's walking! Please avoid surgery!!!!!!!!

[Guest guest]

Same thing for us. Dr. H wantsto do a capsule release. I emailed Ponseti and

he said he would go with Herzenbergs recomendation. He did say he thought that

surgery should wait till was a little bit older because sometimes with pt

it may not be needed. Atypical just takes longer. Something to that affect

anyway. I have noticed a lot of improvement with his feet just making sure he's

in his shoes longer.

-------------- Original message --------------

Hi , Thanks for responding. I actually have called Dr. Ponseti

and spoke with him, alls he said was Dr. Herzenberg is one of the

best, etc. and if Dr. H thinks he needs surgery then he does, and that

was it....I was flabergasted!!!! I don't know who else to ask, I

asked 2 of the best... Dr. Ponseti was quick and to the point about

it, and as soon as he heard Dr. Herzenberg's name he said your child

is in good hands, etc.

Michele

[Guest guest]

I can't BELIEVE I missed this!!!

-

I'm SO SO SO SO SO SO HAPPY FOR YOU AND JASON!!!! I'm sorry that I'm

a little late, but I just wanted to tell you how great that is!

Maybe it's the wrong time of month--but you brought me to tears!!

(Happy ones--never fear :~) ) I can't even stress how unbelievably

happy I am for you guys! It's been a long road for you...YEAH!!

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

[Guest guest]

I can't BELIEVE I missed this!!!

-

I'm SO SO SO SO SO SO HAPPY FOR YOU AND JASON!!!! I'm sorry that I'm

a little late, but I just wanted to tell you how great that is!

Maybe it's the wrong time of month--but you brought me to tears!!

(Happy ones--never fear :~) ) I can't even stress how unbelievably

happy I am for you guys! It's been a long road for you...YEAH!!

> Hi everyone!

>

> I think I can safely boast that is finally walking! THANK

YOU JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

push off of stuff and walk

> clear across the room, even turning corners. he does it

completely of his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was

born with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail

and at 6 months had first

> surgery done, based on advice of doctor who said he was using the

ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he

spent 3 more months in casts,

> changed every 5 days, had another surgery to correct the first

one, two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent

another two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

he's going to need more

> casting but the fact that he is pulling himself up by the couch

and then walking clear

> across the room, navigating himself around toys, and trying twice

to stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step

at a time. For those

> moms and dads out there who are struggling, please don't give

up!!! Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is

not working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the

doc says the ponseti

> method isn't working, then he iis not doing it correctly and you

need to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

is not a quick fix

> and will put your child back even further. We still have issues

with scar tissue and the

> scars along his feet are so tight. I know his feet are not

completely corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

consult with him first

> before subjecting your child to months of struggling and possibly

years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would

start

> walking...figures!!!!!! I am not complaining!!!!!!!! Thank

you Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

>

> o.k. off my soapbox, but please, please keep on fighting the good

fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless

you have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!!

Lord bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

[Guest guest]

Thanks !! I was kinda wondering where you were. Geesh hehe! I

know it's

not that time of month for me, and even seeing the subject line pop up every

once in

awhile makes me start bawling!! We'll sniffle together. LOL I tell ya,

there is nothing

like hearing the pitter pat of his feet plunking down the hardwood floor! Love

it love it

love it!!!!!

It's been quite an adventure these past couple of years, is an amazing

kid! What a

trooper. If only I could figure out how to get the pictures into the

folders I would send

some. darn it. I tried the other night, but I finally figured out how to copy

and paste

pictures in emails, I just can't find the right names of them to transfer them

to the folder.

There's no place to copy a picture to.

Thanks again! You all have supported me through this.

Finally walking 10-09-03

mitchells faithfully 16 hours (well, until tonight, once again, the strap popped

off! grr.)

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

[Guest guest]

Thanks !! I was kinda wondering where you were. Geesh hehe! I

know it's

not that time of month for me, and even seeing the subject line pop up every

once in

awhile makes me start bawling!! We'll sniffle together. LOL I tell ya,

there is nothing

like hearing the pitter pat of his feet plunking down the hardwood floor! Love

it love it

love it!!!!!

It's been quite an adventure these past couple of years, is an amazing

kid! What a

trooper. If only I could figure out how to get the pictures into the

folders I would send

some. darn it. I tried the other night, but I finally figured out how to copy

and paste

pictures in emails, I just can't find the right names of them to transfer them

to the folder.

There's no place to copy a picture to.

Thanks again! You all have supported me through this.

Finally walking 10-09-03

mitchells faithfully 16 hours (well, until tonight, once again, the strap popped

off! grr.)

> > Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK

> YOU JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> > clear across the room, even turning corners. he does it

> completely of his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was

> born with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail

> and at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he

> spent 3 more months in casts,

> > changed every 5 days, had another surgery to correct the first

> one, two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent

> another two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> > casting but the fact that he is pulling himself up by the couch

> and then walking clear

> > across the room, navigating himself around toys, and trying twice

> to stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step

> at a time. For those

> > moms and dads out there who are struggling, please don't give

> up!!! Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is

> not working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the

> doc says the ponseti

> > method isn't working, then he iis not doing it correctly and you

> need to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It

> is not a quick fix

> > and will put your child back even further. We still have issues

> with scar tissue and the

> > scars along his feet are so tight. I know his feet are not

> completely corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> > before subjecting your child to months of struggling and possibly

> years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would

> start

> > walking...figures!!!!!! I am not complaining!!!!!!!! Thank

> you Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless

> you have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!!

