Re: Does this sound right?

[Guest guest]

,

That is a great question! I don't think there is a such thing as " not quite

clubfoot " but I can't wait to read the responses from our parent experts on

here.

There is soooo much I still don't know.

Does this sound right?

Hi everyone-have a couple ???s for you. An acquaintance of ours had a

baby 3 months ago. We just found out that he is wearing the DBB. From

what we are told by the parents, their dr. said that the baby's feet

weren't " quite clubfoot, but almost " , and that it happened because he

was too cramped in the uterus. The dr. gave them three choices: Do

nothing and wait and see, try casting, or do surgery. They went with

the casting. He had 2 I believe because after the second time, the dr.

said his feet were so flexible that they wouldn't need to do more. He

is now in the DBB about 20 hrs. a day, but the dr. said they didn't

need to be religious about it-that if they wanted them to be off for a

day they could. Now I know that is not correct procedure for Ponseti,

but is there such a thing as not quite clubfoot? The parents said that

when the baby was born, his tendons were tight and that they could

barely bend his feet. My husband and I told them what our son had to

do-surgery, DBB 24/7, etc. We don't know these people very well, so we

didn't push the subject too hard mostly because our son had severe

clubfoot and thought maybe since this baby didn't, the protocol might

be a little different. What's the consensus here?

Jaren 4/18/02 rt. clubfoot

[Guest guest]

,

That is a great question! I don't think there is a such thing as " not quite

clubfoot " but I can't wait to read the responses from our parent experts on

here.

There is soooo much I still don't know.

Does this sound right?

Hi everyone-have a couple ???s for you. An acquaintance of ours had a

baby 3 months ago. We just found out that he is wearing the DBB. From

what we are told by the parents, their dr. said that the baby's feet

weren't " quite clubfoot, but almost " , and that it happened because he

was too cramped in the uterus. The dr. gave them three choices: Do

nothing and wait and see, try casting, or do surgery. They went with

the casting. He had 2 I believe because after the second time, the dr.

said his feet were so flexible that they wouldn't need to do more. He

is now in the DBB about 20 hrs. a day, but the dr. said they didn't

need to be religious about it-that if they wanted them to be off for a

day they could. Now I know that is not correct procedure for Ponseti,

but is there such a thing as not quite clubfoot? The parents said that

when the baby was born, his tendons were tight and that they could

barely bend his feet. My husband and I told them what our son had to

do-surgery, DBB 24/7, etc. We don't know these people very well, so we

didn't push the subject too hard mostly because our son had severe

clubfoot and thought maybe since this baby didn't, the protocol might

be a little different. What's the consensus here?

Jaren 4/18/02 rt. clubfoot

[Guest guest]

Hi,

The only thing that sounds like " not quite clubfoot " is metatarsus adductus

for which there is also a Ponseti method of treatment. Dr. Ponseti published

a paper on the procedure sometime in the sixties, IIRC.

If the doctor recommends more aggressive treatment later on, they can still

benefit from the Ponseti method since children as old as 18 months have been

successfully treated (maybe older now).

Dan

[Guest guest]

That's the only thing I can think of too... Or if the " clubfoot " truly was an

anomaly caused by interuterine cramping, the doctor may not be as concerned

about aggressive bracing due to the fact that the child wouldn't have an active

gene reenforcing a natural tendency for relapse.

dan & lisa wrote:Hi,

The only thing that sounds like " not quite clubfoot " is metatarsus adductus

for which there is also a Ponseti method of treatment. Dr. Ponseti published

a paper on the procedure sometime in the sixties, IIRC.

If the doctor recommends more aggressive treatment later on, they can still

benefit from the Ponseti method since children as old as 18 months have been

successfully treated (maybe older now).

Dan

[Guest guest]

,

This baby probably has a mild case of clubfoot- but it's most likely

clubfoot nonetheless.

If the calf muscle is slightly smaller and there's the tell-tale

crease in the mid-foot, that's what I would look for externally as a

non-medical person to know if it's clubfoot.

