Re: HELP ...... feet aren't ready for boots and bars!

[Guest guest]

Hi,

The answer will likely be with a new doc. Where are you located so we can

find a Ponseti doc for you to take for a second opinion? that they have

spent 12w already without obtaining proper correction shows that they're

not doing something right during the casting. Casting takes 5-7casts, with

9 being the most for even the most severe feet. It is simply time for a

second opinion for your son. The unfortunate part is that since they're

learning, they're learning on your child. And there comes a point where a

parent has to say to docs that they can't make mistakes learning this on

your child anymore.

You can also contact Dr. Ponseti and consult with him about your son's

feet. He will likely say the same thing, 12w of casting is too much and if

you tell him where you're located he will recommend a doc near you that can

help.

Please let us know what you decide and keep us updated on your son's

progress. Whatever happens, do not let them do surgery on your child

before you get a second or third opinion from a doc who knows what they're

doing. I hope this hospital figures it out soon, but I sure as heck

wouldn't allow my child to be their guinea pig anymore. There are very

few, if any feet that can't be corrected with the Ponseti Method. Even the

most severe atypical feet are able to be corrected (at first) with a few

casts so don't for a moment think your son's feet *can't*.

Hang in there, it will get better! Promise!

Kori

At 08:46 AM 6/27/2005, you wrote:

>Don't know if anyone out there can help our son has been having the

>ponsetti treatment

>since 1 week old and after 12 sets of casts they decided they weren't

>really getting anymore

>improvement and that they would go ahead with a tenotomy. (The treatment

>is really new at

>our hospital so they are also learning as things progress.)

>He had his tenotomy 2 1/2 weeks ago and today I expected him to go into

>boots and bars.

>However we got to Physio to find out that they can't get his foot to 90

>degrees and the

>abduction isn't enough so he's gone back in plaster. They also couldn't

>give me any

>guarantees that this would help improve the position of his foot further

>so he could go into

>boots and bars in the near future.

> I'm now feeling rather worried that they are going to start looking at

> surgical correction

>methods and wondered if there was anyone out there who had a similar

>problem and what

>happened. I feel that it would really help me to know that there might be

>light at the end of

>the tunnel without having to go down a surgical route and being informed

>helps me feel

>more ready to challenge the doctors and their suggestions.

>

>

>

>

>

>

>

[Guest guest]

Hi,

The answer will likely be with a new doc. Where are you located so we can

find a Ponseti doc for you to take for a second opinion? that they have

spent 12w already without obtaining proper correction shows that they're

not doing something right during the casting. Casting takes 5-7casts, with

9 being the most for even the most severe feet. It is simply time for a

second opinion for your son. The unfortunate part is that since they're

learning, they're learning on your child. And there comes a point where a

parent has to say to docs that they can't make mistakes learning this on

your child anymore.

You can also contact Dr. Ponseti and consult with him about your son's

feet. He will likely say the same thing, 12w of casting is too much and if

you tell him where you're located he will recommend a doc near you that can

help.

Please let us know what you decide and keep us updated on your son's

progress. Whatever happens, do not let them do surgery on your child

before you get a second or third opinion from a doc who knows what they're

doing. I hope this hospital figures it out soon, but I sure as heck

wouldn't allow my child to be their guinea pig anymore. There are very

few, if any feet that can't be corrected with the Ponseti Method. Even the

most severe atypical feet are able to be corrected (at first) with a few

casts so don't for a moment think your son's feet *can't*.

Hang in there, it will get better! Promise!

Kori

At 08:46 AM 6/27/2005, you wrote:

>Don't know if anyone out there can help our son has been having the

>ponsetti treatment

>since 1 week old and after 12 sets of casts they decided they weren't

>really getting anymore

>improvement and that they would go ahead with a tenotomy. (The treatment

>is really new at

>our hospital so they are also learning as things progress.)

>He had his tenotomy 2 1/2 weeks ago and today I expected him to go into

>boots and bars.

>However we got to Physio to find out that they can't get his foot to 90

>degrees and the

>abduction isn't enough so he's gone back in plaster. They also couldn't

>give me any

>guarantees that this would help improve the position of his foot further

>so he could go into

>boots and bars in the near future.

