Re: jennifer slow motility

[Guest guest]

Thanks for your help . I appreciate it. I will be most happy to share any ideas with you but most of my info has come from the group so you will have seen this yourself. They have been so very helpful and supportive.

I just feel so alone here in New-Zealand.

Hugs,

.

jennifer slow motility

Dear

Our daughter also suffers with slow or no motility. I wish I had a great idea for ya but we are still having problems. I share with you the thought of it not being constipation but rather the muscle not moving things. Our daughter is j tube fed very little and the rest is TPN due to the vomiting, I swear it just does not move one time we had fried rice on one day and she threw up fried rice two days later she is now just about liquid only and a very small amount. She is on a rather large dose of Milk of Magnesia, and reglan she was on the eythromyacin SP? but it was not helping in her case. She does get 3000 mg. of carnitor a day, co-q 10 and the vitamine cocktail. crys often with stomach pain a warm rag seems to help some(we just have to watch it does not cause a fever) When she has a BM it is liquid but still seems like a great struggle for her. I hope you find some help if you find any great ideas please share them as I will too.

Cyndi

http://groups.yahoo.com/group/Mito/

[Guest guest]

Thanks for your help . I appreciate it. I will be most happy to share any ideas with you but most of my info has come from the group so you will have seen this yourself. They have been so very helpful and supportive.

I just feel so alone here in New-Zealand.

Hugs,

.

jennifer slow motility

Dear

Our daughter also suffers with slow or no motility. I wish I had a great idea for ya but we are still having problems. I share with you the thought of it not being constipation but rather the muscle not moving things. Our daughter is j tube fed very little and the rest is TPN due to the vomiting, I swear it just does not move one time we had fried rice on one day and she threw up fried rice two days later she is now just about liquid only and a very small amount. She is on a rather large dose of Milk of Magnesia, and reglan she was on the eythromyacin SP? but it was not helping in her case. She does get 3000 mg. of carnitor a day, co-q 10 and the vitamine cocktail. crys often with stomach pain a warm rag seems to help some(we just have to watch it does not cause a fever) When she has a BM it is liquid but still seems like a great struggle for her. I hope you find some help if you find any great ideas please share them as I will too.

Cyndi

http://groups.yahoo.com/group/Mito/