Are your acquaintances bringing this baby to the same doctor that

you use for Jaren? Maybe you could print off that Global-HELP

booklet and attach a note on the front with your doctor's

information on it and give it to them as a referral for a second

opinion.

I was initially told that my daughter had " positional clubfoot " also

and that would probably self-correct. I think they made this

determination because the foot was really flexible and could almost

be brought to neutral right after birth. Once we started seeing the

orhtopaedic surgeon though, they changed the diagnosis to clubfoot

that would most likely be corrected with just a few castings and

night splints due to the flexibility. Then, when the progress with

castings and AFO's stalled, they said she'd need the PMR to correct

it. Finally, I found out about the Ponseti method and high-tailed

it to Iowa.

Even after all that- it still took 4 casts and a tenotomy with Dr. P

to correct her foot. I guess I tell you this because flexibility

means nothing in the end. You have to make sure the bones are in

the right position and that the Achilles has enough stretch.

If you're comfortable with doing it- I think you should highly

suggest that these parents seek out a Ponseti doc because it would

be so much easier fixing the foot now versus dealing with a relapsed

foot when he's older (if it's even corrected now that is!). They

might be willing to seek out another doctor regardless since the one

they're going to sounds pretty wishy-washy anyway (who would offer

to do nothing or do surgery in the same breath?).

Keep us posted!

> Hi everyone-have a couple ???s for you. An acquaintance of ours

had a

> baby 3 months ago. We just found out that he is wearing the DBB.

From

> what we are told by the parents, their dr. said that the baby's

feet

> weren't " quite clubfoot, but almost " , and that it happened because

he

> was too cramped in the uterus. The dr. gave them three choices:

Do

> nothing and wait and see, try casting, or do surgery. They went

with

> the casting. He had 2 I believe because after the second time,

the dr.

> said his feet were so flexible that they wouldn't need to do

more. He

> is now in the DBB about 20 hrs. a day, but the dr. said they

didn't

> need to be religious about it-that if they wanted them to be off

for a

> day they could. Now I know that is not correct procedure for

Ponseti,

> but is there such a thing as not quite clubfoot? The parents said

that

> when the baby was born, his tendons were tight and that they could

> barely bend his feet. My husband and I told them what our son had

to

> do-surgery, DBB 24/7, etc. We don't know these people very well,

so we

> didn't push the subject too hard mostly because our son had severe

> clubfoot and thought maybe since this baby didn't, the protocol

might

> be a little different. What's the consensus here?

>

> Jaren 4/18/02 rt. clubfoot

[Guest guest]

My daughter was basically the same - though the notion of club foot was

never raised and now here we are at 18 mts -with varying dx. All agree that

she has some signs of a club foot but was called soemthing that looks like a

" very well treated club foot " . One of her feet straightened and is fine

today without any treatment - the other, we are doing a two to three time

casting and will likely do a heel cord release and brace. That is after a

lot of physical tx, an AFO and a three week casting with botox. Who knows.

Liz

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Does this sound right?

>Date: Mon, 25 Jul 2005 13:59:14 -0000

>

>Hi everyone-have a couple ???s for you. An acquaintance of ours had a

>baby 3 months ago. We just found out that he is wearing the DBB. From

>what we are told by the parents, their dr. said that the baby's feet

>weren't " quite clubfoot, but almost " , and that it happened because he

>was too cramped in the uterus. The dr. gave them three choices: Do

>nothing and wait and see, try casting, or do surgery. They went with

>the casting. He had 2 I believe because after the second time, the dr.

>said his feet were so flexible that they wouldn't need to do more. He

>is now in the DBB about 20 hrs. a day, but the dr. said they didn't

>need to be religious about it-that if they wanted them to be off for a

>day they could. Now I know that is not correct procedure for Ponseti,

>but is there such a thing as not quite clubfoot? The parents said that

>when the baby was born, his tendons were tight and that they could

>barely bend his feet. My husband and I told them what our son had to

>do-surgery, DBB 24/7, etc. We don't know these people very well, so we

>didn't push the subject too hard mostly because our son had severe

>clubfoot and thought maybe since this baby didn't, the protocol might

>be a little different. What's the consensus here?