> I'm now feeling rather worried that they are going to start looking at

> surgical correction

>methods and wondered if there was anyone out there who had a similar

>problem and what

>happened. I feel that it would really help me to know that there might be

>light at the end of

>the tunnel without having to go down a surgical route and being informed

>helps me feel

>more ready to challenge the doctors and their suggestions.

>

>

>

>

>

>

>

[Guest guest]

Welcome to the group! We're glad you found us, and hopefully we can help you.

First things first. It should not take 12 sets of casts to correct clubfoot

using the Ponseti method. Even the most difficult feet ought not to take more

than 9 casts. While I think it is wonderful that more and more doctors are

using the Ponseti method, it really needs to be done absolutely right in order

to be effective. And so my advice to you, which I'm positive others here will

echo, is to go and see another practioner to at least seek another opinion.

It looks like you are in the UK. There are several very experienced Ponseti

method doctors there. If you let us know where you are located, group members

in the UK can point you towards a great doctor in your area. Here is a list of

those physicians who are on Dr Ponseti's list of physicians qualified in the

method:

Dr. Naomi

Booth Hall Children's Hospital

Manchester, U.K.

Fax or phone UK 0

Mr. Gwyn

Oswestry, UK

Ms. Alison Hulme

Consultant Orthopaedic Surgeon

Chelsea and Westminster Hospital

369 Fulham Road

London, UK SW10 9NH

Tel: 0

Mr. Nigel Kiely, MSc, FRCS (Tr & Orth)

Dept. Paediatric Orthopaedics

The and Agnes Hunt Orthopaedic Hospital NHS Trust

OSWESTRY

Shropshire SY10 7AG

United Kingdom

Tel: 01691.404000

Steve Mannion, MA, MChir

Blackpool Hospital

Blackpool, FY3 8NR, United Kingdom

Tel: 01253.311348

Short, M.D.

Crosshouse Hospital

Kilmarnock

Ayrshire KA2 0BE Scotland

United Kingdom

Uglow, M.D.

Southampton University Hospital

Southampton, UK

Phone/fax: 0

Unless your son has atypical feet, he should be well on his way in the bar and

shoes in a few weeks with a more experienced doctor. Many of us here have had

to start over at various points in the treatment. Don't put him in the DBB/FAB

before his feet are ready. He is likely to be uncomfortable, develop blisters

and sores, it will not be a good thing.

Here are a couple of sites where you can learn more about the Ponseti method:

Dr Ponseti's site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

A great booklet:

http://www.global-help.org/publications/cf-english.pdf

I've got to run here. Please let us know if there is anything else we can hel

you with. Big hugs.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

whitecasts wrote:

Don't know if anyone out there can help our son has been having the ponsetti

treatment

since 1 week old and after 12 sets of casts they decided they weren't really

getting anymore

improvement and that they would go ahead with a tenotomy. (The treatment is

really new at

our hospital so they are also learning as things progress.)

He had his tenotomy 2 1/2 weeks ago and today I expected him to go into boots

and bars.

However we got to Physio to find out that they can't get his foot to 90 degrees

and the

abduction isn't enough so he's gone back in plaster. They also couldn't give me

any

guarantees that this would help improve the position of his foot further so he

could go into

boots and bars in the near future.

I'm now feeling rather worried that they are going to start looking at surgical

correction

methods and wondered if there was anyone out there who had a similar problem and

what

happened. I feel that it would really help me to know that there might be light

at the end of

the tunnel without having to go down a surgical route and being informed helps

me feel

more ready to challenge the doctors and their suggestions.

[Guest guest]

Welcome to the group! We're glad you found us, and hopefully we can help you.

First things first. It should not take 12 sets of casts to correct clubfoot

using the Ponseti method. Even the most difficult feet ought not to take more

than 9 casts. While I think it is wonderful that more and more doctors are

using the Ponseti method, it really needs to be done absolutely right in order

to be effective. And so my advice to you, which I'm positive others here will

echo, is to go and see another practioner to at least seek another opinion.

It looks like you are in the UK. There are several very experienced Ponseti

method doctors there. If you let us know where you are located, group members

in the UK can point you towards a great doctor in your area. Here is a list of

those physicians who are on Dr Ponseti's list of physicians qualified in the

method:

Dr. Naomi

Booth Hall Children's Hospital

Manchester, U.K.

