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Hi Pamela that is so great to hear about Dinos feet. Your story really made me

feel comfortable about going there all alone. I was scared but excited at the

same time that Noah will finally have a straight foot. Dr. Ponsti sounds

wonderful. I really cant wait to meet him and I'm so greatful that he himself

will be working on my son's foot. That is something that will be a treasured

experiance for my son because this method is going to go on forever and my son

and all of the children who have ben blessed by him can say in 50 years that

they got treated by " THE " Dr. Ponseti the legand. I can't wait until I come back

and can share my stories with all of you, I hope I have a sucess story to tell

like you when my son is 5. Did you travel all the way from Greese to see him?

thats amazing. I was there last summer, in fact Noah was concieved there, in

Cyprus. Its so beautiful, I cant wait until Noah is a little bit older so we can

take him they have the most beautiful beaches I have ever

seen. Well I'm glad you had such a wonderful time in Iowa I hope I can have a

great experiance too and meet other mom's going through the same thing. Did Dr.

Ponseti send your son home in a cast? When does he do the tenotomy on the last

day? was Dinos fussy afterwards? Well thanks for sharing your story its a

wonderful story with a happy ending and I hope someday I can say the same for

myself. Take care.

Noah 03/20/05 lcf

pkarydas wrote:

Hi and Noah,

I am Pamela Karydas, and our son Konstantinos (Dinos) has been twice

to Iowa to see Dr. Ponseti. The first time, I took him there,

alone, when he was only three months old. You will LOVE Dr.

Ponseti. (Please tell him Pamela and Dinos from Greece send him a

big hug.) I'll tell you a bit about our trips. I did not stay at the

McD. house; I think I stayed at Comfort Inn, but only

because, the first time, I didn't know about the McD House, and the

second time was just an overnight so we stayed in the hotel again.

But I was told that the McD house has a shuttle bus to take people

to the hospital and for shopping, etc., and that there are kitchen

and laundry facilities and that the rooms are nice. As for seeing

Dr. Ponseti, he saw us every time exactly at our appointed time, and

he was so patient and so talkative and so wonderful with the baby

and so concerned about how I was doing; I just could not believe

it. You know how most docs are in and out of the room in two

minutes and you feel like they're just in a big hurry to get to the

next patient? You never feel like that with Dr. Ponseti. As a

matter of fact (here's a little story for you), on our first trip

there, Dinos saw Dr. Ponseti three times in ten days. At the end of

the third appointment, Dr. Ponseti was called to the phone and I

finished dressing Dinos and talking with the nurse and then, since

Dr. Ponseti had said he was done with Dinos, I left. I was

returning home to Greece the next morning and was at the hotel that

night packing when Dr. Ponseti called me at 9:30pm. He wanted to

apologize for not having a chance to say goodbye to us before we

left the hospital! So he chatted with me for a few minutes, as

though he had all the time in the world. I just could not believe

how wonderful he was to us. I know you will feel the same.