>

>Jaren 4/18/02 rt. clubfoot

>

>

[Guest guest]

- they are not seeing the same dr. as us, but both drs. are at

the Mayo Clinic in Rochester. Our dr. didn't exactly follow protocol

either (he wanted Jaren in the shoes 24/7 until he was 1, and said

that we could get rid of the shoes by the time he was 2...we didn't

listen.) I do remember the mom saying that there IS a crease in the

baby's foot when I mentioned that Jaren had one. We did tell them

about Dr. P, of course, but they seem to be the kind of people that

believe and follow everything their dr. tells them. So I don't know

that even if I do pursue the matter, if they will even listen. All I

can do is give it a try.

-

> > Hi everyone-have a couple ???s for you. An acquaintance of ours

> had a

> > baby 3 months ago. We just found out that he is wearing the

DBB.

> From

> > what we are told by the parents, their dr. said that the baby's

> feet

> > weren't " quite clubfoot, but almost " , and that it happened

because

> he

> > was too cramped in the uterus. The dr. gave them three choices:

> Do

> > nothing and wait and see, try casting, or do surgery. They went

> with

> > the casting. He had 2 I believe because after the second time,

> the dr.

> > said his feet were so flexible that they wouldn't need to do

> more. He

> > is now in the DBB about 20 hrs. a day, but the dr. said they

> didn't

> > need to be religious about it-that if they wanted them to be off

> for a

> > day they could. Now I know that is not correct procedure for

> Ponseti,

> > but is there such a thing as not quite clubfoot? The parents

said

> that

> > when the baby was born, his tendons were tight and that they

could

> > barely bend his feet. My husband and I told them what our son

had

> to

> > do-surgery, DBB 24/7, etc. We don't know these people very well,

> so we

> > didn't push the subject too hard mostly because our son had

severe

> > clubfoot and thought maybe since this baby didn't, the protocol

> might

> > be a little different. What's the consensus here?

> >

> > Jaren 4/18/02 rt. clubfoot

[Guest guest]

- they are not seeing the same dr. as us, but both drs. are at

the Mayo Clinic in Rochester. Our dr. didn't exactly follow protocol

either (he wanted Jaren in the shoes 24/7 until he was 1, and said

that we could get rid of the shoes by the time he was 2...we didn't

listen.) I do remember the mom saying that there IS a crease in the

baby's foot when I mentioned that Jaren had one. We did tell them

about Dr. P, of course, but they seem to be the kind of people that

believe and follow everything their dr. tells them. So I don't know

that even if I do pursue the matter, if they will even listen. All I

can do is give it a try.

-

> > Hi everyone-have a couple ???s for you. An acquaintance of ours

> had a

> > baby 3 months ago. We just found out that he is wearing the

DBB.

> From

> > what we are told by the parents, their dr. said that the baby's

> feet

> > weren't " quite clubfoot, but almost " , and that it happened

because

> he

> > was too cramped in the uterus. The dr. gave them three choices:

> Do

> > nothing and wait and see, try casting, or do surgery. They went

> with

> > the casting. He had 2 I believe because after the second time,

> the dr.

> > said his feet were so flexible that they wouldn't need to do

> more. He

> > is now in the DBB about 20 hrs. a day, but the dr. said they

> didn't

> > need to be religious about it-that if they wanted them to be off

> for a

> > day they could. Now I know that is not correct procedure for

> Ponseti,

> > but is there such a thing as not quite clubfoot? The parents

said

> that

> > when the baby was born, his tendons were tight and that they

could

> > barely bend his feet. My husband and I told them what our son

had

> to

> > do-surgery, DBB 24/7, etc. We don't know these people very well,

> so we

> > didn't push the subject too hard mostly because our son had

severe

> > clubfoot and thought maybe since this baby didn't, the protocol

> might

> > be a little different. What's the consensus here?

> >

> > Jaren 4/18/02 rt. clubfoot

[Guest guest]

Do they live in the Rochester area? We live in Minneapolis and take

my son to Gillette, where we have been pleased with the care

Aleksander has been getting. Our doctor is listed on Ponsetti's site,

and thus far has been doing things according to protocol.

