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Hi everyone!

I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of yesterday,

he has tried twice to stand up in the middle of the room! He will push off of

stuff and walk

clear across the room, even turning corners. he does it completely of his own

accord

now!!!!!!!!

For those who don't know our story, short of the long, was born with very

severe

atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had first

surgery done, based on advice of doctor who said he was using the ponseti

method, but

was doing it inaccurately. The surgery made things terribly worse with all the

scar tissue,

so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in casts,

changed every 5 days, had another surgery to correct the first one, two more

months in

casts, shoes 23 hours a day faithfully, still relapsed, spent another two months

in casts

physical therapy 4 times a week for the past 8 or so months ...now finally at 21

months

JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going to

need more

casting but the fact that he is pulling himself up by the couch and then

walking clear

across the room, navigating himself around toys, and trying twice to stand up in

the

middle of the room with nothing to hold onto is HUGE!!!!!!!!

I know we are not done by any stretch, but it is all just one step at a time.

For those

moms and dads out there who are struggling, please don't give up!!! Keep those

shoes

on, keep stretching, and if the doctor says the ponseti method is not working we

need to

do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

Get an Angel flight out there and do whatever it takes, but if the doc says the

ponseti

method isn't working, then he iis not doing it correctly and you need to go to

the master.

SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick fix

and will put your child back even further. We still have issues with scar

tissue and the

scars along his feet are so tight. I know his feet are not completely corrected

yet, and in 4

years he may have problems with stiff feet as a result of the surgeries. If Dr.

Ponseti says

you need it, then there is no doubt that surgery is necessary, but consult with

him first

before subjecting your child to months of struggling and possibly years of agony

simply

for a quick fix. Surgery is NOT an option!!!!!!!

I knew the minute we made an appointment with Dr. Dobbs he would start

walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

Ponseti!!!

yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever give

up for a minute, and don't ever ever contemplate surgery unless you have

consulted with

Dr. ponseti.

Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

everyone of you!

Wold

Proud sobbing mother of a walking toddler!!!!!

wold s 16 hours a day faithfully!!!!! 10-09-03

(Isaiah 52:7)

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Share on other sites

Guest guest

Hi everyone!

I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of yesterday,

he has tried twice to stand up in the middle of the room! He will push off of

stuff and walk

clear across the room, even turning corners. he does it completely of his own

accord

now!!!!!!!!

For those who don't know our story, short of the long, was born with very

severe

atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had first

surgery done, based on advice of doctor who said he was using the ponseti

method, but

was doing it inaccurately. The surgery made things terribly worse with all the

scar tissue,

so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in casts,

changed every 5 days, had another surgery to correct the first one, two more

months in

casts, shoes 23 hours a day faithfully, still relapsed, spent another two months

in casts

physical therapy 4 times a week for the past 8 or so months ...now finally at 21

months

JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going to

need more

casting but the fact that he is pulling himself up by the couch and then

walking clear

across the room, navigating himself around toys, and trying twice to stand up in

the

middle of the room with nothing to hold onto is HUGE!!!!!!!!

I know we are not done by any stretch, but it is all just one step at a time.

For those

moms and dads out there who are struggling, please don't give up!!! Keep those

shoes

on, keep stretching, and if the doctor says the ponseti method is not working we

need to

do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

Get an Angel flight out there and do whatever it takes, but if the doc says the

ponseti

method isn't working, then he iis not doing it correctly and you need to go to

the master.

SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick fix

and will put your child back even further. We still have issues with scar

tissue and the

scars along his feet are so tight. I know his feet are not completely corrected

yet, and in 4

years he may have problems with stiff feet as a result of the surgeries. If Dr.

Ponseti says

you need it, then there is no doubt that surgery is necessary, but consult with

him first

before subjecting your child to months of struggling and possibly years of agony

simply

for a quick fix. Surgery is NOT an option!!!!!!!

I knew the minute we made an appointment with Dr. Dobbs he would start

walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

Ponseti!!!

yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever give

up for a minute, and don't ever ever contemplate surgery unless you have

consulted with

Dr. ponseti.

Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

everyone of you!