As for things to do there, I rented a car because I was there for

nearly two weeks the first time, and I was so happy to have that

car. Otherwise, I just would have stayed in the hotel room with

Dinos, who was still sleeping a lot at that time and was in casts

from toes to groin on both legs. It will be better for you because

at the McD house, you'll have other people to talk with. Anyway, I

had the rental car and I had Dinos' car seat and stroller, so I just

took myself off to some place every day-- shopping, restaurants,

parks, whatever, just to be out of the room and have somebody to

talk with besides a three-month-old! There is a huge shopping mall

and I spent a lot of time mall walking with the stroller, and (my

favorite) having a nice cup of tea at & Noble while reading a

book during Dinos' naps. I also went to a couple of movies at the

mall, taking Dinos in his stroller while he was asleep. The theatre

employees were very nice about it, and Dinos just slept through the

movies. I also found out from Dr. Ponseti's office about some other

parents who were there at the same time, from Canada, and we phoned

each other and met for dinner and then for coffee a couple of times

at each other's hotels. It was so great to have a chance to meet

other parents going through the same experience. I also met a woman

named McLaughlin, who lives nearby and whose son Jakob was a

patient of Dr. Ponseti's. was totally fabulous and really

helped me out so much; I am forever grateful to her. I believe she

maintains this website and you can find her listed in the members

list. Anyway, I will end by saying that Dr. Ponseti gave

Dinos " early release " (as my husband calls it) from the brace when

he was only 2 1/2 years old. He's now five years old and his feet

are beautiful. He had moderate CF both feet, and we never had

surgery. Just Dr. Feldman in NY and Dr. Ponseti, the casts,

tenotomy and DBB. It wasn't easy, but it was so very worth it.

Dinos doesn't remember any of it, not even the brace, and doctors

who see his feet can't believe he was born with CF. So, you are

absolutely doing the right thing by going to Dr. Ponseti. By the

way, when you're there at the hospital, go see " The Ponseti Quilt "

which was made by one of the moms and is hanging in the hallway.

Dinos is the baby in the upper left corner. Take care and let us

know how Noah progresses. Best wishes -- Pamela

> Hey everybody my name is , my son Noah was born with club

foot

> in the left foot. He is 4 months old, we have been through the

ringer

> with casts and doctors and now they want to do sergery. I got in

> touch with Dr. Ponseti and I'm going to Iowa Aug. 2nd. I'm looking

> forward to the trip, I will be staying there until his foot

> correction is completed since I'm travling from California. I have

a

> couple of questions about when I get there for any of you who have

> made the trip. I plan to stay at

> the Mc house. How far is that from the hospital? Is

it

> a

> nice place to stay? is it a nice place for long term? Whats near

> there,

> since I wont know anybody what is there to do down there? And last

> whats it like when you go to your appoinment with Dr. Ponseti, I'm

> aware thats its a clinic on Mon, Weds, & Fri so is it like

everyone

> goes at once and the Dr makes his rounds? How long does each

> appointment take? Please I'd love to hear about anyones

experiances

> there. Thanks,

> & Noah

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Hi Pamela that is so great to hear about Dinos feet. Your story really made me

feel comfortable about going there all alone. I was scared but excited at the

same time that Noah will finally have a straight foot. Dr. Ponsti sounds

wonderful. I really cant wait to meet him and I'm so greatful that he himself

will be working on my son's foot. That is something that will be a treasured

experiance for my son because this method is going to go on forever and my son

and all of the children who have ben blessed by him can say in 50 years that

they got treated by " THE " Dr. Ponseti the legand. I can't wait until I come back

and can share my stories with all of you, I hope I have a sucess story to tell

like you when my son is 5. Did you travel all the way from Greese to see him?

thats amazing. I was there last summer, in fact Noah was concieved there, in

Cyprus. Its so beautiful, I cant wait until Noah is a little bit older so we can

take him they have the most beautiful beaches I have ever

seen. Well I'm glad you had such a wonderful time in Iowa I hope I can have a

great experiance too and meet other mom's going through the same thing. Did Dr.

Ponseti send your son home in a cast? When does he do the tenotomy on the last

day? was Dinos fussy afterwards? Well thanks for sharing your story its a

wonderful story with a happy ending and I hope someday I can say the same for

myself. Take care.

Noah 03/20/05 lcf

pkarydas wrote:

Hi and Noah,

I am Pamela Karydas, and our son Konstantinos (Dinos) has been twice

to Iowa to see Dr. Ponseti. The first time, I took him there,

alone, when he was only three months old. You will LOVE Dr.

Ponseti. (Please tell him Pamela and Dinos from Greece send him a

big hug.) I'll tell you a bit about our trips. I did not stay at the

McD. house; I think I stayed at Comfort Inn, but only

because, the first time, I didn't know about the McD House, and the

second time was just an overnight so we stayed in the hotel again.

