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Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

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Guest guest

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

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Guest guest

,

How old is ? The reason I ask is because 's muscles are finally

starting to loosen up, but they are still pretty tight in his neck and

hamstrings. His back and other leg muscles as well as his tummy muscles are

also tight but loosening some. Many were tight when he was born but aggrevated

by the fact they were hard to stretch in casts and then hard to keep stretched

by the sheer fact that he moved differently with the FAB on. Him movements are

still different because he has learned to adjust. Not usually a big deal, but

his tight muscles continued to get tighter.

I just wondered if he was younger or older than , so I would have

something to compare it to. is 7 months, so I am guessing is a

little younger because has been in his shoes for a few months. I haven't

heard anyone else working through tight muscles with the shoes and all, so it

would be nice to have a comparison!

11/19/04

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

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Guest guest

,

How old is ? The reason I ask is because 's muscles are finally

starting to loosen up, but they are still pretty tight in his neck and

hamstrings. His back and other leg muscles as well as his tummy muscles are

also tight but loosening some. Many were tight when he was born but aggrevated

by the fact they were hard to stretch in casts and then hard to keep stretched

by the sheer fact that he moved differently with the FAB on. Him movements are

still different because he has learned to adjust. Not usually a big deal, but

his tight muscles continued to get tighter.

I just wondered if he was younger or older than , so I would have

something to compare it to. is 7 months, so I am guessing is a

little younger because has been in his shoes for a few months. I haven't

heard anyone else working through tight muscles with the shoes and all, so it

would be nice to have a comparison!

11/19/04

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

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Guest guest

Hi!

is 6 months old. Hopefully the physical therapy will help loosen him up a

bit! We will actually be taking him to a hand specialist to take a look at his

fingers, but I've been procrastinating. His fingers have definitely gotten

better, but I just want to see what a hand specialist will say.

He also tilts his head to the left, so they will be working on stretching that

out. The one thing that the phys. therapist was impressed with (besides his

adorableness and sunny personality) was that his legs come together nicely--they

are not perpetually in the DBB position when he's not in the shoes.

I think these kids do need to get more exercise and as much stretching as

possible since they DON'T get to move like other babies b/c of casts and bars

and whatnot.

Goodin wrote:

,

How old is ? The reason I ask is because 's muscles are finally

starting to loosen up, but they are still pretty tight in his neck and

hamstrings. His back and other leg muscles as well as his tummy muscles are

also tight but loosening some. Many were tight when he was born but aggrevated

by the fact they were hard to stretch in casts and then hard to keep stretched

by the sheer fact that he moved differently with the FAB on. Him movements are

still different because he has learned to adjust. Not usually a big deal, but

his tight muscles continued to get tighter.

I just wondered if he was younger or older than , so I would have

something to compare it to. is 7 months, so I am guessing is a

little younger because has been in his shoes for a few months. I haven't

heard anyone else working through tight muscles with the shoes and all, so it

would be nice to have a comparison!

11/19/04

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

Discover Yahoo!

Get on-the-go sports scores, stock quotes, news & more. Check it out!

Link to comment
Share on other sites

Guest guest

Hi!

is 6 months old. Hopefully the physical therapy will help loosen him up a

bit! We will actually be taking him to a hand specialist to take a look at his

fingers, but I've been procrastinating. His fingers have definitely gotten

better, but I just want to see what a hand specialist will say.

He also tilts his head to the left, so they will be working on stretching that

out. The one thing that the phys. therapist was impressed with (besides his

adorableness and sunny personality) was that his legs come together nicely--they

are not perpetually in the DBB position when he's not in the shoes.

I think these kids do need to get more exercise and as much stretching as

possible since they DON'T get to move like other babies b/c of casts and bars

and whatnot.

Goodin wrote:

,

How old is ? The reason I ask is because 's muscles are finally

starting to loosen up, but they are still pretty tight in his neck and

hamstrings. His back and other leg muscles as well as his tummy muscles are

also tight but loosening some. Many were tight when he was born but aggrevated

by the fact they were hard to stretch in casts and then hard to keep stretched

by the sheer fact that he moved differently with the FAB on. Him movements are

still different because he has learned to adjust. Not usually a big deal, but

his tight muscles continued to get tighter.