Considering Aleksander is in the FAB now and we've reduced hours down

to 18/7, I think it is safe to say she's done well for him!

I know Rochester to St. is a hike, but it isn't that bad of a

drive if you take Hwy 52 all the way. (I grew up in Cannon Falls,

about halfway between Rochester and the cities so I'm very familiar

with Hwy 52!)

If they would like to talk to someone with experience at Gillette,

I'd be happy to help!

> > > Hi everyone-have a couple ???s for you. An acquaintance of

ours

> > had a

> > > baby 3 months ago. We just found out that he is wearing the

> DBB.

> > From

> > > what we are told by the parents, their dr. said that the baby's

> > feet

> > > weren't " quite clubfoot, but almost " , and that it happened

> because

> > he

> > > was too cramped in the uterus. The dr. gave them three

choices:

> > Do

> > > nothing and wait and see, try casting, or do surgery. They

went

> > with

> > > the casting. He had 2 I believe because after the second time,

> > the dr.

> > > said his feet were so flexible that they wouldn't need to do

> > more. He

> > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > didn't

> > > need to be religious about it-that if they wanted them to be

off

> > for a

> > > day they could. Now I know that is not correct procedure for

> > Ponseti,

> > > but is there such a thing as not quite clubfoot? The parents

> said

> > that

> > > when the baby was born, his tendons were tight and that they

> could

> > > barely bend his feet. My husband and I told them what our son

> had

> > to

> > > do-surgery, DBB 24/7, etc. We don't know these people very

well,

> > so we

> > > didn't push the subject too hard mostly because our son had

> severe

> > > clubfoot and thought maybe since this baby didn't, the protocol

> > might

> > > be a little different. What's the consensus here?

> > >

> > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

Do they live in the Rochester area? We live in Minneapolis and take

my son to Gillette, where we have been pleased with the care

Aleksander has been getting. Our doctor is listed on Ponsetti's site,

and thus far has been doing things according to protocol.

Considering Aleksander is in the FAB now and we've reduced hours down

to 18/7, I think it is safe to say she's done well for him!

I know Rochester to St. is a hike, but it isn't that bad of a

drive if you take Hwy 52 all the way. (I grew up in Cannon Falls,

about halfway between Rochester and the cities so I'm very familiar

with Hwy 52!)

If they would like to talk to someone with experience at Gillette,

I'd be happy to help!

> > > Hi everyone-have a couple ???s for you. An acquaintance of

ours

> > had a

> > > baby 3 months ago. We just found out that he is wearing the

> DBB.

> > From

> > > what we are told by the parents, their dr. said that the baby's

> > feet

> > > weren't " quite clubfoot, but almost " , and that it happened

> because

> > he

> > > was too cramped in the uterus. The dr. gave them three

choices:

> > Do

> > > nothing and wait and see, try casting, or do surgery. They

went

> > with

> > > the casting. He had 2 I believe because after the second time,

> > the dr.

> > > said his feet were so flexible that they wouldn't need to do

> > more. He

> > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > didn't

> > > need to be religious about it-that if they wanted them to be

off

> > for a

> > > day they could. Now I know that is not correct procedure for

> > Ponseti,

> > > but is there such a thing as not quite clubfoot? The parents

> said

> > that

> > > when the baby was born, his tendons were tight and that they

> could

> > > barely bend his feet. My husband and I told them what our son

> had

> > to

> > > do-surgery, DBB 24/7, etc. We don't know these people very

well,

> > so we

> > > didn't push the subject too hard mostly because our son had

> severe

> > > clubfoot and thought maybe since this baby didn't, the protocol

> > might

> > > be a little different. What's the consensus here?

> > >

> > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

We live in Austin. I will mention this to some mutual friends of

ours-we don't see the other family that much.

Thanks for the info!

-

> > > > Hi everyone-have a couple ???s for you. An acquaintance of

> ours

> > > had a

> > > > baby 3 months ago. We just found out that he is wearing the

> > DBB.

