Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 > hello, I am just starting carnaware for my two sons....was wondering > if anyone with experience with this could comment on dosage...i am > giving one a day but wondering if that is enough....my kids are pretty > big. (one is 9 yrs old and weighs 80 lbs and the other is 11 yrs old > and weighs about 120lbs). Also, did you see results quickly with > carnaware and were they the results you were expecting? I used carnosine plus zinc [not Carnaware brand, but same ingredients]. It did seem to cause a slight increase in receptive language, but nothing else. I think I remember giving 500mg carnosine per day. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 I have heard that " too much, too soon " caused undesirable results. A very low starting dose was most effective, and then adding slowly to get the maximum benefit. Carnitine releases energy from the cellular level (so they are stating) and if there is too much energy released, we see things like OCD, stimming, stuttering in verbal kids, and hyperactivity. If you start very low and see if a. this is the right supp for your child, and b. what the correct dosage will be... I think you will have better success. I have heard wonderful things about Carnaware/Carnitine. A. whatmattersmost@...> wrote: Thanks Anne. Carnaware will remain in its bottle. : ) > > > > > > P.S. Some are also using Carnaware (carnosine). I've ordered this, > but > > haven't tried it yet. > > > > http://www.drstordy.com/ezinedec01.html > > > Be careful with the Carnaware. Some parents have reported increased > OCD behaviors with carnosine, the main ingredient in Carnaware. You > can check the onibasu archives on this. When I got my son's hair > tested for the first time, copper was off the charts high. I think > it was because I had been using Carnaware. Just a thought. FWIW, > the copper came down nicely with molybdenum (per Andy) and has stayed > in good range since then. I am pretty sure it was the carnosine. > > Anne > --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 I researched this also and some kids were helped. Other kids, per reports on onibasu did get some pretty significant OCD symptoms that lasted for awhile, a month, long time. I would use this with caution in a child who was predisposed to OCD issues. Re: [ ] Re: Carnaware I have heard that " too much, too soon " caused undesirable results. A very low starting dose was most effective, and then adding slowly to get the maximum benefit. Carnitine releases energy from the cellular level (so they are stating) and if there is too much energy released, we see things like OCD, stimming, stuttering in verbal kids, and hyperactivity. If you start very low and see if a. this is the right supp for your child, and b. what the correct dosage will be... I think you will have better success. I have heard wonderful things about Carnaware/Carnitine. A. whatmattersmost@...> wrote: Thanks Anne. Carnaware will remain in its bottle. : ) > > > > > > P.S. Some are also using Carnaware (carnosine). I've ordered this, > but > > haven't tried it yet. > > > > http://www.drstordy.com/ezinedec01.html > > > Be careful with the Carnaware. Some parents have reported increased > OCD behaviors with carnosine, the main ingredient in Carnaware. You > can check the onibasu archives on this. When I got my son's hair > tested for the first time, copper was off the charts high. I think > it was because I had been using Carnaware. Just a thought. FWIW, > the copper came down nicely with molybdenum (per Andy) and has stayed > in good range since then. I am pretty sure it was the carnosine. > > Anne > --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 We are currently dealing with OCD big time so I'll tread with caution. Unlike in the past, we can redirect our daughter. So for now, I won't use it. Thanks Everyone! Orelindel > > > > > > > > > P.S. Some are also using Carnaware (carnosine). I've ordered this, > > but > > > haven't tried it yet. > > > > > > http://www.drstordy.com/ezinedec01.html > > > > > > Be careful with the Carnaware. Some parents have reported increased > > OCD behaviors with carnosine, the main ingredient in Carnaware. You > > can check the onibasu archives on this. When I got my son's hair > > tested for the first time, copper was off the charts high. I think > > it was because I had been using Carnaware. Just a thought. FWIW, > > the copper came down nicely with molybdenum (per Andy) and has stayed > > in good range since then. I am pretty sure it was the carnosine. > > > > Anne > > > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 OCD could also be yeast, are you using a yeast protocol? We had a child (9 YO) with severe OCD, mom was using Luvox. Significant yeast was proven, she's been able to reduce the meds significantly but not remove, after treating the yeast. Just a thought...... A. orelindel <whatmattersmost@...