> Lord bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

[Guest guest]

It's funny...I know everyone loves their own kids, thinks they're

beautiful, etc...and some people are constantly TELLING you how

great their own kids are. I try very hard not to be one of those

obnoxious people (!). But I find it very difficult when it comes to

Ava. I don't think anyone but parents who have been through the

same/similar experiences can completely understand the feelings you

get when your little CF baby is crawling/walking/cruising/climbing

out of the crib. It's all I can do not to scream " LOOK AT HER

GO!!!! " everytime she's zipping down the hallway on her hands and

feet like a little monkey...I was at the mall yesterday with her,

and put her down to try on a jacket. Of course, she promptly took

off and another lady standing nearby said " Oh, she's going to be

walking soon mommy! Any day now! " With people like that I have to

restrain myself from going " YEAH! And please, let me give you a 30

minute description of what she's BEEN THROUGH to get to this point!

Let me show you the extra skin on her ankle, and the bands on her

calf, and the little scar from her surgery! Then you'll REALLY be

proud of her! "

And really, Ava's " treatment " has been smooth...you mommys & daddys

who've had a tougher road must be even worse than me! :-)

Anyway, that's my deep thought for the day...like I said, wrong time

of the month for me!!! hehehe

, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 16/7

> > > Hi everyone!

> > >

> > > I think I can safely boast that is finally walking!

THANK

> > YOU JESUS FOR DR.

> > > PONSETI!!!! He is not quite standing up in the middle of the

room

> > yet, but as of yesterday,

> > > he has tried twice to stand up in the middle of the room! He

will

> > push off of stuff and walk

> > > clear across the room, even turning corners. he does it

> > completely of his own accord

> > > now!!!!!!!!

> > >

> > > For those who don't know our story, short of the long,

was

> > born with very severe

> > > atypical bilateral clubfoot, he was casted from birth, to no

avail

> > and at 6 months had first

> > > surgery done, based on advice of doctor who said he was using

the

> > ponseti method, but

> > > was doing it inaccurately. The surgery made things terribly

worse

> > with all the scar tissue,

> > > so after driving to Iowa and having Ponseti do it himself, he

> > spent 3 more months in casts,

> > > changed every 5 days, had another surgery to correct the first

> > one, two more months in

> > > casts, shoes 23 hours a day faithfully, still relapsed, spent

> > another two months in casts

> > > physical therapy 4 times a week for the past 8 or so

months ...now

> > finally at 21 months

> > > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I

know

> > he's going to need more

> > > casting but the fact that he is pulling himself up by the

couch

> > and then walking clear

> > > across the room, navigating himself around toys, and trying

twice

> > to stand up in the

> > > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> > >

> > > I know we are not done by any stretch, but it is all just one

step

> > at a time. For those

> > > moms and dads out there who are struggling, please don't give

> > up!!! Keep those shoes

> > > on, keep stretching, and if the doctor says the ponseti method

is

> > not working we need to

> > > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I

cannot

> > stress that enough.

> > > Get an Angel flight out there and do whatever it takes, but if

the

> > doc says the ponseti

> > > method isn't working, then he iis not doing it correctly and

you

> > need to go to the master.

> > > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS

WORSE!!!! It

> > is not a quick fix

> > > and will put your child back even further. We still have

issues

> > with scar tissue and the

> > > scars along his feet are so tight. I know his feet are not

> > completely corrected yet, and in 4

> > > years he may have problems with stiff feet as a result of the

> > surgeries. If Dr. Ponseti says

> > > you need it, then there is no doubt that surgery is necessary,

but

> > consult with him first

> > > before subjecting your child to months of struggling and

possibly

> > years of agony simply

> > > for a quick fix. Surgery is NOT an option!!!!!!!

> > >

> > > I knew the minute we made an appointment with Dr. Dobbs he

would

> > start

> > > walking...figures!!!!!! I am not complaining!!!!!!!!

Thank

> > you Lord and Thank you Dr.

> > > Ponseti!!!

> > >

> > > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> > >

> > > o.k. off my soapbox, but please, please keep on fighting the

good

> > fight!!! Don't ever give

> > > up for a minute, and don't ever ever contemplate surgery

unless

> > you have consulted with

> > > Dr. ponseti.

> > >

> > > Thank you everyone for your support, prayers, and laughs!!!!!

> > Lord bless each and

> > > everyone of you!

> > >

> > > Wold

> > > Proud sobbing mother of a walking toddler!!!!!

> > > wold s 16 hours a day faithfully!!!!! 10-09-03

> > > (Isaiah 52:7)

[Guest guest]

It's funny...I know everyone loves their own kids, thinks they're

beautiful, etc...and some people are constantly TELLING you how

great their own kids are. I try very hard not to be one of those

obnoxious people (!). But I find it very difficult when it comes to

Ava. I don't think anyone but parents who have been through the

same/similar experiences can completely understand the feelings you

get when your little CF baby is crawling/walking/cruising/climbing

out of the crib. It's all I can do not to scream " LOOK AT HER

GO!!!! " everytime she's zipping down the hallway on her hands and

feet like a little monkey...I was at the mall yesterday with her,

and put her down to try on a jacket. Of course, she promptly took

off and another lady standing nearby said " Oh, she's going to be

walking soon mommy! Any day now! " With people like that I have to

restrain myself from going " YEAH! And please, let me give you a 30

minute description of what she's BEEN THROUGH to get to this point!

Let me show you the extra skin on her ankle, and the bands on her

calf, and the little scar from her surgery! Then you'll REALLY be

proud of her! "

And really, Ava's " treatment " has been smooth...you mommys & daddys

who've had a tougher road must be even worse than me! :-)

Anyway, that's my deep thought for the day...like I said, wrong time

of the month for me!!! hehehe

, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 16/7

> > > Hi everyone!

