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Hi, my name is Marcia, I am a sahm to 3 wonderful kiddos, Rylan ds

4yrs, Addie dd 2yrs and Janelyse dd 3 months. My first two are

perfectly healthy and haven't had any issues of any kind. My third

is the interesting one :) We had a clue she might have something

going on with her leg/foot when during an ultrasound we saw that her

foot seemed to be at an odd angle. They were unable to confirm

whether it was truly " twisted " or just the way she was scrunched up

in there. When she was born she had one club foot, her right, and

severely dislocated hips (that will require surger when she is

around 9 months). We were seen by a pediatric orthopedist when she

was 4 days old and she got her first cast when she was 2 weeks old.

Our dr. uses the Ponseti method for correction, and so far we are

pleased. She just got her final cast off today and got her DBB. It

is an adjustment, but I hope a good one. It was good to give her a

real bath, though she wasn't as thrilled as I was. She has always

screamed awful when she gets a new cast (turns red/purple and barely

breathes) and did the same when they put the DBB on her. Also, for

the first day or so she will sleep constantly and only wake up long

enough to scream and then nurse for a few minutes before falling

back asleep, so that's very trying. Just mentally and emotionally

exhausting. Her foot looks good though, I guess, it does

look " squished " but the pictures I've seen of other feet right after

cast removal look similar so I'm hoping it'll correct itself over

time and start to look more normal. The DBB is challenging for her

because of the angle of her legs, due to her hip problems, she

cannot move her legs at all (her knees point out so when she bends

her legs at the knee the feet come towards eachother, essentially

putting her cross-legged) so I know that's frustrating for her, but

she'll adjust, it's not much different than a cast as far as that

goes. I can't wait to hopefully learn more about her foot...any

others on the list going to Nemour's Children's Clinic in Orlando,

FL?

Marcia

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Hi, my name is Marcia, I am a sahm to 3 wonderful kiddos, Rylan ds

4yrs, Addie dd 2yrs and Janelyse dd 3 months. My first two are

perfectly healthy and haven't had any issues of any kind. My third

is the interesting one :) We had a clue she might have something

going on with her leg/foot when during an ultrasound we saw that her

foot seemed to be at an odd angle. They were unable to confirm

whether it was truly " twisted " or just the way she was scrunched up

in there. When she was born she had one club foot, her right, and

severely dislocated hips (that will require surger when she is

around 9 months). We were seen by a pediatric orthopedist when she

was 4 days old and she got her first cast when she was 2 weeks old.

Our dr. uses the Ponseti method for correction, and so far we are

pleased. She just got her final cast off today and got her DBB. It

is an adjustment, but I hope a good one. It was good to give her a

real bath, though she wasn't as thrilled as I was. She has always

screamed awful when she gets a new cast (turns red/purple and barely

breathes) and did the same when they put the DBB on her. Also, for

the first day or so she will sleep constantly and only wake up long

enough to scream and then nurse for a few minutes before falling

back asleep, so that's very trying. Just mentally and emotionally

exhausting. Her foot looks good though, I guess, it does

look " squished " but the pictures I've seen of other feet right after

cast removal look similar so I'm hoping it'll correct itself over

time and start to look more normal. The DBB is challenging for her

because of the angle of her legs, due to her hip problems, she

cannot move her legs at all (her knees point out so when she bends

her legs at the knee the feet come towards eachother, essentially

putting her cross-legged) so I know that's frustrating for her, but

she'll adjust, it's not much different than a cast as far as that

goes. I can't wait to hopefully learn more about her foot...any

others on the list going to Nemour's Children's Clinic in Orlando,

FL?

Marcia

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