> wrote: We are currently dealing with OCD big time so I'll tread with caution. Unlike in the past, we can redirect our daughter. So for now, I won't use it. Thanks Everyone! Orelindel > > > > > > > > > P.S. Some are also using Carnaware (carnosine). I've ordered this, > > but > > > haven't tried it yet. > > > > > > http://www.drstordy.com/ezinedec01.html > > > > > > Be careful with the Carnaware. Some parents have reported increased > > OCD behaviors with carnosine, the main ingredient in Carnaware. You > > can check the onibasu archives on this. When I got my son's hair > > tested for the first time, copper was off the charts high. I think > > it was because I had been using Carnaware. Just a thought. FWIW, > > the copper came down nicely with molybdenum (per Andy) and has stayed > > in good range since then. I am pretty sure it was the carnosine. > > > > Anne > > > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 > I have heard that " too much, too soon " caused undesirable results. A very low starting dose was most effective, and then adding slowly to get the maximum benefit. Carnitine releases energy from the cellular level (so they are stating) and if there is too much energy released, we see things like OCD, stimming, stuttering in verbal kids, and hyperactivity. If you start very low and see if a. this is the right supp for your child, and b. what the correct dosage will be... I think you will have better success. I have heard wonderful things about Carnaware/Carnitine. Carnaware is carnosine. This is not the same as carnitine. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 How does one know the child needs this? I worry about this as my kids eat little meat yet the labs came back normal. What do responders get out of it? Anne Devlin Hoag wrote: > Thinking about starting my son on Carnaware-- > have any of you tried this and had success ? > > What dosage should I give ?? > Is Carnaware the best brand or have you found something better? > > Thanks! > > Annie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Carnware is the only such product on the market ..there are no other competitive brands. It is pricey but I feel that it is well worth it. I found that this supplement helped mind son focus & gave him clarity. Prior to giving him this capsule, he was kind of in a fog....and almost seemed like he was autistic. I empty out the tasteless powder in his fruit daily. At this time I just give it to him once a day. But I did start out with 2x a day. " Anne Devlin Hoag " <annedevlinhoag@g To mail.com> Sent by: cc childrensapraxian et@... Subject m [ ] Carnaware 09/20/2007 12:46 AM Please respond to childrensapraxian et@... m Thinking about starting my son on Carnaware-- have any of you tried this and had success ? What dosage should I give ?? Is Carnaware the best brand or have you found something better? Thanks! Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 we used Carnaware for, total, about a year (on and off). I agree, it helped Josh focus but then it would level off and I'd stop for awhile. It is pricey but, I again agree, it's worth it. Sherry and Josh myra.bauza@... wrote: Carnware is the only such product on the market ..there are no other competitive brands. It is pricey but I feel that it is well worth it. I found that this supplement helped mind son focus & gave him clarity. Prior to giving him this capsule, he was kind of in a fog....and almost seemed like he was autistic. I empty out the tasteless powder in his fruit daily. At this time I just give it to him once a day. But I did start out with 2x a day. " Anne Devlin Hoag " <annedevlinhoag@g To mail.com> Sent by: cc childrensapraxian et@... Subject m [ ] Carnaware 09/20/2007 12:46 AM Please respond to childrensapraxian et@... m Thinking about starting my son on Carnaware-- have any of you tried this and had success ? What dosage should I give ?? Is Carnaware the best brand or have you found something better? Thanks! Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 I haven't tried the other supplements separately. The Carnaware has a distinct combination of those supplements along with Vitamin E. I much rather give my son 1 (capsule) than 3; that may or may not be of the same quality or dosage. It's just a personal preference. The carnaware website also had good testimonials and I really believe in reading other people's opinions and then making my own. " Gene and Aggie Birocco " <birocco@...> To Sent by: < @... childrensapraxian m> et@... cc m Subject Re: [ ] Carnaware 09/20/2007 10:33 AM Please respond to childrensapraxian et@... m So you don't think Zinc and Carnosine is as good? Aggie Re: [ ] Carnaware Carnware is the only such product on the market ..there are no other competitive brands. It is pricey but I feel that it is well worth it. I found that this supplement helped mind son focus & gave him clarity. Prior to giving him this capsule, he was kind of in a fog....and almost seemed like he was autistic. I empty out the tasteless powder in his fruit daily. At this time I just give it to him once a day. But I did start out with 2x a day. " Anne Devlin Hoag " <annedevlinhoag@g To mail.com> Sent by: cc childrensapraxian et@... Subject m [ ] Carnaware 09/20/2007 12:46 AM Please respond to childrensapraxian et@... m Thinking about starting my son on Carnaware-- have any of you tried this and had success ? What dosage should I give ?? Is Carnaware the best brand or have you found something better? Thanks! Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Be sure to give it some time before reviewing the Carnware. Do a good test of Liam " Before " & Liam " After " . Don't make any other changes to his repetoire. And let us know. I know that it has helped for my son. But Apraxia is a very individualized disorder and what works for some doesn't necessarily work for others. Also, consider: EFA's, EPA's & High Gamma Tocopherol Vitamin E.. I give my son all of these in combination with Speech Therapy both at school & privately. " rainydev " <annedevlinhoag@g mail.com> To Sent by: childrensapraxian cc et@... m Subject [ ] Re: Carnaware 09/20/2007 10:55 AM Please respond to childrensapraxian et@... m Thanks all. I just ordered Liam some Carnaware. I am kind of peeved I never had a doctor recommend this. I know they are not into alternative at all .. but sheesh. My family is vegetarian, and all of our doctors know that. I do remind them of this frequently. I looked up the deficiency of the main ingredient of Carnaware on wikipedia and it says vegetarians are often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning that!! Ugg, I am starting to feel that mainstream doctors are completely useless. Seriously, they never give me any advice now that I can't get on the computer. So fed up with mainstream docs. I wish DAN docs would be covered by insurance, because that is what I really want for my son to be tested, find his deficiencies, food sensitivities etc. But his regular doc won't test for that. They are sending him to an allergist, hopefully we get a true reading. American mainstream Doctors are really failing parents of autism and other neurodevelopmental disorders. Ok there is my rant of the day, lol. On the optimistic side! Can't wait to get Carnaware and hoping it will help Liam! Will let you all know the positive results, let us hope. ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 How long did you do the 2x a day? And why the change? Illinois Re: [childrensapraxiane t] Carnaware Carnware is the only such product on the market ..there are no other competitive brands. It is pricey but I feel that it is well worth it. I found that this supplement helped mind son focus & gave him clarity. Prior to giving him this capsule, he was kind of in a fog....and almost seemed like he was autistic. I empty out the tasteless powder in his fruit daily. At this time I just give it to him once a day. But I did start out with 2x a day. " Anne Devlin Hoag " <annedevlinhoag@ g To mail.com> @groups. com Sent by: cc childrensapraxian etgroups (DOT) co Subject m [childrensapraxiane t] Carnaware 09/20/2007 12:46 AM Please respond to childrensapraxian etgroups (DOT) co m Thinking about starting my son on Carnaware-- have any of you tried this and had success ? What dosage should I give ?? Is Carnaware the best brand or have you found something better? Thanks! Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 I did the 2x a day for about 2yrs..from the age of 3 to 5....and since I found him improving in all aspects of his development, I lessened the dosage. I have taken him off it for a couple months and my husband insists that I buy it again and keep him on it at least 1x a day. It's not a fix all, but it helped him focus, stay on task, want to engage in activities...befoer that he would play laying on the floor lining up his toys and have them go back & forth... Humphreys <csljh2000 (DOT) com> To Sent by: childrensapraxian cc et@... m Subject Re: [ ] Carnaware 09/20/2007 02:45 PM Please respond to childrensapraxian et@... m How long did you do the 2x a day? And why the change? Illinois Re: [childrensapraxiane t] Carnaware Carnware is the only such product on the market ..there are no other competitive brands. It is pricey but I feel that it is well worth it. I found that this supplement helped mind son focus & gave him clarity. Prior to giving him this capsule, he was kind of in a fog....and almost seemed like he was autistic. I empty out the tasteless powder in his fruit daily. At this time I just give it to him once a day. But I did start out with 2x a day. " Anne Devlin Hoag " <annedevlinhoag@ g To mail.com> @groups. com Sent by: cc childrensapraxian etgroups (DOT) co Subject m [childrensapraxiane t] Carnaware 09/20/2007 12:46 AM Please respond to childrensapraxian etgroups (DOT) co m Thinking about starting my son on Carnaware-- have any of you tried this and had success ? What dosage should I give ?? Is Carnaware the best brand or have you found something better? Thanks! Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Hi - Before you start taking a carnitine supplement you really should have a simple blood test done to determine whether or not your child is carnitine deficient, and if so, to what extent. Carnitine deficiency is a potentially a very very serious thing. It can even cause sudden heart failure. Likewise, supplementing when not necessary is potentially unhealthy. Supplementing a child who has a certain type of metabolic disorder could cause serious heart problems. If your child really does need carnitine then you should absolutely have the doctor prescribe levocarnitine and monitor your child's blood levels. Over the counter is just not good enough when it comes to a real deficiency. You need medical help and supervision. We know all of this because we are in the middle of metabolic testing right now that was begun because our son was carnitine deficient and our doctors took it very seriously. We are seeing very positive results on prescription levocarnitine. The amount is calibrated to the amount of his deficiency. Web MD (e medicine) has a great article about carnitine deficiency and the efficacy of supplementation. Anyone who is seeing very positive results with carnitine should also think about seeing a metabolic specialist. Carnitine deficiency can be secondary to many other things like fatty acid oxidation disorders. Finally, anyone who has a child with carnitine deficiency please have an echocardiogram done. It often presents as cardiomyopathy. Best of luck. Nadine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Carnaware has L-Carnosine NOT carnitine. I believe that they are two very different supplements. " nadine_silber " <nadine_silber@ya hoo.com> To Sent by: childrensapraxian cc et@... m Subject [ ] Re: Carnaware 09/21/2007 09:32 AM Please respond to childrensapraxian et@... m Hi - Before you start taking a carnitine supplement you really should have a simple blood test done to determine whether or not your child is carnitine deficient, and if so, to what extent. Carnitine deficiency is a potentially a very very serious thing. It can even cause sudden heart failure. Likewise, supplementing when not necessary is potentially unhealthy. Supplementing a child who has a certain type of metabolic disorder could cause serious heart problems. If your child really does need carnitine then you should absolutely have the doctor prescribe levocarnitine and monitor your child's blood levels. Over the counter is just not good enough when it comes to a real deficiency. You need medical help and supervision. We know all of this because we are in the middle of metabolic testing right now that was begun because our son was carnitine deficient and our doctors took it very seriously. We are seeing very positive results on prescription levocarnitine. The amount is calibrated to the amount of his deficiency. Web MD (e medicine) has a great article about carnitine deficiency and the efficacy of supplementation. Anyone who is seeing very positive results with carnitine should also think about seeing a metabolic specialist. Carnitine deficiency can be secondary to many other things like fatty acid oxidation disorders. Finally, anyone who has a child with carnitine deficiency please have an echocardiogram done. It often presents as cardiomyopathy. Best of luck. Nadine ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Yes, indeed. Josh's ped neuro did a more advanced MRI (not the fMRI but some other one that I can't recall the initials for, sorry) to see if there was the L-carnitine deficiency in the brain. He also ran blood tests. Yes, an L-carnitine deficiency could indeed lead to serious consequences - heart and, if I recall correctly from my research at that time, kidney. Fortunately, Josh did not have it. Sherry and Josh nadine_silber <nadine_silber@...> wrote: Hi - Before you start taking a carnitine supplement you really should have a simple blood test done to determine whether or not your child is carnitine deficient, and if so, to what extent. Carnitine deficiency is a potentially a very very serious thing. It can even cause sudden heart failure. Likewise, supplementing when not necessary is potentially unhealthy. Supplementing a child who has a certain type of metabolic disorder could cause serious heart problems. If your child really does need carnitine then you should absolutely have the doctor prescribe levocarnitine and monitor your child's blood levels. Over the counter is just not good enough when it comes to a real deficiency. You need medical help and supervision. We know all of this because we are in the middle of metabolic testing right now that was begun because our son was carnitine deficient and our doctors took it very seriously. We are seeing very positive results on prescription levocarnitine. The amount is calibrated to the amount of his deficiency. Web MD (e medicine) has a great article about carnitine deficiency and the efficacy of supplementation. Anyone who is seeing very positive results with carnitine should also think about seeing a metabolic specialist. Carnitine deficiency can be secondary to many other things