Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 can email him and ask him. Cindy (Seth and Ben's mom-Ben had tonsils out today, hoping for no complications to come-so far so good) That would be great Cindy, thanks!! No rush though, I'm sure both you and he are very busy! I am just curious if there is still a study and if he has determined that there are Rett girls with mito issues. And if there is anything special as far as treatment or testing. Hope Ben is doing ok, Chelsea had a T & A last summer and spent almost a week at the hosp (because of her dysphagia & pulmonary issues). The 1st 3-4 days were the worst as far as swelling and discomfort, then she really bounced back. It was one of the best things done for her, her breathing has improved so much. Krisitne, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 can email him and ask him. Cindy (Seth and Ben's mom-Ben had tonsils out today, hoping for no complications to come-so far so good) That would be great Cindy, thanks!! No rush though, I'm sure both you and he are very busy! I am just curious if there is still a study and if he has determined that there are Rett girls with mito issues. And if there is anything special as far as treatment or testing. Hope Ben is doing ok, Chelsea had a T & A last summer and spent almost a week at the hosp (because of her dysphagia & pulmonary issues). The 1st 3-4 days were the worst as far as swelling and discomfort, then she really bounced back. It was one of the best things done for her, her breathing has improved so much. Krisitne, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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