introduction: due 9/5/05, baby diagnoses with CF in utero

[Guest guest]

Hi Folks,

After lurking for a while, I'm finally introducing myself. This group

has great information, but it's hard to keep up with all the messages!

Here's our story:

We have one son (3yo) with no foot problems (or others :-).

We're expecting again, due 9/5/05, and this one (another boy)

has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

at 21w).

There is family history of what is apparently metatarus adductus:

my father wore a brace for a while as a 1yo, one half-brother

and I (same father) each had turned in feet (one each, I think)

that resolved on their own. None of the three of us have any problems

now. (Though I sometimes find it comfortable to rest with the outer

edge of my foot instead of the sole on the ground. My husband

thinks that's really odd.)

We have a prenatal consult with Dr. Mosca (Children's Hospital,

Seattle) in June. Has anyone had any experience with him, positive

or negative?

Does anyone have any stats on how frequently apparent clubfoot

spotted on u/s turns out to be metatarus adductus instead?

Thanks,

[Guest guest]

Hi Folks,

After lurking for a while, I'm finally introducing myself. This group

has great information, but it's hard to keep up with all the messages!

Here's our story:

We have one son (3yo) with no foot problems (or others :-).

We're expecting again, due 9/5/05, and this one (another boy)

has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

at 21w).

There is family history of what is apparently metatarus adductus:

my father wore a brace for a while as a 1yo, one half-brother

and I (same father) each had turned in feet (one each, I think)

that resolved on their own. None of the three of us have any problems

now. (Though I sometimes find it comfortable to rest with the outer

edge of my foot instead of the sole on the ground. My husband

thinks that's really odd.)

We have a prenatal consult with Dr. Mosca (Children's Hospital,

Seattle) in June. Has anyone had any experience with him, positive

or negative?

Does anyone have any stats on how frequently apparent clubfoot

spotted on u/s turns out to be metatarus adductus instead?

Thanks,

[Guest guest]

-

Welcome to the group! The ultrasounds are sometimes wrong. There

was a lady on this board that just delivered a boy last week and was

told he would have clubfeet and didn't. In my case the ultrasounds

didn't even show clubfeet and my son was born with a left clubfoot.

I had metatarus adductus, my first son had metatarus adductus and my

second was born with metatarus adductus and a left clubfoot. The

majority of all metatarus adductus corrects itself by age 4. Doctors

used to presribe shoes and braces for metatarus adductus (I too had

these) but it has since shown that it corrects on its own. Only few

cases require this now.

The good news is that you have plenty of time to find a Ponseti

Certified doctor prior to the birth of your son. Then if you need

the doctor you are prepared. We didn't know until the birth, so I

was scrambling the internet when I got home for information while

trying to juggle a newborn and 23 month old.

> Hi Folks,

>

> After lurking for a while, I'm finally introducing myself. This

group

> has great information, but it's hard to keep up with all the

messages!

>

> Here's our story:

>

> We have one son (3yo) with no foot problems (or others :-).

> We're expecting again, due 9/5/05, and this one (another boy)

> has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> at 21w).

>

> There is family history of what is apparently metatarus adductus:

> my father wore a brace for a while as a 1yo, one half-brother

> and I (same father) each had turned in feet (one each, I think)

> that resolved on their own. None of the three of us have any

problems

> now. (Though I sometimes find it comfortable to rest with the

outer

> edge of my foot instead of the sole on the ground. My husband

> thinks that's really odd.)

>

> We have a prenatal consult with Dr. Mosca (Children's Hospital,

> Seattle) in June. Has anyone had any experience with him, positive

> or negative?

>

> Does anyone have any stats on how frequently apparent clubfoot

> spotted on u/s turns out to be metatarus adductus instead?

>

> Thanks,

>

[Guest guest]

-

Welcome to the group! The ultrasounds are sometimes wrong. There

was a lady on this board that just delivered a boy last week and was

told he would have clubfeet and didn't. In my case the ultrasounds

didn't even show clubfeet and my son was born with a left clubfoot.

