Re: infos and mail list-Welcome

[Guest guest]

Fiducia,

Welcome to the group.

Sorry to hear that your loved one has RP. Glad you found us. We are small

in number but we are learning more every day about this darn old RP. How

would you like to receive mail? We have several...Daily mail is when it

comes to you email shortly after each letter is posted, Daily Digest comes

in a digest of about 25 emails all together, No mail is where you go to the

site and read the mail from there, or you can get your mail when there is

like an important even. I hope I made sense.

You can even go to the group site and select your own address is

rpolychondritis

What kind of meds is your nephew on? Please tell us all about yourself and

your nephew. Here we talk about everything. This is a support group for

the whole person. Not just the RP.

My name is Glenda and I live in the USA. Oregon to be exact. I have had RP

for 8 or more years. I am 44 yrs old and have been married to the same man

for 27yrs. We have 2 grown children and we are raising our 6yr old

granddaughter. I work a forty hour a week job and keep house. To look at

me you would probably never know I was sick. I am one of the lucky ones.

RP was diagnosed early and treated aggressively from the onset. My flares

are minor compared to what they used to be prior to the meds.

I take Imuran 100mg a day and Multi-vitamins, calcium 1500 mg to make up for

the what the Imuran takes away or doesn't allow my body to process.

Please feel free to post any time we are year for you.

Lots of Love

Glenda

infos and mail list

> hi!

>

> I am french and my nephew 29 years old ( a bit my son) is suffering of

> polychondritis since 2 years.

> Please, can you put me in the mail list. Is it possible to be in contact

> with other people suffering of this decease ? and do you have the best

> links for the last progress done to curate this illness.

> thanks

>

> fiducia

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001

_________________________________________________________

[Guest guest]

Fiducia,

Welcome to the group.

Sorry to hear that your loved one has RP. Glad you found us. We are small

in number but we are learning more every day about this darn old RP. How

would you like to receive mail? We have several...Daily mail is when it

comes to you email shortly after each letter is posted, Daily Digest comes

in a digest of about 25 emails all together, No mail is where you go to the

site and read the mail from there, or you can get your mail when there is

like an important even. I hope I made sense.

You can even go to the group site and select your own address is

rpolychondritis

What kind of meds is your nephew on? Please tell us all about yourself and

your nephew. Here we talk about everything. This is a support group for

the whole person. Not just the RP.

My name is Glenda and I live in the USA. Oregon to be exact. I have had RP

for 8 or more years. I am 44 yrs old and have been married to the same man

for 27yrs. We have 2 grown children and we are raising our 6yr old

granddaughter. I work a forty hour a week job and keep house. To look at

me you would probably never know I was sick. I am one of the lucky ones.

RP was diagnosed early and treated aggressively from the onset. My flares

are minor compared to what they used to be prior to the meds.

I take Imuran 100mg a day and Multi-vitamins, calcium 1500 mg to make up for

the what the Imuran takes away or doesn't allow my body to process.

Please feel free to post any time we are year for you.

Lots of Love

Glenda

infos and mail list

> hi!

>

> I am french and my nephew 29 years old ( a bit my son) is suffering of

> polychondritis since 2 years.

> Please, can you put me in the mail list. Is it possible to be in contact

> with other people suffering of this decease ? and do you have the best

> links for the last progress done to curate this illness.

> thanks

>

> fiducia

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.295 / Virus Database: 159 - Release Date: 11/1/2001

_________________________________________________________