hand wringing/sensory dysfunction issues

[Guest guest]

I know Retts can cause this symptom in kids, but is this symptom seen often

in Mito kids as well? Zipporrah began doing it a couple weeks ago and we

are wondering what is going on with her. It may just be another

manifestation of her sensory dysfunction, but we are wondering if others

also see this in their kids?? Zipporrah has TONS of sensory problems and is

constantly stomping her left foot, kicking it, rubbing it, and having me rub

them, as well as seeking out anything different feeling such as ice packs,

beans or rice to play in, climbs on everything, and bumpy balls to stick her

feet onto. She stands on the tops of her feet to put as much info into them

as possible so she can feel where they are in space. Her mouth and cheeks

are very sensitive to touch and avoids it if possible and her nose and

throat areas can't be touched without causing gagging or coughing from

hypersensitivity. The hand wringing is new though. She is bothered by long

sleeves on her wrists so that may be causing the problem as well. Anyone

else deal with this?

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

[Guest guest]

I know Retts can cause this symptom in kids, but is this symptom seen often

in Mito kids as well? Zipporrah began doing it a couple weeks ago and we

are wondering what is going on with her. It may just be another

manifestation of her sensory dysfunction, but we are wondering if others

also see this in their kids?? Zipporrah has TONS of sensory problems and is

constantly stomping her left foot, kicking it, rubbing it, and having me rub

them, as well as seeking out anything different feeling such as ice packs,

beans or rice to play in, climbs on everything, and bumpy balls to stick her

feet onto. She stands on the tops of her feet to put as much info into them

as possible so she can feel where they are in space. Her mouth and cheeks

are very sensitive to touch and avoids it if possible and her nose and

throat areas can't be touched without causing gagging or coughing from

hypersensitivity. The hand wringing is new though. She is bothered by long

sleeves on her wrists so that may be causing the problem as well. Anyone

else deal with this?

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)