Wold

Proud sobbing mother of a walking toddler!!!!!

wold s 16 hours a day faithfully!!!!! 10-09-03

(Isaiah 52:7)

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Share on other sites

Guest guest

WOOOOOHOOOOOOOOO JASON!!!!! That's wonderful!!!! I'm so happy for you all!!

I know you are thrilled! I've been wondering how things were going your way!

Wishing you all the best!

&

-------------- Original message --------------

Hi everyone!

I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of yesterday,

he has tried twice to stand up in the middle of the room! He will push off of

stuff and walk

clear across the room, even turning corners. he does it completely of his own

accord

now!!!!!!!!

For those who don't know our story, short of the long, was born with very

severe

atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had first

surgery done, based on advice of doctor who said he was using the ponseti

method, but

was doing it inaccurately. The surgery made things terribly worse with all the

scar tissue,

so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in casts,

changed every 5 days, had another surgery to correct the first one, two more

months in

casts, shoes 23 hours a day faithfully, still relapsed, spent another two months

in casts

physical therapy 4 times a week for the past 8 or so months ...now finally at 21

months

JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going to

need more

casting but the fact that he is pulling himself up by the couch and then

walking clear

across the room, navigating himself around toys, and trying twice to stand up in

the

middle of the room with nothing to hold onto is HUGE!!!!!!!!

I know we are not done by any stretch, but it is all just one step at a time.

For those

moms and dads out there who are struggling, please don't give up!!! Keep those

shoes

on, keep stretching, and if the doctor says the ponseti method is not working we

need to

do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

Get an Angel flight out there and do whatever it takes, but if the doc says the

ponseti

method isn't working, then he iis not doing it correctly and you need to go to

the master.

SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick fix

and will put your child back even further. We still have issues with scar

tissue and the

scars along his feet are so tight. I know his feet are not completely corrected

yet, and in 4

years he may have problems with stiff feet as a result of the surgeries. If Dr.

Ponseti says

you need it, then there is no doubt that surgery is necessary, but consult with

him first

before subjecting your child to months of struggling and possibly years of agony

simply

for a quick fix. Surgery is NOT an option!!!!!!!

I knew the minute we made an appointment with Dr. Dobbs he would start

walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

Ponseti!!!

yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever give

up for a minute, and don't ever ever contemplate surgery unless you have

consulted with

Dr. ponseti.

Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

everyone of you!

Wold

Proud sobbing mother of a walking toddler!!!!!

wold s 16 hours a day faithfully!!!!! 10-09-03

(Isaiah 52:7)

Link to comment
Share on other sites

Guest guest

WOOOOOHOOOOOOOOO JASON!!!!! That's wonderful!!!! I'm so happy for you all!!

I know you are thrilled! I've been wondering how things were going your way!

Wishing you all the best!

&

-------------- Original message --------------

Hi everyone!

I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of yesterday,

he has tried twice to stand up in the middle of the room! He will push off of

stuff and walk

clear across the room, even turning corners. he does it completely of his own

accord

now!!!!!!!!

For those who don't know our story, short of the long, was born with very

severe

atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had first

surgery done, based on advice of doctor who said he was using the ponseti

method, but

was doing it inaccurately. The surgery made things terribly worse with all the

scar tissue,

so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in casts,

changed every 5 days, had another surgery to correct the first one, two more

months in

casts, shoes 23 hours a day faithfully, still relapsed, spent another two months

in casts

physical therapy 4 times a week for the past 8 or so months ...now finally at 21

months

JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going to

need more

casting but the fact that he is pulling himself up by the couch and then

walking clear

across the room, navigating himself around toys, and trying twice to stand up in

the

middle of the room with nothing to hold onto is HUGE!!!!!!!!

I know we are not done by any stretch, but it is all just one step at a time.

For those

moms and dads out there who are struggling, please don't give up!!! Keep those

shoes

on, keep stretching, and if the doctor says the ponseti method is not working we

need to

do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

Get an Angel flight out there and do whatever it takes, but if the doc says the

ponseti

method isn't working, then he iis not doing it correctly and you need to go to

the master.

SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick fix

and will put your child back even further. We still have issues with scar

tissue and the

scars along his feet are so tight. I know his feet are not completely corrected

yet, and in 4

years he may have problems with stiff feet as a result of the surgeries. If Dr.