> > >

> > > I think I can safely boast that is finally walking!

THANK

> > YOU JESUS FOR DR.

> > > PONSETI!!!! He is not quite standing up in the middle of the

room

> > yet, but as of yesterday,

> > > he has tried twice to stand up in the middle of the room! He

will

> > push off of stuff and walk

> > > clear across the room, even turning corners. he does it

> > completely of his own accord

> > > now!!!!!!!!

> > >

> > > For those who don't know our story, short of the long,

was

> > born with very severe

> > > atypical bilateral clubfoot, he was casted from birth, to no

avail

> > and at 6 months had first

> > > surgery done, based on advice of doctor who said he was using

the

> > ponseti method, but

> > > was doing it inaccurately. The surgery made things terribly

worse

> > with all the scar tissue,

> > > so after driving to Iowa and having Ponseti do it himself, he

> > spent 3 more months in casts,

> > > changed every 5 days, had another surgery to correct the first

> > one, two more months in

> > > casts, shoes 23 hours a day faithfully, still relapsed, spent

> > another two months in casts

> > > physical therapy 4 times a week for the past 8 or so

months ...now

> > finally at 21 months

> > > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I

know

> > he's going to need more

> > > casting but the fact that he is pulling himself up by the

couch

> > and then walking clear

> > > across the room, navigating himself around toys, and trying

twice

> > to stand up in the

> > > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> > >

> > > I know we are not done by any stretch, but it is all just one

step

> > at a time. For those

> > > moms and dads out there who are struggling, please don't give

> > up!!! Keep those shoes

> > > on, keep stretching, and if the doctor says the ponseti method

is

> > not working we need to

> > > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I

cannot

> > stress that enough.

> > > Get an Angel flight out there and do whatever it takes, but if

the

> > doc says the ponseti

> > > method isn't working, then he iis not doing it correctly and

you

> > need to go to the master.

> > > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS

WORSE!!!! It

> > is not a quick fix

> > > and will put your child back even further. We still have

issues

> > with scar tissue and the

> > > scars along his feet are so tight. I know his feet are not

> > completely corrected yet, and in 4

> > > years he may have problems with stiff feet as a result of the

> > surgeries. If Dr. Ponseti says

> > > you need it, then there is no doubt that surgery is necessary,

but

> > consult with him first

> > > before subjecting your child to months of struggling and

possibly

> > years of agony simply

> > > for a quick fix. Surgery is NOT an option!!!!!!!

> > >

> > > I knew the minute we made an appointment with Dr. Dobbs he

would

> > start

> > > walking...figures!!!!!! I am not complaining!!!!!!!!

Thank

> > you Lord and Thank you Dr.

> > > Ponseti!!!

> > >

> > > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> > >

> > > o.k. off my soapbox, but please, please keep on fighting the

good

> > fight!!! Don't ever give

> > > up for a minute, and don't ever ever contemplate surgery

unless

> > you have consulted with

> > > Dr. ponseti.

> > >

> > > Thank you everyone for your support, prayers, and laughs!!!!!

> > Lord bless each and

> > > everyone of you!

> > >

> > > Wold

> > > Proud sobbing mother of a walking toddler!!!!!

> > > wold s 16 hours a day faithfully!!!!! 10-09-03

> > > (Isaiah 52:7)

[Guest guest]

, that is wonderful!!!

Wold wrote:Hi everyone!

I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of yesterday,

he has tried twice to stand up in the middle of the room! He will push off of

stuff and walk

clear across the room, even turning corners. he does it completely of his own

accord

now!!!!!!!!

For those who don't know our story, short of the long, was born with very

severe

atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had first

surgery done, based on advice of doctor who said he was using the ponseti

method, but

was doing it inaccurately. The surgery made things terribly worse with all the

scar tissue,

so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in casts,

changed every 5 days, had another surgery to correct the first one, two more

months in

casts, shoes 23 hours a day faithfully, still relapsed, spent another two months

in casts

physical therapy 4 times a week for the past 8 or so months ...now finally at 21

months

JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going to

need more

casting but the fact that he is pulling himself up by the couch and then

walking clear

across the room, navigating himself around toys, and trying twice to stand up in

the

middle of the room with nothing to hold onto is HUGE!!!!!!!!

I know we are not done by any stretch, but it is all just one step at a time.

For those

moms and dads out there who are struggling, please don't give up!!! Keep those

shoes

on, keep stretching, and if the doctor says the ponseti method is not working we

need to

do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

Get an Angel flight out there and do whatever it takes, but if the doc says the

ponseti

method isn't working, then he iis not doing it correctly and you need to go to

the master.

SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick fix

and will put your child back even further. We still have issues with scar

tissue and the

scars along his feet are so tight. I know his feet are not completely corrected

yet, and in 4

years he may have problems with stiff feet as a result of the surgeries. If Dr.

Ponseti says

you need it, then there is no doubt that surgery is necessary, but consult with

him first

before subjecting your child to months of struggling and possibly years of agony

simply

for a quick fix. Surgery is NOT an option!!!!!!!

I knew the minute we made an appointment with Dr. Dobbs he would start

walking...figures!!!!!! I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

Ponseti!!!

yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever give

up for a minute, and don't ever ever contemplate surgery unless you have

consulted with

Dr. ponseti.

Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

everyone of you!

Wold

Proud sobbing mother of a walking toddler!!!!!

wold s 16 hours a day faithfully!!!!! 10-09-03

(Isaiah 52:7)

[Guest guest]

Very exciting news, and you must feel so proud (as we can see by the

number of " ! " marks) that all your love and hard work has begun to help

walk - regards,

> , that is wonderful!!!

