Re: I'm about to chop into the PM's!

[Guest guest]

What size sandal is she wearing? If possible, please send either or me a

photo of her sore. We will do absolutely everything possible to remedy the

situation.

todd

" the cobbler "

frogabog wrote:

I'm about fed up. Darbi has a sore on her heel. Her non-CF heel. I

*think* perhaps she got a blister in the first couple of weeks she wore

them. I didn't really notice but mom said she noticed it before she put

her shoes on the weekend the kids were all gone. So that would mean I put

them on too loose. It was loose skin on her heel, looked like a popped

blister to mom. No fluid just skin. Mom mentioned it to me a few days

after I'd got them home and I said yes, I saw it too. Of course it was

more of a sore then and I didn't even think to ask what it looked like to

mom till this afternoon. So now I have the info that it was a

blister. I'd thought she put them on too loose that weekend but it now

looks like it was me and I totally missed it. I have been trying to heal

it ever since. Nothing I do helps other than not wearing the shoes. Every

time I put them back on no matter how tight I make them or what I put over

it to cushion it... it's worse the next morning and she cries in the middle

of the night and says owie. I have taken them off at night I don't know

how many times because I know it's hurting and I can't do anything about

it. Same last night, I took them off at about 4am so her and I could

sleep. She tried, but kept waking up. When I looked at her foot this

morning it was again red and angry and even bigger. It was almost healed

yesterday (like I haven't seen that before...) and I made it worse again

last night. She's so not happy with these shoes! That must be why she

never liked them in the first place. I am thinking it was me, but it could

be partially a problem with the shoe itself. The left one is the one that

the tongue slips out all the time and it doesn't line up properly like the

other shoe does. Something's weird either with the fit of her left foot or

the shoe has something wrong but it really does not fit like the other one

does at all.

Today I marked on a bandaid where the sore was with a crayola marker and

stuck her foot into the shoe to see where it's hitting. I will take pics

tonight. I gotta go right now. But it's the part where the bottom of the

leather in the back pushes into the heel area. Right above the thicker

part of the insole at the heel. Basically the exact place she got a sore

from her first pair of Markell's. But a bit to the side inside the shoe.

So I'm about to chop out that back area but I worry the edge will make

things worse. I suppose I should call and get his input before I

start chopping them up. She's not going to wear them tonight. I may even

put her back in her Markell's. If that doesn't work I might just chop out

the heel in those since I know they will hold up. Any ideas? I've done

all the things I could think of short of making a heel hole already, I feel

lost with this now...

Kori

[Guest guest]

What size sandal is she wearing? If possible, please send either or me a

photo of her sore. We will do absolutely everything possible to remedy the

situation.

todd

" the cobbler "

frogabog wrote:

I'm about fed up. Darbi has a sore on her heel. Her non-CF heel. I

*think* perhaps she got a blister in the first couple of weeks she wore

them. I didn't really notice but mom said she noticed it before she put

her shoes on the weekend the kids were all gone. So that would mean I put

them on too loose. It was loose skin on her heel, looked like a popped

blister to mom. No fluid just skin. Mom mentioned it to me a few days

after I'd got them home and I said yes, I saw it too. Of course it was

more of a sore then and I didn't even think to ask what it looked like to

mom till this afternoon. So now I have the info that it was a

blister. I'd thought she put them on too loose that weekend but it now

looks like it was me and I totally missed it. I have been trying to heal

it ever since. Nothing I do helps other than not wearing the shoes. Every

time I put them back on no matter how tight I make them or what I put over

it to cushion it... it's worse the next morning and she cries in the middle

of the night and says owie. I have taken them off at night I don't know

how many times because I know it's hurting and I can't do anything about

it. Same last night, I took them off at about 4am so her and I could

sleep. She tried, but kept waking up. When I looked at her foot this

morning it was again red and angry and even bigger. It was almost healed

yesterday (like I haven't seen that before...) and I made it worse again

last night. She's so not happy with these shoes! That must be why she

never liked them in the first place. I am thinking it was me, but it could

be partially a problem with the shoe itself. The left one is the one that

the tongue slips out all the time and it doesn't line up properly like the

other shoe does. Something's weird either with the fit of her left foot or

the shoe has something wrong but it really does not fit like the other one

does at all.

Today I marked on a bandaid where the sore was with a crayola marker and

stuck her foot into the shoe to see where it's hitting. I will take pics

tonight. I gotta go right now. But it's the part where the bottom of the

leather in the back pushes into the heel area. Right above the thicker

part of the insole at the heel. Basically the exact place she got a sore

from her first pair of Markell's. But a bit to the side inside the shoe.