I had metatarus adductus, my first son had metatarus adductus and my

second was born with metatarus adductus and a left clubfoot. The

majority of all metatarus adductus corrects itself by age 4. Doctors

used to presribe shoes and braces for metatarus adductus (I too had

these) but it has since shown that it corrects on its own. Only few

cases require this now.

The good news is that you have plenty of time to find a Ponseti

Certified doctor prior to the birth of your son. Then if you need

the doctor you are prepared. We didn't know until the birth, so I

was scrambling the internet when I got home for information while

trying to juggle a newborn and 23 month old.

> Hi Folks,

>

> After lurking for a while, I'm finally introducing myself. This

group

> has great information, but it's hard to keep up with all the

messages!

>

> Here's our story:

>

> We have one son (3yo) with no foot problems (or others :-).

> We're expecting again, due 9/5/05, and this one (another boy)

> has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> at 21w).

>

> There is family history of what is apparently metatarus adductus:

> my father wore a brace for a while as a 1yo, one half-brother

> and I (same father) each had turned in feet (one each, I think)

> that resolved on their own. None of the three of us have any

problems

> now. (Though I sometimes find it comfortable to rest with the

outer

> edge of my foot instead of the sole on the ground. My husband

> thinks that's really odd.)

>

> We have a prenatal consult with Dr. Mosca (Children's Hospital,

> Seattle) in June. Has anyone had any experience with him, positive

> or negative?

>

> Does anyone have any stats on how frequently apparent clubfoot

> spotted on u/s turns out to be metatarus adductus instead?

>

> Thanks,

>

[Guest guest]

,

Welcome to the group! We're glad you found us.

I assume, since you mention Dr Mosca, that you are in WA somewhere. A number of

his patients are members of this group (there are also a few who see another

doctor at Children's, Dr Scmale) and hopefully they will drop in to tell you how

wonderful he is. He is one of the doctors on the West Coast who has been

pacticing the Ponseti method the longest--you cannot go wrong with him. (We are

on the North Coast of CA, with family in the Seattle area and we've met Dr Mosca

several times, though he has not treated our son.)

I don't know if there are any figures on how frequently the ultrasound diagnosis

is wrong, but it does happen. I do think it is generally agreed that they

cannot really tell how severe the clubfoot is from ultrasound. I expect, then,

that it would be possible to mistake a metatarsus adductus for a clubfoot. It

probably depends on the baby's placement and the skill and experience of the

radiographer more than anything else. Are they saying that both feet are

affected? If you have ultrasound pictures/video, you might try sending those to

Dr Ponseti for his opinion.

In any case, good for you for doing your research now and being prepared. Dr

Mosca will likely put you at ease when you meet with him next month. And if you

have other questions or concerns, please let us know how we can help.

Our best wishes,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Menon Bender wrote:

Hi Folks,

After lurking for a while, I'm finally introducing myself. This group

has great information, but it's hard to keep up with all the messages!

Here's our story:

We have one son (3yo) with no foot problems (or others :-).

We're expecting again, due 9/5/05, and this one (another boy)

has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

at 21w).

There is family history of what is apparently metatarus adductus:

my father wore a brace for a while as a 1yo, one half-brother

and I (same father) each had turned in feet (one each, I think)

that resolved on their own. None of the three of us have any problems

now. (Though I sometimes find it comfortable to rest with the outer

edge of my foot instead of the sole on the ground. My husband

thinks that's really odd.)

We have a prenatal consult with Dr. Mosca (Children's Hospital,

Seattle) in June. Has anyone had any experience with him, positive

or negative?

Does anyone have any stats on how frequently apparent clubfoot

spotted on u/s turns out to be metatarus adductus instead?

Thanks,

[Guest guest]

Thanks, .