>

> Wold wrote:Hi everyone!

>

> I think I can safely boast that is finally walking! THANK YOU

> JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> clear across the room, even turning corners. he does it completely of

> his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was born

> with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail and

> at 6 months had first

> surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he spent 3

> more months in casts,

> changed every 5 days, had another surgery to correct the first one,

> two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent another

> two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> casting but the fact that he is pulling himself up by the couch and

> then walking clear

> across the room, navigating himself around toys, and trying twice to

> stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step at

> a time. For those

> moms and dads out there who are struggling, please don't give up!!!

> Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is not

> working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the doc

> says the ponseti

> method isn't working, then he iis not doing it correctly and you need

> to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> not a quick fix

> and will put your child back even further. We still have issues with

> scar tissue and the

> scars along his feet are so tight. I know his feet are not completely

> corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> before subjecting your child to months of struggling and possibly

> years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would start

> walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

>

> o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless you

> have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!! Lord

> bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

>

>

>

>

>

>

[Guest guest]

Very exciting news, and you must feel so proud (as we can see by the

number of " ! " marks) that all your love and hard work has begun to help

walk - regards,

> , that is wonderful!!!

>

> Wold wrote:Hi everyone!

>

> I think I can safely boast that is finally walking! THANK YOU

> JESUS FOR DR.

> PONSETI!!!! He is not quite standing up in the middle of the room

> yet, but as of yesterday,

> he has tried twice to stand up in the middle of the room! He will

> push off of stuff and walk

> clear across the room, even turning corners. he does it completely of

> his own accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was born

> with very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail and

> at 6 months had first

> surgery done, based on advice of doctor who said he was using the

> ponseti method, but

> was doing it inaccurately. The surgery made things terribly worse

> with all the scar tissue,

> so after driving to Iowa and having Ponseti do it himself, he spent 3

> more months in casts,

> changed every 5 days, had another surgery to correct the first one,

> two more months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent another

> two months in casts

> physical therapy 4 times a week for the past 8 or so months ...now

> finally at 21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> he's going to need more

> casting but the fact that he is pulling himself up by the couch and

> then walking clear

> across the room, navigating himself around toys, and trying twice to

> stand up in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step at

> a time. For those

> moms and dads out there who are struggling, please don't give up!!!

> Keep those shoes

> on, keep stretching, and if the doctor says the ponseti method is not

> working we need to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> stress that enough.

> Get an Angel flight out there and do whatever it takes, but if the doc

> says the ponseti

> method isn't working, then he iis not doing it correctly and you need

> to go to the master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> not a quick fix

> and will put your child back even further. We still have issues with

> scar tissue and the

> scars along his feet are so tight. I know his feet are not completely

> corrected yet, and in 4

> years he may have problems with stiff feet as a result of the

> surgeries. If Dr. Ponseti says

> you need it, then there is no doubt that surgery is necessary, but

> consult with him first

> before subjecting your child to months of struggling and possibly

> years of agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would start

> walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> Lord and Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

>

> o.k. off my soapbox, but please, please keep on fighting the good

> fight!!! Don't ever give

> up for a minute, and don't ever ever contemplate surgery unless you

> have consulted with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!! Lord

> bless each and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

>

>

>

>

>

>

[Guest guest]

Thanks Jenn! I've been on vacation so I''m very far behind on posts!

(naaaawww,

actually I just like seeing this subject line ovr and over again!) LOL

Hi everyone!

>

> I think I can safely boast that is finally walking! THANK YOU JESUS FOR

DR.

> PONSETI!!!! He is not quite standing up in the middle of the room yet, but as

of

yesterday,

> he has tried twice to stand up in the middle of the room! He will push off of

stuff and

walk

> clear across the room, even turning corners. he does it completely of his own

accord

> now!!!!!!!!

>

> For those who don't know our story, short of the long, was born with

very severe

> atypical bilateral clubfoot, he was casted from birth, to no avail and at 6

months had

first

> surgery done, based on advice of doctor who said he was using the ponseti

method, but

> was doing it inaccurately. The surgery made things terribly worse with all

the scar

tissue,

> so after driving to Iowa and having Ponseti do it himself, he spent 3 more

months in

casts,

> changed every 5 days, had another surgery to correct the first one, two more

months in

> casts, shoes 23 hours a day faithfully, still relapsed, spent another two

months in casts

> physical therapy 4 times a week for the past 8 or so months ...now finally at

21 months

> JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know he's going

to need more

> casting but the fact that he is pulling himself up by the couch and then

walking clear

> across the room, navigating himself around toys, and trying twice to stand up

in the

> middle of the room with nothing to hold onto is HUGE!!!!!!!!

>

> I know we are not done by any stretch, but it is all just one step at a time.

For those

> moms and dads out there who are struggling, please don't give up!!! Keep

those shoes

> on, keep stretching, and if the doctor says the ponseti method is not working

we need

to

> do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot stress that

enough.

> Get an Angel flight out there and do whatever it takes, but if the doc says

the ponseti

> method isn't working, then he iis not doing it correctly and you need to go to

the

master.

> SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is not a

quick

fix

> and will put your child back even further. We still have issues with scar

tissue and the

> scars along his feet are so tight. I know his feet are not completely

corrected yet, and in

4

> years he may have problems with stiff feet as a result of the surgeries. If

Dr. Ponseti

says

> you need it, then there is no doubt that surgery is necessary, but consult

with him first

> before subjecting your child to months of struggling and possibly years of

agony simply

> for a quick fix. Surgery is NOT an option!!!!!!!