So I'm about to chop out that back area but I worry the edge will make

things worse. I suppose I should call and get his input before I

start chopping them up. She's not going to wear them tonight. I may even

put her back in her Markell's. If that doesn't work I might just chop out

the heel in those since I know they will hold up. Any ideas? I've done

all the things I could think of short of making a heel hole already, I feel

lost with this now...

Kori

[Guest guest]

Hey Todd!

So glad you're here. I need to put the kids to bed right now but since

you're online right now I wanted to let you know that I will take pics of

her foot right now before I put her to bed and also the inside of the shoe

where the mark showed up on. She's in probably your largest ones yet

made. She wears a size 5-1/2 or 6 in regular shoes and just got these

about 2 months ago. They are the ones you sent to Portland Shriners, the

first pair seen here.

I will email you photos here as soon as I can. Tonight for sure. But a

bit later because I can't right now.

Thanks for posting and maybe you want to join our CFPics list where we can

send attachments by email to the group. I dont have the url handy right

now but just go to yahoo and search for CFPics, it'll come up. Let me know

who you are in the comments section when you subscribe and I'll approve you

without the survey filled out. Make sure your settings are for individual

emails if you want to see these baby feet. Be aware, we send pics of faces

too. Not high traffic.

Kori

Merek

ick

At 06:39 PM 8/3/2005, you wrote:

>What size sandal is she wearing? If possible, please send either or

>me a photo of her sore. We will do absolutely everything possible to

>remedy the situation.

>

>

>todd

>

> " the cobbler "

>

>frogabog wrote:

>I'm about fed up. Darbi has a sore on her heel. Her non-CF heel. I

>*think* perhaps she got a blister in the first couple of weeks she wore

>them. I didn't really notice but mom said she noticed it before she put

>her shoes on the weekend the kids were all gone. So that would mean I put

>them on too loose. It was loose skin on her heel, looked like a popped

>blister to mom. No fluid just skin. Mom mentioned it to me a few days

>after I'd got them home and I said yes, I saw it too. Of course it was

>more of a sore then and I didn't even think to ask what it looked like to

>mom till this afternoon. So now I have the info that it was a

>blister. I'd thought she put them on too loose that weekend but it now

>looks like it was me and I totally missed it. I have been trying to heal

>it ever since. Nothing I do helps other than not wearing the shoes. Every

>time I put them back on no matter how tight I make them or what I put over

>it to cushion it... it's worse the next morning and she cries in the middle

>of the night and says owie. I have taken them off at night I don't know

>how many times because I know it's hurting and I can't do anything about

>it. Same last night, I took them off at about 4am so her and I could

>sleep. She tried, but kept waking up. When I looked at her foot this

>morning it was again red and angry and even bigger. It was almost healed

>yesterday (like I haven't seen that before...) and I made it worse again

>last night. She's so not happy with these shoes! That must be why she

>never liked them in the first place. I am thinking it was me, but it could

>be partially a problem with the shoe itself. The left one is the one that

>the tongue slips out all the time and it doesn't line up properly like the

>other shoe does. Something's weird either with the fit of her left foot or

>the shoe has something wrong but it really does not fit like the other one

>does at all.

>

>Today I marked on a bandaid where the sore was with a crayola marker and

>stuck her foot into the shoe to see where it's hitting. I will take pics

>tonight. I gotta go right now. But it's the part where the bottom of the

>leather in the back pushes into the heel area. Right above the thicker

>part of the insole at the heel. Basically the exact place she got a sore

>from her first pair of Markell's. But a bit to the side inside the shoe.

>

>So I'm about to chop out that back area but I worry the edge will make

>things worse. I suppose I should call and get his input before I

>start chopping them up. She's not going to wear them tonight. I may even

>put her back in her Markell's. If that doesn't work I might just chop out

>the heel in those since I know they will hold up. Any ideas? I've done

>all the things I could think of short of making a heel hole already, I feel

>lost with this now...

>

>Kori

>

>

>

>

[Guest guest]

Hey Todd!

So glad you're here. I need to put the kids to bed right now but since

you're online right now I wanted to let you know that I will take pics of

her foot right now before I put her to bed and also the inside of the shoe

where the mark showed up on. She's in probably your largest ones yet

made. She wears a size 5-1/2 or 6 in regular shoes and just got these

about 2 months ago. They are the ones you sent to Portland Shriners, the

first pair seen here.

I will email you photos here as soon as I can. Tonight for sure. But a

bit later because I can't right now.

Thanks for posting and maybe you want to join our CFPics list where we can

send attachments by email to the group. I dont have the url handy right

now but just go to yahoo and search for CFPics, it'll come up. Let me know

who you are in the comments section when you subscribe and I'll approve you

without the survey filled out. Make sure your settings are for individual

emails if you want to see these baby feet. Be aware, we send pics of faces

too. Not high traffic.

Kori

Merek

ick

At 06:39 PM 8/3/2005, you wrote:

>What size sandal is she wearing? If possible, please send either or

>me a photo of her sore. We will do absolutely everything possible to

>remedy the situation.

