Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi everyone My son, Isaiah, is suspected of having a mito disorder. He is currently 26 mos old. For the last 2 years, he has been being treated for Eosinophilic Gastroenteritis (EG). They put him on a formula called Neocate 1+ (that is the only thing he tolerates) and GI wise he has done very well, however, other things have started to occur such as him turning blue and having seizures. We finally got a referral to a neurologist who is thinking this is mito not EG. I was hoping that if I gave you a list of Isaiah's problems, someone could tell me if it sounds like it could be a mito problem. -inability to tolerate any foods -reflux -severly delayed gastric emptying -late milestones as an early infant (picked up around 8 mos old) -periodic bluing of hands, feet, and face -seizures -poor reflexes -poor endurance for physical activity -poor growth -delayed language aquisition Also, is there anything I can look for in his previous blood/urine lab results that could guide me anywhere? Thank you Willow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi everyone My son, Isaiah, is suspected of having a mito disorder. He is currently 26 mos old. For the last 2 years, he has been being treated for Eosinophilic Gastroenteritis (EG). They put him on a formula called Neocate 1+ (that is the only thing he tolerates) and GI wise he has done very well, however, other things have started to occur such as him turning blue and having seizures. We finally got a referral to a neurologist who is thinking this is mito not EG. I was hoping that if I gave you a list of Isaiah's problems, someone could tell me if it sounds like it could be a mito problem. -inability to tolerate any foods -reflux -severly delayed gastric emptying -late milestones as an early infant (picked up around 8 mos old) -periodic bluing of hands, feet, and face -seizures -poor reflexes -poor endurance for physical activity -poor growth -delayed language aquisition Also, is there anything I can look for in his previous blood/urine lab results that could guide me anywhere? Thank you Willow Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.