like fatty acid oxidation disorders. Finally, anyone who has a child with carnitine deficiency please have an echocardiogram done. It often presents as cardiomyopathy. Best of luck. Nadine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 I myself am in medical school and I have had to take 3 nutrition classes. I feel that we cover the area well. I am not of course going to be a nutritionist but, I have a decent understanding of why these issues are important. I will admit that it is likely that not every school takes a focus on this but you are required to have at least a semester of it. [ ] Re: Carnaware Unfortunately, the majority of funding for medical schools comes from pharmaceutical companies. Docs (in the U.S. anyway) are given about 20 minutes of nutrition education - or so I've been told by doctors who realize the absurdity. We have doctors in here; I am sure they know.... I'm betting your doc has very little clue as to what you need to know as a vegetarian. > > Thanks all. > > I just ordered Liam some Carnaware. I am kind of peeved I never had a > doctor recommend this. I know they are not into alternative at all .. > but sheesh. My family is vegetarian, and all of our doctors know that. > I do remind them of this frequently. I looked up the deficiency of the > main ingredient of Carnaware on wikipedia and it says vegetarians are > often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning > that!! Ugg, I am starting to feel that mainstream doctors are > completely useless. Seriously, they never give me any advice now that > I can't get on the computer. So fed up with mainstream docs. I wish > DAN docs would be covered by insurance, because that is what I really > want for my son to be tested, find his deficiencies, food > sensitivities etc. But his regular doc won't test for that. They are > sending him to an allergist, hopefully we get a true reading. > > American mainstream Doctors are really failing parents of autism and > other neurodevelopmental disorders. > > Ok there is my rant of the day, lol. > > On the optimistic side! Can't wait to get Carnaware and hoping it will > help Liam! Will let you all know the positive results, let us hope. > ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Thanks ! Not to just jump in after been MIA for the past few months but ...The irony of saying that American mainstream doctors are really failing parents of autistic and other neurodevelopmental disordered children is that carn-aware was created by an American mainstream doctor -a pediatric neurologist. We all know it's not right to be prejudice or place blame against an entire group of medical professionals ...or mothers! (remember when the table was turned?) " history of autism blame...regrigerator mothers " http://www.pbs.org/pov/pov2002/refrigeratormothers/aboutautism.html And about carn-aware from a few years ago: http://www.speech-express.com/alternative-therapy/carnosine.html http://www.cherab.org/information/dietaryeffects/carnosine.html Only went mainstream MD and my two are mainstreamed and great today! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 I would love to know your school. I swear with the docs we have seen we'd have been better off with a vet telling us about nutrition and I am serious. So sad. Glad that your experience differs though...a service to you and your future patients! Humphreys wrote: > I myself am in medical school and I have had to take 3 nutrition > classes. I feel that we cover the area well. I am not of course going > to be a nutritionist but, I have a decent understanding of why these > issues are important. I will admit that it is likely that not every > school takes a focus on this but you are required to have at least a > semester of it. > > > > [ ] Re: Carnaware > > Unfortunately, the majority of funding for medical schools comes from > pharmaceutical companies. Docs (in the U.S. anyway) are given about > 20 minutes of nutrition education - or so I've been told by doctors > who realize the absurdity. We have doctors in here; I am sure they > know.... I'm betting your doc has very little clue as to what you > need to know as a vegetarian. > > > > > > Thanks all. > > > > I just ordered Liam some Carnaware. I am kind of peeved I never had a > > doctor recommend this. I know they are not into alternative at all .. > > but sheesh. My family is vegetarian, and all of our doctors know that. > > I do remind them of this frequently. I looked up the deficiency of the > > main ingredient of Carnaware on wikipedia and it says vegetarians are > > often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning > > that!! Ugg, I am starting to feel that mainstream doctors are > > completely useless. Seriously, they never give me any advice now that > > I can't get on the computer. So fed up with mainstream docs. I wish > > DAN docs would be covered by insurance, because that is what I really > > want for my son to be tested, find his deficiencies, food > > sensitivities etc. But his regular doc won't