>

> I knew the minute we made an appointment with Dr. Dobbs he would start

> walking...figures!!!!!! I am not complaining!!!!!!!! Thank you Lord and

Thank you Dr.

> Ponseti!!!

>

> yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

>

> o.k. off my soapbox, but please, please keep on fighting the good fight!!!

Don't ever

give

> up for a minute, and don't ever ever contemplate surgery unless you have

consulted

with

> Dr. ponseti.

>

> Thank you everyone for your support, prayers, and laughs!!!!! Lord bless each

and

> everyone of you!

>

> Wold

> Proud sobbing mother of a walking toddler!!!!!

> wold s 16 hours a day faithfully!!!!! 10-09-03

> (Isaiah 52:7)

>

>

>

>

>

>

[Guest guest]

Thanks ! It's a long road. I just wish I had been thinking more

clearly and gone

for a second opinion before trusting my doctor who was only doing what he

thought was

best, but was still wrong.

But the past is the past and hopefully because of what we've been through, more

parents

and hopefully their doctors will realize how hard surgery is on kids and always

get a

second opinion. In most cases it can be avoided. Not all, but most. How my

heart goes

out to those who are not in the " most cases " catagory!! Keep fighting the good

fight!

Hi everyone!

> >

> > I think I can safely boast that is finally walking! THANK YOU

> > JESUS FOR DR.

> > PONSETI!!!! He is not quite standing up in the middle of the room

> > yet, but as of yesterday,

> > he has tried twice to stand up in the middle of the room! He will

> > push off of stuff and walk

> > clear across the room, even turning corners. he does it completely of

> > his own accord

> > now!!!!!!!!

> >

> > For those who don't know our story, short of the long, was born

> > with very severe

> > atypical bilateral clubfoot, he was casted from birth, to no avail and

> > at 6 months had first

> > surgery done, based on advice of doctor who said he was using the

> > ponseti method, but

> > was doing it inaccurately. The surgery made things terribly worse

> > with all the scar tissue,

> > so after driving to Iowa and having Ponseti do it himself, he spent 3

> > more months in casts,

> > changed every 5 days, had another surgery to correct the first one,

> > two more months in

> > casts, shoes 23 hours a day faithfully, still relapsed, spent another

> > two months in casts

> > physical therapy 4 times a week for the past 8 or so months ...now

> > finally at 21 months

> > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> > he's going to need more

> > casting but the fact that he is pulling himself up by the couch and

> > then walking clear

> > across the room, navigating himself around toys, and trying twice to

> > stand up in the

> > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> >

> > I know we are not done by any stretch, but it is all just one step at

> > a time. For those

> > moms and dads out there who are struggling, please don't give up!!!

> > Keep those shoes

> > on, keep stretching, and if the doctor says the ponseti method is not

> > working we need to

> > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> > stress that enough.

> > Get an Angel flight out there and do whatever it takes, but if the doc

> > says the ponseti

> > method isn't working, then he iis not doing it correctly and you need

> > to go to the master.

> > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> > not a quick fix

> > and will put your child back even further. We still have issues with

> > scar tissue and the

> > scars along his feet are so tight. I know his feet are not completely

> > corrected yet, and in 4

> > years he may have problems with stiff feet as a result of the

> > surgeries. If Dr. Ponseti says

> > you need it, then there is no doubt that surgery is necessary, but

> > consult with him first

> > before subjecting your child to months of struggling and possibly

> > years of agony simply

> > for a quick fix. Surgery is NOT an option!!!!!!!

> >

> > I knew the minute we made an appointment with Dr. Dobbs he would start

> > walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> > Lord and Thank you Dr.

> > Ponseti!!!

> >

> > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> >

> > o.k. off my soapbox, but please, please keep on fighting the good

> > fight!!! Don't ever give

> > up for a minute, and don't ever ever contemplate surgery unless you

> > have consulted with

> > Dr. ponseti.

> >

> > Thank you everyone for your support, prayers, and laughs!!!!! Lord

> > bless each and

> > everyone of you!

> >

> > Wold

> > Proud sobbing mother of a walking toddler!!!!!

> > wold s 16 hours a day faithfully!!!!! 10-09-03

> > (Isaiah 52:7)

> >

> >

> >

> >

> >

> >

[Guest guest]

,

I KEEP MEANING... to reply to this thread and 's tremendous

breakthrough with the walking... I'm very sorry that I haven't (I'm sure

you know what I do post about sometimes overtakes me and then the hubby or

the kids need something and I forget to post... but not forget about

and you and feel bad you're the only one I haven't responded to!). I have

however followed your journey here and was soooo happy to hear this good

news from you. I know how much it means to you for him to catch up with

the rest of the babes here but know he will... at his own pace and when it

happens it'll be that much more of an event to cherish for you. With this

little one... I'm sure you're well aware that his milestones are MILEstones

and worth every second of glee to see him use his feet so well. Simply

wonderful news that he's making such great progress despite his rocky start.