>

>

>todd

>

> " the cobbler "

>

>frogabog wrote:

>I'm about fed up. Darbi has a sore on her heel. Her non-CF heel. I

>*think* perhaps she got a blister in the first couple of weeks she wore

>them. I didn't really notice but mom said she noticed it before she put

>her shoes on the weekend the kids were all gone. So that would mean I put

>them on too loose. It was loose skin on her heel, looked like a popped

>blister to mom. No fluid just skin. Mom mentioned it to me a few days

>after I'd got them home and I said yes, I saw it too. Of course it was

>more of a sore then and I didn't even think to ask what it looked like to

>mom till this afternoon. So now I have the info that it was a

>blister. I'd thought she put them on too loose that weekend but it now

>looks like it was me and I totally missed it. I have been trying to heal

>it ever since. Nothing I do helps other than not wearing the shoes. Every

>time I put them back on no matter how tight I make them or what I put over

>it to cushion it... it's worse the next morning and she cries in the middle

>of the night and says owie. I have taken them off at night I don't know

>how many times because I know it's hurting and I can't do anything about

>it. Same last night, I took them off at about 4am so her and I could

>sleep. She tried, but kept waking up. When I looked at her foot this

>morning it was again red and angry and even bigger. It was almost healed

>yesterday (like I haven't seen that before...) and I made it worse again

>last night. She's so not happy with these shoes! That must be why she

>never liked them in the first place. I am thinking it was me, but it could

>be partially a problem with the shoe itself. The left one is the one that

>the tongue slips out all the time and it doesn't line up properly like the

>other shoe does. Something's weird either with the fit of her left foot or

>the shoe has something wrong but it really does not fit like the other one

>does at all.

>

>Today I marked on a bandaid where the sore was with a crayola marker and

>stuck her foot into the shoe to see where it's hitting. I will take pics

>tonight. I gotta go right now. But it's the part where the bottom of the

>leather in the back pushes into the heel area. Right above the thicker

>part of the insole at the heel. Basically the exact place she got a sore

>from her first pair of Markell's. But a bit to the side inside the shoe.

>

>So I'm about to chop out that back area but I worry the edge will make

>things worse. I suppose I should call and get his input before I

>start chopping them up. She's not going to wear them tonight. I may even

>put her back in her Markell's. If that doesn't work I might just chop out

>the heel in those since I know they will hold up. Any ideas? I've done

>all the things I could think of short of making a heel hole already, I feel

>lost with this now...

>

>Kori

>

>

>

>

[Guest guest]

Kori,

Call now!!! I'm getting a new pair of P/M's today that he is sending

overnight because 's heels never healed! Remember it was like a month

ago got her blisters and they continued to get worse. She has a hole

in her heel like 1/8 " deep that is raw and she cries everynight, but I was

too afraid to take the shoes off. Finally, the other day, I called

and asked him if he had any ideas why this was happening. I sent him

pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

he is trying to make them feel better not worse. He was so upset about

what was going on with . He also brainstormed with Dr. Ponseti to see

if they could figure out what the problem was. I personally think the back

rubber part that goes up the calf leans in too far and creates a bump where

it starts to taper (if that makes sense). Even though the inside is

smooth, if you pinch the inside and outside back together you can feel a

little bump. I am getting the new pair today. He said he thinks he knows

what is going on and plans to fix it. I sent him pictures of her heels,

the shoes by themselves, especially close up of the heel area, and in

them. If you are having the same problem, call ASAP. He will want to

know about it and fix it. I am at home today if you want to call me for

more details. I left a lot out so this didn't turn into a novel.

.

Good luck!

[Guest guest]

Kori,

Call now!!! I'm getting a new pair of P/M's today that he is sending

overnight because 's heels never healed! Remember it was like a month

ago got her blisters and they continued to get worse. She has a hole

in her heel like 1/8 " deep that is raw and she cries everynight, but I was

too afraid to take the shoes off. Finally, the other day, I called

and asked him if he had any ideas why this was happening. I sent him

pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

he is trying to make them feel better not worse. He was so upset about

what was going on with . He also brainstormed with Dr. Ponseti to see

if they could figure out what the problem was. I personally think the back

rubber part that goes up the calf leans in too far and creates a bump where

it starts to taper (if that makes sense). Even though the inside is

smooth, if you pinch the inside and outside back together you can feel a

little bump. I am getting the new pair today. He said he thinks he knows

what is going on and plans to fix it. I sent him pictures of her heels,

the shoes by themselves, especially close up of the heel area, and in

them. If you are having the same problem, call ASAP. He will want to

know about it and fix it. I am at home today if you want to call me for

more details. I left a lot out so this didn't turn into a novel.

.

Good luck!