Fax or phone UK 0

Mr. Gwyn

Oswestry, UK

Ms. Alison Hulme

Consultant Orthopaedic Surgeon

Chelsea and Westminster Hospital

369 Fulham Road

London, UK SW10 9NH

Tel: 0

Mr. Nigel Kiely, MSc, FRCS (Tr & Orth)

Dept. Paediatric Orthopaedics

The and Agnes Hunt Orthopaedic Hospital NHS Trust

OSWESTRY

Shropshire SY10 7AG

United Kingdom

Tel: 01691.404000

Steve Mannion, MA, MChir

Blackpool Hospital

Blackpool, FY3 8NR, United Kingdom

Tel: 01253.311348

Short, M.D.

Crosshouse Hospital

Kilmarnock

Ayrshire KA2 0BE Scotland

United Kingdom

Uglow, M.D.

Southampton University Hospital

Southampton, UK

Phone/fax: 0

Unless your son has atypical feet, he should be well on his way in the bar and

shoes in a few weeks with a more experienced doctor. Many of us here have had

to start over at various points in the treatment. Don't put him in the DBB/FAB

before his feet are ready. He is likely to be uncomfortable, develop blisters

and sores, it will not be a good thing.

Here are a couple of sites where you can learn more about the Ponseti method:

Dr Ponseti's site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

A great booklet:

http://www.global-help.org/publications/cf-english.pdf

I've got to run here. Please let us know if there is anything else we can hel

you with. Big hugs.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

whitecasts wrote:

Don't know if anyone out there can help our son has been having the ponsetti

treatment

since 1 week old and after 12 sets of casts they decided they weren't really

getting anymore

improvement and that they would go ahead with a tenotomy. (The treatment is

really new at

our hospital so they are also learning as things progress.)

He had his tenotomy 2 1/2 weeks ago and today I expected him to go into boots

and bars.

However we got to Physio to find out that they can't get his foot to 90 degrees

and the

abduction isn't enough so he's gone back in plaster. They also couldn't give me

any

guarantees that this would help improve the position of his foot further so he

could go into

boots and bars in the near future.

I'm now feeling rather worried that they are going to start looking at surgical

correction

methods and wondered if there was anyone out there who had a similar problem and

what

happened. I feel that it would really help me to know that there might be light

at the end of

the tunnel without having to go down a surgical route and being informed helps

me feel

more ready to challenge the doctors and their suggestions.

[Guest guest]

Hi,

Your story almost exactly echos our story. We are in the UK, and our

son was in casts for about 7 weeks, but they kept slipping so he had

about 20 casts altogether, and he had a tenotomy.His feet were

clearly not corrected, so we emailed Dr Ponseti. He replied saying

's feet were atypical and needed someone with more experience

to treat them. He suggested we see Naomi in Manchester, who

has worked wonders - 's feet look wonderful now. Whereabouts

is your son being treated? Please don't go down the surgery route

without at least considering a second opinion from one of the

consultants on Dr Ponseti's list. It will be so worth it if you can

get his feet corrected without surgery.

Regards

Stella

> Don't know if anyone out there can help our son has been having

the ponsetti treatment

> since 1 week old and after 12 sets of casts they decided they

weren't really getting anymore

> improvement and that they would go ahead with a tenotomy. (The

treatment is really new at

> our hospital so they are also learning as things progress.)

> He had his tenotomy 2 1/2 weeks ago and today I expected him to go

into boots and bars.

> However we got to Physio to find out that they can't get his foot

to 90 degrees and the

> abduction isn't enough so he's gone back in plaster. They also

couldn't give me any

> guarantees that this would help improve the position of his foot

further so he could go into

> boots and bars in the near future.

> I'm now feeling rather worried that they are going to start

looking at surgical correction

> methods and wondered if there was anyone out there who had a

similar problem and what

> happened. I feel that it would really help me to know that there

might be light at the end of

> the tunnel without having to go down a surgical route and being

informed helps me feel

> more ready to challenge the doctors and their suggestions.