I want to say to you though, PLEASE don't beat yourself up about his first

treatment. I don't know a single person who hasn't been reassured by their

doc about something and despite their gut feeling has come away thinking

it's all good because the doc says so. I love Dr's... but they all have

this way of sounding so authoritative and sure about something that it

leaves the patient (or patient's parent) feeling like there simply can't be

any other way to do it and should you ask otherwise... you're stepping on

toes and being a PITA. We feel so *small* and insignificant with docs

sometimes. At least, that's the way I feel a lot. Like today... I took

my son in to the Ped because he dropped a light saber on his toe on

Saturday and it was all swollen up with a white pocket at the base of the

nail... he's going to loose the nail obviously... but it really looked

BAD and infected! So I spent the $20 co-pay on a day that I can't see our

Ped (he only sees patients on Wed mornings - he's some bigwig

staffer/instructor there and has closed his practice but still sees my

kids) and get told that it's probably ok and they're not going to do

anything about it. I wanted them to release the pressure but my little

frequent hospital flyer (middle child) insisted it didn't hurt (LIE!! - he

just didn't want to have a procedure done on him again. Can't say that I

blame him but still...) and they sent us away with no treatment for his

poor toe. Yes, they consulted a surgeon who just happened to be there, and

I'm sure if our Ped was there they'd have done the same thing. OK - I get

that. I left not happy, but feeling like it was probably for the best and

there must be a good reason they did it like that. Well, they (the boys)

get home and get into the pool this evening and Merek somehow busts the toe

open and it starts to bleed. So we blotted it up with a paper towel and

allowed as much to come out with gentle pressure as would come out. It WAS

sore... " don't tell me, my little man that it isn't!! " (this is the same

child who impaled himself in the throat with a stick a couple of months

back if you remember...) It was obviously not 100% blood (pink rather than

red) and when it stopped weeping fluid it's smaller and wow... hurts

less! And here I am thinking, if they'd drained it earlier today he would

have felt better hours ago. Not exactly the same thing, but they sure do

get me those docs... each and every time I'm all fuddled up with what to

say and how to say it... Never remember to ask all the questions I need to

and I feel like I'm a putz for even worrying about whatever it is. I can't

wait till tomorrow... my oldest son has gained some weight the past couple

of years and I don't like it. But he's right within the curve for weight

and doc has put me off testing him for insulin issues (which run in our

family) this whole time. But he looks fat! Poor little guy has

manboobitis and is just thick! I really feel bad for him, he's always

worrying about what he eats and he doesn't eat much of anything as compared

to my middle child who is still in skinny mode. So I am going to take my

son to the doc tomorrow and demand he do a fasting insulin on him tomorrow

morning. I am going to have to be strong... I bet the doc (who I love,

love, love) will tell me again it's not a big deal and he's *within the

curve* but I'm sick of seeing my son not eat and still be heavier than the

other kids. If he's got an insulin problem, I want it dealt with

now. I've come to find that my insulin issues (PCOS) is what my mom had

her whole life totally undiagnosed till she finally became frank

Diabetic. If we'd known what it was it'd have been obvious that's what I

have when I was a teenager. And I can pass this to my male children as

well as females so this is a huge issue for me to nip in the bud early if

at all possible. I don't eat, yet am still considered *obese* if I weigh

more than 150 pounds. And it ticks the heck out of me. I don't want him

to have to live this life if I can possibly help it. If I come to find out

he does have insulin issues, these past two years that it's been nagging at

me must not be something I will look back on and think I did something

wrong even when I know I KNEW what it was all this time. They told me he

was fine. They reassured me he was fine. Hopefully he is but if he isn't,

then we only look forward and treat it however we can.

Course then again if he's got some weird terminal disease I could have

treated him for two years ago and he'd have lived I may be singing a

different song... But my point is that you did what you could with what

you had at the time and that's the best you could do. It would be a

totally different story if you had come here and were told the doc was

screwing up and ignored the advice to seek a second opinion... then you

get to feel guilty if you're so inclined. But you're a smart woman and a

great mama and you stepped up and made changes when you found out about

them and the best ones you could at that. Kudos to you for being that kind

of mother for your son. You're a good mama and don't you ever forget

it! Whatever happens, will always know that you did your best and

got him the best care possible when you could.

OK, just wanted to take the time to post to you first tonight. Sorry it

ran on all about us. I always do that, ugh...

Now ... start running and never stop! Mama's gonna have to chase you!!!

hugs,

Kori

At 10:40 PM 7/5/2005, you wrote:

>Thanks ! It's a long road. I just wish I had been thinking

>more clearly and gone

>for a second opinion before trusting my doctor who was only doing what he

>thought was

>best, but was still wrong.

>

>But the past is the past and hopefully because of what we've been through,

>more parents

>and hopefully their doctors will realize how hard surgery is on kids and

>always get a

>second opinion. In most cases it can be avoided. Not all, but most. How

>my heart goes

>out to those who are not in the " most cases " catagory!! Keep fighting the

>good fight!

>

>

>

>Hi everyone!

> > >

> > > I think I can safely boast that is finally walking! THANK YOU

> > > JESUS FOR DR.

> > > PONSETI!!!! He is not quite standing up in the middle of the room

> > > yet, but as of yesterday,

> > > he has tried twice to stand up in the middle of the room! He will

> > > push off of stuff and walk

> > > clear across the room, even turning corners. he does it completely of

> > > his own accord

> > > now!!!!!!!!

> > >

> > > For those who don't know our story, short of the long, was born

> > > with very severe

> > > atypical bilateral clubfoot, he was casted from birth, to no avail and

> > > at 6 months had first

> > > surgery done, based on advice of doctor who said he was using the

> > > ponseti method, but

> > > was doing it inaccurately. The surgery made things terribly worse

> > > with all the scar tissue,

> > > so after driving to Iowa and having Ponseti do it himself, he spent 3

> > > more months in casts,

> > > changed every 5 days, had another surgery to correct the first one,

> > > two more months in

> > > casts, shoes 23 hours a day faithfully, still relapsed, spent another

> > > two months in casts

> > > physical therapy 4 times a week for the past 8 or so months ...now

> > > finally at 21 months

> > > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> > > he's going to need more

> > > casting but the fact that he is pulling himself up by the couch and

> > > then walking clear

> > > across the room, navigating himself around toys, and trying twice to

> > > stand up in the

> > > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> > >

> > > I know we are not done by any stretch, but it is all just one step at

> > > a time. For those

> > > moms and dads out there who are struggling, please don't give up!!!