[Guest guest]

At 04:13 AM 8/4/2005, you wrote:

>Kori,

>Call now!!! I'm getting a new pair of P/M's today that he is sending

>overnight because 's heels never healed! Remember it was like a month

>ago got her blisters and they continued to get worse. She has a hole

>in her heel like 1/8 " deep that is raw and she cries everynight, but I was

>too afraid to take the shoes off.

yep, I keep doing that too. But she asks for them off and cries... she's

old enough to say what she wants and what's wrong. She can tell me where

it's hurting. So I've been taking them off at night. I took them off night

before last and then put them back on in the am till about 1:30pm and of

course, the sore was worse again. Had another scab and then she picked it

off and it bled. ugh!

> Finally, the other day, I called

>and asked him if he had any ideas why this was happening. I sent him

>pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

>he is trying to make them feel better not worse. He was so upset about

>what was going on with . He also brainstormed with Dr. Ponseti to see

>if they could figure out what the problem was.

I took a ton of pics last night but the last 10 or so didn't even make it

onto the disk on the camera. I never should have bought those cheap

CD's... I was in the process of sending them to Todd when Darbi woke up

and needed her shoes off. So I had her go potty and then had to lie with

her and nurse so she'd go back to sleep. I fell asleep with her till about

3:30am when I got up to finish sending the email... and found the ones of

her left shoe where it shows how the top strap simply does not line up with

either the buckle or the tongue are gone... ugh!!

> I personally think the back

>rubber part that goes up the calf leans in too far and creates a bump where

>it starts to taper (if that makes sense).

Oh, you have no idea how much sense this makes. I think this too. Darbi's

got nicely formed heels and they just do not sit back into the pocket well

at all. I will send some of the pics to CFPics here in a bit. It is quite

the shelf or bump where it goes back in. She's not having issues with the

other foot but sometimes it does look a little red in the back. Then

again, she's got a scar the size of Texas there from her first sore and it

gets red easily anyway.

> Even though the inside is

>smooth, if you pinch the inside and outside back together you can feel a

>little bump. I am getting the new pair today. He said he thinks he knows

>what is going on and plans to fix it. I sent him pictures of her heels,

>the shoes by themselves, especially close up of the heel area, and in

>them. If you are having the same problem, call ASAP. He will want to

>know about it and fix it. I am at home today if you want to call me for

>more details. I left a lot out so this didn't turn into a novel.

I might just do that. And I did email Todd last night so they know what's

going on. I totally am not going to call Portland Shriners about this,

first off they'd have no idea what to do. And second... like I want them

to think there's anything wrong with the PM's in the first place!

For whatever it's worth, that bandaid with the Crayola marker on it did a

nice job of leaving a mark in her shoe so I could see what part was the

problem. I got the idea when my kids colored on some glove balloons (like

the hospitals give the kids) and everything in the house that the balloons

touched (including the floor and the kids) got ink all over. Perfect

impression tool lol!

Thanks , I was seriously hoping Sara had healed by now so I could have

some hope. Darbi is older, and I don't feel as uncomfortable leaving her

out of her shoes for part of a night or a night here and there but if she

was younger I probably would. However, the problem that I can see is that

with a sore like we're dealing with... any pressure in the sore area will

be a problem. That's what I ran into with the Markell's. Even when we

made the shoe as smooth and soft as it could possibly be... every time I

put them back on it just made the sore worse. It wasn't till we cut the

hole and let the sore dry out and heal with absolutely no pressure on it at

all that it finally healed. From the time she got her shoes and the sore

and when it was finally healed with some skin was 8 weeks! The first 3-4

was when I made and kept aggravating the sore. The next 4... healing. If

Sara's is THAT bad (poor little girl! That's what Darbi's was like and her

scar is larger than any tenotomy scar I've seen) it may not heal if she

goes back into the shoes. If you don't see some improvement in the next

few days on that sore with the new shoes you're going to have to do

something else. And I can't see anything working except removing the

entire back end of the insole if this is the case. Remember the sore I

told y'all about on the top of Darbi's foot where she fell? It's

better... but she STILL has a red mark where the sore was. Red enough

that it shows still about 2mo's later.

OK - I am going to send some pics to CFPics and then go in and try again to

take pictures of Darbi and her shoes to send to and Todd. And then

I'm going to call them, and then call you. And then I have to clean my

refrigerator!

Thanks for writing, it's too bad I waited this long to contact or speak up

on the list. I don't know why... probably because I expected so much more

from these shoes it was hard to admit there was a problem.

I'll go ahead and post my phone number here, hoping there aren't wackos out

there who will call me. In case anyone else out there wants to call

me. Well no, I'll post my cell phone # instead lol!

Kori

>.

>Good luck!