But I was told that the McD house has a shuttle bus to take people

to the hospital and for shopping, etc., and that there are kitchen

and laundry facilities and that the rooms are nice. As for seeing

Dr. Ponseti, he saw us every time exactly at our appointed time, and

he was so patient and so talkative and so wonderful with the baby

and so concerned about how I was doing; I just could not believe

it. You know how most docs are in and out of the room in two

minutes and you feel like they're just in a big hurry to get to the

next patient? You never feel like that with Dr. Ponseti. As a

matter of fact (here's a little story for you), on our first trip

there, Dinos saw Dr. Ponseti three times in ten days. At the end of

the third appointment, Dr. Ponseti was called to the phone and I

finished dressing Dinos and talking with the nurse and then, since

Dr. Ponseti had said he was done with Dinos, I left. I was

returning home to Greece the next morning and was at the hotel that

night packing when Dr. Ponseti called me at 9:30pm. He wanted to

apologize for not having a chance to say goodbye to us before we

left the hospital! So he chatted with me for a few minutes, as

though he had all the time in the world. I just could not believe

how wonderful he was to us. I know you will feel the same.

As for things to do there, I rented a car because I was there for

nearly two weeks the first time, and I was so happy to have that

car. Otherwise, I just would have stayed in the hotel room with

Dinos, who was still sleeping a lot at that time and was in casts

from toes to groin on both legs. It will be better for you because

at the McD house, you'll have other people to talk with. Anyway, I

had the rental car and I had Dinos' car seat and stroller, so I just

took myself off to some place every day-- shopping, restaurants,

parks, whatever, just to be out of the room and have somebody to

talk with besides a three-month-old! There is a huge shopping mall

and I spent a lot of time mall walking with the stroller, and (my

favorite) having a nice cup of tea at & Noble while reading a

book during Dinos' naps. I also went to a couple of movies at the

mall, taking Dinos in his stroller while he was asleep. The theatre

employees were very nice about it, and Dinos just slept through the

movies. I also found out from Dr. Ponseti's office about some other

parents who were there at the same time, from Canada, and we phoned

each other and met for dinner and then for coffee a couple of times

at each other's hotels. It was so great to have a chance to meet

other parents going through the same experience. I also met a woman

named McLaughlin, who lives nearby and whose son Jakob was a

patient of Dr. Ponseti's. was totally fabulous and really

helped me out so much; I am forever grateful to her. I believe she

maintains this website and you can find her listed in the members

list. Anyway, I will end by saying that Dr. Ponseti gave

Dinos " early release " (as my husband calls it) from the brace when

he was only 2 1/2 years old. He's now five years old and his feet

are beautiful. He had moderate CF both feet, and we never had

surgery. Just Dr. Feldman in NY and Dr. Ponseti, the casts,

tenotomy and DBB. It wasn't easy, but it was so very worth it.

Dinos doesn't remember any of it, not even the brace, and doctors

who see his feet can't believe he was born with CF. So, you are

absolutely doing the right thing by going to Dr. Ponseti. By the

way, when you're there at the hospital, go see " The Ponseti Quilt "

which was made by one of the moms and is hanging in the hallway.

Dinos is the baby in the upper left corner. Take care and let us

know how Noah progresses. Best wishes -- Pamela

> Hey everybody my name is , my son Noah was born with club

foot

> in the left foot. He is 4 months old, we have been through the

ringer

> with casts and doctors and now they want to do sergery. I got in

> touch with Dr. Ponseti and I'm going to Iowa Aug. 2nd. I'm looking

> forward to the trip, I will be staying there until his foot

> correction is completed since I'm travling from California. I have

a

> couple of questions about when I get there for any of you who have

> made the trip. I plan to stay at

> the Mc house. How far is that from the hospital? Is

it

> a

> nice place to stay? is it a nice place for long term? Whats near

> there,

> since I wont know anybody what is there to do down there? And last

> whats it like when you go to your appoinment with Dr. Ponseti, I'm

> aware thats its a clinic on Mon, Weds, & Fri so is it like

everyone

> goes at once and the Dr makes his rounds? How long does each

> appointment take? Please I'd love to hear about anyones

experiances

> there. Thanks,

> & Noah

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Hi again , I'm glad our story helped you in thinking our being