> > > From

> > > > what we are told by the parents, their dr. said that the

baby's

> > > feet

> > > > weren't " quite clubfoot, but almost " , and that it happened

> > because

> > > he

> > > > was too cramped in the uterus. The dr. gave them three

> choices:

> > > Do

> > > > nothing and wait and see, try casting, or do surgery. They

> went

> > > with

> > > > the casting. He had 2 I believe because after the second

time,

> > > the dr.

> > > > said his feet were so flexible that they wouldn't need to do

> > > more. He

> > > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > > didn't

> > > > need to be religious about it-that if they wanted them to be

> off

> > > for a

> > > > day they could. Now I know that is not correct procedure for

> > > Ponseti,

> > > > but is there such a thing as not quite clubfoot? The parents

> > said

> > > that

> > > > when the baby was born, his tendons were tight and that they

> > could

> > > > barely bend his feet. My husband and I told them what our

son

> > had

> > > to

> > > > do-surgery, DBB 24/7, etc. We don't know these people very

> well,

> > > so we

> > > > didn't push the subject too hard mostly because our son had

> > severe

> > > > clubfoot and thought maybe since this baby didn't, the

protocol

> > > might

> > > > be a little different. What's the consensus here?

> > > >

> > > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

We live in Austin. I will mention this to some mutual friends of

ours-we don't see the other family that much.

Thanks for the info!

-

> > > > Hi everyone-have a couple ???s for you. An acquaintance of

> ours

> > > had a

> > > > baby 3 months ago. We just found out that he is wearing the

> > DBB.

> > > From

> > > > what we are told by the parents, their dr. said that the

baby's

> > > feet

> > > > weren't " quite clubfoot, but almost " , and that it happened

> > because

> > > he

> > > > was too cramped in the uterus. The dr. gave them three

> choices:

> > > Do

> > > > nothing and wait and see, try casting, or do surgery. They

> went

> > > with

> > > > the casting. He had 2 I believe because after the second

time,

> > > the dr.

> > > > said his feet were so flexible that they wouldn't need to do

> > > more. He

> > > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > > didn't

> > > > need to be religious about it-that if they wanted them to be

> off

> > > for a

> > > > day they could. Now I know that is not correct procedure for

> > > Ponseti,

> > > > but is there such a thing as not quite clubfoot? The parents

> > said

> > > that

> > > > when the baby was born, his tendons were tight and that they

> > could

> > > > barely bend his feet. My husband and I told them what our

son

> > had

> > > to

> > > > do-surgery, DBB 24/7, etc. We don't know these people very

> well,

> > > so we

> > > > didn't push the subject too hard mostly because our son had

> > severe

> > > > clubfoot and thought maybe since this baby didn't, the

protocol

> > > might

> > > > be a little different. What's the consensus here?

> > > >

> > > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

--- kannhoudek wrote:

> Do they live in the Rochester area? We live in Minneapolis and take

> my son to Gillette, where we have been pleased with the care

> Aleksander has been getting. Our doctor is listed on Ponsetti's site,

> and thus far has been doing things according to protocol.

> Considering Aleksander is in the FAB now and we've reduced hours down

> to 18/7, I think it is safe to say she's done well for him!

,

We are approaching delivery day (mid-September), and I'm trying to get our

ducks in a row. Who is the doctor you see at Gillette? We are going to Abbott

Northwestern right now for all the spina bifida stuff, but we're looking into

our options. Do you have any idea about Gillette and spina bifida treatment?

How qualified they are? I'm going to try and get on the phone and find out

more at some point!

> If they would like to talk to someone with experience at Gillette,

> I'd be happy to help!

I know this wasn't addressed to me, but you've made the offer before.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________

[Guest guest]

--- kannhoudek wrote:

> Do they live in the Rochester area? We live in Minneapolis and take

> my son to Gillette, where we have been pleased with the care

> Aleksander has been getting. Our doctor is listed on Ponsetti's site,

> and thus far has been doing things according to protocol.

> Considering Aleksander is in the FAB now and we've reduced hours down

> to 18/7, I think it is safe to say she's done well for him!