I'd be surprised if there wasn't something up with this foot, as we've now

seen it on two u/s (and it's pretty clear when they point it out). I'm just

curious what the percentages are for metatarus adductus v. clubfoot given

the u/s findings. Maybe Dr. Mosca will know...

Dr. Mosca is the only Dr. in WA listed on Dr. Ponseti's site. He's also

recommended by our pediatrician as the foremost expert on congenital

foot deformities around. So, unless I hear anything negative about him here,

I'm pretty happy we can get in to see him. They certainly didn't balk at

arranging the prenatal consult. I've also got the list of questions to ask

posted here recently bookmarked so I can bring it to that appointment.

> > Hi Folks,

> >

> > After lurking for a while, I'm finally introducing myself. This

> group

> > has great information, but it's hard to keep up with all the

> messages!

> >

> > Here's our story:

> >

> > We have one son (3yo) with no foot problems (or others :-).

> > We're expecting again, due 9/5/05, and this one (another boy)

> > has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> > at 21w).

> >

> > There is family history of what is apparently metatarus adductus:

> > my father wore a brace for a while as a 1yo, one half-brother

> > and I (same father) each had turned in feet (one each, I think)

> > that resolved on their own. None of the three of us have any

> problems

> > now. (Though I sometimes find it comfortable to rest with the

> outer

> > edge of my foot instead of the sole on the ground. My husband

> > thinks that's really odd.)

> >

> > We have a prenatal consult with Dr. Mosca (Children's Hospital,

> > Seattle) in June. Has anyone had any experience with him, positive

> > or negative?

> >

> > Does anyone have any stats on how frequently apparent clubfoot

> > spotted on u/s turns out to be metatarus adductus instead?

> >

> > Thanks,

> >

[Guest guest]

,

Welcome to the group! We're glad you found us.

I assume, since you mention Dr Mosca, that you are in WA somewhere. A number of

his patients are members of this group (there are also a few who see another

doctor at Children's, Dr Scmale) and hopefully they will drop in to tell you how

wonderful he is. He is one of the doctors on the West Coast who has been

pacticing the Ponseti method the longest--you cannot go wrong with him. (We are

on the North Coast of CA, with family in the Seattle area and we've met Dr Mosca

several times, though he has not treated our son.)

I don't know if there are any figures on how frequently the ultrasound diagnosis

is wrong, but it does happen. I do think it is generally agreed that they

cannot really tell how severe the clubfoot is from ultrasound. I expect, then,

that it would be possible to mistake a metatarsus adductus for a clubfoot. It

probably depends on the baby's placement and the skill and experience of the

radiographer more than anything else. Are they saying that both feet are

affected? If you have ultrasound pictures/video, you might try sending those to

Dr Ponseti for his opinion.

In any case, good for you for doing your research now and being prepared. Dr

Mosca will likely put you at ease when you meet with him next month. And if you

have other questions or concerns, please let us know how we can help.

Our best wishes,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Menon Bender wrote:

Hi Folks,

After lurking for a while, I'm finally introducing myself. This group

has great information, but it's hard to keep up with all the messages!

Here's our story:

We have one son (3yo) with no foot problems (or others :-).

We're expecting again, due 9/5/05, and this one (another boy)

has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

at 21w).

There is family history of what is apparently metatarus adductus:

my father wore a brace for a while as a 1yo, one half-brother

and I (same father) each had turned in feet (one each, I think)

that resolved on their own. None of the three of us have any problems

now. (Though I sometimes find it comfortable to rest with the outer

edge of my foot instead of the sole on the ground. My husband

thinks that's really odd.)

We have a prenatal consult with Dr. Mosca (Children's Hospital,

Seattle) in June. Has anyone had any experience with him, positive

or negative?

Does anyone have any stats on how frequently apparent clubfoot

spotted on u/s turns out to be metatarus adductus instead?

Thanks,

[Guest guest]

Thanks, .