in Iowa City. It's tough going alone, but you won't really be alone

because you will have Noah and I'm sure he's a full-time job. Plus,

I see that wrote to you. Do meet her if you can; she's so

wonderful. To answer your questions: Yes, I took Dinos all the way

from Greece to Iowa, but I should say that he was born in NY since I

was high-risk and we knew about his clubfeet, and he was treated

from three days old, with the Ponseti Method, by Dr. Feldman

in New York. It was Dr. Feldman who corrected his feet and did the

tenotomy and no, Dinos wasn't too fussy afterward as I'd given him

Tylenol before. After Dr. Feldman finished with the last casts and

we got the DBB, we returned home to Greece but realized almost

immediately that Dinos would not keep his feet in the shoes. Dr.

Feldman was going on vacation so we called Dr. Ponseti; he agreed to

see Dinos and off we went! Dr. Ponseti cast Dinos again, three

times in 10 days, and he did send us back home to Greece with the

casts on. We had them removed here after about two weeks and

started with the DBB. Dinos wore it nearly constantly for three

months, then about 14-16 hours/day until he was 2 1/2. Then Dr.

Feldman and Dr. Ponseti said we were finished. I have just posted

some photos of Dinos' feet on this site. If you look in the " Files "

section you can see them. The file is called " Pictures of Dinos'

Feet " and shows him at 2 months, and again at 2 years. Hope this is

helpful. Good luck in Iowa!-- Pamela

In nosurgery4clubfoot , sarah nicoll

<bearalways03@y...> wrote:

> Hi Pamela that is so great to hear about Dinos feet. Your story

really made me feel comfortable about going there all alone. I was

scared but excited at the same time that Noah will finally have a

straight foot. Dr. Ponsti sounds wonderful. I really cant wait to

meet him and I'm so greatful that he himself will be working on my

son's foot. That is something that will be a treasured experiance

for my son because this method is going to go on forever and my son

and all of the children who have ben blessed by him can say in 50

years that they got treated by " THE " Dr. Ponseti the legand. I can't

wait until I come back and can share my stories with all of you, I

hope I have a sucess story to tell like you when my son is 5. Did

you travel all the way from Greese to see him? thats amazing. I was

there last summer, in fact Noah was concieved there, in Cyprus. Its

so beautiful, I cant wait until Noah is a little bit older so we can

take him they have the most beautiful beaches I have ever

> seen. Well I'm glad you had such a wonderful time in Iowa I hope

I can have a great experiance too and meet other mom's going through

the same thing. Did Dr. Ponseti send your son home in a cast? When

does he do the tenotomy on the last day? was Dinos fussy afterwards?

Well thanks for sharing your story its a wonderful story with a

happy ending and I hope someday I can say the same for myself. Take

care.

>

> Noah 03/20/05 lcf

>

> pkarydas <opxidaea@h...> wrote:

> Hi and Noah,

> I am Pamela Karydas, and our son Konstantinos (Dinos) has been

twice

> to Iowa to see Dr. Ponseti. The first time, I took him there,

> alone, when he was only three months old. You will LOVE Dr.

> Ponseti. (Please tell him Pamela and Dinos from Greece send him a

> big hug.) I'll tell you a bit about our trips. I did not stay at

the

> McD. house; I think I stayed at Comfort Inn, but only

> because, the first time, I didn't know about the McD House, and

the

> second time was just an overnight so we stayed in the hotel

again.

> But I was told that the McD house has a shuttle bus to take people

> to the hospital and for shopping, etc., and that there are kitchen

> and laundry facilities and that the rooms are nice. As for seeing

> Dr. Ponseti, he saw us every time exactly at our appointed time,

and

> he was so patient and so talkative and so wonderful with the baby

> and so concerned about how I was doing; I just could not believe

> it. You know how most docs are in and out of the room in two

> minutes and you feel like they're just in a big hurry to get to

the

> next patient? You never feel like that with Dr. Ponseti. As a

> matter of fact (here's a little story for you), on our first trip

> there, Dinos saw Dr. Ponseti three times in ten days. At the end

of

> the third appointment, Dr. Ponseti was called to the phone and I

> finished dressing Dinos and talking with the nurse and then, since

> Dr. Ponseti had said he was done with Dinos, I left. I was

> returning home to Greece the next morning and was at the hotel

that

> night packing when Dr. Ponseti called me at 9:30pm. He wanted to

> apologize for not having a chance to say goodbye to us before we

> left the hospital! So he chatted with me for a few minutes, as

> though he had all the time in the world. I just could not believe

> how wonderful he was to us. I know you will feel the same.

