Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 thanks for your note. I am glad to hear other kids react to it too. They will give Benadryl and hdrocortisone next week before the infusion. Also, the infusion will be on a lower flow rate. How long does the infusion take for your kids? And after how many treatments do think it got easier on them? best regards, rosy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 How long does the infusion take for your kids? And after how many treatments > do think it got easier on them? > > best regards, > rosy rosy, two of my kids stopped reacting after just a few doses, the other girl still reacts butt o a much lesser degree. With her it took years to find a combo of pre meds that helped..we have quite the ritual of pre meds right now that are helping tremendously. remember also there are alot of different brands of IVIG and sometimes it takes finding the right brand also, they all differ enough to cause different reactions , just like any drug. my girl that reacts gets her infusion over 8 hours, the other two over three. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 How long does the infusion take for your kids? And after how many treatments > do think it got easier on them? > > best regards, > rosy rosy, two of my kids stopped reacting after just a few doses, the other girl still reacts butt o a much lesser degree. With her it took years to find a combo of pre meds that helped..we have quite the ritual of pre meds right now that are helping tremendously. remember also there are alot of different brands of IVIG and sometimes it takes finding the right brand also, they all differ enough to cause different reactions , just like any drug. my girl that reacts gets her infusion over 8 hours, the other two over three. Quote Link to comment Share on other sites More sharing options...
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