I'd be surprised if there wasn't something up with this foot, as we've now

seen it on two u/s (and it's pretty clear when they point it out). I'm just

curious what the percentages are for metatarus adductus v. clubfoot given

the u/s findings. Maybe Dr. Mosca will know...

Dr. Mosca is the only Dr. in WA listed on Dr. Ponseti's site. He's also

recommended by our pediatrician as the foremost expert on congenital

foot deformities around. So, unless I hear anything negative about him here,

I'm pretty happy we can get in to see him. They certainly didn't balk at

arranging the prenatal consult. I've also got the list of questions to ask

posted here recently bookmarked so I can bring it to that appointment.

> > Hi Folks,

> >

> > After lurking for a while, I'm finally introducing myself. This

> group

> > has great information, but it's hard to keep up with all the

> messages!

> >

> > Here's our story:

> >

> > We have one son (3yo) with no foot problems (or others :-).

> > We're expecting again, due 9/5/05, and this one (another boy)

> > has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> > at 21w).

> >

> > There is family history of what is apparently metatarus adductus:

> > my father wore a brace for a while as a 1yo, one half-brother

> > and I (same father) each had turned in feet (one each, I think)

> > that resolved on their own. None of the three of us have any

> problems

> > now. (Though I sometimes find it comfortable to rest with the

> outer

> > edge of my foot instead of the sole on the ground. My husband

> > thinks that's really odd.)

> >

> > We have a prenatal consult with Dr. Mosca (Children's Hospital,

> > Seattle) in June. Has anyone had any experience with him, positive

> > or negative?

> >

> > Does anyone have any stats on how frequently apparent clubfoot

> > spotted on u/s turns out to be metatarus adductus instead?

> >

> > Thanks,

> >

[Guest guest]

Thanks, Naomi.

So glad to hear that Dr. Mosca is well-respected here! I found this group

on the recommendation of Joybelle, who I know online from elsewhere.

We're going to bring u/s pics to Dr. Mosca, and I guess videos if we

can get them (I have to ask the radiologist). We should actually have

17w, 21w, and 28w pics (I'm also being followed for placenta previa,

hence the multiple u/s).

It's just one foot (the left), and my AFP numbers were smack-on normal,

so we're not worried about chromosomal issues (and even less so since

we dug up this family history information).

The radiologist we see is also very good (wrote the textbook on

something or other), so I'd be surprised if there was nothing going on

with the foot, but not too surprised if it were in fact metatarus adductus,

instead of clubfoot.

> ,

>

> Welcome to the group! We're glad you found us.

>

> I assume, since you mention Dr Mosca, that you are in WA somewhere. A number

of his

patients are members of this group (there are also a few who see another doctor

at

Children's, Dr Scmale) and hopefully they will drop in to tell you how wonderful

he is. He

is one of the doctors on the West Coast who has been pacticing the Ponseti

method the

longest--you cannot go wrong with him. (We are on the North Coast of CA, with

family in

the Seattle area and we've met Dr Mosca several times, though he has not treated

our son.)

>

> I don't know if there are any figures on how frequently the ultrasound

diagnosis is

wrong, but it does happen. I do think it is generally agreed that they cannot

really tell how

severe the clubfoot is from ultrasound. I expect, then, that it would be

possible to mistake

a metatarsus adductus for a clubfoot. It probably depends on the baby's

placement and

the skill and experience of the radiographer more than anything else. Are they

saying that

both feet are affected? If you have ultrasound pictures/video, you might try

sending those

to Dr Ponseti for his opinion.

>

> In any case, good for you for doing your research now and being prepared. Dr

Mosca

will likely put you at ease when you meet with him next month. And if you have

other

questions or concerns, please let us know how we can help.

>

> Our best wishes,

> Naomi

> The Family

> Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

[Guest guest]

Thanks, Naomi.

So glad to hear that Dr. Mosca is well-respected here! I found this group

on the recommendation of Joybelle, who I know online from elsewhere.

