sends

> us back to the hospital to have it reread. Dr. Harbison has also read the

bone ages for us.

> On the positive side, Adam is better off being delayed than advanced, as

is the case with

> my son. It just means he has more time to grow!

>

> Kim C.

>

September 29, 2004

Ken

I would have a " meet the teacher " with you any time. Maybe you can come up

for next year's, then I can say I had at least ONE parent! LOL

Did my post card for ever arrive? I have another one just in case (I

bought two since it was such a hike to find someone who sold them). Let me

know, I can always send another.

Debby

Re: update

>

> Hi Deb,

>

> If I was in the area and knew it was meet the teacher night, I'd stop

> by.

>

> Glad to hear the good news about Adam and the doctor's visit. Hope it

> continues.

>

> Ken M

>

> > Hi all

> >

> > I am at work right now (meet the teacher night, but no one wants to

> meet me!

> > LOL) and I had Adam at his endo appt. this afternoon and I thought

> I would

> > update.

> >

> > First the endo wanted to celebrate. Adam is solidly in the 3rd

> percentile

> > for the first time!

> >

> > Second he told me that Adam's bone age (done 4 weeks ago) is that

> of a 5

> > year old. NO change from this time last year.

> >

> > So he is now 7 years delayed.

> >

> > For anyone who might know, when we saw Dr. H. in Chicago she told

> me that

> > there was no way Adam could be that delayed and she wanted me to

> check on it

> > " and get back to her " .

> >

> > So my question is..........how do I " get back to her? "

> >

> > But I double and triple checked the readings, and it must be right

> since

> > it's the same as last year's. The endo was not pleased with me

> questioning

> > the results repeatedly, apparently the guy who read the xray and

> wrote the

> > report is his brother!

> >

> > Next, the huge explanation went right over my head but I told him I

> wanted

> > GH levels according to how they dose in the US (as per Dr. H.'s

> > instructions)........he said we dose at the level of 0.3 and the US

> doses at

> > the level of 0.5.......(again, who knows what that means) but he

> said he is

> > now dosing Adam at 0.4

> >

> > So I guess that's a start.

> >

> > Finally he said he was so so pleased with Adam's progress. He said

> the

> > growth plus the fact that his bone age is so far delayed that we

> have an

> > excellent chance of getting to 5'3 or 5'4 overall. He said that

> Adam's

> > predicted height before the GH was below 5 feet (he figured around

> 4'7) but

> > now he says he can guarantee he will be 5 feet or more.

> >

> > No sign of puberty at all.

> >

> > This time there was no " fellow " . Apparently, they are changing the

> format,

> > so this " nurse practionare " was telling me. She said " no longer

> will it be

> > someone new every 4 months that you come, it will always be me " .

> >

> > Then she examined Adam. She found his hands had a slight tremor (no

> reason

> > given, just noted it) and she checked his spine growth. I was

> amazed. I

> > complimented when she was done and said " no one in all my years of

> coming

> > here has examined those 2 things on Adam, it's very comforting to

> know you

> > are so thorough " .

> >

> > Anyway, I better go and look like some parent wants to meet me (I

> may go in

> > the hall and say " come on in! " LOL)

> >

> > Debby

> >

September 30, 2004

Debby,

Have you ever seen the reference book that helps radiologist read bone age

x-rays? It has

examples of different levels of bone ossifications for every 6 months of age

from birth. I

have almost learned to read bone ages myself! It is possible that Adam's bone

age could

stay the same 2 years in a row, but to be that far behind doesn't seem right.

4-6 is not

one size. I think what your endocrinologist means is that there is a standard

deviation in

reading the x-rays, which means there could be a range younger or older than

what is

actually read. If you look at the reference books, you can see changes in

certain parts of

the hands and fingers every six months, and some may be very subtle. If the

radiologist isn't examining each area carefully, that may be where the error

comes into

play. For example, the bone ossification in the fingers might be 6 years of age

and the

bones in the wrist area could have a different reading. If I were you, I would

either let Dr.