> As for things to do there, I rented a car because I was there for

> nearly two weeks the first time, and I was so happy to have that

> car. Otherwise, I just would have stayed in the hotel room with

> Dinos, who was still sleeping a lot at that time and was in casts

> from toes to groin on both legs. It will be better for you because

> at the McD house, you'll have other people to talk with. Anyway,

I

> had the rental car and I had Dinos' car seat and stroller, so I

just

> took myself off to some place every day-- shopping, restaurants,

> parks, whatever, just to be out of the room and have somebody to

> talk with besides a three-month-old! There is a huge shopping

mall

> and I spent a lot of time mall walking with the stroller, and (my

> favorite) having a nice cup of tea at & Noble while reading

a

> book during Dinos' naps. I also went to a couple of movies at the

> mall, taking Dinos in his stroller while he was asleep. The

theatre

> employees were very nice about it, and Dinos just slept through

the

> movies. I also found out from Dr. Ponseti's office about some

other

> parents who were there at the same time, from Canada, and we

phoned

> each other and met for dinner and then for coffee a couple of

times

> at each other's hotels. It was so great to have a chance to meet

> other parents going through the same experience. I also met a

woman

> named McLaughlin, who lives nearby and whose son Jakob was

a

> patient of Dr. Ponseti's. was totally fabulous and really

> helped me out so much; I am forever grateful to her. I believe

she

> maintains this website and you can find her listed in the members

> list. Anyway, I will end by saying that Dr. Ponseti gave

> Dinos " early release " (as my husband calls it) from the brace when

> he was only 2 1/2 years old. He's now five years old and his feet

> are beautiful. He had moderate CF both feet, and we never had

> surgery. Just Dr. Feldman in NY and Dr. Ponseti, the casts,

> tenotomy and DBB. It wasn't easy, but it was so very worth it.

> Dinos doesn't remember any of it, not even the brace, and doctors

> who see his feet can't believe he was born with CF. So, you are

> absolutely doing the right thing by going to Dr. Ponseti. By the

> way, when you're there at the hospital, go see " The Ponseti Quilt "

> which was made by one of the moms and is hanging in the hallway.

> Dinos is the baby in the upper left corner. Take care and let us

> know how Noah progresses. Best wishes -- Pamela

>

>

> > Hey everybody my name is , my son Noah was born with club

> foot

> > in the left foot. He is 4 months old, we have been through the

> ringer

> > with casts and doctors and now they want to do sergery. I got in

> > touch with Dr. Ponseti and I'm going to Iowa Aug. 2nd. I'm

looking

> > forward to the trip, I will be staying there until his foot

> > correction is completed since I'm travling from California. I

have

> a

> > couple of questions about when I get there for any of you who

have

> > made the trip. I plan to stay at

> > the Mc house. How far is that from the hospital?

Is

> it

> > a

> > nice place to stay? is it a nice place for long term? Whats near

> > there,

> > since I wont know anybody what is there to do down there? And

last

> > whats it like when you go to your appoinment with Dr. Ponseti,

I'm

> > aware thats its a clinic on Mon, Weds, & Fri so is it like

> everyone

> > goes at once and the Dr makes his rounds? How long does each

> > appointment take? Please I'd love to hear about anyones

> experiances

> > there. Thanks,

> > & Noah

>

>

>

>

>

>

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his feet are beautiful, you must be so proud. They really did a great job. that

must be a relief to have all the bars and cast and everything over with. I'm so

happy for you and little Dino's feet!