Ponseti says

you need it, then there is no doubt that surgery is necessary, but consult with

him first

before subjecting your child to months of struggling and possibly years of agony

simply

for a quick fix. Surgery is NOT an option!!!!!!!

I knew the minute we made an appointment with Dr. Dobbs he would start

walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

Ponseti!!!

yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever give

up for a minute, and don't ever ever contemplate surgery unless you have

consulted with

Dr. ponseti.

Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

everyone of you!

Wold

Proud sobbing mother of a walking toddler!!!!!

wold s 16 hours a day faithfully!!!!! 10-09-03

(Isaiah 52:7)

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Share on other sites

Guest guest

Thanks ! Now I just gotta talk to Dr. P and Dr. Dobbs and find out what to

do next.

Do we keep our appointment with Dr. Dobbs or let jason walk for a while, let his

feet

stretch naturally for a bit and then go see either him or Dr. P. Man, my son!!

What a

stinker. :) I feel like I've been holding my breath for 21 months and can let

a little bit out

now...not too much mind you, but a little bit. kwim? :)

> WOOOOOHOOOOOOOOO JASON!!!!! That's wonderful!!!! I'm so happy for you

all!! I

know you are thrilled! I've been wondering how things were going your way!

Wishing you

all the best!

>

> &

>

> -------------- Original message --------------

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

> PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of

yesterday,

> he has tried twice to stand up in the middle of the room! He will push off of

stuff and

walk

> clear across the room, even turning corners. he does it completely of his own

accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was born with

very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had

first

> surgery done, based on advice of doctor who said he was using the ponseti

method, but

> was doing it inaccurately. The surgery made things terribly worse with all

the scar

tissue,

> so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in

casts,

> changed every 5 days, had another surgery to correct the first one, two more

months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent another two

months in casts

> physical therapy 4 times a week for the past 8 or so months ...now finally at

21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going

to need more

> casting but the fact that he is pulling himself up by the couch and then

walking clear

> across the room, navigating himself around toys, and trying twice to stand up

in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step at a time.

For those

> moms and dads out there who are struggling, please don't give up!!! Keep

those shoes

> on, keep stretching, and if the doctor says the ponseti method is not working

we need

to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

> Get an Angel flight out there and do whatever it takes, but if the doc says

the ponseti

> method isn't working, then he iis not doing it correctly and you need to go to

the

master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick

fix

> and will put your child back even further. We still have issues with scar

tissue and the

> scars along his feet are so tight. I know his feet are not completely

corrected yet, and in

4

> years he may have problems with stiff feet as a result of the surgeries. If

Dr. Ponseti

says

> you need it, then there is no doubt that surgery is necessary, but consult

with him first

> before subjecting your child to months of struggling and possibly years of

agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever

give

> up for a minute, and don't ever ever contemplate surgery unless you have

consulted

with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

>

>

>

>

>

>

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Share on other sites

Guest guest

Thanks ! Now I just gotta talk to Dr. P and Dr. Dobbs and find out what to

do next.

Do we keep our appointment with Dr. Dobbs or let jason walk for a while, let his

feet

stretch naturally for a bit and then go see either him or Dr. P. Man, my son!!

What a

stinker. :) I feel like I've been holding my breath for 21 months and can let

a little bit out

now...not too much mind you, but a little bit. kwim? :)

> WOOOOOHOOOOOOOOO JASON!!!!! That's wonderful!!!! I'm so happy for you

all!! I

know you are thrilled! I've been wondering how things were going your way!

Wishing you

all the best!

>

> &

>

> -------------- Original message --------------

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

> PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of

yesterday,

> he has tried twice to stand up in the middle of the room! He will push off of

stuff and

walk

> clear across the room, even turning corners. he does it completely of his own

accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was born with

very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had

first

> surgery done, based on advice of doctor who said he was using the ponseti

method, but

> was doing it inaccurately. The surgery made things terribly worse with all

the scar

tissue,

> so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in

casts,

> changed every 5 days, had another surgery to correct the first one, two more

months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent another two

months in casts

> physical therapy 4 times a week for the past 8 or so months ...now finally at

21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going

to need more

> casting but the fact that he is pulling himself up by the couch and then

walking clear

> across the room, navigating himself around toys, and trying twice to stand up

in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step at a time.