Harbison read the x-rays or I would go for a 2nd opinion somewhere. the reason

it is

important to have a correct reading is that Adam could be in adrenarche and this

would

cause rapid bone age advancement as is what happened with my son. He used to

have a

delayed bone age until he was 4 years old. He entered adrenarche at this time,

but we

didn't know this until years later and his bone age advanced rapidly until it

was read ast 3

years older than his actual age. If Adam is delayed, that is actually good for

you for now,

but I would be leary about him being that delayed & not count on that later on

if you really

want to help him grow.

Kim C.

> I don't know who to believe. Adam's bone age has been " read " at that age for

> 2 years in a row now. There can't be two people who are wrong, and the endo.

> checked (and considering it is his brother too). But the endo. did say that

> the ranges are not that specific. He says they get a broad range.....like

> 4-6 is one size. So he said Adam's " 5 " could be closer to 6........it's just

> not that specific.

> What I want to know is why can't it be that delayed? Why is that impossible?

> That's what I can't figure out. Dr. H. says " impossible " but if it were

> " impossible " then these doctors that I deal with would know that too.

> Just doesn't make sense to me.

>

> Debby

> Re: update

>

> > Debby,

> >

> > I agree with Dr. H that Adam's bone age couldn't possibly be that delayed!

> has

> > had 1-2 bone ages per year for the past 10 years. I can tell you that

> some where read way

> > wrong. After we get the radiologist report, our endocrinologist reads

> them to make sure

> > he is in agreement with the radiologist. If he isn't or if the reaing

> seems absurd, he sends

> > us back to the hospital to have it reread. Dr. Harbison has also read the

> bone ages for us.

> > On the positive side, Adam is better off being delayed than advanced, as

> is the case with

> > my son. It just means he has more time to grow!

> >

> > Kim C.

> >

September 30, 2004

The thing that I don't understand is this.\

I know they can make mistakes reading the reports. But to have 2 different

people read the report (3 if you count the endo) and everyone reads it the

same?

Why can't his bone age be that delayed? Who says it can't? That's what I

don't understand.

Also, I'm beginning to wonder why the bone age didn't change. If he has

gotten taller, (8.2 cm taller in one year) why would it not advance? That's

where I think the endo was trying to say there is a range for the ages, it's

not an exact science where it can be exclusively pinpointed.

Hmmmm this is confusing.

Debby

Re: update

> >

> > > Debby,

> > >

> > > I agree with Dr. H that Adam's bone age couldn't possibly be that

delayed!

> > has

> > > had 1-2 bone ages per year for the past 10 years. I can tell you that

> > some where read way

> > > wrong. After we get the radiologist report, our endocrinologist reads

> > them to make sure

> > > he is in agreement with the radiologist. If he isn't or if the reaing

> > seems absurd, he sends

> > > us back to the hospital to have it reread. Dr. Harbison has also read

the

> > bone ages for us.

> > > On the positive side, Adam is better off being delayed than advanced,

as

> > is the case with

> > > my son. It just means he has more time to grow!

> > >

> > > Kim C.

> > >

December 25, 2004

Kim, How old os the Mommy, my daughter had a baby at age 15, now 16 and 9 months respectively.. I have a huge box of newborn girl clothes that I cannot even pick up...email me at kafoley@.... need to find smaller boxes to mail as I cannot pick up the box we have been throwing the baby clothes in.. someone just gave us hand me downs for 12 months.. that hopefully will last thru the winter...but she is a big baby. would love to send them to you.. send address. was trying to follow but who is charlie? we had to go to court.. so bio dad got rights

Kathy...Merry Xmas

wished u lived nearby as we did all hand me downs.. but our stroller just broke and car seat well expires after our kid.... was a relatives and her 3 kids.. so upon inspection we were told to break it with a hammer...

