Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Afternoon All I hope this finds you all well! I just thought I should let you all know what is going on with me. You know how much I hate to complain and that I don't normally do this but thought I should or could because no one but you would understand where I am coming from. Here goes... I went to the Rhuemy on Thursday and I am doing great as far as it goes with the RP. He said a few things that made me wonder and really would be nice if they were true but I don't think they really are. He said that I would probably not get any worse with the RP than I am now. He said that I have had it for so long that if I was going to have major problems I would have already. I just sat there and looked like a dork. The reason he said this was due to my talking about all the people I got to see in Okieland and how some were effected. Okay this is just my thoughts but I think he is way out in left field. Where he gets his ideas I don't know. Sure I am not doing bad because the meds are working but.... what happens on down the line when the RP decides it want so rear it's ugly head. Besides the cartilage is still deteriorating and keeps doing so even on the Imuran. Oh Yah he also told me that people with auto immune diseases shouldn't get the flu shots. Unless they have had problems with the flu and or have taken them before with out any problems. They work on your immune system which could cause problems is what he said. At any rate he wrote me a note for my PCP but I still haven't gotten the shot due to the PCP being out and now I have to find a drug store that will give it to me. I am not looking for trouble in no way, and don't I want to be worse ever!!! Please give me your thoughts or input on this one. You know how we do when we brain storm. Now for the news that has me down. I went to my PCP yesterday due to the problem that the Rhuemy found. My blood pressure is up again. I was already on diaziade and now he has put me on a beta blocker. He was going to try another but it interfered with the Imuran.(at least he looked) He wants to see me in three weeks to see how I am doing. I am so frustrated with the Dr. He is the one that his receptionist said I wasn't a high risk patient. I now have a note to state that I am and the PCP said the next time I run into any problems request to talk to the nurse. I was down before I went in there because I felt so bad from the high BP but he didn't make me feel any better. Why is it when you try to explain your dilemmas to them that they act like you are whining. I mentioned something to him about being exposed to shingles and about having to be around people with possible TB. I also said I have a pretty stressful job. He asked what I did for fun and I told him and he didn't think that was good enough to relieve the stress. I said well you can hardly get out and party when you have a 6 yr. old around. He said I have a bad attitude about life. Well I don't think so but I guess maybe I could.... Of course anyone who saw me in Okieland knows how much I enjoy to cut up. PCP also said if I don't get the BP under control I will either have a stroke or a heart attack. I am not happy about the extra med and the reason I have the problem with the BP is due to the damn pred. That is what caused it to go up and now it wont go down. Oh heck I will shut up now but just had to let you know where I am coming from right now. Now you know why I didn't post there for awhile and why I have been so quiet. I am trying to deal with stuff around her!LOL Take care all and please let me know what you think! Am I just being stupid her or are they both full of doody! Sorry to have gone on so much but I need your input! If I am the one being the poop kick me in the butt please! Lots of Love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Afternoon All I hope this finds you all well! I just thought I should let you all know what is going on with me. You know how much I hate to complain and that I don't normally do this but thought I should or could because no one but you would understand where I am coming from. Here goes... I went to the Rhuemy on Thursday and I am doing great as far as it goes with the RP. He said a few things that made me wonder and really would be nice if they were true but I don't think they really are. He said that I would probably not get any worse with the RP than I am now. He said that I have had it for so long that if I was going to have major problems I would have already. I just sat there and looked like a dork. The reason he said this was due to my talking about all the people I got to see in Okieland and how some were effected. Okay this is just my thoughts but I think he is way out in left field. Where he gets his ideas I don't know. Sure I am not doing bad because the meds are working but.... what happens on down the line when the RP decides it want so rear it's ugly head. Besides the cartilage is still deteriorating and keeps doing so even on the Imuran. Oh Yah he also told me that people with auto immune diseases shouldn't get the flu shots. Unless they have had problems with the flu and or have taken them before with out any problems. They work on your immune system which could cause problems is what he said. At any rate he wrote me a note for my PCP but I still haven't gotten the shot due to the PCP being out and now I have to find a drug store that will give it to me. I am not looking for trouble in no way, and don't I want to be worse ever!!! Please give me your thoughts or input on this one. You know how we do when we brain storm. Now for the news that has me down. I went to my PCP yesterday due to the problem that the Rhuemy found. My blood pressure is up again. I was already on diaziade and now he has put me on a beta blocker. He was going to try another but it interfered with the Imuran.