For those

> moms and dads out there who are struggling, please don't give up!!! Keep

those shoes

> on, keep stretching, and if the doctor says the ponseti method is not working

we need

to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

> Get an Angel flight out there and do whatever it takes, but if the doc says

the ponseti

> method isn't working, then he iis not doing it correctly and you need to go to

the

master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick

fix

> and will put your child back even further. We still have issues with scar

tissue and the

> scars along his feet are so tight. I know his feet are not completely

corrected yet, and in

4

> years he may have problems with stiff feet as a result of the surgeries. If

Dr. Ponseti

says

> you need it, then there is no doubt that surgery is necessary, but consult

with him first

> before subjecting your child to months of struggling and possibly years of

agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever

give

> up for a minute, and don't ever ever contemplate surgery unless you have

consulted

with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

>

>

>

>

>

>

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Share on other sites

Guest guest

,

Haven't been on here much lately (been SO busy). I'm glad the first

thing I see is that your little boy is WALKING!!! That is

absolutely wonderful news!!! Congratulations for being such a great

mama- 's feet are obviously on the right track, thanks to you.

Hopefully Livi will catch up with him and start walking when we get

her new brace and she gets her casts off!

Take care,

Darby

Livi 3.15.04 bi cf

5.17.05

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

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Share on other sites

Guest guest

,

Haven't been on here much lately (been SO busy). I'm glad the first

thing I see is that your little boy is WALKING!!! That is

absolutely wonderful news!!! Congratulations for being such a great

mama- 's feet are obviously on the right track, thanks to you.

Hopefully Livi will catch up with him and start walking when we get

her new brace and she gets her casts off!

Take care,

Darby

Livi 3.15.04 bi cf

5.17.05

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

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Guest guest

,

That is such wonderful news!!!!!!! You and have had a long journey

thus far and you certainly deserve this huge, huge milestone

celebration!!!! I hope he continues to excell in walking and running and

jumping. I think about you guys often and wonder how little is

going to pull through. It is soooooooooooo rewarding to be persistant and

not give up. Congratulations!!!

I really hope newbies read your story and avoid the surgery route!!!

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

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Guest guest

,

That is such wonderful news!!!!!!! You and have had a long journey

thus far and you certainly deserve this huge, huge milestone

celebration!!!! I hope he continues to excell in walking and running and

jumping. I think about you guys often and wonder how little is

going to pull through. It is soooooooooooo rewarding to be persistant and

not give up. Congratulations!!!

I really hope newbies read your story and avoid the surgery route!!!

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

Link to comment
Share on other sites

Guest guest

Darby,

Just be patient! :) It won't happen overnight, but hopefully Livi won't take

as long either!

It took 5 months from getting his relapse casts off for him to walk! :) Just

keep those

shoes on!!!! :) By the way I don't think I ever said congrats on ! How

fabulous!! (I'm

not on very much either!)

Lord bless you,

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

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Guest guest

Darby,

Just be patient! :) It won't happen overnight, but hopefully Livi won't take

as long either!

It took 5 months from getting his relapse casts off for him to walk! :) Just

keep those

shoes on!!!! :) By the way I don't think I ever said congrats on ! How

fabulous!! (I'm

not on very much either!)

Lord bless you,

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

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Guest guest

Thanks ! I hope anyone who reads it will avoid the surgery route too!

Then

everything we've been through and will continue to go through will have been

worth it.

The frustrating thing is that the first surgery was a tendon lengthening

surgery. It was

something the doctor said would be non intrusive and very simple procedure that

he had

great success with. One thing parents who are scared and struggling and think

surgery

will be the answer to all their problems need to understand is ANY SURGERY IS

INTRUSIVE!!!! No matter what the doctor says, any surgery leads to scars and

scar tissue

that will make things even tighter. The recovery time alone will set your child

back even

further. Just because your childs feet aren't responding to the ponseti method

does not

mean there is no hope for walking without surgery. It simply means either the

doctor is

not doing the ponseti method correctly, he or she have tweaked it enough to be

ineffective

for some feet or your child doesn't have typical clubfoot and requires someone

with more

experience.

