Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Rose I will be sure to mention the Focalin to Dr Lower on Thursday when I get my next treatment. They add some junk to the Cytoxan but I am assuming you take tablets?Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Rose, Can you add this to the LINK library. Thanks, Tracie PS. I have terrible chemobrain for about 3 days following my Remicade. Noises, ceiling fans spinning, lights, 's voice-- all make me want to choke something. I also get the leg weakness, but it resolves after a couple of days. Neuro thinks that it's that the drug is effecting the area of the brain that is screwed up with sarc-- and once it settles down, then I can balance out to less pain and more clear thinking until a week prior to the next infusion. (Which is next week, so monitor me guys--LOL!) See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Yeah, , I take capsules, one a day. I started out on 10mg for about a week without noticing any change, then increased to 20mg & could tell a difference within a few days. I've been on the 20mg XR for about 2 months now. I haven't had any side effects that I can tell. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: "chemobrain"Date: Tue, 11 Sep 2007 12:38:53 -0700 (PDT) Rose I will be sure to mention the Focalin to Dr Lower on Thursday when I get my next treatment. They add some junk to the Cytoxan but I am assuming you take tablets?Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic (AT) yahoo (DOT) com Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Get a FREE small business Web site and more from Microsoft® Office Live! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 After the Cytoxan my balance is even worse. I stagger & wheel around like a drunk. I also sometimes get bad headaches. It feels like somebody with huge hands is squeezing my skull. And of course the memory is way worse. I can get pretty grumpy & fly off the handle. Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 After the Cytoxan my balance is even worse. I stagger & wheel around like a drunk. I also sometimes get bad headaches. It feels like somebody with huge hands is squeezing my skull. And of course the memory is way worse. I can get pretty grumpy & fly off the handle. Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Sure thing, Tracie. I didn't even think of that! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: "chemobrain"Date: Wed, 12 Sep 2007 00:34:59 EDT Rose, Can you add this to the LINK library. Thanks, Tracie PS. I have terrible chemobrain for about 3 days following my Remicade. Noises, ceiling fans spinning, lights, 's voice-- all make me want to choke something. I also get the leg weakness, but it resolves after a couple of days. Neuro thinks that it's that the drug is effecting the area of the brain that is screwed up with sarc-- and once it settles down, then I can balance out to less pain and more clear thinking until a week prior to the next infusion. (Which is next week, so monitor me guys--LOL!) See what's new at AOL.com and Make AOL Your Homepage. Test your celebrity IQ. Play Red Carpet Reveal and earn great prizes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Sure thing, Tracie. I didn't even think of that! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: "chemobrain"Date: Wed, 12 Sep 2007 00:34:59 EDT Rose, Can you add this to the LINK library. Thanks, Tracie PS. I have terrible chemobrain for about 3 days following my Remicade. Noises, ceiling fans spinning, lights, 's voice-- all make me want to choke something. I also get the leg weakness, but it resolves after a couple of days. Neuro thinks that it's that the drug is effecting the area of the brain that is screwed up with sarc-- and once it settles down, then I can balance out to less pain and more clear thinking until a week prior to the next infusion. (Which is next week, so monitor me guys--LOL!) See what's new at AOL.com and Make AOL Your Homepage. Test your celebrity IQ. Play Red Carpet Reveal and earn great prizes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Done, dude! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: "chemobrain"Date: Wed, 12 Sep 2007 00:34:59 EDT Rose, Can you add this to the LINK library. Thanks, Tracie PS. I have terrible chemobrain for about 3 days following my Remicade. Noises, ceiling fans spinning, lights, 's voice-- all make me want to choke something. I also get the leg weakness, but it resolves after a couple of days. Neuro thinks that it's that the drug is effecting the area of the brain that is screwed up with sarc-- and once it settles down, then I can balance out to less pain and more clear thinking until a week prior to the next infusion. (Which is next week, so monitor me guys--LOL!) See what's new at AOL.com and Make AOL Your Homepage. Discover sweet stuff waiting for you at the Messenger Cafe. Claim your treat today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2007 Report Share Posted September 12, 2007 Done, dude! Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: "chemobrain"Date: Wed, 12 Sep 2007 00:34:59 EDT Rose, Can you add this to the LINK library. Thanks, Tracie PS. I have terrible chemobrain for about 3 days following my Remicade. Noises, ceiling fans spinning, lights, 's voice-- all make me want to choke something. I also get the leg weakness, but it resolves after a couple of days. Neuro thinks that it's that the drug is effecting the area of the brain that is screwed up with sarc-- and once it settles down, then I can balance out to less pain and more clear thinking until a week prior to the next infusion. (Which is next week, so monitor me guys--LOL!) See what's new at AOL.com and Make AOL Your Homepage. Discover sweet stuff waiting for you at the Messenger Cafe. Claim your treat today! Quote Link to comment Share on other sites More sharing options...
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