test for that. They are > > sending him to an allergist, hopefully we get a true reading. > > > > American mainstream Doctors are really failing parents of autism and > > other neurodevelopmental disorders. > > > > Ok there is my rant of the day, lol. > > > > On the optimistic side! Can't wait to get Carnaware and hoping it will > > help Liam! Will let you all know the positive results, let us hope. > > > > __________________________________________________________ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > <http://mobile./mobileweb/onesearch?refer=1ONXIC> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 [ ] Re: Carnaware Thanks ! Not to just jump in after been MIA for the past few months but ...The irony of saying that American mainstream doctors are really failing parents of autistic and other neurodevelopmental disordered children is that carn-aware was created by an American mainstream doctor -a pediatric neurologist. We all know it's not right to be prejudice or place blame against an entire group of medical professionals ...or mothers! (remember when the table was turned?) " history of autism blame...regrigerato r mothers " http://www.pbs. org/pov/pov2002/ refrigeratormoth ers/aboutautism. html And about carn-aware from a few years ago: http://www.speech- express.com/ alternative- therapy/carnosin e.html http://www.cherab. org/information/ dietaryeffects/ carnosine. html Only went mainstream MD and my two are mainstreamed and great today! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 [childrensapraxiane t] Re: Carnaware > > Unfortunately, the majority of funding for medical schools comes from > pharmaceutical companies. Docs (in the U.S. anyway) are given about > 20 minutes of nutrition education - or so I've been told by doctors > who realize the absurdity. We have doctors in here; I am sure they > know.... I'm betting your doc has very little clue as to what you > need to know as a vegetarian. > > > > > > Thanks all. > > > > I just ordered Liam some Carnaware. I am kind of peeved I never had a > > doctor recommend this. I know they are not into alternative at all .. > > but sheesh. My family is vegetarian, and all of our doctors know that. > > I do remind them of this frequently. I looked up the deficiency of the > > main ingredient of Carnaware on wikipedia and it says vegetarians are > > often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning > > that!! Ugg, I am starting to feel that mainstream doctors are > > completely useless. Seriously, they never give me any advice now that > > I can't get on the computer. So fed up with mainstream docs. I wish > > DAN docs would be covered by insurance, because that is what I really > > want for my son to be tested, find his deficiencies, food > > sensitivities etc. But his regular doc won't test for that. They are > > sending him to an allergist, hopefully we get a true reading. > > > > American mainstream Doctors are really failing parents of autism and > > other neurodevelopmental disorders. > > > > Ok there is my rant of the day, lol. > > > > On the optimistic side! Can't wait to get Carnaware and hoping it will > > help Liam! Will let you all know the positive results, let us hope. > > > > ____________ _________ _________ _________ _________ _________ _ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile. / mobileweb/ onesearch? refer=1ONXIC > <http://mobile. / mobileweb/ onesearch? refer=1ONXIC> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 [childrensapraxiane t] Re: Carnaware Unfortunately, the majority of funding for medical schools comes from pharmaceutical companies. Docs (in the U.S. anyway) are given about 20 minutes of nutrition education - or so I've been told by doctors who realize the absurdity. We have doctors in here; I am sure they know.... I'm betting your doc has very little clue as to what you need to know as a vegetarian. > > Thanks all. > > I just ordered Liam some Carnaware. I am kind of peeved I never had a > doctor recommend this. I know they are not into alternative at all .. > but sheesh. My family is vegetarian, and all of our doctors know that. > I do remind them of this frequently. I looked up the deficiency of the > main ingredient of Carnaware on wikipedia and it says vegetarians are > often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning > that!! Ugg, I am starting to feel that mainstream doctors are > completely useless. Seriously, they never give me any advice now that > I can't get on the computer. So fed up with mainstream docs. I wish > DAN docs would be covered by insurance, because that is what I really > want for my son to be tested, find his deficiencies, food > sensitivities etc. But his regular doc won't test for that. They are > sending him to an allergist, hopefully we get a true reading. > > American mainstream Doctors are really failing parents of autism and > other neurodevelopmental disorders. > > Ok there is my rant of the day, lol. > > On the optimistic side! Can't wait to get Carnaware and hoping