>

>

>

>

[Guest guest]

At 04:13 AM 8/4/2005, you wrote:

>Kori,

>Call now!!! I'm getting a new pair of P/M's today that he is sending

>overnight because 's heels never healed! Remember it was like a month

>ago got her blisters and they continued to get worse. She has a hole

>in her heel like 1/8 " deep that is raw and she cries everynight, but I was

>too afraid to take the shoes off.

yep, I keep doing that too. But she asks for them off and cries... she's

old enough to say what she wants and what's wrong. She can tell me where

it's hurting. So I've been taking them off at night. I took them off night

before last and then put them back on in the am till about 1:30pm and of

course, the sore was worse again. Had another scab and then she picked it

off and it bled. ugh!

> Finally, the other day, I called

>and asked him if he had any ideas why this was happening. I sent him

>pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

>he is trying to make them feel better not worse. He was so upset about

>what was going on with . He also brainstormed with Dr. Ponseti to see

>if they could figure out what the problem was.

I took a ton of pics last night but the last 10 or so didn't even make it

onto the disk on the camera. I never should have bought those cheap

CD's... I was in the process of sending them to Todd when Darbi woke up

and needed her shoes off. So I had her go potty and then had to lie with

her and nurse so she'd go back to sleep. I fell asleep with her till about

3:30am when I got up to finish sending the email... and found the ones of

her left shoe where it shows how the top strap simply does not line up with

either the buckle or the tongue are gone... ugh!!

> I personally think the back

>rubber part that goes up the calf leans in too far and creates a bump where

>it starts to taper (if that makes sense).

Oh, you have no idea how much sense this makes. I think this too. Darbi's

got nicely formed heels and they just do not sit back into the pocket well

at all. I will send some of the pics to CFPics here in a bit. It is quite

the shelf or bump where it goes back in. She's not having issues with the

other foot but sometimes it does look a little red in the back. Then

again, she's got a scar the size of Texas there from her first sore and it

gets red easily anyway.

> Even though the inside is

>smooth, if you pinch the inside and outside back together you can feel a

>little bump. I am getting the new pair today. He said he thinks he knows

>what is going on and plans to fix it. I sent him pictures of her heels,

>the shoes by themselves, especially close up of the heel area, and in

>them. If you are having the same problem, call ASAP. He will want to

>know about it and fix it. I am at home today if you want to call me for

>more details. I left a lot out so this didn't turn into a novel.

I might just do that. And I did email Todd last night so they know what's

going on. I totally am not going to call Portland Shriners about this,

first off they'd have no idea what to do. And second... like I want them

to think there's anything wrong with the PM's in the first place!

For whatever it's worth, that bandaid with the Crayola marker on it did a

nice job of leaving a mark in her shoe so I could see what part was the

problem. I got the idea when my kids colored on some glove balloons (like

the hospitals give the kids) and everything in the house that the balloons

touched (including the floor and the kids) got ink all over. Perfect

impression tool lol!

Thanks , I was seriously hoping Sara had healed by now so I could have

some hope. Darbi is older, and I don't feel as uncomfortable leaving her

out of her shoes for part of a night or a night here and there but if she

was younger I probably would. However, the problem that I can see is that

with a sore like we're dealing with... any pressure in the sore area will

be a problem. That's what I ran into with the Markell's. Even when we

made the shoe as smooth and soft as it could possibly be... every time I

put them back on it just made the sore worse. It wasn't till we cut the

hole and let the sore dry out and heal with absolutely no pressure on it at

all that it finally healed. From the time she got her shoes and the sore

and when it was finally healed with some skin was 8 weeks! The first 3-4

was when I made and kept aggravating the sore. The next 4... healing. If

Sara's is THAT bad (poor little girl! That's what Darbi's was like and her

scar is larger than any tenotomy scar I've seen) it may not heal if she

goes back into the shoes. If you don't see some improvement in the next

few days on that sore with the new shoes you're going to have to do

something else. And I can't see anything working except removing the

entire back end of the insole if this is the case. Remember the sore I

told y'all about on the top of Darbi's foot where she fell? It's

better... but she STILL has a red mark where the sore was. Red enough

that it shows still about 2mo's later.

OK - I am going to send some pics to CFPics and then go in and try again to

take pictures of Darbi and her shoes to send to and Todd. And then

I'm going to call them, and then call you. And then I have to clean my

refrigerator!

Thanks for writing, it's too bad I waited this long to contact or speak up

on the list. I don't know why... probably because I expected so much more

from these shoes it was hard to admit there was a problem.

I'll go ahead and post my phone number here, hoping there aren't wackos out

there who will call me. In case anyone else out there wants to call

me. Well no, I'll post my cell phone # instead lol!

Kori

>.

>Good luck!

