Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Hello, I am fairly new to the chat group and wanted to share my experience with you about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast since before he was 24 hours old and has had a tenotomy. He has been in the Markell boots since 6/25/05. His feet look great but Dr. said that he has to wear the shoes 23/7 for 3 years. He told me that when Diego begins to pull up and stand that I can remove the bar so that he can crawl/walk but he has to remain in the shoes for the 23 hours????? I asked him how closely he followed Ponseti's method and he said very, but it just doesn't make sense?? Has anyone had a similiar experience?? On a different note, I met a wonderful woman on this site who lives in Az and has offered much support and a trip to see Dr. Ponseti. She will be taking her 2 year old beautiful son who is in the shoes and has beautiful feet and I will be taking my little Diego to get Dr. Ponseti to work his magic. Thank you to all who write and support us all, I feel so blessed to be part of this support group! Kindly, mom of Diego BCC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 At 09:14 PM 7/25/2005, you wrote: >Hello, > >I am fairly new to the chat group and wanted to share my experience with you >about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow >Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast >since before >he was 24 hours old and has had a tenotomy. He has been in the Markell boots >since 6/25/05. His feet look great but Dr. said that he has to wear the shoes >23/7 for 3 years. He told me that when Diego begins to pull up and stand that >I can remove the bar so that he can crawl/walk but he has to remain in the >shoes for the 23 hours????? I asked him how closely he followed >Ponseti's method >and he said very, but it just doesn't make sense?? Has anyone had a similiar >experience?? Another LIAR!!! This isn't the Ponseti Method at all. The shoes by themselves are absolutely worthless for your son's feet. Even more worthless than AFO's. Jeez! You ONLY do 23/7 for 3 months. Then you can reduce gradually (about every 3mo's) till he's at 14-16 till walking. Then he wears them at least 14hr/d (or 12-14 - that's not 100% clarified yet - some discussion about that recently) till he's 3-4yo. I suggest that you email Dr. Ponseti and tell him this doc is saying he's following the method and tell him your plan. He will reply with the above information (maybe more specific) and you can then print it and take it to your Doc and tell him that you will be following that protocol only. He is not following the method if he's not bracing properly and his patients will likely have issues. I feel sorry for the parents who accept this 23/7 forever crap (sorry~ but's crap!). I would imagine the major majority of parents won't follow through with that much full time wear anyway, and if you discard the bar at walking and just wear the shoes alone relapse is very likely. The major growth spurts that happen between 2 and 5yo are what forces the relapses for those who discard the bar early and that's why it's necessary for the 12-14hr till release. I sincerely doubt 23/7 wear for over a year will ward this off, there is no point in doing it that way. Your son should be able to wear normal shoes when he's not in the brace, in fact barefoot is actually good for his feet. Surely not stiff soled straight last $90 shoes... >On a different note, I met a wonderful woman on this site who lives in Az and >has offered much support and a trip to see Dr. Ponseti. She will be taking >her 2 year old beautiful son who is in the shoes and has >beautiful feet >and I will be taking my little Diego to get Dr. Ponseti to work his magic. >Thank you to all who write and support us all, I feel so blessed to >be part of >this support group! LOL! Well I should read the whole post before I start replying huh? So you're leaving that doc anyway? Whoohoo! I still think you should email Dr. P and show his reply to that doc. He needs to know he's been called on it by a smart parent. That's so great you have a traveling companion! Very cool! You won't be disappointed, that's for sure. Kori >Kindly, > >mom of Diego BCC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 , Thank you for sharing your story!!! Best wishes on your trip to Iowa. Please keep us posted as you're able. You and Diego will love Dr. P! It sounds like you need to print off the Global HELP booklet about the Ponseti method and share it with Dr. Vu! & (3-16-00, left clubfoot) > Hello, > > I am fairly new to the chat group and wanted to share my experience with you > about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow > Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast since before > he was 24 hours old and has had a tenotomy. He has been in the Markell boots > since 6/25/05. His feet look great but Dr. said that he has to wear the shoes > 23/7 for 3 years. He told me that when Diego begins to pull up and stand that > I can remove the bar so that he can crawl/walk but he has to remain in the > shoes for the 23 hours????? I asked him how closely he followed Ponseti's method > and he