[Guest guest]

Hi,

Your story almost exactly echos our story. We are in the UK, and our

son was in casts for about 7 weeks, but they kept slipping so he had

about 20 casts altogether, and he had a tenotomy.His feet were

clearly not corrected, so we emailed Dr Ponseti. He replied saying

's feet were atypical and needed someone with more experience

to treat them. He suggested we see Naomi in Manchester, who

has worked wonders - 's feet look wonderful now. Whereabouts

is your son being treated? Please don't go down the surgery route

without at least considering a second opinion from one of the

consultants on Dr Ponseti's list. It will be so worth it if you can

get his feet corrected without surgery.

Regards

Stella

> Don't know if anyone out there can help our son has been having

the ponsetti treatment

> since 1 week old and after 12 sets of casts they decided they

weren't really getting anymore

> improvement and that they would go ahead with a tenotomy. (The

treatment is really new at

> our hospital so they are also learning as things progress.)

> He had his tenotomy 2 1/2 weeks ago and today I expected him to go

into boots and bars.

> However we got to Physio to find out that they can't get his foot

to 90 degrees and the

> abduction isn't enough so he's gone back in plaster. They also

couldn't give me any

> guarantees that this would help improve the position of his foot

further so he could go into

> boots and bars in the near future.

> I'm now feeling rather worried that they are going to start

looking at surgical correction

> methods and wondered if there was anyone out there who had a

similar problem and what

> happened. I feel that it would really help me to know that there

might be light at the end of

> the tunnel without having to go down a surgical route and being

informed helps me feel

> more ready to challenge the doctors and their suggestions.

[Guest guest]

Hi Guys - Pete and here - our son Henry (11/11/01) showed club

feet on a 20 week scan, and there was no-one, then, in the UK, apart

from far north Scotland and Naomi, who had only just started, so we

took Henry back to NZ where there was a Ponseti doctor (Hamish

Crawford). After he was corrected successfully (from the worst two

examples of clubfeet!!) we went back to the UK, and have seen Naomi and

Alison at various times, both of whom now have about 4 yrs experience,

and whom we have found excellent. The other yahoo mailers are right -

the Ponseti needs to be done 100%, or it can go wrong, as you have

found. However, I would finish with yr current hospital straightaway,

and go straight to a recommended Ponseti doc, like Alison at Chelsea,

or Naomi at Manchester.

The Ponseti procedure should be, casts for 6 - 8 weeks, then tenotomy

(to lengthen tendon) then final casts, then boots and bars for up to

age 5.

We were a little unlucky - at the time Henry was corrected there was a

theory, from Ponseti himself, that loose-limbed children could come out

of the boots and bar after 1 yr old. In our case, one of Henry's feet

started to turn back in from when he was 3. Ponseti says this can

happen even with the best correction - the body apparently tries to go

back to way it was when it was born (naturally!). When this happens,

Ponseti performs an ATTT (a minor-ish procedure where a tendon is

transferred in the foot) We have just had this done, as have about 10%

of all Ponseti patients. Do not worry if you need this one day - it

still beats the hell out of the standard UK major surgical procedure.

My advice, if you forgive me for offering it, is, get up to Manchester

straightaway and see Naomi - or, if you have family in NZ - get out to

Starship hospital; and see Hamish Crawford - they will seem like

miracle workers!

All the best, and please don't hesitate to e-mail (my wife) or

tel us in NZ 64 9 269 3344 - regards,

PS Where are you having treatment at the moment??

> Don't know if anyone out there can help our son has been having the

> ponsetti treatment

> since 1 week old and after 12 sets of casts they decided they weren't

> really getting anymore

> improvement and that they would go ahead with a tenotomy. (The

> treatment is really new at

> our hospital so they are also learning as things progress.)

> He had his tenotomy 2 1/2 weeks ago and today I expected him to go

> into boots and bars.

> However we got to Physio to find out that they can't get his foot to

> 90 degrees and the

> abduction isn't enough so he's gone back in plaster. They also

> couldn't give me any

> guarantees that this would help improve the position of his foot

> further so he could go into

> boots and bars in the near future.

> I'm now feeling rather worried that they are going to start looking

> at surgical correction

> methods and wondered if there was anyone out there who had a similar

> problem and what

> happened. I feel that it would really help me to know that there might

> be light at the end of

> the tunnel without having to go down a surgical route and being

> informed helps me feel

> more ready to challenge the doctors and their suggestions.