it will > help Liam! Will let you all know the positive results, let us hope. > ____________ _________ _________ _________ _________ _________ _ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile. / mobileweb/ onesearch? refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 > > > Carnaware has L-Carnosine NOT carnitine. I believe that they are two very > different supplements. Hey, thanks for that helpful info. You are right. I checked back, and I guess I had just mistyped.. " Typical vegetarian diets are thought to be lacking in carnosine, but whether this has a detrimental effect on vegetarians is controversial. " I accidentally put carnitine instead of carnosine. I was looking at carnitine defieciency too around the same time. Still anxiously waiting for the Carnaware to arrive. We have had great sucess with ProEfa and ProEpa supplementation. Someone else recommended that I have his doctor test for the defieciency.. it is a great idea, but I don't think I will be able to get his doc to do that. He wouldn't even test him for Vitamin E deficiency!! Which is part of the reason why I am frustrated with docs right now .. there is so much information here, and elsewhere, that I think wow, if we could find out some of this info about Liam, then maybe I can help him more. Like find out if he has deficiencies, GI issues, etc. But the docs won't order the tests. Of course I know there are wonderful mainstream docs out there.. but recently I have been jaded by my tearful experiences with some of the bad ones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 I totally understand. I hope you see improvement! I've given most of my supplements without discussing it with my drs....The only ones the developmental pediatrician recommended was the ProEFA & the ProEPA's... " rainydev " <annedevlinhoag@g mail.com> To Sent by: childrensapraxian cc et@... m Subject [ ] Re: Carnaware 09/24/2007 06:54 PM Please respond to childrensapraxian et@... m > > > Carnaware has L-Carnosine NOT carnitine. I believe that they are two very > different supplements. Hey, thanks for that helpful info. You are right. I checked back, and I guess I had just mistyped.. " Typical vegetarian diets are thought to be lacking in carnosine, but whether this has a detrimental effect on vegetarians is controversial. " I accidentally put carnitine instead of carnosine. I was looking at carnitine defieciency too around the same time. Still anxiously waiting for the Carnaware to arrive. We have had great sucess with ProEfa and ProEpa supplementation. Someone else recommended that I have his doctor test for the defieciency.. it is a great idea, but I don't think I will be able to get his doc to do that. He wouldn't even test him for Vitamin E deficiency!! Which is part of the reason why I am frustrated with docs right now .. there is so much information here, and elsewhere, that I think wow, if we could find out some of this info about Liam, then maybe I can help him more. Like find out if he has deficiencies, GI issues, etc. But the docs won't order the tests. Of course I know there are wonderful mainstream docs out there.. but recently I have been jaded by my tearful experiences with some of the bad ones. ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Actually, vitamin E sounds more basic to us, but the doctors seem to be more willing to test for carnitine. We had no problem getting carnitine testing done by our regular pediatrician, who has another patient with a deficiency, but vitamin E testing got a blank stare. He did say that deficiency is rare, for what that is worth. in NJ > > > > > > Carnaware has L-Carnosine NOT carnitine. I believe that they are two > very > > different supplements. > > > Hey, thanks for that helpful info. You are right. I checked back, and > I guess I had just mistyped.. > > " Typical vegetarian diets are thought to be lacking in carnosine, but > whether this has a detrimental effect on vegetarians is controversial. " > > I accidentally put carnitine instead of carnosine. I was looking at > carnitine defieciency too around the same time. > Still anxiously waiting for the Carnaware to arrive. We have had great > sucess with ProEfa and ProEpa supplementation. > > Someone else recommended that I have his doctor test for the > defieciency.. it is a great idea, but I don't think I will be able to > get his doc to do that. He wouldn't even test him for Vitamin E > deficiency!! Which is part of the reason why I am frustrated with docs > right now .. there is so much information here, and elsewhere, that I > think wow, if we could find out some of this info about Liam, then > maybe I can help him more. Like find out if he has deficiencies, GI > issues, etc. But the docs won't order the tests. Of course I know > there are wonderful mainstream docs out there.. but recently I have > been jaded by my tearful experiences with some of the bad ones. > Quote Link to comment Share on other sites More sharing options...
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