pkarydas wrote:Hi again , I'm glad our story helped

you in thinking our being

in Iowa City. It's tough going alone, but you won't really be alone

because you will have Noah and I'm sure he's a full-time job. Plus,

I see that wrote to you. Do meet her if you can; she's so

wonderful. To answer your questions: Yes, I took Dinos all the way

from Greece to Iowa, but I should say that he was born in NY since I

was high-risk and we knew about his clubfeet, and he was treated

from three days old, with the Ponseti Method, by Dr. Feldman

in New York. It was Dr. Feldman who corrected his feet and did the

tenotomy and no, Dinos wasn't too fussy afterward as I'd given him

Tylenol before. After Dr. Feldman finished with the last casts and

we got the DBB, we returned home to Greece but realized almost

immediately that Dinos would not keep his feet in the shoes. Dr.

Feldman was going on vacation so we called Dr. Ponseti; he agreed to

see Dinos and off we went! Dr. Ponseti cast Dinos again, three

times in 10 days, and he did send us back home to Greece with the

casts on. We had them removed here after about two weeks and

started with the DBB. Dinos wore it nearly constantly for three

months, then about 14-16 hours/day until he was 2 1/2. Then Dr.

Feldman and Dr. Ponseti said we were finished. I have just posted

some photos of Dinos' feet on this site. If you look in the " Files "

section you can see them. The file is called " Pictures of Dinos'

Feet " and shows him at 2 months, and again at 2 years. Hope this is

helpful. Good luck in Iowa!-- Pamela

In nosurgery4clubfoot , sarah nicoll

<bearalways03@y...> wrote:

> Hi Pamela that is so great to hear about Dinos feet. Your story

really made me feel comfortable about going there all alone. I was

scared but excited at the same time that Noah will finally have a

straight foot. Dr. Ponsti sounds wonderful. I really cant wait to

meet him and I'm so greatful that he himself will be working on my

son's foot. That is something that will be a treasured experiance

for my son because this method is going to go on forever and my son

and all of the children who have ben blessed by him can say in 50

years that they got treated by " THE " Dr. Ponseti the legand. I can't

wait until I come back and can share my stories with all of you, I

hope I have a sucess story to tell like you when my son is 5. Did

you travel all the way from Greese to see him? thats amazing. I was

there last summer, in fact Noah was concieved there, in Cyprus. Its

so beautiful, I cant wait until Noah is a little bit older so we can

take him they have the most beautiful beaches I have ever

> seen. Well I'm glad you had such a wonderful time in Iowa I hope

I can have a great experiance too and meet other mom's going through

the same thing. Did Dr. Ponseti send your son home in a cast? When

does he do the tenotomy on the last day? was Dinos fussy afterwards?

Well thanks for sharing your story its a wonderful story with a

happy ending and I hope someday I can say the same for myself. Take

care.

>

> Noah 03/20/05 lcf

>

> pkarydas <opxidaea@h...> wrote:

> Hi and Noah,

> I am Pamela Karydas, and our son Konstantinos (Dinos) has been

twice

> to Iowa to see Dr. Ponseti. The first time, I took him there,

> alone, when he was only three months old. You will LOVE Dr.

> Ponseti. (Please tell him Pamela and Dinos from Greece send him a

> big hug.) I'll tell you a bit about our trips. I did not stay at

the

> McD. house; I think I stayed at Comfort Inn, but only

> because, the first time, I didn't know about the McD House, and

the

> second time was just an overnight so we stayed in the hotel

again.