>

>

>

>

>

>

>

[Guest guest]

Hi Guys - Pete and here - our son Henry (11/11/01) showed club

feet on a 20 week scan, and there was no-one, then, in the UK, apart

from far north Scotland and Naomi, who had only just started, so we

took Henry back to NZ where there was a Ponseti doctor (Hamish

Crawford). After he was corrected successfully (from the worst two

examples of clubfeet!!) we went back to the UK, and have seen Naomi and

Alison at various times, both of whom now have about 4 yrs experience,

and whom we have found excellent. The other yahoo mailers are right -

the Ponseti needs to be done 100%, or it can go wrong, as you have

found. However, I would finish with yr current hospital straightaway,

and go straight to a recommended Ponseti doc, like Alison at Chelsea,

or Naomi at Manchester.

The Ponseti procedure should be, casts for 6 - 8 weeks, then tenotomy

(to lengthen tendon) then final casts, then boots and bars for up to

age 5.

We were a little unlucky - at the time Henry was corrected there was a

theory, from Ponseti himself, that loose-limbed children could come out

of the boots and bar after 1 yr old. In our case, one of Henry's feet

started to turn back in from when he was 3. Ponseti says this can

happen even with the best correction - the body apparently tries to go

back to way it was when it was born (naturally!). When this happens,

Ponseti performs an ATTT (a minor-ish procedure where a tendon is

transferred in the foot) We have just had this done, as have about 10%

of all Ponseti patients. Do not worry if you need this one day - it

still beats the hell out of the standard UK major surgical procedure.

My advice, if you forgive me for offering it, is, get up to Manchester

straightaway and see Naomi - or, if you have family in NZ - get out to

Starship hospital; and see Hamish Crawford - they will seem like

miracle workers!

All the best, and please don't hesitate to e-mail (my wife) or

tel us in NZ 64 9 269 3344 - regards,

PS Where are you having treatment at the moment??

> Don't know if anyone out there can help our son has been having the

> ponsetti treatment

> since 1 week old and after 12 sets of casts they decided they weren't

> really getting anymore

> improvement and that they would go ahead with a tenotomy. (The

> treatment is really new at

> our hospital so they are also learning as things progress.)

> He had his tenotomy 2 1/2 weeks ago and today I expected him to go

> into boots and bars.

> However we got to Physio to find out that they can't get his foot to

> 90 degrees and the

> abduction isn't enough so he's gone back in plaster. They also

> couldn't give me any

> guarantees that this would help improve the position of his foot

> further so he could go into

> boots and bars in the near future.

> I'm now feeling rather worried that they are going to start looking

> at surgical correction

> methods and wondered if there was anyone out there who had a similar

> problem and what

> happened. I feel that it would really help me to know that there might

> be light at the end of

> the tunnel without having to go down a surgical route and being

> informed helps me feel

> more ready to challenge the doctors and their suggestions.

>

>

>

>

>

>

>

[Guest guest]

Thanks again for everyones advice to get a second opinion. I cactually emailled

Mr Ponseti yesterday and got the same advice from him. I'm now currently getting

our hospital to refer us to Chelsea and Westminster or Manchester.

I also found the downloadable booklet at www.global-help.org really useful and I

believe from this that our son has atypical clubfoot so was wondering if anybody

had more advice on how to go about getting these corrected properly. I read

something in the booklet about having to use a different set of boots and bars

from the norm and wondered if anyone had encountered this before.

---------------------------------

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Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Thanks again for everyones advice to get a second opinion. I cactually emailled

Mr Ponseti yesterday and got the same advice from him. I'm now currently getting

our hospital to refer us to Chelsea and Westminster or Manchester.

I also found the downloadable booklet at www.global-help.org really useful and I

believe from this that our son has atypical clubfoot so was wondering if anybody

had more advice on how to go about getting these corrected properly. I read

something in the booklet about having to use a different set of boots and bars

from the norm and wondered if anyone had encountered this before.