>

>

>

>

[Guest guest]

Hey Kori, sorry your daughter is having such a hard time. I know that it has

something to do with the heel thing b/c well I never really noticed this until I

think it was that brought it up. also has a red spot on the back

of her heel that I noticed when brought this all up. But when all this

happened for some reason her left shoe tore in 2 places from the " rubbery thing "

so sent me a new one and what I noticed was that the old shoe (her right

one) she gets the red spot but on the new left shoe her foot is fine. So maybe

he did something different? Her spot gets red but has never turned into a

blister or got much worse than just being red but there must be somenthing going

on with this are b/c I looked at the pictures you put up and her red spot is in

the same spot as Darbi's but only on her right foot(the old shoe). Iwould love

to know what yuo all find out. Like I said her does not get worse than just

being red.

I noticed the shoes being different when i got one new shoe and had one old one.

I compared them and the tongue on the new shoe is alot bigger. And the straps

are wider also.The rubbery part that runs on the back heel looks the same but

for some reason the old shoe gives her a red spot. Who knows? It does not seem

to bother her so anything you all find out please pass along. Thanks,

michelle and samantha

bl cf 12/16/ 03

mitchells 14-16hrs

frogabog wrote:

At 04:13 AM 8/4/2005, you wrote:

>Kori,

>Call now!!! I'm getting a new pair of P/M's today that he is sending

>overnight because 's heels never healed! Remember it was like a month

>ago got her blisters and they continued to get worse. She has a hole

>in her heel like 1/8 " deep that is raw and she cries everynight, but I was

>too afraid to take the shoes off.

yep, I keep doing that too. But she asks for them off and cries... she's

old enough to say what she wants and what's wrong. She can tell me where

it's hurting. So I've been taking them off at night. I took them off night

before last and then put them back on in the am till about 1:30pm and of

course, the sore was worse again. Had another scab and then she picked it

off and it bled. ugh!

> Finally, the other day, I called

>and asked him if he had any ideas why this was happening. I sent him

>pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

>he is trying to make them feel better not worse. He was so upset about

>what was going on with . He also brainstormed with Dr. Ponseti to see

>if they could figure out what the problem was.

I took a ton of pics last night but the last 10 or so didn't even make it

onto the disk on the camera. I never should have bought those cheap

CD's... I was in the process of sending them to Todd when Darbi woke up

and needed her shoes off. So I had her go potty and then had to lie with

her and nurse so she'd go back to sleep. I fell asleep with her till about

3:30am when I got up to finish sending the email... and found the ones of

her left shoe where it shows how the top strap simply does not line up with

either the buckle or the tongue are gone... ugh!!

> I personally think the back

>rubber part that goes up the calf leans in too far and creates a bump where

>it starts to taper (if that makes sense).

Oh, you have no idea how much sense this makes. I think this too. Darbi's

got nicely formed heels and they just do not sit back into the pocket well

at all. I will send some of the pics to CFPics here in a bit. It is quite

the shelf or bump where it goes back in. She's not having issues with the

other foot but sometimes it does look a little red in the back. Then

again, she's got a scar the size of Texas there from her first sore and it

gets red easily anyway.

> Even though the inside is

>smooth, if you pinch the inside and outside back together you can feel a

>little bump. I am getting the new pair today. He said he thinks he knows

>what is going on and plans to fix it. I sent him pictures of her heels,

>the shoes by themselves, especially close up of the heel area, and in

>them. If you are having the same problem, call ASAP. He will want to

>know about it and fix it. I am at home today if you want to call me for

>more details. I left a lot out so this didn't turn into a novel.

I might just do that. And I did email Todd last night so they know what's

going on. I totally am not going to call Portland Shriners about this,

first off they'd have no idea what to do. And second... like I want them

to think there's anything wrong with the PM's in the first place!

For whatever it's worth, that bandaid with the Crayola marker on it did a

nice job of leaving a mark in her shoe so I could see what part was the

problem. I got the idea when my kids colored on some glove balloons (like

the hospitals give the kids) and everything in the house that the balloons

touched (including the floor and the kids) got ink all over. Perfect

impression tool lol!

Thanks , I was seriously hoping Sara had healed by now so I could have

some hope. Darbi is older, and I don't feel as uncomfortable leaving her

out of her shoes for part of a night or a night here and there but if she

was younger I probably would. However, the problem that I can see is that

with a sore like we're dealing with... any pressure in the sore area will

be a problem. That's what I ran into with the Markell's. Even when we

made the shoe as smooth and soft as it could possibly be... every time I

put them back on it just made the sore worse. It wasn't till we cut the

hole and let the sore dry out and heal with absolutely no pressure on it at

all that it finally healed. From the time she got her shoes and the sore

and when it was finally healed with some skin was 8 weeks! The first 3-4

was when I made and kept aggravating the sore. The next 4... healing. If

Sara's is THAT bad (poor little girl! That's what Darbi's was like and her

scar is larger than any tenotomy scar I've seen) it may not heal if she

goes back into the shoes. If you don't see some improvement in the next

few days on that sore with the new shoes you're going to have to do

something else. And I can't see anything working except removing the

entire back end of the insole if this is the case. Remember the sore I

told y'all about on the top of Darbi's foot where she fell? It's

better... but she STILL has a red mark where the sore was. Red enough

that it shows still about 2mo's later.