We're going to bring u/s pics to Dr. Mosca, and I guess videos if we

can get them (I have to ask the radiologist). We should actually have

17w, 21w, and 28w pics (I'm also being followed for placenta previa,

hence the multiple u/s).

It's just one foot (the left), and my AFP numbers were smack-on normal,

so we're not worried about chromosomal issues (and even less so since

we dug up this family history information).

The radiologist we see is also very good (wrote the textbook on

something or other), so I'd be surprised if there was nothing going on

with the foot, but not too surprised if it were in fact metatarus adductus,

instead of clubfoot.

> ,

>

> Welcome to the group! We're glad you found us.

>

> I assume, since you mention Dr Mosca, that you are in WA somewhere. A number

of his

patients are members of this group (there are also a few who see another doctor

at

Children's, Dr Scmale) and hopefully they will drop in to tell you how wonderful

he is. He

is one of the doctors on the West Coast who has been pacticing the Ponseti

method the

longest--you cannot go wrong with him. (We are on the North Coast of CA, with

family in

the Seattle area and we've met Dr Mosca several times, though he has not treated

our son.)

>

> I don't know if there are any figures on how frequently the ultrasound

diagnosis is

wrong, but it does happen. I do think it is generally agreed that they cannot

really tell how

severe the clubfoot is from ultrasound. I expect, then, that it would be

possible to mistake

a metatarsus adductus for a clubfoot. It probably depends on the baby's

placement and

the skill and experience of the radiographer more than anything else. Are they

saying that

both feet are affected? If you have ultrasound pictures/video, you might try

sending those

to Dr Ponseti for his opinion.

>

> In any case, good for you for doing your research now and being prepared. Dr

Mosca

will likely put you at ease when you meet with him next month. And if you have

other

questions or concerns, please let us know how we can help.

>

> Our best wishes,

> Naomi

> The Family

> Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

[Guest guest]

,

I can only echo what everyone else has already said. Naomi said it

well about the ultrasound. They are unable to tell how severe

clubfoot is from an ultrasound so you very well could be dealing only

with Metatarsus Adductus. But, if it is indeed clubfoot, not to

worry, it sounds like you are really doing your research and will be

ready for that little bundle no matter what.

Best wishes,

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs Brace 16-18 hrs/day)

> Hi Folks,

>

> After lurking for a while, I'm finally introducing myself. This group

> has great information, but it's hard to keep up with all the messages!

>

> Here's our story:

>

> We have one son (3yo) with no foot problems (or others :-).

> We're expecting again, due 9/5/05, and this one (another boy)

> has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> at 21w).

>

> There is family history of what is apparently metatarus adductus:

> my father wore a brace for a while as a 1yo, one half-brother

> and I (same father) each had turned in feet (one each, I think)

> that resolved on their own. None of the three of us have any problems

> now. (Though I sometimes find it comfortable to rest with the outer

> edge of my foot instead of the sole on the ground. My husband

> thinks that's really odd.)

>

> We have a prenatal consult with Dr. Mosca (Children's Hospital,

> Seattle) in June. Has anyone had any experience with him, positive

> or negative?

>

> Does anyone have any stats on how frequently apparent clubfoot

> spotted on u/s turns out to be metatarus adductus instead?

>

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

,

I can only echo what everyone else has already said. Naomi said it

well about the ultrasound. They are unable to tell how severe

clubfoot is from an ultrasound so you very well could be dealing only

with Metatarsus Adductus. But, if it is indeed clubfoot, not to

worry, it sounds like you are really doing your research and will be

ready for that little bundle no matter what.

Best wishes,

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs Brace 16-18 hrs/day)

> Hi Folks,

>

> After lurking for a while, I'm finally introducing myself. This group

> has great information, but it's hard to keep up with all the messages!

>

> Here's our story:

>

> We have one son (3yo) with no foot problems (or others :-).