(at least he looked) He wants to see me in three weeks to see how I am doing. I am so frustrated with the Dr. He is the one that his receptionist said I wasn't a high risk patient. I now have a note to state that I am and the PCP said the next time I run into any problems request to talk to the nurse. I was down before I went in there because I felt so bad from the high BP but he didn't make me feel any better. Why is it when you try to explain your dilemmas to them that they act like you are whining. I mentioned something to him about being exposed to shingles and about having to be around people with possible TB. I also said I have a pretty stressful job. He asked what I did for fun and I told him and he didn't think that was good enough to relieve the stress. I said well you can hardly get out and party when you have a 6 yr. old around. He said I have a bad attitude about life. Well I don't think so but I guess maybe I could.... Of course anyone who saw me in Okieland knows how much I enjoy to cut up. PCP also said if I don't get the BP under control I will either have a stroke or a heart attack. I am not happy about the extra med and the reason I have the problem with the BP is due to the damn pred. That is what caused it to go up and now it wont go down. Oh heck I will shut up now but just had to let you know where I am coming from right now. Now you know why I didn't post there for awhile and why I have been so quiet. I am trying to deal with stuff around her!LOL Take care all and please let me know what you think! Am I just being stupid her or are they both full of doody! Sorry to have gone on so much but I need your input! If I am the one being the poop kick me in the butt please! Lots of Love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Dear Glenda, how frustrating for you! I think the doc is the one with a bad attitude! However, it is REALLY important to keep your blood pressure under control, so don't worry too much about an extra med, if that doesn't work or has unpleasant side effects, go back and ask to try something different; there are loads of different meds for blood pressure. I don't know if your rheumy is right about things not getting worse; but it helps to have something positive to hang on to. Let's hope he is right!! I have just been to see the one here, who I don't find as good as the one I see in the US, because he is running clinics in a very busy hospital he doesn't have the same time to spend. He has put me on Fosamax to ward off impending ostopenia. He has told me to reduce the plaquenil by half, and next appt he will look at reducing the metho. He made me laugh, though, after lecturing me about having a blood test every two months AT LEAST he gave me an appt for 4 months!! I will have the blood test done somewhere else, and pay for it. These things are not too expensive in Saudi. He is also pleased as he has now TWO patients with rp, a man from the south who is in a very active phase poor chap. Anyway Glenda, I think you have a great attitude, no, I know you have a great attitude. Don't let the medics get you down - I think it is depressing just going to see them!! My stress relievers are, long warm baths, listening to music (classial mostly) watching tennis on TV (when I get time)exercising AND PRAYING. You take care girl, I think of you and the others from OK a lot. Love Liz --- Glenda wrote: > Afternoon All > I hope this finds you all well! I just thought I > should let you all know what is going on with me. > You know how much I hate to complain and that I > don't normally do this but thought I should or could > because no one but you would understand where I am > coming from. > > .. He said that I would probably not > get any worse with the RP than I am now. > > > > > > > > ! > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Dear Glenda, how frustrating for you! I think the doc is the one with a bad attitude! However, it is REALLY important to keep your blood pressure under control, so don't worry too much about an extra med, if that doesn't work or has unpleasant side effects, go back and ask to try something different; there are loads of different meds for blood pressure. I don't know if your rheumy is right about things not getting worse; but it helps to have something positive to hang on to. Let's hope he is right!! I have just been to see the one here, who I don't find as good as the one I see in the US, because he is running clinics in a very busy hospital he doesn't have the same time to spend. He has put me on Fosamax to ward off impending ostopenia. He has told me to reduce the plaquenil by half, and next appt he will look at reducing the metho. He made me laugh, though, after lecturing me about having a blood test every two months AT LEAST he gave me an appt for 4 months!! I will have the blood test done somewhere else, and pay for it. These things are not too expensive in Saudi. He is also pleased as he has now TWO patients with rp, a man from the south who is in a very active phase poor chap. Anyway Glenda, I think you have a great attitude, no, I know you have a great attitude. Don't let the medics get you down - I think it is depressing just going to see them!! My stress relievers are, long warm baths, listening to music (classial mostly) watching tennis on TV (when I get time)exercising AND PRAYING. You take care girl, I think of you and the others from OK a lot. Love Liz --- Glenda wrote: > Afternoon All > I hope this finds you all well! I just thought I > should let you all know what is going on with me. > You know how much I hate to complain and that I > don't normally do this but thought I should or could > because no one but you would understand where I am > coming from. > > .. He said that I would probably not > get any worse with the RP than I am now. > > > > > > > > ! > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.