OK - I am going to send some pics to CFPics and then go in and try again to

take pictures of Darbi and her shoes to send to and Todd. And then

I'm going to call them, and then call you. And then I have to clean my

refrigerator!

Thanks for writing, it's too bad I waited this long to contact or speak up

on the list. I don't know why... probably because I expected so much more

from these shoes it was hard to admit there was a problem.

I'll go ahead and post my phone number here, hoping there aren't wackos out

there who will call me. In case anyone else out there wants to call

me. Well no, I'll post my cell phone # instead lol!

Kori

>.

>Good luck!

>

>

>

>

[Guest guest]

Hey Kori, sorry your daughter is having such a hard time. I know that it has

something to do with the heel thing b/c well I never really noticed this until I

think it was that brought it up. also has a red spot on the back

of her heel that I noticed when brought this all up. But when all this

happened for some reason her left shoe tore in 2 places from the " rubbery thing "

so sent me a new one and what I noticed was that the old shoe (her right

one) she gets the red spot but on the new left shoe her foot is fine. So maybe

he did something different? Her spot gets red but has never turned into a

blister or got much worse than just being red but there must be somenthing going

on with this are b/c I looked at the pictures you put up and her red spot is in

the same spot as Darbi's but only on her right foot(the old shoe). Iwould love

to know what yuo all find out. Like I said her does not get worse than just

being red.

I noticed the shoes being different when i got one new shoe and had one old one.

I compared them and the tongue on the new shoe is alot bigger. And the straps

are wider also.The rubbery part that runs on the back heel looks the same but

for some reason the old shoe gives her a red spot. Who knows? It does not seem

to bother her so anything you all find out please pass along. Thanks,

michelle and samantha

bl cf 12/16/ 03

mitchells 14-16hrs

frogabog wrote:

At 04:13 AM 8/4/2005, you wrote:

>Kori,

>Call now!!! I'm getting a new pair of P/M's today that he is sending

>overnight because 's heels never healed! Remember it was like a month

>ago got her blisters and they continued to get worse. She has a hole

>in her heel like 1/8 " deep that is raw and she cries everynight, but I was

>too afraid to take the shoes off.

yep, I keep doing that too. But she asks for them off and cries... she's

old enough to say what she wants and what's wrong. She can tell me where

it's hurting. So I've been taking them off at night. I took them off night

before last and then put them back on in the am till about 1:30pm and of

course, the sore was worse again. Had another scab and then she picked it

off and it bled. ugh!

> Finally, the other day, I called

>and asked him if he had any ideas why this was happening. I sent him

>pictures. He felt soooooooo bad. He is sooooo nice and caring. He said

>he is trying to make them feel better not worse. He was so upset about

>what was going on with . He also brainstormed with Dr. Ponseti to see

>if they could figure out what the problem was.

I took a ton of pics last night but the last 10 or so didn't even make it

onto the disk on the camera. I never should have bought those cheap

CD's... I was in the process of sending them to Todd when Darbi woke up

and needed her shoes off. So I had her go potty and then had to lie with

her and nurse so she'd go back to sleep. I fell asleep with her till about

3:30am when I got up to finish sending the email... and found the ones of

her left shoe where it shows how the top strap simply does not line up with

either the buckle or the tongue are gone... ugh!!

> I personally think the back

>rubber part that goes up the calf leans in too far and creates a bump where

>it starts to taper (if that makes sense).

Oh, you have no idea how much sense this makes. I think this too. Darbi's

got nicely formed heels and they just do not sit back into the pocket well

at all. I will send some of the pics to CFPics here in a bit. It is quite

the shelf or bump where it goes back in. She's not having issues with the

other foot but sometimes it does look a little red in the back. Then

again, she's got a scar the size of Texas there from her first sore and it

gets red easily anyway.

> Even though the inside is

>smooth, if you pinch the inside and outside back together you can feel a

>little bump. I am getting the new pair today. He said he thinks he knows

>what is going on and plans to fix it. I sent him pictures of her heels,

>the shoes by themselves, especially close up of the heel area, and in

>them. If you are having the same problem, call ASAP. He will want to

>know about it and fix it. I am at home today if you want to call me for

>more details. I left a lot out so this didn't turn into a novel.

I might just do that. And I did email Todd last night so they know what's

going on. I totally am not going to call Portland Shriners about this,

first off they'd have no idea what to do. And second... like I want them

to think there's anything wrong with the PM's in the first place!