---------------------------------

How much free photo storage do you get? Store your holiday snaps for FREE with

Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Kathy,

Atypical feet are certainly a bigger challenge than the norm. My daughter has

had quite the go with treatment as not many physicians have had experience

treating atypical feet using the ponseti method. There are different shoes that

Dr. Ponseti now uses for atypical feet - at least for the first year or so - and

they are the sandals. His website is down at the moment but you can

get ahold of him by phone and he'll see that you get what you need. As the time

gets closer and your child is about half way through the casting process,

contact and go from there. Many of us that have children with atypical

feet have used his sandals and our children have had success in them.

Good luck and let us know how things go.

Chris

Re: HELP ...... feet aren't ready for boots and

bars!

Thanks again for everyones advice to get a second opinion. I cactually

emailled Mr Ponseti yesterday and got the same advice from him. I'm now

currently getting our hospital to refer us to Chelsea and Westminster or

Manchester.

I also found the downloadable booklet at www.global-help.org really useful and

I believe from this that our son has atypical clubfoot so was wondering if

anybody had more advice on how to go about getting these corrected properly. I

read something in the booklet about having to use a different set of boots and

bars from the norm and wondered if anyone had encountered this before.

---------------------------------

How much free photo storage do you get? Store your holiday snaps for FREE with

Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Kathy,

Atypical feet are certainly a bigger challenge than the norm. My daughter has

had quite the go with treatment as not many physicians have had experience

treating atypical feet using the ponseti method. There are different shoes that

Dr. Ponseti now uses for atypical feet - at least for the first year or so - and

they are the sandals. His website is down at the moment but you can

get ahold of him by phone and he'll see that you get what you need. As the time

gets closer and your child is about half way through the casting process,

contact and go from there. Many of us that have children with atypical

feet have used his sandals and our children have had success in them.

Good luck and let us know how things go.

Chris

Re: HELP ...... feet aren't ready for boots and

bars!

Thanks again for everyones advice to get a second opinion. I cactually

emailled Mr Ponseti yesterday and got the same advice from him. I'm now

currently getting our hospital to refer us to Chelsea and Westminster or

Manchester.

I also found the downloadable booklet at www.global-help.org really useful and

I believe from this that our son has atypical clubfoot so was wondering if

anybody had more advice on how to go about getting these corrected properly. I

read something in the booklet about having to use a different set of boots and

bars from the norm and wondered if anyone had encountered this before.

---------------------------------

How much free photo storage do you get? Store your holiday snaps for FREE with

Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Thanks ever so much for everyones responses so far. We are currently in the

process of getting a second opinion.

Just a quick question in the meanwhile, if our sons treatment isn't quite right

and he has his feet aren't quite manipulated in the right position is it likely

that the casts could be causing more problems for the future. In other words

should I consider having the casts removed until he's been checked by a more

experienced ponseti practitioner?

---------------------------------

How much free photo storage do you get? Store your holiday snaps for FREE with

Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Thanks ever so much for everyones responses so far. We are currently in the

process of getting a second opinion.

Just a quick question in the meanwhile, if our sons treatment isn't quite right

and he has his feet aren't quite manipulated in the right position is it likely

that the casts could be causing more problems for the future. In other words

should I consider having the casts removed until he's been checked by a more

experienced ponseti practitioner?

---------------------------------

How much free photo storage do you get? Store your holiday snaps for FREE with

Yahoo! Photos. Get Yahoo! Photos

[Guest guest]

Kathy,

That's a tough call. Yes, if your current consultant is doing an

awful job, then it could be doing more harm than good. But if they

have some clue- but just haven't been able to " finish the job " , then

it's likely that the cast isn't causing problems and will work to

maintain what correction you currently have until you can see the

new physician. By removing the cast, the foot will likely regress

some in a matter of hours or days.....so that's why it's a tough

decision to make. Is he comfortable in his cast?

How long until you think you'll get in to the new doctor?

Good luck-

& (3-16-00, left clubfoot)

>

> Thanks ever so much for everyones responses so far. We are

currently in the process of getting a second opinion.

> Just a quick question in the meanwhile, if our sons treatment

isn't quite right and he has his feet aren't quite manipulated in

the right position is it likely that the casts could be causing more

problems for the future. In other words should I consider having the

casts removed until he's been checked by a more experienced ponseti

practitioner?