I just wondered if he was younger or older than , so I would have

something to compare it to. is 7 months, so I am guessing is a

little younger because has been in his shoes for a few months. I haven't

heard anyone else working through tight muscles with the shoes and all, so it

would be nice to have a comparison!

11/19/04

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

Discover Yahoo!

Get on-the-go sports scores, stock quotes, news & more. Check it out!

Link to comment
Share on other sites

Guest guest

,

I hope all goes well with his neck. 's is really tight. He turns his

head to the left, but can only tilt it comfortably to the right. The muscles in

the back are tight, so he has a hard time tucking his chin also. The neck

stretches on him are the hardest. Good luck with the PT. has been

getting if for 3 months, and he is finally really starting to come along even

though he is not consistently rolling or sitting up, we are getting there.

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

Discover Yahoo!

Get on-the-go sports scores, stock quotes, news & more. Check it out!

Link to comment
Share on other sites

Guest guest

,

I hope all goes well with his neck. 's is really tight. He turns his

head to the left, but can only tilt it comfortably to the right. The muscles in

the back are tight, so he has a hard time tucking his chin also. The neck

stretches on him are the hardest. Good luck with the PT. has been

getting if for 3 months, and he is finally really starting to come along even

though he is not consistently rolling or sitting up, we are getting there.

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

Discover Yahoo!

Get on-the-go sports scores, stock quotes, news & more. Check it out!

Link to comment
Share on other sites

Guest guest

,

Hmmm... doesn't really tuck his chin either. I agree, the neck stretches

are tough. He resists them and makes these weird wide-eyed faces like, " WHAT

the heck is going on here??? "

Keep me posted on how 's doing.

Goodin wrote:

,

I hope all goes well with his neck. 's is really tight. He turns his

head to the left, but can only tilt it comfortably to the right. The muscles in

the back are tight, so he has a hard time tucking his chin also. The neck

stretches on him are the hardest. Good luck with the PT. has been

getting if for 3 months, and he is finally really starting to come along even

though he is not consistently rolling or sitting up, we are getting there.

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

Discover Yahoo!

Get on-the-go sports scores, stock quotes, news & more. Check it out!

Link to comment
Share on other sites

Guest guest

,

Hmmm... doesn't really tuck his chin either. I agree, the neck stretches

are tough. He resists them and makes these weird wide-eyed faces like, " WHAT

the heck is going on here??? "

Keep me posted on how 's doing.

Goodin wrote:

,

I hope all goes well with his neck. 's is really tight. He turns his

head to the left, but can only tilt it comfortably to the right. The muscles in

the back are tight, so he has a hard time tucking his chin also. The neck

stretches on him are the hardest. Good luck with the PT. has been

getting if for 3 months, and he is finally really starting to come along even

though he is not consistently rolling or sitting up, we are getting there.

Reduced hours for --Hooray!

Hi everyone!

I just wanted to let you all know that had his follow-up with Dr. Feldman

yesterday and he said the foot looks beautiful. Of course he also said we

should keep the shoes on only 10-12 hours a day at night while he's sleeping and

only if we WANT to at naptime. Why do they do that? Sigh. Well, Mr. ie

will be in them at least 16 hours a day for a while. He sleeps for 12 hours

pretty much anyway, so keeping them on for 4 hours longer, is not a big deal.

Also, started PT today through Early Intervention. She said she was

impressed with everything he does and did not find him to be much delayed in

anything. (Perhaps she was just being nice. Although, there really isn't much

that he is not doing but SHOULD be doing.) The OT comes tomorrow to work on the

tightness in his hands. He just has tight muscles all around: neck, foot,

fingers, shoulders. It really makes me wonder what was going on in that belly

of mine when he was in there.

Anyway, I just wanted to share my good news. Hopefully now the toe on his cf

foot will start looking a bit more normal since it won't be smushed all day

long. That upward-growing toenail caused a big dry piece of skin to form on the

corner of his toe. TMI? sorry...

mommy to (12/15/04 right cf FAB 16 hrs. a day)

---------------------------------

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Get on-the-go sports scores, stock quotes, news & more. Check it out!

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