If a doctor suggests surgery, you have nothing to lose when you get a second

opinion.

Email Dr. Ponseti, he always responds or send him pictures. Have your doctor do

it. but

get that second opinion, please. Learn from our mistake!!!! Once you have the

surgery,

you cannot go back. Man, it makes me cry just thinking about it. How I wish I

could just

reach these moms and dads who think the only option is surgery. It is

irreversible. With

casting, you can regain what was lost, yes it will take longer, but you will get

it back if the

casting is done correctly. Surgery? Whats done is done. No going back.

Please please please, if anyone wants to send my email address on or wants to

hear more

of 's story, I would love to chat. I can't stress that enough. I don't

want anyone to

ever go through what we have gone through and what we will continue to go

through

because I made a bad decision for my son.

alright, once again, I'm on my soapbox! :) I guess I will be forever on it!

:) LOL

16 hours mitchells faithfully,

21 months 10-09-03

2 full days of walking!!!!!!!!! God is good, all the time!!

> ,

> That is such wonderful news!!!!!!! You and have had a long journey

> thus far and you certainly deserve this huge, huge milestone

> celebration!!!! I hope he continues to excell in walking and running and

> jumping. I think about you guys often and wonder how little is

> going to pull through. It is soooooooooooo rewarding to be persistant and

> not give up. Congratulations!!!

>

> I really hope newbies read your story and avoid the surgery route!!!

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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Share on other sites

Guest guest

Thanks ! I hope anyone who reads it will avoid the surgery route too!

Then

everything we've been through and will continue to go through will have been

worth it.

The frustrating thing is that the first surgery was a tendon lengthening

surgery. It was

something the doctor said would be non intrusive and very simple procedure that

he had

great success with. One thing parents who are scared and struggling and think

surgery

will be the answer to all their problems need to understand is ANY SURGERY IS

INTRUSIVE!!!! No matter what the doctor says, any surgery leads to scars and

scar tissue

that will make things even tighter. The recovery time alone will set your child

back even

further. Just because your childs feet aren't responding to the ponseti method

does not

mean there is no hope for walking without surgery. It simply means either the

doctor is

not doing the ponseti method correctly, he or she have tweaked it enough to be

ineffective

for some feet or your child doesn't have typical clubfoot and requires someone

with more

experience.

If a doctor suggests surgery, you have nothing to lose when you get a second

opinion.

Email Dr. Ponseti, he always responds or send him pictures. Have your doctor do

it. but

get that second opinion, please. Learn from our mistake!!!! Once you have the

surgery,

you cannot go back. Man, it makes me cry just thinking about it. How I wish I

could just

reach these moms and dads who think the only option is surgery. It is

irreversible. With

casting, you can regain what was lost, yes it will take longer, but you will get

it back if the

casting is done correctly. Surgery? Whats done is done. No going back.

Please please please, if anyone wants to send my email address on or wants to

hear more

of 's story, I would love to chat. I can't stress that enough. I don't

want anyone to

ever go through what we have gone through and what we will continue to go

through

because I made a bad decision for my son.

alright, once again, I'm on my soapbox! :) I guess I will be forever on it!

:) LOL

16 hours mitchells faithfully,

21 months 10-09-03

2 full days of walking!!!!!!!!! God is good, all the time!!

> ,

> That is such wonderful news!!!!!!! You and have had a long journey

> thus far and you certainly deserve this huge, huge milestone

> celebration!!!! I hope he continues to excell in walking and running and

> jumping. I think about you guys often and wonder how little is

> going to pull through. It is soooooooooooo rewarding to be persistant and

> not give up. Congratulations!!!

>

> I really hope newbies read your story and avoid the surgery route!!!

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

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Share on other sites

Guest guest

Hi , Congratulations you must be so excited!!!! I have a

question about the surgery Dr. Ponseti did to correct the previous

surgery, what type was it, and what did it involove? What was he

actually correcting during the surgery. Dr. Herzeberg (Ponseti

method doctor in Baltimore, land) has suggested surgery for my

son Collin (he'll be 4 in August), it is actually 2 surgeries, 1 to

put on an external fixator device, another to take it off, etc. I

trust Dr. Herzenberg, but I still haven't scheduled the surgery I

guess hoping that something will change. I'm so afraid if I go with

the surgeries that it may be just a temporary fix and we could be in

the same position again in a few years. Collin did have surgery at

8 weeks old, we didn't start the ponseti method till about age 2.5.

