Re: Apraxia - Help I don't know what is going on with my son.

[Guest guest]

Has he been diagnosed autistic? He is a little young for that diagnosis as

well. (I think). Especially since you said he is very social! My son was

nonverbal at 3yrs old as well. I took him to a developmental pediatrician

who had experience with Apraxia. You should also read the book the " The

Late Talker " by Dr. Marilyn Agin and our resident advocate

[Guest guest]

I too have found doctors and therapist relunctant to give a

diagnosis. My son is now 3 and has been through doctors and

therapist and although most would give a diagnosis of apraxia for

insurance purposes, no one felt confident enought to call it that.

My little one is making a little progress but we feel we have been

stalled out for quite sometime. He has difficult with many sounds

and substitues other sounds. He can usually master a sound if he

works long and hard on it but then will forget it quickly and we are

back to square one. He has difficulty putting phrases together. One

thing that drs. told me is that they questioned the apraxia because

he had no other oral or mouth related difficulties. We also have

experienced quirky behavior including sensory issues, attachment

behavior, scattered thoughts, etc. Autism has been mentioned but

most professionals rule it out after seeing how social he is. He

also has developed imaginary play. My question would be, what type

of supplements and how much worked for you ?

>

>

> Has he been diagnosed autistic? He is a little young for that

diagnosis as

> well. (I think). Especially since you said he is very social! My

son was

> nonverbal at 3yrs old as well. I took him to a developmental

pediatrician

> who had experience with Apraxia. You should also read the book

the " The

> Late Talker " by Dr. Marilyn Agin and our resident advocate

Geng. Our

> dev. ped. diagnosed him as having severe oral/motor apraxia with

hypotonia

> (low muscle tone in the arms) and that I should encourage his

pretend

> skills (thought maybe autistic - poor eye contact). She also

recommended we

> give him ProEFA & ProEPA. She recommended his go to a language based

> preschool program where he should receive receive both Speech

Therapy & OT

> at least 3x a week. I also had him go to Speech Therapy privately

2x a

> week. Today, my son is 6yrs old. He talks up a storm! He is not

autistic as

> he is by far the most friendly social child you'll ever meet. He has

> receptive/expressive language delay with some processing issues. I

> attribute this to his inability to speak until well over 4yrs

old....He's

> catching up min. by minute. I give " natural " Vitamin E today along

with

> the other supplements and a capsule of Carnaware.

> I would definitely seek the developmental pediatrician first. Be

very

> optimistic and give him all of the therapies he needs. My son also

enjoyed

> the baby bumblee videos...

>

>

>

> " kellymac92 "

> <cs-

mom@...

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childrensapraxian cc

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Subject

> [ ]

Apraxia -

> Help I don't know what is

going on

> 01/06/2008 10:55 with my

son.

>

PM

>

>

> Please respond

to

>

childrensapraxian

> et@...

>

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> How do you know if a child has apraxia? My 3 year old is non verbal

> except for bye bye, go, and eye. These are the only words that other

> people can understand. He can say all the letter sounds, but cannot

> say the letters themselves. He will try to say anything that I tell

> him to, but it is very hard to understand. On command he can say

mama,

> and dada. Often times his " words " come out as the 1st or last

> consonant sound. For example dog is " ga " Boat, Bridge, Barn, are

> all " ba " Puzzle is " pu " Up is " pu " clock is " kah " Drink is " Kah uh "

> Open is " deh duh " Boo is " bah " , but Boo Boo is " boo " Moo is " mah "

Cow

> is " cah " Money is " mah mah " , Hi is " ha " etc. You get the idea. We

> have been through 3 speech therapist with no luck. No one seems

> willing or able to make a diagnosis. He is in ABA therapy for autism

> and it is very language based. Language and immitation are his main

> issues. He is very social. He makes more progress there and with

> BabyBumble Bee than with the speech therapist. His receptive is

about

> equal with his expressive. I am about to go crazy not knowing if he

> will ever talk, or if I am even doing the right thing.

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