> We're expecting again, due 9/5/05, and this one (another boy)

> has been diagnosed with clubfoot in utero (17w u/s, reconfirmed

> at 21w).

>

> There is family history of what is apparently metatarus adductus:

> my father wore a brace for a while as a 1yo, one half-brother

> and I (same father) each had turned in feet (one each, I think)

> that resolved on their own. None of the three of us have any problems

> now. (Though I sometimes find it comfortable to rest with the outer

> edge of my foot instead of the sole on the ground. My husband

> thinks that's really odd.)

>

> We have a prenatal consult with Dr. Mosca (Children's Hospital,

> Seattle) in June. Has anyone had any experience with him, positive

> or negative?

>

> Does anyone have any stats on how frequently apparent clubfoot

> spotted on u/s turns out to be metatarus adductus instead?

>

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Just wanted to pipe in and tell you that our son has been a patient of both

Mosca and Dr. Schmale at Children's here in Seattle. We were initially

treated by Dr. Schmale and I did not care for his bedside manner and was

upset about the care we received at times. Technically I think he did a

wonderful job with our son. I am very grateful for that!! He did however,

come in our treatment room after seeing us for 6 straight weeks and ask, " So

are we working on one foot or two? " There were things throughout the

treatment that upset me a bit. He did stray from the Ponsetti method a bit

and at that point my husband emailed Dr. Ponsetti. Dr. Ponsetti

recommended that we switch to Dr. Mosca for our treatment, along with some

other recommendations. We are now in the care of Dr. Mosca and are thrilled

with him. It is comforting to know he is the best in our area, and highly

recommended by Dr. P. He is very thorough and does not rush you through the

door. It is difficult to get in with him because he is so well known so

good for you to get a head start! We didn't know Weston had a CF until he

was born and couldn't get in to Mosca to get the casts on time. Hope this

helps! Keep me posted on your care with the docs. I'm interested to hear

your opinion. Take care! Lori

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of

Sent: Monday, May 30, 2005 8:46 PM

To: nosurgery4clubfoot

Subject: Re: introduction: due 9/5/05, baby diagnoses

with CF in utero

Thanks, Naomi.

So glad to hear that Dr. Mosca is well-respected here! I found this group

on the recommendation of Joybelle, who I know online from elsewhere.

We're going to bring u/s pics to Dr. Mosca, and I guess videos if we

can get them (I have to ask the radiologist). We should actually have

17w, 21w, and 28w pics (I'm also being followed for placenta previa,

hence the multiple u/s).

It's just one foot (the left), and my AFP numbers were smack-on normal,

so we're not worried about chromosomal issues (and even less so since

we dug up this family history information).

The radiologist we see is also very good (wrote the textbook on

something or other), so I'd be surprised if there was nothing going on

with the foot, but not too surprised if it were in fact metatarus adductus,

instead of clubfoot.

> ,

>

> Welcome to the group! We're glad you found us.

>

> I assume, since you mention Dr Mosca, that you are in WA somewhere. A

number of his

patients are members of this group (there are also a few who see another

doctor at

Children's, Dr Scmale) and hopefully they will drop in to tell you how

wonderful he is. He

is one of the doctors on the West Coast who has been pacticing the Ponseti

method the

longest--you cannot go wrong with him. (We are on the North Coast of CA,

with family in

the Seattle area and we've met Dr Mosca several times, though he has not

treated our son.)

>

> I don't know if there are any figures on how frequently the ultrasound

diagnosis is

wrong, but it does happen. I do think it is generally agreed that they

cannot really tell how

severe the clubfoot is from ultrasound. I expect, then, that it would be

possible to mistake

a metatarsus adductus for a clubfoot. It probably depends on the baby's

placement and

the skill and experience of the radiographer more than anything else. Are

they saying that

both feet are affected? If you have ultrasound pictures/video, you might

try sending those

to Dr Ponseti for his opinion.

