Re: ?'s about epilepsy/Kim

[Guest guest]

Thanks Kim, I apprecaite it! Unfortunatly, Chelsea has had some seizures again. And they are happening around the time her med is due. I am waiting to hear from the neuro on whether to try the 3x's a day dosing or start the Lamictal.

Do the girls get their Keppra every 8hrs on the dot? Or just roughly 8 hrs apart?

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

[Guest guest]

Thanks Kim, I apprecaite it! Unfortunatly, Chelsea has had some seizures again. And they are happening around the time her med is due. I am waiting to hear from the neuro on whether to try the 3x's a day dosing or start the Lamictal.

Do the girls get their Keppra every 8hrs on the dot? Or just roughly 8 hrs apart?

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

[Guest guest]

Sorry to hear about the seizures, e. The girls get their meds around 8am, 2pm, and 8pm. I have noticed a considerable decrease in the seizures in the late afternoon/early evening when we used to have the majority of them. Is Keppra the only seizure med Chelsea is on now? I hope your neuro would be willing to try 3x dosing to see if it would work before adding on a new med. Let me know what you find out!

Good luck

Kim

Re: ?'s about epilepsy/Kim

Thanks Kim, I apprecaite it! Unfortunatly, Chelsea has had some seizures again. And they are happening around the time her med is due. I am waiting to hear from the neuro on whether to try the 3x's a day dosing or start the Lamictal.

Do the girls get their Keppra every 8hrs on the dot? Or just roughly 8 hrs apart?

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)Please contact mito-owner with any problems or questions.

[Guest guest]

Sorry to hear about the seizures, e. The girls get their meds around 8am, 2pm, and 8pm. I have noticed a considerable decrease in the seizures in the late afternoon/early evening when we used to have the majority of them. Is Keppra the only seizure med Chelsea is on now? I hope your neuro would be willing to try 3x dosing to see if it would work before adding on a new med. Let me know what you find out!

Good luck

Kim

Re: ?'s about epilepsy/Kim

Thanks Kim, I apprecaite it! Unfortunatly, Chelsea has had some seizures again. And they are happening around the time her med is due. I am waiting to hear from the neuro on whether to try the 3x's a day dosing or start the Lamictal.

Do the girls get their Keppra every 8hrs on the dot? Or just roughly 8 hrs apart?

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)Please contact mito-owner with any problems or questions.