Re: e- two photos of the girls taken about a week and a half ago.

[Guest guest]

I have always so similarities in our two girls' looks as well. The

steroids caused Asenath to gain about 20 lbs. in one year so the chubby

cheeks have been quite a change in her, but before the steroids she was so

tiny and thin looking that I appreciated the fuller look. (Except for the

times she looked like she would pop if touched.) I am wondering what she

will look like in another half of a year when the water weight starts to go

away. It will be quite strange to see her slim again. She eats virtually

nothing so the g-tube provides most of her calories.

Your daughter looks like she is having some fun with bracelets or some

type of colorful objects. She looks so much like an older version of

Asenath. Thanks for sharing the photo.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: two photos of the girls taken about a week and a half

ago.

> They are too cute, Darla! Ase's chubby face reminds me so much of Chelsea.

> She still has a chubby face and huge cheeks at 7 yrs. Make sure and post a

> pic

> when Porrah's pretty red hair gets long!

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

>

> This pic is from earlier this year

>

[Guest guest]

I have always so similarities in our two girls' looks as well. The

steroids caused Asenath to gain about 20 lbs. in one year so the chubby

cheeks have been quite a change in her, but before the steroids she was so

tiny and thin looking that I appreciated the fuller look. (Except for the

times she looked like she would pop if touched.) I am wondering what she

will look like in another half of a year when the water weight starts to go

away. It will be quite strange to see her slim again. She eats virtually

nothing so the g-tube provides most of her calories.

Your daughter looks like she is having some fun with bracelets or some

type of colorful objects. She looks so much like an older version of

Asenath. Thanks for sharing the photo.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: two photos of the girls taken about a week and a half

ago.

> They are too cute, Darla! Ase's chubby face reminds me so much of Chelsea.

> She still has a chubby face and huge cheeks at 7 yrs. Make sure and post a

> pic

> when Porrah's pretty red hair gets long!

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

>

> This pic is from earlier this year

>