> > > Keep those shoes

> > > on, keep stretching, and if the doctor says the ponseti method is not

> > > working we need to

> > > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> > > stress that enough.

> > > Get an Angel flight out there and do whatever it takes, but if the doc

> > > says the ponseti

> > > method isn't working, then he iis not doing it correctly and you need

> > > to go to the master.

> > > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> > > not a quick fix

> > > and will put your child back even further. We still have issues with

> > > scar tissue and the

> > > scars along his feet are so tight. I know his feet are not completely

> > > corrected yet, and in 4

> > > years he may have problems with stiff feet as a result of the

> > > surgeries. If Dr. Ponseti says

> > > you need it, then there is no doubt that surgery is necessary, but

> > > consult with him first

> > > before subjecting your child to months of struggling and possibly

> > > years of agony simply

> > > for a quick fix. Surgery is NOT an option!!!!!!!

> > >

> > > I knew the minute we made an appointment with Dr. Dobbs he would start

> > > walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> > > Lord and Thank you Dr.

> > > Ponseti!!!

> > >

> > > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> > >

> > > o.k. off my soapbox, but please, please keep on fighting the good

> > > fight!!! Don't ever give

> > > up for a minute, and don't ever ever contemplate surgery unless you

> > > have consulted with

> > > Dr. ponseti.

> > >

> > > Thank you everyone for your support, prayers, and laughs!!!!! Lord

> > > bless each and

> > > everyone of you!

> > >

> > > Wold

> > > Proud sobbing mother of a walking toddler!!!!!

> > > wold s 16 hours a day faithfully!!!!! 10-09-03

> > > (Isaiah 52:7)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks Kori! I really am at peace with it now. Now, the first time after the

surgery that we

packed up and went to see Dr. Ponseti and he said, " I have no idea if we can

help him after

having that surgery? " and he sent us back home to work on stretching it? yeah,

I felt

horrible and sick to my stomach. But you know, we prayed about it and went

forward. No

I don't believe the surgery was the answer and I don't believe we should have

done it, I

KNOW we shouldn't have done it, but we did, and I am confident that God will

work this

out for 's good. Oops, sorry, should have started this out with God's in

here. But

that's it, I'm done. LOL It's been a long road and is an amazing kid

that's come

through it (as one mom in therapy said) " glowing " ! He's been through the fire,

and yes I

wish I could turn it back and change that and have listened more closely, but

he's making

it. Even if we have to go back in casts....Oh God have mercy!....he will get

through this.

He is just amazing!

Hang in there and keep fighting those doctors. Like I said earlier, they love

that! LOL

I'll be praying for you!

10-09-03

Hi everyone!

> > > >

> > > > I think I can safely boast that is finally walking! THANK YOU

> > > > JESUS FOR DR.

> > > > PONSETI!!!! He is not quite standing up in the middle of the room

> > > > yet, but as of yesterday,

> > > > he has tried twice to stand up in the middle of the room! He will

> > > > push off of stuff and walk

> > > > clear across the room, even turning corners. he does it completely of

> > > > his own accord

> > > > now!!!!!!!!

> > > >

> > > > For those who don't know our story, short of the long, was born

> > > > with very severe

> > > > atypical bilateral clubfoot, he was casted from birth, to no avail and

> > > > at 6 months had first

> > > > surgery done, based on advice of doctor who said he was using the

> > > > ponseti method, but

> > > > was doing it inaccurately. The surgery made things terribly worse

> > > > with all the scar tissue,

> > > > so after driving to Iowa and having Ponseti do it himself, he spent 3

> > > > more months in casts,

> > > > changed every 5 days, had another surgery to correct the first one,

> > > > two more months in

> > > > casts, shoes 23 hours a day faithfully, still relapsed, spent another

> > > > two months in casts

> > > > physical therapy 4 times a week for the past 8 or so months ...now

> > > > finally at 21 months

> > > > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> > > > he's going to need more

> > > > casting but the fact that he is pulling himself up by the couch and

> > > > then walking clear

> > > > across the room, navigating himself around toys, and trying twice to

> > > > stand up in the

> > > > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> > > >

> > > > I know we are not done by any stretch, but it is all just one step at

> > > > a time. For those

> > > > moms and dads out there who are struggling, please don't give up!!!

> > > > Keep those shoes

> > > > on, keep stretching, and if the doctor says the ponseti method is not

> > > > working we need to

> > > > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> > > > stress that enough.

> > > > Get an Angel flight out there and do whatever it takes, but if the doc

> > > > says the ponseti

> > > > method isn't working, then he iis not doing it correctly and you need

> > > > to go to the master.

> > > > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> > > > not a quick fix

> > > > and will put your child back even further. We still have issues with

> > > > scar tissue and the

> > > > scars along his feet are so tight. I know his feet are not completely

> > > > corrected yet, and in 4

> > > > years he may have problems with stiff feet as a result of the

> > > > surgeries. If Dr. Ponseti says

> > > > you need it, then there is no doubt that surgery is necessary, but

> > > > consult with him first

> > > > before subjecting your child to months of struggling and possibly

> > > > years of agony simply

> > > > for a quick fix. Surgery is NOT an option!!!!!!!

> > > >

> > > > I knew the minute we made an appointment with Dr. Dobbs he would start

> > > > walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> > > > Lord and Thank you Dr.

