Is this common among mito patients?

[Guest guest]

Hi everyone,

I am wondering if anyone has seen this before. We never know what

is common to mito disorder or is " just Collin " . He has been

complaining of cold legs below the knees at night in particular. He

warms up in the tub, but when he gets out of the tub his legs below

the knee are red with an odd rashy appearance, and feel hot, then

subsides in an hour or so. He has had headaches coinciding with

this occasionally as well. He is having cardiac testing at the

beginning of December, if this is a common mito thing I would wait

until then. This is not happening every day, so we're wondering if

it is activity related. Thank you, Joni

[Guest guest]

Hi everyone,

I am wondering if anyone has seen this before. We never know what

is common to mito disorder or is " just Collin " . He has been

complaining of cold legs below the knees at night in particular. He

warms up in the tub, but when he gets out of the tub his legs below

the knee are red with an odd rashy appearance, and feel hot, then

subsides in an hour or so. He has had headaches coinciding with

this occasionally as well. He is having cardiac testing at the

beginning of December, if this is a common mito thing I would wait

until then. This is not happening every day, so we're wondering if

it is activity related. Thank you, Joni