,

We are approaching delivery day (mid-September), and I'm trying to get our

ducks in a row. Who is the doctor you see at Gillette? We are going to Abbott

Northwestern right now for all the spina bifida stuff, but we're looking into

our options. Do you have any idea about Gillette and spina bifida treatment?

How qualified they are? I'm going to try and get on the phone and find out

more at some point!

> If they would like to talk to someone with experience at Gillette,

> I'd be happy to help!

I know this wasn't addressed to me, but you've made the offer before.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________

[Guest guest]

Hey, ,

I know that Joy (Rose's mom) was looking into finding out if they

offered the Ponseti method at Mayo for her upcoming baby's birth- so

maybe you could email her about your experiences there if you

haven't " talked " with her already!

Good luck with the other folks and keep us posted!

> > > Hi everyone-have a couple ???s for you. An acquaintance of

ours

> > had a

> > > baby 3 months ago. We just found out that he is wearing the

> DBB.

> > From

> > > what we are told by the parents, their dr. said that the

baby's

> > feet

> > > weren't " quite clubfoot, but almost " , and that it happened

> because

> > he

> > > was too cramped in the uterus. The dr. gave them three

choices:

> > Do

> > > nothing and wait and see, try casting, or do surgery. They

went

> > with

> > > the casting. He had 2 I believe because after the second

time,

> > the dr.

> > > said his feet were so flexible that they wouldn't need to do

> > more. He

> > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > didn't

> > > need to be religious about it-that if they wanted them to be

off

> > for a

> > > day they could. Now I know that is not correct procedure for

> > Ponseti,

> > > but is there such a thing as not quite clubfoot? The parents

> said

> > that

> > > when the baby was born, his tendons were tight and that they

> could

> > > barely bend his feet. My husband and I told them what our son

> had

> > to

> > > do-surgery, DBB 24/7, etc. We don't know these people very

well,

> > so we

> > > didn't push the subject too hard mostly because our son had

> severe

> > > clubfoot and thought maybe since this baby didn't, the

protocol

> > might

> > > be a little different. What's the consensus here?

> > >

> > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

Hey, ,

I know that Joy (Rose's mom) was looking into finding out if they

offered the Ponseti method at Mayo for her upcoming baby's birth- so

maybe you could email her about your experiences there if you

haven't " talked " with her already!

Good luck with the other folks and keep us posted!

> > > Hi everyone-have a couple ???s for you. An acquaintance of

ours

> > had a

> > > baby 3 months ago. We just found out that he is wearing the

> DBB.

> > From

> > > what we are told by the parents, their dr. said that the

baby's

> > feet

> > > weren't " quite clubfoot, but almost " , and that it happened

> because

> > he

> > > was too cramped in the uterus. The dr. gave them three

choices:

> > Do

> > > nothing and wait and see, try casting, or do surgery. They

went

> > with

> > > the casting. He had 2 I believe because after the second

time,

> > the dr.

> > > said his feet were so flexible that they wouldn't need to do

> > more. He

> > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > didn't

> > > need to be religious about it-that if they wanted them to be

off

> > for a

> > > day they could. Now I know that is not correct procedure for

> > Ponseti,

> > > but is there such a thing as not quite clubfoot? The parents

> said

> > that

> > > when the baby was born, his tendons were tight and that they

> could

> > > barely bend his feet. My husband and I told them what our son

> had

> > to

> > > do-surgery, DBB 24/7, etc. We don't know these people very

well,

> > so we

> > > didn't push the subject too hard mostly because our son had

> severe

> > > clubfoot and thought maybe since this baby didn't, the

protocol

> > might

> > > be a little different. What's the consensus here?

> > >

> > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

Never mind- I replied to this prior to seeing that Joy was on-line

and responding to posts. I'm sure she'll email you about Mayo if

she still needs info. Hi, Joy!

> > > > Hi everyone-have a couple ???s for you. An acquaintance of

> ours

> > > had a

> > > > baby 3 months ago. We just found out that he is wearing the

> > DBB.