Collin walks/runs/jumps, etc everything fine and complains of no

pain what so ever, so I'm leary about surgery, but at the same time,

I know the surgery could help him later in life when pain often sets

in from what I heard, its hard to make a decision now when he seems

fine and content that could affect him as an adult..... Sorry for

the rant!!!!

Michele Yoder

Collin's story at http://www.geocities.com/chele323232

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Guest guest

Hi , Congratulations you must be so excited!!!! I have a

question about the surgery Dr. Ponseti did to correct the previous

surgery, what type was it, and what did it involove? What was he

actually correcting during the surgery. Dr. Herzeberg (Ponseti

method doctor in Baltimore, land) has suggested surgery for my

son Collin (he'll be 4 in August), it is actually 2 surgeries, 1 to

put on an external fixator device, another to take it off, etc. I

trust Dr. Herzenberg, but I still haven't scheduled the surgery I

guess hoping that something will change. I'm so afraid if I go with

the surgeries that it may be just a temporary fix and we could be in

the same position again in a few years. Collin did have surgery at

8 weeks old, we didn't start the ponseti method till about age 2.5.

Collin walks/runs/jumps, etc everything fine and complains of no

pain what so ever, so I'm leary about surgery, but at the same time,

I know the surgery could help him later in life when pain often sets

in from what I heard, its hard to make a decision now when he seems

fine and content that could affect him as an adult..... Sorry for

the rant!!!!

Michele Yoder

Collin's story at http://www.geocities.com/chele323232

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Share on other sites

Guest guest

Hi Michele,

First, thanks! I am literally bouncing off the walls, and then collapsing with

crying. yeah,

hormonal wreck! :) Second, don't you dare apologize for having the desire to

do

everything within your power to help your child!!! It's a huge wake up call when

you realize

that some mistakes you can't bounce back from and fix. Every decision you make

affects

him for the rest of his life. YIKES! :)

I have a couple of questions first, has your doctor sent pictures to Dr.

Ponseti? He is

always so willing to consult with other doctors and review pictures and xrays

and other

docs, if yours hasn't done that, I strongly suggest doing it. You are always

free to call Dr.

Ponseti himself too. He even answers the phone!! Amazing man. Please don't

take

offense at this, it's not meant for that, but I trusted my first doctors too!

That's why we

went with the surgery, I trusted him.

Also what is the problem if he walks runs and jumps with no pain? Why does the

doc think

he needs this surgery? Is collin in any kind of physical therapy?

You are definitely at the right spot and always always be leary. Before

agreeing to any

surgery, please please contact Dr. Ponseti himself. I know that there are many

good

doctors out there, but after everything we've been through I just don't trust

anyone else

like I trust the master himself.

The first surgery we had done was a tendon lengthening one. They went in and

made

three small incisions along the tendons to lengthen them and that was it. But

the scar

tissue and the scars made his feet afterwards unresponsive to the Ponseti method

by Dr.

Ponseti. I don't know for sure if the surgery by Dr. P would still have been

necessary or

not, but the end result was a lot of scar tissue. The surgery that Dr. Ponseti

did was a

partial release much like the first, but he also did a capsulectomy (sp) He

also went in

and helped the original incisions loosen and got rid of some of the scar tissue.

I think

that's all he did, but it was just a whirlwind and I was with the master. I

didn't question

him. The problem is every time you have surgery scar tissue forms. It's a

vicicious cycle,

but it did help loosen them to a point.

The best advice I can offer is send your info to Dr. Ponseti and get a second

opinion. In

fact your doctor should be urging you to do that before saying hey, lets cut

this kid open!

Please please please call Dr. Ponseti and just share with him your story. The

angel flights

are awesome and so is the Ronnie house. If Dr. P says you need surgery, then

yeah, you

probably do, but make sure you exhaust every avenue first. I remember Dr. P

talking to

me about the fixator thingy, and who knows, we may have to go that route down

the road.

