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two photos of the girls taken about a week and a half ago.

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I took some photos and thought Asenath looked so cute in her pig tails so I

thought I would share it with you all. :)

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

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I took some photos and thought Asenath looked so cute in her pig tails so I

thought I would share it with you all. :)

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

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Darla,

I love the one with the pigtails :) Very very cute. Does she let you do that

very often ? When my daughters were younger,,they never wanted their hair

done,,but now they love for me to french braid it. I,,on the other hand,hate to

do it !

Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7 Autism,congenital

myopathy,possible mitochondrial disease,and JRA ~~ and Ethan 5 and 100 % BOY

________________________________________________________________

Juno Platinum $9.95. Juno SpeedBand $14.95.

Sign up for Juno Today at http://www.juno.com!

Look for special offers at Best Buy stores.

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Darla,

I love the one with the pigtails :) Very very cute. Does she let you do that

very often ? When my daughters were younger,,they never wanted their hair

done,,but now they love for me to french braid it. I,,on the other hand,hate to

do it !

Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7 Autism,congenital

myopathy,possible mitochondrial disease,and JRA ~~ and Ethan 5 and 100 % BOY

________________________________________________________________

Juno Platinum $9.95. Juno SpeedBand $14.95.

Sign up for Juno Today at http://www.juno.com!

Look for special offers at Best Buy stores.

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They are too cute, Darla! Ase's chubby face reminds me so much of Chelsea. She still has a chubby face and huge cheeks at 7 yrs. Make sure and post a pic when Porrah's pretty red hair gets long!

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

This pic is from earlier this year

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They are too cute, Darla! Ase's chubby face reminds me so much of Chelsea. She still has a chubby face and huge cheeks at 7 yrs. Make sure and post a pic when Porrah's pretty red hair gets long!

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

This pic is from earlier this year

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