December 25, 2004

Kim, How old os the Mommy, my daughter had a baby at age 15, now 16 and 9 months respectively.. I have a huge box of newborn girl clothes that I cannot even pick up...email me at kafoley@.... need to find smaller boxes to mail as I cannot pick up the box we have been throwing the baby clothes in.. someone just gave us hand me downs for 12 months.. that hopefully will last thru the winter...but she is a big baby. would love to send them to you.. send address. was trying to follow but who is charlie? we had to go to court.. so bio dad got rights

Kathy...Merry Xmas

wished u lived nearby as we did all hand me downs.. but our stroller just broke and car seat well expires after our kid.... was a relatives and her 3 kids.. so upon inspection we were told to break it with a hammer...

December 25, 2004

oh yeah Kim,.. they wont' let u leave hospital without an infant seat.. hospital can help get one for free

December 25, 2004

oh yeah Kim,.. they wont' let u leave hospital without an infant seat.. hospital can help get one for free

March 15, 2005

Dawn,

That is actually pretty good news, all things considered! Yuck that the biopsy came back +, but good that your boy is doing so well. Congrats!

ruth

mom to Mitch (10 in 2 weeks), and Lexi (7 next week), both mito affected and my treasures

March 24, 2005

Ann Marie

Sorry to hear about Joey. Keep us posted.

best regards

rosy

June 28, 2005

That's awesome!! I can't wait to be there!

Congratulations!!

10-09-03

> Hi All-

>

> I haven't been on here very much the last 6 months, but wanted to give

> an update on who is 3 years and 3 months and was born with a

> left unilateral clubfoot. We just had his check up with Dr. Colburn and

> everything looks great. His left foot has a dorsiflexion of about 25

> degrees still so that was great.

>

> For those of you in the beginning stages I know it can be a struggle

> and overwhelming but stick with it because it is so worth it. You'll

> look back like me and wonder where all the time went!

>

> and (3/22/02 left clubfoot treated by one of the best

> Dr. Colburn).

June 28, 2005

That's awesome!! I can't wait to be there!

Congratulations!!

10-09-03

> Hi All-

>

> I haven't been on here very much the last 6 months, but wanted to give

> an update on who is 3 years and 3 months and was born with a

> left unilateral clubfoot. We just had his check up with Dr. Colburn and

> everything looks great. His left foot has a dorsiflexion of about 25

> degrees still so that was great.

>

> For those of you in the beginning stages I know it can be a struggle

> and overwhelming but stick with it because it is so worth it. You'll

> look back like me and wonder where all the time went!

>

> and (3/22/02 left clubfoot treated by one of the best

> Dr. Colburn).

June 29, 2005

That is wonderful news!!!! Is still wearing the FAB?

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

June 29, 2005

That is wonderful news!!!! Is still wearing the FAB?

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

June 29, 2005

Hi -

Unfortunately, he is not still wearing the FAB. He stopped wearing it

at 2 yrs and 9 months. We never had any resistance with him wearing

the FAB until that point in age. He is double jointed and loose

ligamented, so no matter how tight we put the shoes on he could snap

his ankle and get out within a matter of a minute. He never did this

until he got older, but as soon as he figured it out he did it

constantly. We tried rewarding, punishing, putting them right back on

as soon as he took them off etc and nothing worked, so we consulted

with the doc. Our doc (Dr. Colburn) felt that there really was no other

alternative since his shoes fit perfectly and said to go ahead and put

the DBB aside and keep a constant eye on his foot and if it slipped

back we would need to possibly recast and then try the shoes again. We

figured if we ended up doing the shoes again he would be a little older

and might understand it better. Luckily we haven't had to do that.

I was bummed when he came out of the DBB because I was hoping for him

to make it until at least 3 1/2. There is just such a high regression

rate if they come out before that age, so I was really sick about him

getting out of the shoes before he even turned 3. This is also a child

who would climb out of his crib with his DBB on at 20 months. Nothing

stops him when he puts his mind to something.

> That is wonderful news!!!! Is still wearing the FAB?

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> fax

>

June 29, 2005