But please, I strongly urge you to cover your bases and just talk to him. Have

him call

your doctor and consult with him. It certainly can't hurt. :)

I sure hope this helped. Please keep emailing if you have any other questions!

Lord bless you,

10-09-03

> Hi , Congratulations you must be so excited!!!! I have a

> question about the surgery Dr. Ponseti did to correct the previous

> surgery, what type was it, and what did it involove? What was he

> actually correcting during the surgery. Dr. Herzeberg (Ponseti

> method doctor in Baltimore, land) has suggested surgery for my

> son Collin (he'll be 4 in August), it is actually 2 surgeries, 1 to

> put on an external fixator device, another to take it off, etc. I

> trust Dr. Herzenberg, but I still haven't scheduled the surgery I

> guess hoping that something will change. I'm so afraid if I go with

> the surgeries that it may be just a temporary fix and we could be in

> the same position again in a few years. Collin did have surgery at

> 8 weeks old, we didn't start the ponseti method till about age 2.5.

> Collin walks/runs/jumps, etc everything fine and complains of no

> pain what so ever, so I'm leary about surgery, but at the same time,

> I know the surgery could help him later in life when pain often sets

> in from what I heard, its hard to make a decision now when he seems

> fine and content that could affect him as an adult..... Sorry for

> the rant!!!!

>

> Michele Yoder

> Collin's story at http://www.geocities.com/chele323232

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Guest guest

Hi Michele,

First, thanks! I am literally bouncing off the walls, and then collapsing with

crying. yeah,

hormonal wreck! :) Second, don't you dare apologize for having the desire to

do

everything within your power to help your child!!! It's a huge wake up call when

you realize

that some mistakes you can't bounce back from and fix. Every decision you make

affects

him for the rest of his life. YIKES! :)

I have a couple of questions first, has your doctor sent pictures to Dr.

Ponseti? He is

always so willing to consult with other doctors and review pictures and xrays

and other

docs, if yours hasn't done that, I strongly suggest doing it. You are always

free to call Dr.

Ponseti himself too. He even answers the phone!! Amazing man. Please don't

take

offense at this, it's not meant for that, but I trusted my first doctors too!

That's why we

went with the surgery, I trusted him.

Also what is the problem if he walks runs and jumps with no pain? Why does the

doc think

he needs this surgery? Is collin in any kind of physical therapy?

You are definitely at the right spot and always always be leary. Before

agreeing to any

surgery, please please contact Dr. Ponseti himself. I know that there are many

good

doctors out there, but after everything we've been through I just don't trust

anyone else

like I trust the master himself.

The first surgery we had done was a tendon lengthening one. They went in and

made

three small incisions along the tendons to lengthen them and that was it. But

the scar

tissue and the scars made his feet afterwards unresponsive to the Ponseti method

by Dr.

Ponseti. I don't know for sure if the surgery by Dr. P would still have been

necessary or

not, but the end result was a lot of scar tissue. The surgery that Dr. Ponseti

did was a

partial release much like the first, but he also did a capsulectomy (sp) He

also went in

and helped the original incisions loosen and got rid of some of the scar tissue.

I think

that's all he did, but it was just a whirlwind and I was with the master. I

didn't question

him. The problem is every time you have surgery scar tissue forms. It's a

vicicious cycle,

but it did help loosen them to a point.

The best advice I can offer is send your info to Dr. Ponseti and get a second

opinion. In

fact your doctor should be urging you to do that before saying hey, lets cut

this kid open!

Please please please call Dr. Ponseti and just share with him your story. The

angel flights

are awesome and so is the Ronnie house. If Dr. P says you need surgery, then

yeah, you

probably do, but make sure you exhaust every avenue first. I remember Dr. P

talking to

me about the fixator thingy, and who knows, we may have to go that route down

the road.

But please, I strongly urge you to cover your bases and just talk to him. Have

him call

your doctor and consult with him. It certainly can't hurt. :)

I sure hope this helped. Please keep emailing if you have any other questions!