>

> In any case, good for you for doing your research now and being prepared.

Dr Mosca

will likely put you at ease when you meet with him next month. And if you

have other

questions or concerns, please let us know how we can help.

>

> Our best wishes,

> Naomi

> The Family

> Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

[Guest guest]

Hi ,

Just wanted to pipe in and tell you that our son has been a patient of both

Mosca and Dr. Schmale at Children's here in Seattle. We were initially

treated by Dr. Schmale and I did not care for his bedside manner and was

upset about the care we received at times. Technically I think he did a

wonderful job with our son. I am very grateful for that!! He did however,

come in our treatment room after seeing us for 6 straight weeks and ask, " So

are we working on one foot or two? " There were things throughout the

treatment that upset me a bit. He did stray from the Ponsetti method a bit

and at that point my husband emailed Dr. Ponsetti. Dr. Ponsetti

recommended that we switch to Dr. Mosca for our treatment, along with some

other recommendations. We are now in the care of Dr. Mosca and are thrilled

with him. It is comforting to know he is the best in our area, and highly

recommended by Dr. P. He is very thorough and does not rush you through the

door. It is difficult to get in with him because he is so well known so

good for you to get a head start! We didn't know Weston had a CF until he

was born and couldn't get in to Mosca to get the casts on time. Hope this

helps! Keep me posted on your care with the docs. I'm interested to hear

your opinion. Take care! Lori

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of

Sent: Monday, May 30, 2005 8:46 PM

To: nosurgery4clubfoot

Subject: Re: introduction: due 9/5/05, baby diagnoses

with CF in utero

Thanks, Naomi.

So glad to hear that Dr. Mosca is well-respected here! I found this group

on the recommendation of Joybelle, who I know online from elsewhere.

We're going to bring u/s pics to Dr. Mosca, and I guess videos if we

can get them (I have to ask the radiologist). We should actually have

17w, 21w, and 28w pics (I'm also being followed for placenta previa,

hence the multiple u/s).

It's just one foot (the left), and my AFP numbers were smack-on normal,

so we're not worried about chromosomal issues (and even less so since

we dug up this family history information).

The radiologist we see is also very good (wrote the textbook on

something or other), so I'd be surprised if there was nothing going on

with the foot, but not too surprised if it were in fact metatarus adductus,

instead of clubfoot.

> ,

>

> Welcome to the group! We're glad you found us.

>

> I assume, since you mention Dr Mosca, that you are in WA somewhere. A

number of his

patients are members of this group (there are also a few who see another

doctor at

Children's, Dr Scmale) and hopefully they will drop in to tell you how

wonderful he is. He

is one of the doctors on the West Coast who has been pacticing the Ponseti

method the

longest--you cannot go wrong with him. (We are on the North Coast of CA,

with family in

the Seattle area and we've met Dr Mosca several times, though he has not

treated our son.)

>

> I don't know if there are any figures on how frequently the ultrasound

diagnosis is

wrong, but it does happen. I do think it is generally agreed that they

cannot really tell how

severe the clubfoot is from ultrasound. I expect, then, that it would be

possible to mistake

a metatarsus adductus for a clubfoot. It probably depends on the baby's

placement and

the skill and experience of the radiographer more than anything else. Are

they saying that

both feet are affected? If you have ultrasound pictures/video, you might

try sending those

to Dr Ponseti for his opinion.

>

> In any case, good for you for doing your research now and being prepared.

Dr Mosca

will likely put you at ease when you meet with him next month. And if you

have other

questions or concerns, please let us know how we can help.

>

> Our best wishes,

> Naomi

> The Family

> Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

[Guest guest]

Hi Lori,

Thanks for replying --- it's good to hear that Dr. Mosca is so

good! I look forward to the appt. I'll have to call the radiologists

on Monday to make sure I can get films from them. (I have an

u/s on Wednesday, so that would be a great time to pick them up.)

