Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 The worst health crisis' I have had have been right after the birth of a child. I didn't know or suspect until now that they were mito related. i have just been diagnosed. All three of my children have also been diagnosed. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 The worst health crisis' I have had have been right after the birth of a child. I didn't know or suspect until now that they were mito related. i have just been diagnosed. All three of my children have also been diagnosed. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I have Primary Carnitine Deficiency, and during pregnancy my carnitine levels dropped dramatically. I was taking Carnitor 6000mg/day, and my carnitine levels were still in the single digits. They didn't return to normal for almost a year, even with Carnitor. Carnitine is completely safe to take during pregnancy. Theresa > > My son is being worked up for mito, and were waiting for the biopsy > results right now... (though from the bloodwork it sounds like their > pretty confident thats what were dealing with). > I have alot of bizarre symptoms (autonomic failure, heart/kidney > issues, wierd MRI, etc) so they did a carnatine screen on me in > September which came back borderline... > Im currently 6 months pregnant, and they said that pregnancy could > cause the levels to be borderline, so they redid the test in October > and its apparently quite a bit lower.... so their redoing it once > more, and it sounds like they are considering suppliments if its > still low... > does anyone know how much pregnancy plays a role in these levels? > after I had my son, I had the worst health crisis of my life, (in a > matter of days I developed SEVERE POTS, lost rediculous amounts of > weight, and just over all fell apart totally) and im curious if it > may have been a mito crash caused by my carnatine dropping so much > through the pregnancy... > also has anyone taken carnitine suppliments WHILE pregnant... is it > considered safe? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 I have Primary Carnitine Deficiency, and during pregnancy my carnitine levels dropped dramatically. I was taking Carnitor 6000mg/day, and my carnitine levels were still in the single digits. They didn't return to normal for almost a year, even with Carnitor. Carnitine is completely safe to take during pregnancy. Theresa > > My son is being worked up for mito, and were waiting for the biopsy > results right now... (though from the bloodwork it sounds like their > pretty confident thats what were dealing with). > I have alot of bizarre symptoms (autonomic failure, heart/kidney > issues, wierd MRI, etc) so they did a carnatine screen on me in > September which came back borderline... > Im currently 6 months pregnant, and they said that pregnancy could > cause the levels to be borderline, so they redid the test in October > and its apparently quite a bit lower.... so their redoing it once > more, and it sounds like they are considering suppliments if its > still low... > does anyone know how much pregnancy plays a role in these levels? > after I had my son, I had the worst health crisis of my life, (in a > matter of days I developed SEVERE POTS, lost rediculous amounts of > weight, and just over all fell apart totally) and im curious if it > may have been a mito crash caused by my carnatine dropping so much > through the pregnancy... > also has anyone taken carnitine suppliments WHILE pregnant... is it > considered safe? Quote Link to comment Share on other sites More sharing options...
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