Lord bless you,

10-09-03

> Hi , Congratulations you must be so excited!!!! I have a

> question about the surgery Dr. Ponseti did to correct the previous

> surgery, what type was it, and what did it involove? What was he

> actually correcting during the surgery. Dr. Herzeberg (Ponseti

> method doctor in Baltimore, land) has suggested surgery for my

> son Collin (he'll be 4 in August), it is actually 2 surgeries, 1 to

> put on an external fixator device, another to take it off, etc. I

> trust Dr. Herzenberg, but I still haven't scheduled the surgery I

> guess hoping that something will change. I'm so afraid if I go with

> the surgeries that it may be just a temporary fix and we could be in

> the same position again in a few years. Collin did have surgery at

> 8 weeks old, we didn't start the ponseti method till about age 2.5.

> Collin walks/runs/jumps, etc everything fine and complains of no

> pain what so ever, so I'm leary about surgery, but at the same time,

> I know the surgery could help him later in life when pain often sets

> in from what I heard, its hard to make a decision now when he seems

> fine and content that could affect him as an adult..... Sorry for

> the rant!!!!

>

> Michele Yoder

> Collin's story at http://www.geocities.com/chele323232

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Guest guest

Congratulations and ! I know just how you feel. My 19

month-old started walking two weeks ago and hasn't stopped. It has

been a long time coming.

I feel so fortunate to have found this group just 4 DAYS before

would've had major surgery on his feet. Everyone here told me

not to do it and find a Ponseti doctor. We had to wait a month for

an appointment at Shriner's in Springfield, MA, and was 10

months old by then, but it was so worth the wait.

My husband finally met our Ponseti doctor three weeks ago and almost

cried when he shook his hand. Our previous non-Ponseti doctor tried

his best to correct 's feet, but wasn't using the Ponseti

method.

and 11/10/03 bilateral cf dbb 14/7

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

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Guest guest

Congratulations and ! I know just how you feel. My 19

month-old started walking two weeks ago and hasn't stopped. It has

been a long time coming.

I feel so fortunate to have found this group just 4 DAYS before

would've had major surgery on his feet. Everyone here told me

not to do it and find a Ponseti doctor. We had to wait a month for

an appointment at Shriner's in Springfield, MA, and was 10

months old by then, but it was so worth the wait.

My husband finally met our Ponseti doctor three weeks ago and almost

cried when he shook his hand. Our previous non-Ponseti doctor tried

his best to correct 's feet, but wasn't using the Ponseti

method.

and 11/10/03 bilateral cf dbb 14/7

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

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Guest guest

That is so awesome!!!!! :) I'm so happy for you!

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

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Guest guest

That is so awesome!!!!! :) I'm so happy for you!

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! :) I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!! :)

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

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Guest guest

Hi , Thanks for responding. I actually have called Dr. Ponseti

and spoke with him, alls he said was Dr. Herzenberg is one of the

best, etc. and if Dr. H thinks he needs surgery then he does, and that

was it....I was flabergasted!!!! I don't know who else to ask, I

asked 2 of the best... Dr. Ponseti was quick and to the point about

it, and as soon as he heard Dr. Herzenberg's name he said your child

is in good hands, etc.

Michele

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Guest guest

Hi , Thanks for responding. I actually have called Dr. Ponseti

and spoke with him, alls he said was Dr. Herzenberg is one of the

best, etc. and if Dr. H thinks he needs surgery then he does, and that

was it....I was flabergasted!!!! I don't know who else to ask, I

asked 2 of the best... Dr. Ponseti was quick and to the point about

it, and as soon as he heard Dr. Herzenberg's name he said your child

is in good hands, etc.

Michele

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Guest guest

Same thing for us. Dr. H wantsto do a capsule release. I emailed Ponseti and

he said he would go with Herzenbergs recomendation. He did say he thought that

surgery should wait till was a little bit older because sometimes with pt

it may not be needed. Atypical just takes longer. Something to that affect

anyway. I have noticed a lot of improvement with his feet just making sure he's

in his shoes longer.

-------------- Original message --------------

Hi , Thanks for responding. I actually have called Dr. Ponseti

and spoke with him, alls he said was Dr. Herzenberg is one of the

best, etc. and if Dr. H thinks he needs surgery then he does, and that

was it....I was flabergasted!!!! I don't know who else to ask, I

asked 2 of the best... Dr. Ponseti was quick and to the point about

it, and as soon as he heard Dr. Herzenberg's name he said your child

is in good hands, etc.

Michele

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