> Hi ,

>

> Just wanted to pipe in and tell you that our son has been a patient of both

> Mosca and Dr. Schmale at Children's here in Seattle. We were initially

> treated by Dr. Schmale and I did not care for his bedside manner and was

> upset about the care we received at times. Technically I think he did a

> wonderful job with our son. I am very grateful for that!! He did however,

> come in our treatment room after seeing us for 6 straight weeks and ask, " So

> are we working on one foot or two? " There were things throughout the

> treatment that upset me a bit. He did stray from the Ponsetti method a bit

> and at that point my husband emailed Dr. Ponsetti. Dr. Ponsetti

> recommended that we switch to Dr. Mosca for our treatment, along with some

> other recommendations. We are now in the care of Dr. Mosca and are thrilled

> with him. It is comforting to know he is the best in our area, and highly

> recommended by Dr. P. He is very thorough and does not rush you through the

> door. It is difficult to get in with him because he is so well known so

> good for you to get a head start! We didn't know Weston had a CF until he

> was born and couldn't get in to Mosca to get the casts on time. Hope this

> helps! Keep me posted on your care with the docs. I'm interested to hear

> your opinion. Take care! Lori

[Guest guest]

Hi Lori,

Thanks for replying --- it's good to hear that Dr. Mosca is so

good! I look forward to the appt. I'll have to call the radiologists

on Monday to make sure I can get films from them. (I have an

u/s on Wednesday, so that would be a great time to pick them up.)

> Hi ,

>

> Just wanted to pipe in and tell you that our son has been a patient of both

> Mosca and Dr. Schmale at Children's here in Seattle. We were initially

> treated by Dr. Schmale and I did not care for his bedside manner and was

> upset about the care we received at times. Technically I think he did a

> wonderful job with our son. I am very grateful for that!! He did however,

> come in our treatment room after seeing us for 6 straight weeks and ask, " So

> are we working on one foot or two? " There were things throughout the

> treatment that upset me a bit. He did stray from the Ponsetti method a bit

> and at that point my husband emailed Dr. Ponsetti. Dr. Ponsetti

> recommended that we switch to Dr. Mosca for our treatment, along with some

> other recommendations. We are now in the care of Dr. Mosca and are thrilled

> with him. It is comforting to know he is the best in our area, and highly

> recommended by Dr. P. He is very thorough and does not rush you through the

> door. It is difficult to get in with him because he is so well known so

> good for you to get a head start! We didn't know Weston had a CF until he

> was born and couldn't get in to Mosca to get the casts on time. Hope this

> helps! Keep me posted on your care with the docs. I'm interested to hear

> your opinion. Take care! Lori

[Guest guest]

Thanks . It's really great that we're able to get the heads up,

and that such excellent treatment exists for CF now. While of course

it would be nicer not to have to do anything, I'm not very concerned

about this.

> ,

> I can only echo what everyone else has already said. Naomi said it

> well about the ultrasound. They are unable to tell how severe

> clubfoot is from an ultrasound so you very well could be dealing only

> with Metatarsus Adductus. But, if it is indeed clubfoot, not to

> worry, it sounds like you are really doing your research and will be

> ready for that little bundle no matter what.

>

> Best wishes,

>

> Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs Brace 16-18 hrs/day)

[Guest guest]

Thanks . It's really great that we're able to get the heads up,

and that such excellent treatment exists for CF now. While of course

it would be nicer not to have to do anything, I'm not very concerned

about this.

> ,

> I can only echo what everyone else has already said. Naomi said it

> well about the ultrasound. They are unable to tell how severe

> clubfoot is from an ultrasound so you very well could be dealing only

> with Metatarsus Adductus. But, if it is indeed clubfoot, not to

> worry, it sounds like you are really doing your research and will be

> ready for that little bundle no matter what.

>

> Best wishes,

>

> Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs Brace 16-18 hrs/day)