> > > > Ponseti!!!

> > > >

> > > > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> > > >

> > > > o.k. off my soapbox, but please, please keep on fighting the good

> > > > fight!!! Don't ever give

> > > > up for a minute, and don't ever ever contemplate surgery unless you

> > > > have consulted with

> > > > Dr. ponseti.

> > > >

> > > > Thank you everyone for your support, prayers, and laughs!!!!! Lord

> > > > bless each and

> > > > everyone of you!

> > > >

> > > > Wold

> > > > Proud sobbing mother of a walking toddler!!!!!

> > > > wold s 16 hours a day faithfully!!!!! 10-09-03

> > > > (Isaiah 52:7)

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks Kori! I really am at peace with it now. Now, the first time after the

surgery that we

packed up and went to see Dr. Ponseti and he said, " I have no idea if we can

help him after

having that surgery? " and he sent us back home to work on stretching it? yeah,

I felt

horrible and sick to my stomach. But you know, we prayed about it and went

forward. No

I don't believe the surgery was the answer and I don't believe we should have

done it, I

KNOW we shouldn't have done it, but we did, and I am confident that God will

work this

out for 's good. Oops, sorry, should have started this out with God's in

here. But

that's it, I'm done. LOL It's been a long road and is an amazing kid

that's come

through it (as one mom in therapy said) " glowing " ! He's been through the fire,

and yes I

wish I could turn it back and change that and have listened more closely, but

he's making

it. Even if we have to go back in casts....Oh God have mercy!....he will get

through this.

He is just amazing!

Hang in there and keep fighting those doctors. Like I said earlier, they love

that! LOL

I'll be praying for you!

10-09-03

Hi everyone!

> > > >

> > > > I think I can safely boast that is finally walking! THANK YOU

> > > > JESUS FOR DR.

> > > > PONSETI!!!! He is not quite standing up in the middle of the room

> > > > yet, but as of yesterday,

> > > > he has tried twice to stand up in the middle of the room! He will

> > > > push off of stuff and walk

> > > > clear across the room, even turning corners. he does it completely of

> > > > his own accord

> > > > now!!!!!!!!

> > > >

> > > > For those who don't know our story, short of the long, was born

> > > > with very severe

> > > > atypical bilateral clubfoot, he was casted from birth, to no avail and

> > > > at 6 months had first

> > > > surgery done, based on advice of doctor who said he was using the

> > > > ponseti method, but

> > > > was doing it inaccurately. The surgery made things terribly worse

> > > > with all the scar tissue,

> > > > so after driving to Iowa and having Ponseti do it himself, he spent 3

> > > > more months in casts,

> > > > changed every 5 days, had another surgery to correct the first one,

> > > > two more months in

> > > > casts, shoes 23 hours a day faithfully, still relapsed, spent another

> > > > two months in casts

> > > > physical therapy 4 times a week for the past 8 or so months ...now

> > > > finally at 21 months

> > > > JASON IS WALKING!!!!!!!!!! He's still pretty unsteady, and I know

> > > > he's going to need more

> > > > casting but the fact that he is pulling himself up by the couch and

> > > > then walking clear

> > > > across the room, navigating himself around toys, and trying twice to

> > > > stand up in the

> > > > middle of the room with nothing to hold onto is HUGE!!!!!!!!

> > > >

> > > > I know we are not done by any stretch, but it is all just one step at

> > > > a time. For those

> > > > moms and dads out there who are struggling, please don't give up!!!

> > > > Keep those shoes

> > > > on, keep stretching, and if the doctor says the ponseti method is not

> > > > working we need to

> > > > do surgery, RUN RUN RUN AS FAST AS YOU CAN TO IOWA!!!!! I cannot

> > > > stress that enough.

> > > > Get an Angel flight out there and do whatever it takes, but if the doc

> > > > says the ponseti

> > > > method isn't working, then he iis not doing it correctly and you need

> > > > to go to the master.

> > > > SURGERY WILL NOT MAKE IT BETTER, IT WILL MAKE THINGS WORSE!!!! It is

> > > > not a quick fix

> > > > and will put your child back even further. We still have issues with

> > > > scar tissue and the

> > > > scars along his feet are so tight. I know his feet are not completely

> > > > corrected yet, and in 4

> > > > years he may have problems with stiff feet as a result of the

> > > > surgeries. If Dr. Ponseti says

> > > > you need it, then there is no doubt that surgery is necessary, but

> > > > consult with him first

> > > > before subjecting your child to months of struggling and possibly

> > > > years of agony simply

> > > > for a quick fix. Surgery is NOT an option!!!!!!!

> > > >

> > > > I knew the minute we made an appointment with Dr. Dobbs he would start

> > > > walking...figures!!!!!! I am not complaining!!!!!!!! Thank you

> > > > Lord and Thank you Dr.

> > > > Ponseti!!!

> > > >

> > > > yyyyyyaaaaaaahhhhhhoooooooo!!!!!!!

> > > >

> > > > o.k. off my soapbox, but please, please keep on fighting the good

> > > > fight!!! Don't ever give

> > > > up for a minute, and don't ever ever contemplate surgery unless you

> > > > have consulted with

> > > > Dr. ponseti.

> > > >

> > > > Thank you everyone for your support, prayers, and laughs!!!!! Lord

> > > > bless each and

> > > > everyone of you!

> > > >

> > > > Wold

> > > > Proud sobbing mother of a walking toddler!!!!!

> > > > wold s 16 hours a day faithfully!!!!! 10-09-03

> > > > (Isaiah 52:7)

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >