starting to walk, dragging toes (and a general update)

[Guest guest]

Hi everyone,

It has been AGES since we've posted (excema and allergies had taken the place of

concern

over the brace with the bits of time I get on the computer) - Jasper is now just

over a year

old (what a milestone for all of us!) and is in his brace at night for about 13

hours. He is

on to his third pair of shoes - always exciting when he grows out of a pair as I

feel like it

confirms that all is well and those little feet are busily growing.

I remember when I first started reading this group at 25 weeks pregnant and some

of you

were saying that it gets easier, and the brace becomes part of the daily

routine... well it

has, shoes are a sleep cue (even though Jasper still wakes way too regularly at

night) and

he doesn't struggle with them at all ant more. Our best discovery lately is the

sleeping bag

- which prevents Jasper from playing with and undoing his laces! (and keeps him

cosy all

night). In the last few weeks he has learnt to crawl and to stand up in his cot

while wearing

the brace. He still has a lot of trouble if he gets himself on his stomach as he

cant work

out how to flip back over while wearing the bar, so wakes up and we have to flip

him back.

He has been 'walking' holding our hands for the last three months and his feet

are getting

better at it, but he seems to drag his left foot at the big toe, and drags both

when tired. Is

this normal? His left foot has more movement in it but the surgeon doesn't think

it will

need a tendon transfer as he is hoping it will correct passively. Has asnyone

else had

experience of this??

I hope everyone is well, and pray that all those baby feet are wriggling when

they get a

chance and correcting as they grow and you all are all happy

(even through it all)!

I have found some old nursery games to play with feet (such as this little

piggy) that I

could post if anyone wants me to. We do some feet games and Jasper knew where

his feet

and shoes were before any other body part, and they will always be special!

From Tamsin and Jasper (bilateral cf, dob13 may 04)

[Guest guest]

Hi everyone,

It has been AGES since we've posted (excema and allergies had taken the place of

concern

over the brace with the bits of time I get on the computer) - Jasper is now just

over a year

old (what a milestone for all of us!) and is in his brace at night for about 13

hours. He is

on to his third pair of shoes - always exciting when he grows out of a pair as I

feel like it

confirms that all is well and those little feet are busily growing.

I remember when I first started reading this group at 25 weeks pregnant and some

of you

were saying that it gets easier, and the brace becomes part of the daily

routine... well it

has, shoes are a sleep cue (even though Jasper still wakes way too regularly at

night) and

he doesn't struggle with them at all ant more. Our best discovery lately is the

sleeping bag

- which prevents Jasper from playing with and undoing his laces! (and keeps him

cosy all

night). In the last few weeks he has learnt to crawl and to stand up in his cot

while wearing

the brace. He still has a lot of trouble if he gets himself on his stomach as he

cant work

out how to flip back over while wearing the bar, so wakes up and we have to flip

him back.

He has been 'walking' holding our hands for the last three months and his feet

are getting

better at it, but he seems to drag his left foot at the big toe, and drags both

when tired. Is

this normal? His left foot has more movement in it but the surgeon doesn't think

it will

need a tendon transfer as he is hoping it will correct passively. Has asnyone

else had

experience of this??

I hope everyone is well, and pray that all those baby feet are wriggling when

they get a

chance and correcting as they grow and you all are all happy

(even through it all)!

I have found some old nursery games to play with feet (such as this little

piggy) that I

could post if anyone wants me to. We do some feet games and Jasper knew where

his feet

and shoes were before any other body part, and they will always be special!

From Tamsin and Jasper (bilateral cf, dob13 may 04)