Re: is zach ever going to be healthy or have good days more often ....

[Guest guest]

I can't tell you if it will get better or worse. I can tell you what we have done. Max started kindergarten in September. She attended all of three days and came down with a snotty nose, followed by an ear infection, followed by ear infection in other ear, followed by bilateral pneumonia. All within 4 days. It ended with chronic repiratory failure.

Max is no longer attending kindergarten. Her 2nd pneumonia this year has taken a toll on her. Her energy is limited and her respiratory system is very weak. She is now in wheelchair when we venture out. We try to homeschool when she is up to it. We try to make the best of it and celebrate every day because we do not know if it will be worse the next day.

Just hang in there and do what you feel in your heart. I hope you can get more testing approved.

regards,

rosy, mum to max and chris , 5

[Guest guest]

I can't tell you if it will get better or worse. I can tell you what we have done. Max started kindergarten in September. She attended all of three days and came down with a snotty nose, followed by an ear infection, followed by ear infection in other ear, followed by bilateral pneumonia. All within 4 days. It ended with chronic repiratory failure.

Max is no longer attending kindergarten. Her 2nd pneumonia this year has taken a toll on her. Her energy is limited and her respiratory system is very weak. She is now in wheelchair when we venture out. We try to homeschool when she is up to it. We try to make the best of it and celebrate every day because we do not know if it will be worse the next day.

Just hang in there and do what you feel in your heart. I hope you can get more testing approved.

regards,

rosy, mum to max and chris , 5