For whatever it's worth, that bandaid with the Crayola marker on it did a

nice job of leaving a mark in her shoe so I could see what part was the

problem. I got the idea when my kids colored on some glove balloons (like

the hospitals give the kids) and everything in the house that the balloons

touched (including the floor and the kids) got ink all over. Perfect

impression tool lol!

Thanks , I was seriously hoping Sara had healed by now so I could have

some hope. Darbi is older, and I don't feel as uncomfortable leaving her

out of her shoes for part of a night or a night here and there but if she

was younger I probably would. However, the problem that I can see is that

with a sore like we're dealing with... any pressure in the sore area will

be a problem. That's what I ran into with the Markell's. Even when we

made the shoe as smooth and soft as it could possibly be... every time I

put them back on it just made the sore worse. It wasn't till we cut the

hole and let the sore dry out and heal with absolutely no pressure on it at

all that it finally healed. From the time she got her shoes and the sore

and when it was finally healed with some skin was 8 weeks! The first 3-4

was when I made and kept aggravating the sore. The next 4... healing. If

Sara's is THAT bad (poor little girl! That's what Darbi's was like and her

scar is larger than any tenotomy scar I've seen) it may not heal if she

goes back into the shoes. If you don't see some improvement in the next

few days on that sore with the new shoes you're going to have to do

something else. And I can't see anything working except removing the

entire back end of the insole if this is the case. Remember the sore I

told y'all about on the top of Darbi's foot where she fell? It's

better... but she STILL has a red mark where the sore was. Red enough

that it shows still about 2mo's later.

OK - I am going to send some pics to CFPics and then go in and try again to

take pictures of Darbi and her shoes to send to and Todd. And then

I'm going to call them, and then call you. And then I have to clean my

refrigerator!

Thanks for writing, it's too bad I waited this long to contact or speak up

on the list. I don't know why... probably because I expected so much more

from these shoes it was hard to admit there was a problem.

I'll go ahead and post my phone number here, hoping there aren't wackos out

there who will call me. In case anyone else out there wants to call

me. Well no, I'll post my cell phone # instead lol!

Kori

>.

>Good luck!

>

>

>

>

[Guest guest]

Kori,

Okay, I was waiting for your phone call all day! LOL, just kidding! I got

the new P/M's and he did change the back and I truly think they are going

to be better. I too held off complaining (again) about the sores because I

didn't want to be bothersome over a blister, especially since I already

complained about it to the list a month ago. Anyhoo, so far is

sleeping, not a peep! They feel like there is no bump and it is hard for

me to explain how they are different. They look identical, but somehow in

the back where the problem was, it isn't as overlapped as much (this is

making no sense).

It is amazing how a little minor thing can create such havoc. I am sending

her old pair back so he can compare and see what I was talking about.

is so nice, he sent a note with the new shoes apologizing again for

's heels. I feel guilty complaining about it. I don't know why. I'm

sure there are other more serious problems is facing right now.

Although, this was pretty bad, I still feel guilty, probably because he is

so nice and cares.

I hope Darbi's situation gets fixed really quick too.

By the way, who is Todd?

[Guest guest]

I'm so sorry ! I picked up the phone twice to call and all hell

broke loose with the kids and I never did even get to call him. Now it'll

be too late. Get this... Darbi asked for her shoes tonight. So I put them

on. Every time I put them on it gets nasty again. And yes, there is a

hole/scab in the middle.

I should have called him, I might have new shoes by Monday if I had. Oh

well, I'll make sure to call tomorrow. And also try to call you! I feel

really bad about that!

Will let y'all know what he says tomorrow.

Thanks for making me call. The news about Sara's shoes working so well now

really gives me hope.

Kori

At 06:58 PM 8/4/2005, you wrote:

>Kori,

>Okay, I was waiting for your phone call all day! LOL, just kidding! I got

>the new P/M's and he did change the back and I truly think they are going

>to be better. I too held off complaining (again) about the sores because I

>didn't want to be bothersome over a blister, especially since I already

>complained about it to the list a month ago. Anyhoo, so far is

>sleeping, not a peep! They feel like there is no bump and it is hard for

>me to explain how they are different. They look identical, but somehow in

>the back where the problem was, it isn't as overlapped as much (this is

>making no sense).

>It is amazing how a little minor thing can create such havoc. I am sending

> her old pair back so he can compare and see what I was talking about.

> is so nice, he sent a note with the new shoes apologizing again for

>'s heels. I feel guilty complaining about it. I don't know why. I'm

>sure there are other more serious problems is facing right now.

>Although, this was pretty bad, I still feel guilty, probably because he is

>so nice and cares.

>

>I hope Darbi's situation gets fixed really quick too.

>

>By the way, who is Todd?

>

>

>

>