> But I was told that the McD house has a shuttle bus to take people

> to the hospital and for shopping, etc., and that there are kitchen

> and laundry facilities and that the rooms are nice. As for seeing

> Dr. Ponseti, he saw us every time exactly at our appointed time,

and

> he was so patient and so talkative and so wonderful with the baby

> and so concerned about how I was doing; I just could not believe

> it. You know how most docs are in and out of the room in two

> minutes and you feel like they're just in a big hurry to get to

the

> next patient? You never feel like that with Dr. Ponseti. As a

> matter of fact (here's a little story for you), on our first trip

> there, Dinos saw Dr. Ponseti three times in ten days. At the end

of

> the third appointment, Dr. Ponseti was called to the phone and I

> finished dressing Dinos and talking with the nurse and then, since

> Dr. Ponseti had said he was done with Dinos, I left. I was

> returning home to Greece the next morning and was at the hotel

that

> night packing when Dr. Ponseti called me at 9:30pm. He wanted to

> apologize for not having a chance to say goodbye to us before we

> left the hospital! So he chatted with me for a few minutes, as

> though he had all the time in the world. I just could not believe

> how wonderful he was to us. I know you will feel the same.

> As for things to do there, I rented a car because I was there for

> nearly two weeks the first time, and I was so happy to have that

> car. Otherwise, I just would have stayed in the hotel room with

> Dinos, who was still sleeping a lot at that time and was in casts

> from toes to groin on both legs. It will be better for you because

> at the McD house, you'll have other people to talk with. Anyway,

I

> had the rental car and I had Dinos' car seat and stroller, so I

just

> took myself off to some place every day-- shopping, restaurants,

> parks, whatever, just to be out of the room and have somebody to

> talk with besides a three-month-old! There is a huge shopping

mall

> and I spent a lot of time mall walking with the stroller, and (my

> favorite) having a nice cup of tea at & Noble while reading

a

> book during Dinos' naps. I also went to a couple of movies at the

> mall, taking Dinos in his stroller while he was asleep. The

theatre

> employees were very nice about it, and Dinos just slept through

the

> movies. I also found out from Dr. Ponseti's office about some

other

> parents who were there at the same time, from Canada, and we

phoned

> each other and met for dinner and then for coffee a couple of

times

> at each other's hotels. It was so great to have a chance to meet

> other parents going through the same experience. I also met a

woman

> named McLaughlin, who lives nearby and whose son Jakob was

a

> patient of Dr. Ponseti's. was totally fabulous and really

> helped me out so much; I am forever grateful to her. I believe

she

> maintains this website and you can find her listed in the members

> list. Anyway, I will end by saying that Dr. Ponseti gave

> Dinos " early release " (as my husband calls it) from the brace when

> he was only 2 1/2 years old. He's now five years old and his feet

> are beautiful. He had moderate CF both feet, and we never had

> surgery. Just Dr. Feldman in NY and Dr. Ponseti, the casts,

> tenotomy and DBB. It wasn't easy, but it was so very worth it.

> Dinos doesn't remember any of it, not even the brace, and doctors

> who see his feet can't believe he was born with CF. So, you are

> absolutely doing the right thing by going to Dr. Ponseti. By the

> way, when you're there at the hospital, go see " The Ponseti Quilt "

> which was made by one of the moms and is hanging in the hallway.

> Dinos is the baby in the upper left corner. Take care and let us

> know how Noah progresses. Best wishes -- Pamela

>

>

> > Hey everybody my name is , my son Noah was born with club

> foot

> > in the left foot. He is 4 months old, we have been through the

> ringer

> > with casts and doctors and now they want to do sergery. I got in

> > touch with Dr. Ponseti and I'm going to Iowa Aug. 2nd. I'm

looking

> > forward to the trip, I will be staying there until his foot

> > correction is completed since I'm travling from California. I

have

> a

> > couple of questions about when I get there for any of you who

have

> > made the trip. I plan to stay at

> > the Mc house. How far is that from the hospital?

Is

> it

> > a

> > nice place to stay? is it a nice place for long term? Whats near

> > there,

> > since I wont know anybody what is there to do down there? And

last

> > whats it like when you go to your appoinment with Dr. Ponseti,

I'm

> > aware thats its a clinic on Mon, Weds, & Fri so is it like

> everyone

> > goes at once and the Dr makes his rounds? How long does each

> > appointment take? Please I'd love to hear about anyones

> experiances

> > there. Thanks,

> > & Noah

>

>

>

>

>

>

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