> > > From

> > > > what we are told by the parents, their dr. said that the

> baby's

> > > feet

> > > > weren't " quite clubfoot, but almost " , and that it happened

> > because

> > > he

> > > > was too cramped in the uterus. The dr. gave them three

> choices:

> > > Do

> > > > nothing and wait and see, try casting, or do surgery. They

> went

> > > with

> > > > the casting. He had 2 I believe because after the second

> time,

> > > the dr.

> > > > said his feet were so flexible that they wouldn't need to do

> > > more. He

> > > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > > didn't

> > > > need to be religious about it-that if they wanted them to be

> off

> > > for a

> > > > day they could. Now I know that is not correct procedure

for

> > > Ponseti,

> > > > but is there such a thing as not quite clubfoot? The

parents

> > said

> > > that

> > > > when the baby was born, his tendons were tight and that they

> > could

> > > > barely bend his feet. My husband and I told them what our

son

> > had

> > > to

> > > > do-surgery, DBB 24/7, etc. We don't know these people very

> well,

> > > so we

> > > > didn't push the subject too hard mostly because our son had

> > severe

> > > > clubfoot and thought maybe since this baby didn't, the

> protocol

> > > might

> > > > be a little different. What's the consensus here?

> > > >

> > > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

Never mind- I replied to this prior to seeing that Joy was on-line

and responding to posts. I'm sure she'll email you about Mayo if

she still needs info. Hi, Joy!

> > > > Hi everyone-have a couple ???s for you. An acquaintance of

> ours

> > > had a

> > > > baby 3 months ago. We just found out that he is wearing the

> > DBB.

> > > From

> > > > what we are told by the parents, their dr. said that the

> baby's

> > > feet

> > > > weren't " quite clubfoot, but almost " , and that it happened

> > because

> > > he

> > > > was too cramped in the uterus. The dr. gave them three

> choices:

> > > Do

> > > > nothing and wait and see, try casting, or do surgery. They

> went

> > > with

> > > > the casting. He had 2 I believe because after the second

> time,

> > > the dr.

> > > > said his feet were so flexible that they wouldn't need to do

> > > more. He

> > > > is now in the DBB about 20 hrs. a day, but the dr. said they

> > > didn't

> > > > need to be religious about it-that if they wanted them to be

> off

> > > for a

> > > > day they could. Now I know that is not correct procedure

for

> > > Ponseti,

> > > > but is there such a thing as not quite clubfoot? The

parents

> > said

> > > that

> > > > when the baby was born, his tendons were tight and that they

> > could

> > > > barely bend his feet. My husband and I told them what our

son

> > had

> > > to

> > > > do-surgery, DBB 24/7, etc. We don't know these people very

> well,

> > > so we

> > > > didn't push the subject too hard mostly because our son had

> > severe

> > > > clubfoot and thought maybe since this baby didn't, the

> protocol

> > > might

> > > > be a little different. What's the consensus here?

> > > >

> > > > Jaren 4/18/02 rt. clubfoot

[Guest guest]

You can e-mail me privately at kannhoudek @ yahoo.com.

The doctor we see is Dr. Quanbeck. We like her quite a bit, the

casting crew at Gillette is amazing, and when you reach the FAB

point, ask for in ATD and try to stay away from Kathy. Kathy

was nice, but a bit stubborn. From what I've been told, is sort

of the mentor and troubleshooter for the department and everytime

we've seen him, we've come home with shoes that don't have problems.

I'm assuming since you are on this message board that you have

internet access available to you. Gillette's website has all of the

contact information you'll need.

Here is a link to a page that has several links about clubfoot:

http://www.gillettechildrens.org/default.cfm/PID=1.7.9.3

I don't know anything about spina bifida, but it does appear that

Gillette has a spina bifida clinic. Here is a link to that portion

of their site:

http://www.gillettechildrens.org/default.cfm/PID=1.3.18

To reach Gillette by phone, you can call or toll-free

.

I'm not sure how things work for your insurance but our insurance

doesn't require a referral so we were able to just set up an

appointment by calling the numbers listed above. After that, things

moved quite quickly. Aleksander did get a later start because he was

born premature and had a brief stay at the NICU at Fairview

Riverside, who don't treat clubfoot using Ponsetti. Thankfully they

told us to go to Gillette!