said very, but it just doesn't make sense?? Has anyone had a similiar > experience?? > > On a different note, I met a wonderful woman on this site who lives in Az and > has offered much support and a trip to see Dr. Ponseti. She will be taking > her 2 year old beautiful son who is in the shoes and has beautiful feet > and I will be taking my little Diego to get Dr. Ponseti to work his magic. > Thank you to all who write and support us all, I feel so blessed to be part of > this support group! > > Kindly, > > mom of Diego BCC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 , Thank you for sharing your story!!! Best wishes on your trip to Iowa. Please keep us posted as you're able. You and Diego will love Dr. P! It sounds like you need to print off the Global HELP booklet about the Ponseti method and share it with Dr. Vu! & (3-16-00, left clubfoot) > Hello, > > I am fairly new to the chat group and wanted to share my experience with you > about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow > Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast since before > he was 24 hours old and has had a tenotomy. He has been in the Markell boots > since 6/25/05. His feet look great but Dr. said that he has to wear the shoes > 23/7 for 3 years. He told me that when Diego begins to pull up and stand that > I can remove the bar so that he can crawl/walk but he has to remain in the > shoes for the 23 hours????? I asked him how closely he followed Ponseti's method > and he said very, but it just doesn't make sense?? Has anyone had a similiar > experience?? > > On a different note, I met a wonderful woman on this site who lives in Az and > has offered much support and a trip to see Dr. Ponseti. She will be taking > her 2 year old beautiful son who is in the shoes and has beautiful feet > and I will be taking my little Diego to get Dr. Ponseti to work his magic. > Thank you to all who write and support us all, I feel so blessed to be part of > this support group! > > Kindly, > > mom of Diego BCC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 Hi , Just a thought - there is a Ponseti certified doctor here in Tucson, AZ. Have you tried contacting him? I spoke with him on the phone and based on the conversation, he follows the Ponseti method correctly. > Hello, > > I am fairly new to the chat group and wanted to share my experience with you > about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow > Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast since before > he was 24 hours old and has had a tenotomy. He has been in the Markell boots > since 6/25/05. His feet look great but Dr. said that he has to wear the shoes > 23/7 for 3 years. He told me that when Diego begins to pull up and stand that > I can remove the bar so that he can crawl/walk but he has to remain in the > shoes for the 23 hours????? I asked him how closely he followed Ponseti's method > and he said very, but it just doesn't make sense?? Has anyone had a similiar > experience?? > > On a different note, I met a wonderful woman on this site who lives in Az and > has offered much support and a trip to see Dr. Ponseti. She will be taking > her 2 year old beautiful son who is in the shoes and has beautiful feet > and I will be taking my little Diego to get Dr. Ponseti to work his magic. > Thank you to all who write and support us all, I feel so blessed to be part of > this support group! > > Kindly, > > mom of Diego BCC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 Hi , Just a thought - there is a Ponseti certified doctor here in Tucson, AZ. Have you tried contacting him? I spoke with him on the phone and based on the conversation, he follows the Ponseti method correctly. > Hello, > > I am fairly new to the chat group and wanted to share my experience with you > about our ortho visit. His name is Dr. Vu here in Phx and he claims to follow > Ponseti's method. My son Diego was born 3/24/05 w/bc. He was cast since before > he was 24 hours old and has had a tenotomy. He has been in the Markell boots > since 6/25/05. His feet look great but Dr. said that he has to wear the shoes > 23/7 for 3 years. He told me that when Diego begins to pull up and stand that > I can remove the bar so that he can crawl/walk but he has to remain in the > shoes for the 23 hours????? I asked him how closely he followed Ponseti's method > and he said very, but it just doesn't make sense?? Has anyone had a similiar > experience?? > > On a different note, I met a wonderful woman on this site who lives in Az and > has offered much support and a trip to see Dr. Ponseti. She will be taking > her 2 year old beautiful son who is in the shoes and has beautiful feet > and I will be taking my little Diego to get Dr. Ponseti to work his magic. > Thank you to all who write and support us all, I feel so blessed to be part of > this support group! > > Kindly, > > mom of Diego BCC > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Thank you! I wil be contacting him Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Thank you! I wil be contacting him Quote Link to comment Share on other sites More sharing options...
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