>

>

>

>

>

>

>

> ---------------------------------

> How much free photo storage do you get? Store your holiday snaps

for FREE with Yahoo! Photos. Get Yahoo! Photos

>

>

[Guest guest]

Kathy,

That's a tough call. Yes, if your current consultant is doing an

awful job, then it could be doing more harm than good. But if they

have some clue- but just haven't been able to " finish the job " , then

it's likely that the cast isn't causing problems and will work to

maintain what correction you currently have until you can see the

new physician. By removing the cast, the foot will likely regress

some in a matter of hours or days.....so that's why it's a tough

decision to make. Is he comfortable in his cast?

How long until you think you'll get in to the new doctor?

Good luck-

& (3-16-00, left clubfoot)

>

> Thanks ever so much for everyones responses so far. We are

currently in the process of getting a second opinion.

> Just a quick question in the meanwhile, if our sons treatment

isn't quite right and he has his feet aren't quite manipulated in

the right position is it likely that the casts could be causing more

problems for the future. In other words should I consider having the

casts removed until he's been checked by a more experienced ponseti

practitioner?

>

>

>

>

>

>

>

> ---------------------------------

> How much free photo storage do you get? Store your holiday snaps

for FREE with Yahoo! Photos. Get Yahoo! Photos

>

>

[Guest guest]

When we went for our second opinion we went in with the cast on. They of

course had us take it off. It was a good cast and had done significant

correction already. It was a fiberglass cast though so we took it off

ourselves in the exam room. I agree with what was said earlier, if the

cast is blatantly wrong, it would be good to take it off because it could

cause some harm. I think it really depends on how soon you can get into

another doc, and the other doc should actually be able to get you in

immediately. Any good Ponseti Doc will overbook you for your second

opinion because they know it's *that* important to be seen ASAP. And they

should also be ready to re-cast at that appointment if you decide to stick

with them after the consultation.

HTH - and I'm looking forward to hearing great things from you very soon!

Perhaps you want to send us some pictures of this particular cast - the

parents at CFPics can tell you if it looks right or not... not if it *is*

right... but if it *looks* right. We're not doctors, but we can give you

our opinions on that cast if you would like.

Kori

At 04:52 AM 6/30/2005, you wrote:

>Thanks ever so much for everyones responses so far. We are currently in

>the process of getting a second opinion.

>Just a quick question in the meanwhile, if our sons treatment isn't quite

>right and he has his feet aren't quite manipulated in the right position

>is it likely that the casts could be causing more problems for the future.

>In other words should I consider having the casts removed until he's been

>checked by a more experienced ponseti practitioner?

>

>

>

>

>

>

>

>---------------------------------

>How much free photo storage do you get? Store your holiday snaps for FREE

>with Yahoo! Photos. Get Yahoo! Photos

>

>

[Guest guest]

When we went for our second opinion we went in with the cast on. They of

course had us take it off. It was a good cast and had done significant

correction already. It was a fiberglass cast though so we took it off

ourselves in the exam room. I agree with what was said earlier, if the

cast is blatantly wrong, it would be good to take it off because it could

cause some harm. I think it really depends on how soon you can get into

another doc, and the other doc should actually be able to get you in

immediately. Any good Ponseti Doc will overbook you for your second

opinion because they know it's *that* important to be seen ASAP. And they

should also be ready to re-cast at that appointment if you decide to stick

with them after the consultation.

HTH - and I'm looking forward to hearing great things from you very soon!

Perhaps you want to send us some pictures of this particular cast - the

parents at CFPics can tell you if it looks right or not... not if it *is*

right... but if it *looks* right. We're not doctors, but we can give you

our opinions on that cast if you would like.

Kori

At 04:52 AM 6/30/2005, you wrote:

>Thanks ever so much for everyones responses so far. We are currently in

>the process of getting a second opinion.

>Just a quick question in the meanwhile, if our sons treatment isn't quite

>right and he has his feet aren't quite manipulated in the right position

>is it likely that the casts could be causing more problems for the future.

>In other words should I consider having the casts removed until he's been

>checked by a more experienced ponseti practitioner?

>

>

>

>

>

>

>

>---------------------------------

>How much free photo storage do you get? Store your holiday snaps for FREE

>with Yahoo! Photos. Get Yahoo! Photos

>

>