Will you have your baby at Abbott, or in your home town. I thought I

remembered that you were in Wisconsin, is that right?

A co-worker of mine is due shortly and will be having her baby at

Abbott. They chose to go there becuase her baby may have a problem

with her heart. Abbott is very well-known for their cardiac care and

if you have a choice, why not see the best!

>

> > Do they live in the Rochester area? We live in Minneapolis and

take

> > my son to Gillette, where we have been pleased with the care

> > Aleksander has been getting. Our doctor is listed on Ponsetti's

site,

> > and thus far has been doing things according to protocol.

> > Considering Aleksander is in the FAB now and we've reduced hours

down

> > to 18/7, I think it is safe to say she's done well for him!

>

> ,

> We are approaching delivery day (mid-September), and I'm trying to

get our

> ducks in a row. Who is the doctor you see at Gillette? We are

going to Abbott

> Northwestern right now for all the spina bifida stuff, but we're

looking into

> our options. Do you have any idea about Gillette and spina bifida

treatment?

> How qualified they are? I'm going to try and get on the phone and

find out

> more at some point!

>

>

> > If they would like to talk to someone with experience at

Gillette,

> > I'd be happy to help!

>

> I know this wasn't addressed to me, but you've made the offer

before.

>

> Joy

>

> http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

> __________________________________________________

>

[Guest guest]

You can e-mail me privately at kannhoudek @ yahoo.com.

The doctor we see is Dr. Quanbeck. We like her quite a bit, the

casting crew at Gillette is amazing, and when you reach the FAB

point, ask for in ATD and try to stay away from Kathy. Kathy

was nice, but a bit stubborn. From what I've been told, is sort

of the mentor and troubleshooter for the department and everytime

we've seen him, we've come home with shoes that don't have problems.

I'm assuming since you are on this message board that you have

internet access available to you. Gillette's website has all of the

contact information you'll need.

Here is a link to a page that has several links about clubfoot:

http://www.gillettechildrens.org/default.cfm/PID=1.7.9.3

I don't know anything about spina bifida, but it does appear that

Gillette has a spina bifida clinic. Here is a link to that portion

of their site:

http://www.gillettechildrens.org/default.cfm/PID=1.3.18

To reach Gillette by phone, you can call or toll-free

.

I'm not sure how things work for your insurance but our insurance

doesn't require a referral so we were able to just set up an

appointment by calling the numbers listed above. After that, things

moved quite quickly. Aleksander did get a later start because he was

born premature and had a brief stay at the NICU at Fairview

Riverside, who don't treat clubfoot using Ponsetti. Thankfully they

told us to go to Gillette!

Will you have your baby at Abbott, or in your home town. I thought I

remembered that you were in Wisconsin, is that right?

A co-worker of mine is due shortly and will be having her baby at

Abbott. They chose to go there becuase her baby may have a problem

with her heart. Abbott is very well-known for their cardiac care and

if you have a choice, why not see the best!

>

> > Do they live in the Rochester area? We live in Minneapolis and

take

> > my son to Gillette, where we have been pleased with the care

> > Aleksander has been getting. Our doctor is listed on Ponsetti's

site,

> > and thus far has been doing things according to protocol.

> > Considering Aleksander is in the FAB now and we've reduced hours

down

> > to 18/7, I think it is safe to say she's done well for him!

>

> ,

> We are approaching delivery day (mid-September), and I'm trying to

get our

> ducks in a row. Who is the doctor you see at Gillette? We are

going to Abbott

> Northwestern right now for all the spina bifida stuff, but we're

looking into

> our options. Do you have any idea about Gillette and spina bifida

treatment?

> How qualified they are? I'm going to try and get on the phone and

find out

> more at some point!

>

>

> > If they would like to talk to someone with experience at

Gillette,

> > I'd be happy to help!

>

> I know this wasn't addressed to me, but you've made the offer

before.

>

> Joy

>

> http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

> __________________________________________________

>